Life and death decisions in the extremely preterm infant: What happens in a level III perinatal centre?

Paediatrics and Child Health

Volumn 12, Issue 7, 2007, Pages 557-562

  Coughlin, Kevin W ^a,b   Hernandez, Lizbeth ^a   Richardson, Bryan S ^a   Da Silva, Orlando P ^a  

^a UNIVERSITY OF WESTERN ONTARIO   (Canada)

^b ST JOSEPH S HEALTH CENTRE   (Canada)

Author keywords

End of life care and medical ethics; Extreme prematurity; Survival; Therapy withdrawal

Indexed keywords

ARTICLE; GESTATIONAL AGE; HUMAN; MAJOR CLINICAL STUDY; MEDICAL DECISION MAKING; MEDICAL DOCUMENTATION; NEWBORN; NEWBORN DEATH; NEWBORN INTENSIVE CARE; PARENT; PREMATURITY; RELIGION; RESUSCITATION; RETROSPECTIVE STUDY; STILLBIRTH; TREATMENT WITHDRAWAL;

EID: 35948929743     PISSN: 12057088     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Article

References (28)

1. Ferrara TB, Hoekstra RE, Couser RJ, et al. Survival and follow-up of infants born at 23 to 26 weeks of gestational age: Effects of surfactant therapy. J Pediatr 1994;124:119-24.
2. Kilpatrick SJ, Schlueter MA, Piecuch R, Leonard CH, Rogido M, Sola A. Outcome of infants born at 24-26 weeks' gestation: I. Survival and cost. Obstet Gynecol 1997;90:803-8.
3. Jones HP, Karuri S, Cronin CM, et al; Canadian Neonatal Network. Actuarial survival of a large Canadian cohort of preterm infants. BMC Pediatr 2005;5:40.
4. Paul DA, Leef KH, Locke RG, Bartoshesky L, Walrath J, Stefano JL. Increasing illness severity in very low birth weight infants over a 9-year period. BMC Pediatr 2006;6:2.
5. Kilpatrick SJ, Schlueter MA, Piecuch R, Leonard CH, Rogido M, Sola A. Outcome of infants born at 24-26 weeks' gestation: I. Survival and cost. Obstet Gynecol 1997;90:803-8.
6. Hack M, Taylor HG, Klein N, Eiben R, Schatschneider C, Mercuri-Minich N. School-age outcomes in children with birth weights under 750 g. N Engl J Med 1994;331:753-9.
7. Costeloe K, Hennessy E, Gibson AT, Marlow N, Wilkinson AR. The EPICure study: Outcomes to discharge from hospital for infants born at the threshold of viability. Pediatrics 2000;106:659-71.
8. Wood NS, Marlow N, Costeloe K, Gibson AT, Wilkinson AR. Neurologic and developmental disability after extremely preterm birth. EPICure Study Group. N Engl J Med 2000;343:378-84.
9. Allen MC, Donohue PK, Dusman AE. The limit of viability - neonatal outcome of infants born at 22 to 25 weeks' gestation. N Engl J Med 1993;329:1597-601.
10. Ling E, Battin M, Whitefield M. Has the 18-month outcome for extremely low gestational age (ELGA) infants of 23-25 weeks gestation improved? Pediatr Res 1996;39:271. (Abst)
11. Emsley HC, Wardle SP, Sims DG, Chiswick ML, D'Souza SW. Increased survival and deteriorating developmental outcome in 23 to 25 week old gestation infants, 1990-4 compared with 1984-9. Arch Dis Child Fetal Neonatal Ed 1998;78:F99-104.
12. Cole FS. Extremely preterm birth - defining the limits of hope. N Engl J Med 2000;343:429-30.
13. Schmidt B, Asztalos EV, Roberts RS, Robertson CM, Sauve RS, Whitfield MF; Trial of Indomethacin Prophylaxis in Preterms (TIPP) Investigators. Impact of bronchopulmonary dysplasia, brain injury, and severe retinopathy on the outcome of extremely low-birth-weight infants at 18 months: Results from the trial of indomethacin prophylaxis in preterms. JAMA 2003;289:1124-9.
14. Sauer PJ. Ethical decisions in neonatal intensive care units: The Dutch experience. Pediatrics 1992;9:729-32.
15. Lantos JD, Tyson JE, Allen A, et al. Withholding and withdrawing life sustaining treatment in neonatal intensive care: Issues for the 1990s. Arch Dis Child Fetal Neonatal Ed 1994;71:F218-23.
16. Byrne PJ, Tyebkhan JM, Laing LM. Ethical decision-making and neonatal resuscitation. Semin Perinatol 1994;18:36-41.
17. Ryan CA, Byrne P, Kuhn S, Tyebkhan J. No resuscitation and withdrawal of therapy in a neonatal and pediatric intensive care unit in Canada. J Pediatr 1993;123:534-8.
18. Hellmann J, O'Brien K, McAllister K, et al. End-of-life decision-making in the NICU: A prospective study of physician's perspectives. Paediatr Child Health 2002;7:49A. (Abst)
19. de Leeuw R, Cuttini M, Nadai M, et al. Treatment choices for extremely preterm infants: An international perspective. J Pediatr 2000;137:608-15.
20. Garel M, Seguret S, Kaminski M, Cuttini M. Ethical decision-making for extremely preterm deliveries: Results of a qualitative survey among obstetricians and midwives. J Matern Fetal Neonatal Med 2004;15:394-9.
21. Pinch WJ, Spielman ML. The parent's perspective: Ethical decision-making in neonatal intensive care. J Adv Nurs 1990;15:712-9.
22. Brinchmann BS, Forde R, Nortvedt P. What matters to the parents? A qualitative study of parents' experiences with life-and-death decisions concerning their premature infants. Nurs Ethics 2002;9:388-404.
23. Mølholm Hansen B, Hoff B, Greisen G. Treatment of extremely preterm infants: Parents' attitudes. Acta Paediatr 2003;92:715-20.
24. Rhoden NK. Treating baby doe: The ethics of uncertainty. Hastings Cent Rep 1986;16:34-42.
25. Roy R, Aladangady N, Costeloe K, Larcher V. Decision making and modes of death in a tertiary neonatal unit. Arch Dis Child Fetal Neonatal Ed 2004;89:527-30.
26. Duff RS, Campbell AG. Moral and ethical dilemmas in the special care nursery. N Engl J Med 1973;289:890-4.
27. Young EW, Stevenson DK. Limiting treatment for extremely premature, low-birth-weight infants (500 to 750 g). Am J Dis Child 1990;144:549-52.
28. Byrne P, Welch R. Treatment withdrawal in neonates. Am J Dis Child 1991;145:1223-4.