Do neonatologists limit parental decision-making authority? A Canadian perspective

Early Human Development

Volumn 86, Issue 12, 2010, Pages 801-805

  Albersheim, Susan G ^a   Lavoie, Pascal M ^a   Keidar, Yaron D ^a  

^a UNIVERSITY OF BRITISH COLUMBIA   (Canada)

Author keywords

Decision making; Extremely low birth weight; Parental authority; Threshold of viability

Indexed keywords

ARTICLE; AUTHORITY; BRAIN INJURY; CANADA; DATA ANALYSIS; DEATH; DECISION MAKING; HEALTH PERSONNEL ATTITUDE; HUMAN; INTERVIEW; LIFE; OPEN ENDED QUESTIONNAIRE; SURVIVAL;

ADULT; AGED; ATTITUDE OF HEALTH PERSONNEL; CANADA; FEMALE; GESTATIONAL AGE; HUMANS; INFANT, NEWBORN; INFANT, NEWBORN, DISEASES; INFANT, PREMATURE; INFORMED CONSENT; INTENSIVE CARE, NEONATAL; MALE; MIDDLE AGED; NEONATOLOGY; PARENTS; PATIENT PREFERENCE; PRACTICE GUIDELINES AS TOPIC;

EID: 78649711223     PISSN: 03783782     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.earlhumdev.2010.09.007     Document Type: Article

References (42)

