Harm and uncertainty in newborn intensive care

Theoretical Medicine and Bioethics

Volumn 28, Issue 5, 2007, Pages 393-412

  Kipnis, Kenneth ^a  

^a UNIVERSITY OF HAWAII   (United States)

Author keywords

Death; ELBW; Ethics; Neonatology; Newborns; NICU; Parental authority; Pediatrics

Indexed keywords

ARTICLE; CHILD DEATH; DEATH; DISABILITY; DISEASE SEVERITY; EUTHANASIA; EXTREMELY LOW BIRTH WEIGHT; HARM REDUCTION; HUMAN; MEDICAL DECISION MAKING; MEDICAL ETHICS; MEDICAL SPECIALIST; NEONATOLOGY; NEWBORN; NEWBORN INTENSIVE CARE; OUTCOME ASSESSMENT; PARENTAL BEHAVIOR; PREMATURITY; PROBABILITY; RISK ASSESSMENT; SURVIVAL RATE; TREATMENT WITHDRAWAL; UNCERTAINTY;

DISABLED PERSONS; ETHICS, CLINICAL; HUMANS; INFANT, EXTREMELY LOW BIRTH WEIGHT; INFANT, NEWBORN; INTENSIVE CARE, NEONATAL; MORAL OBLIGATIONS; NEONATOLOGY; PARENTAL CONSENT; TREATMENT OUTCOME; UNCERTAINTY; WITHHOLDING TREATMENT;

EID: 36749011852     PISSN: 13867415     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11017-007-9051-z     Document Type: Article

References (27)

1. Brody, J.E. "For Babies, an Ounce Can Alter Quality of Life" The New York Times, October 1, 1991, http://query.nytimes.com/gst/ fullpage.html?res=9D0CE1DA1539F932A35753C1A967958260.
2. Duff R.S., A.G.M. Campbell. On Deciding the Care of Severely Handicapped or Dying Persons with Particular Reference to Infants. Pediatrics 47 (1976): 487-493.
3. Duff R.S., A.G.M. Campbell. Moral and Ethical Dilemmas in the Special-Care Nursery. New England Journal of Medicine 289 (1973): 890-894.
4. Engelhardt H.T. Jr.TLetter: Euthanasia and Children: the Injury of Continued Existence. Journal of Pediatrics 83, no.1 (1973): 170-171.
5. Fost N. Counseling Families Who Have a Child with a Severe Congenital Anomaly. Pediatrics 67 (1981): 321-324.
6. Fost N. Ethical Issues in the Treatment of Critically Ill Newborns. Pediatric Annals 10, no. 10 (1981): 16-22.
7. Freeman J.M. (1987) If Euthanasia Were Licit, Could Lives Be Saved? In: R.C. McMillan, H.T. Engelhardt, S.F. Spicker (eds) Euthanasia and the Newborn. Dordrecht: Reidel.
8. Gustafson J.M. Mongolism, Parental Desires, and the Right to Life. Perspectives in Biology and Medicine 16 (1973): 529-530.
9. Hack M.B. et al. Neurodevelopment and Predictors of Outcomes of Children With Birth Weights of Less than 1000 g. Archives of Pediatric and Adolescent Medicine 154 (2000): 725-731.
10. Lantos J.D., W.L. Meadow. Neonatal Bioethics: The Moral Challenges of Medical Innovation. Baltimore: Johns Hopkins University Press, 2006.
11. Lantos J.H., S.H. Miles, C.K. Cassel. The Linares Affair. Law, Medicine & Health Care 17, no. 4 (1989): 308-315.
12. Kolata, G. "Parents of Tiny Infants Find Care Choices Are Not Theirs." New York Times, September 30, 1991, http://query.nytimes.com/gst/ fullpage.html?res=9D0CE4D71639F933A0575AC0A967958260.
13. McCormick R.A. To Save or Let Die: The Dilemma of Modern Medicine. Journal of the American Medical Association 229 (1974): 172-176.
14. Miles S.H. Informed Demand for 'Non-Beneficial' Medical Treatment. New England Journal of Medicine 325 (1991): 512-515.
15. Miller ex. rel. Miller v. HCA, Inc., 118 S.W.3d 758 (Tex. 2003).
16. Morreim E.H. Profoundly Diminished Life: The Casualties of Coercion. Hastings Center Report 24, no. 1 (1994): 33-42.
17. Nelson L.J., R.L. Cranford. Legal Advice, Moral Paralysis, and the Death of Samuel Linares. Law, Medicine & Health Care 17, no. 4 (1989): 316-329.
18. Office of Technology Assessment. Neonatal Intensive Care for Low Birthweight Infants: Costs and Effectiveness. Washington, D.C., U.S. Government Printing Office, December 1987. http://www.princeton.edu/ ∼ota/disk2/1987/8717/8717.PDF Accessed October 9, 2007.
19. Paris J.J., R.K. Crone, F. Reardon. Physicians' Refusal of Requested Treatment: The Case of Baby L. New England Journal of Medicine 322 (1990): 1012-1015.
20. Ramsey P. Ethics at the Edges of Life. New Haven: Yale University Press, 1978.
21. Rawls J. A Theory of Justice. Cambridge: Harvard University Press, 1972.
22. Rhoden N.K. Treating Baby Doe: The Ethics of Uncertainty. Hastings Center Report 16 (1986): 34-42.
23. Rosenthal Elisabeth. "As More Tiny Infants Live, Choices and Burden Grow." The New York Times, September 29, 1991, http://query.nytimes.com/gst/ fullpage.html?res=9D0CE4DC1339F93AA1575AC0A967958260.
24. Rumbaugh H.O. Miller v. HCA, Inc.: Disempowering Parents from Making Medical Treatment Decisions for Severely Premature Babies. Houston Law Review 141, no. 2 (2004): 696.
25. Stinson R., P. Stinson. The Long Dying of Baby Andrew. Boston: Little Brown, 1983.
26. Verhagen E., P.J.J. Sauer. The Groningen Protocol - Euthanasia in Severely Ill Newborns. New England Journal of Medicine 352, no. 10 (2005): 959-963.
27. Weir R. Selective Nontreatment of Handicapped Newborns. New York: Oxford University Press, 1984.