1. Synnes A.R., Buchanan L., Ruth C., Albersheim S. Management of the newborn delivered at the threshold of viability. BCMJ 2008, 50(9):498-508.
2. Albersheim S. Ethical considerations at the threshold of viability. BCMJ 2008, 50(9):509-511.
3. Guyer R.L. Baby at Risk: The Uncertain Legacies of Medical Miracles for Babies, Families, and Society 2006, Capital Books Inc, Herndon, Virginia.
4. Beauchamp T.L., Childress J.F. Principles of Biomedical Ethics 2001, 102-3,155. Oxford University Press, New York. 5th edition.
5. Weiss A.R., Binns H.J., Collins J.W., et al. Decision-making in the delivery room: a survey of neonatologists. J Perinatol 2007, 27:754-760.
6. Committee on Fetus and Newborn Non-initiation or withdrawal of intensive care for high-risk newborns. Pediatrics 2007, 119:401-403.
7. Mercurio M.R. Parental authority, patient's best interest and refusal of resuscitation at borderline gestational age. J Perinatol 2006, 26:452-457.
8. Anspach R.R. Producing assent-parents, professionals, and life-and-death decisions. Deciding Who Lives: Fateful Choices in the Intensive Care Nursery 1993, 85-126. University of California Press, Berkley.
9. Albersheim S.A. Matters of Life and Death in the Neonatal Intensive Care Unit: Decision-Making for the Not-Yet-Competent. PhD Thesis University of British Columbia, 2004: 301-6, 325-31.
10. Management of the woman with threatened birth of an infant of extremely low gestational age. CMAJ 1994, 151(5):547-553. Fetus and Newborn Committee, Canadian Paediatric SocietyCanadian Paediatric Society, Maternal-Fetal Medicine CommitteeMaternal-Fetal Medicine Committee, Society of Obstetricians, Gynaecologists of CanadaSociety of Obstetricians, Gynaecologists of Canada.
11. MacDonald H. Perinatal care at the threshold of viability. Pediatrics 2002, 110(5):1024-1027. Committee on Fetus and Newborn.
12. Guidelines for the management of fetuses delivering on the margins of viability (22-26weeks) July 2000, British Association of Perinatal Medicine.
13. Nuffield Counsel of Bioethics. Critical Care Decisions in Fetal and Neonatal Medicine: Ethical Issues. Available at: 2006. http://www.nuffieldbioethics.org/go/ourwork/neonatal/publication_406.html.
14. Lui K., Bajuk B., Foster K., Gaston A., et al. Perinatal care at the borderline of viability: a consensus statement based on a NSW and ACT consensus workshop. MJA 2006, 185(9):495-500.
15. Treatment decisions regarding infants, children, and adolescents. Paediatr Child Health 2004, 2:99-103. Bioethics Committee, Canadian Paediatric SocietyCanadian Paediatric Society.
16. Moore K.A.C., Coker K., DuBuisson A.B., et al. Implementing potentially better practices for improving family-centered care in neonatal intensive care units: successes and challenges. Pediatrics 2003, 111(4):e450-e460.
17. Sneiderman B., Irvine J.C., Osborne P.H. Canadian Medical Law 1995, 42-44. Carswell Legal Publications, Toronto, 487-500. 2nd edition.
18. Papile L.A., Burstein J., Burstein R., Koffler H. Incidence and evolution of subependymal and intraventricular hemorrhage: a study of infants with birth weight less than 1,500gm. J Pediatr 1978, 92(4):529-534.
19. Annas G.J. Extremely preterm birth and parental authority to refuse treatment-the case of Sidney Miller. N Engl J Med 2004, 351:2118-2122.
20. Paris J.J., Schreiber M.D., Elias-Jones A. Resuscitation of the preterm infant against parental wishes. Arch Dis Child 2005, 90:F208-F210.
21. Boyle R.J., Salter R., Arnander M.W. Ethics of refusing parental requests to withhold or withdraw treatment from their premature baby. J Med Ethics 2004, 30:402-405.
22. Thorne S. Interpretive Description 2008, 73-104. Left Coast Press Inc, Walnut Creek, California.
23. Lavoie P.M., Keidar Y., Albersheim S. Attitudes of Canadian neonatologists in delivery room resuscitation of newborns at the threshold of viability. JOGC 2007, 29(9):719-725.
24. Landis J.R., Koch G.G. The measurement of observer agreement for categorical data. Biometrics 1977, 33(1):159-174.
25. Peter N.G., Forke C.M., Ginsburg K.R., Schwarz D.F. Transition from pediatric to adult care: internists' perspectives. Pediatrics 2009, 123(2):417-423.
26. Catlin A.J. Physicians' neonatal resuscitation of extremely low-birth-weight preterm infants. J Nurs Scholarsh 1999, 31(3):269-275.
27. Rhodes R., Holzman I. Surrogate decision making: a case for boundaries. The Variables of Moral Capacity 2004, 173-185. Kluwer Academic Press, Boston. D.C. Thomasma, D.N. Westubb (Eds.).
28. Diekema D.S. Parental refusals of medical treatment: the harm principle as threshold for state intervention. Theor Med 2004, 25(4):243-264.
29. Bellieni C.V., Buonocore G. Flaws in the assessment of the best interests of the newborn. Acta Paediatr 2009, 98:613-617.
30. Kipnis K. Harm and uncertainty in newborn intensive care. Theor Med Bioeth 2007, 28:393-412.
31. Peerzada J.M., Richardson D.K., Burn J.P. Delivery room decision-making at the threshold of viability. J Pediatr 2004, 145:492-498.
32. Singh J., Fanaroff J., Andrew B., et al. Resuscitation in the "gray zone" of viability: determining physician preferences and predicting infant outcomes. Pediatrics 2007, 120:519-526.
33. Schmidt B., Asztalos E.V., Roberts R.S., et al. Impact of bronchopulmonary dysplasia, brain injury, and severe retinopathy on the outcome of extremely low-birth-weight infants at 18months: results from the trial of indomethacin prophylaxis in preterms. JAMA 2003, 289(9):1124-1129.
34. Janvier A., Leblanc I., Barrington K.J. Nobody likes premies: the relative value of patients' lives. J Perinatol 2008, 28:821-826.
35. Janvier A., Bauer K.L., Lantos J.D. Are newborns morally different from older children?. Theor Med Bioeth 2007, 28:413-425.
36. Walsh M.C., Morris B.H., Wrage L.A., et al. Extremely low birthweight neonates with protracted ventilation: mortality and 18-month neurodevelopmental outcomes. J Pediatr 2005, 146(6):798-804.
37. Rhoden N.K. Treating Baby Doe: the ethics of uncertainty. Hastings Cent Rep 1986, 34-42.
38. Coughlin K.W., Hernandez L., Richardson B.S., da Silva O.P. Life and death decisions in the extremely preterm infant: what happens in a level III perinatal centre?. Paediatr Child Health 2007, 12(7):557-562.
39. King N.M.P. Transparency in neonatal intensive care. Hastings Cent Rep 1992, 62:18-25.
40. Rebagliato M., Cuttini M., Broggin L., et al. Neonatal end-of-life decision making: physicians' attitudes and relationship with self-reported practices in 10 European countries. JAMA 2000, 284(19):2451-2459.
41. Bastek T.K., Richardson D.K., Zupancic J.A.F., et al. Prenatal consultation practices at the border of viability: a regional survey. Pediatrics 2005, 116(2):407-413.
42. Janvier A., Barrington K., Deschenes M.M., et al. Relationship between site of training and residents' attitudes about neonatal resuscitation. Arch Pediatr Adolesc Med 2008, 162(6):532-537.