Moving from Principles to Practice: Recommended Policy Changes to Promote Family-Centered Care

American Journal of Community Psychology

Volumn 46, Issue 3, 2010, Pages 332-341

  Kilmer, Ryan P ^a   Cook, James R ^a   Munsell, Eylin Palamaro ^a  

^a UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE   (United States)

Author keywords

Family centered services; Policy; Siblings; Systems of care

Indexed keywords

ARTICLE; EVIDENCE BASED PRACTICE; FAMILY THERAPY; HUMAN; NONBIOLOGICAL MODEL; ORGANIZATION AND MANAGEMENT; POLICY;

EVIDENCE-BASED PRACTICE; FAMILY THERAPY; HUMANS; MODELS, ORGANIZATIONAL; ORGANIZATIONAL POLICY;

EID: 78049324896     PISSN: 00910562     EISSN: None     Source Type: Journal    
DOI: 10.1007/s10464-010-9350-9     Document Type: Article

References (76)

1. Aguilar, B., O'Brien, K. M., August, G. J., Aoun, S. L., & Hektner, J. M. (2001). Re.lationship quality of aggressive children and their siblings: A multiinformant, multimeasure investigation. Journal of Abnormal Child Psychology, 29, 479-490.
2. Bazelon Center for Mental Health Law (2007). Facts on children's mental health.
3. Bickman, L., Heflinger, C. A., Lambert, E. W., & Summerfelt, W. T. (1996). The Fort Bragg managed care experiment: Short term impact on psychopathology. Journal of Child and Family Studies, 5, 137-160.
4. Bickman, L., Noser, K., & Summerfelt, W. T. (1999). Long-term effects of a system of care on children and adolescents. The Journal of Behavioral Health Services & Research, 26, 185-202.
5. Bickman, L., Summerfelt, W. T., Firth, J. M., & Douglas, S. M. (1997). The Stark County evaluation project: Baseline results of a randomized experiment. In C. T. Nixon & D. A. Northrup (Eds.), Evaluating mental health services: How do programs for children "work" in the real world? (pp. 231-258). Thousand Oaks, CA: Sage.
6. Briggs, H. E. (1996). Creating independent voices: The emergence of statewide family advocacy networks. Journal of Mental Health Administration, 23, 447-457.
7. Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press.
8. Bronfenbrenner, U. (Ed.). (2005). Making human beings human: Bioecological perspectives on human development. Thousand Oaks, CA: Sage Publications.
9. Bruns, E. J., Leverentz-Brady, K. M., & Walker, S. (2007). Wraparound fidelity in systems of care and association with outcomes. Paper presented at the 20th Annual Research Conference, a System of Care for Children's Mental Health: Expanding the research base, Tampa, FL.
10. Bruns, E. J., Osher, T., Walker, J. S., & Rast, J. (2005a). The National Wraparound Initiative: Toward consistent implementation of high-quality wraparound. In C. Newman, C. Liberton, K. Kutash, & R. M. Friedman (Eds.), The 17th Annual Research Conference Proceedings: A System of Care for Children's Mental Health (pp. 129-134). Tampa: University of South Florida, Florida Mental Health Institute Research and Training Center for Children's Mental Health.
11. Bruns, E. J., Suter, J. C., Burchard, J. D., Force, M., & Leverentz-Brady, K. (2004). Assessing fidelity to a community-based treatment for youth: The Wraparound Fidelity Index. Journal of Emotional and Behavioral Disorders, 12, 69-79.
12. Bruns, E. J., Suter, J. C., Force, M. M., & Burchard, J. D. (2005b). Adherence to wraparound principles and association with outcomes. Journal of Child and Family Studies, 14, 521-534.
13. Burchard, J. D., Bruns, E. J., & Burchard, S. N. (2002). The wraparound approach. In B. Burns & K. Hoagwood (Eds.), Community treatment for youth: Evidence-based interventions for severe emotional and behavioral disorders (pp. 69-90). New York, NY: Oxford.
14. Burns, B. J., Costello, E. J., Angold, A., Tweed, D., Stangl, D., Farmer, E. M. Z., et al. (1995). Children's mental health service use across service sectors. Health Affairs, 14, 147.
15. Burns, B. J., & Goldman, S. K. (Eds.). (1999). Promising practices in wraparound for children with serious emotional disturbance and their families. Systems of care: Promising practices in children's mental health, 1998 series, vol. IV. Washington, DC: Center for Effective Collaboration and Practice, American Institutes for Research.
16. Cairns, R. B., McGuire, A. M., & Gariepy, J. L. (1993). Developmental behavior genetics: Fusion, correlated constraints, and timing. In D. F. Hay & A. Angold (Eds.), Precursors and causes in development and psychopathology (pp. 87-122). New York: Wiley.
17. Center for Mental Health Services. (2005). Comprehensive Community Mental Health Services Program for Children and Their Families. Retrieved from: http://mentalhealth. samhsa. gov/publications/allpubs/KEN95-0016/default. asp#ccmhs.
18. Child Welfare Information Gateway. (2008a). Systems of care: Bulletin for professionals. Retrieved from: http://www. childwelfare. gov/systemwide/service/soc/.
19. Child Welfare Information Gateway. (2008b). Children's Bureau Demonstration Initiative: Improving child welfare outcomes through systems of care. Retrieved from: http://www. childwelfare. gov/systemwide/service/soc/communicate/initiative/.
20. Conners, C. K. (2001). Conners' Rating Scales-Revised (CRS-R): Technical manual. North Tonawanda, NY: Multi-Health Systems, Inc.
21. Cook, J. R., & Kilmer, R. P. (2004). Evaluating systems of care: Missing links in children's mental health research. Journal of Community Psychology, 32, 655-674.
22. Cook, J. R., & Kilmer, R. P. (2010). Defining the scope of systems of care: An ecological perspective. Evaluation and Program Planning, 33, 18-20.
23. Cook, J. R., Kilmer, R. P., Cable, E., Campbell, K., DeRusso, A., & Vishnevsky, T. (2007a). Utilizing the Participant Rating Form to assess child and family team functioning and enhance wraparound fidelity. Paper Presented at the 20th Annual Research Conference, A System of Care for Children's Mental Health: Expanding the Research Base, Tampa, FL.
24. Cook, J. R., Kilmer, R. P., DeRusso, A., Vishnevsky, T., & Meyers, D. C. (2007b). Assessment of child and family team functioning using the Participant Rating Form. In C. Newman, C. Liberton, K. Kutash, & R. Friedman (Eds.), 19th Annual Research Conference Proceedings: A System of Care for Children's Mental Health: Expanding the Research Base (pp. 317-322). Tampa, FL: University of South Florida, The Louis de la Parte Florida Mental Health Institute, Research and Training Center for Children's Mental Health.
25. Costello, E. J., Compton, S. N., Keeler, G., & Angold, A. (2003). Relationships between poverty and psychopathology: A natural experiment. Journal of the American Medical Association, 290, 2023-2029.
26. Cowen, E. L. (1994). The enhancement of psychological wellness: Challenges and opportunities. American Journal of Community Psychology, 22, 149-179.
27. Cowen, E. L., Work, W. C., Wyman, P. A., Parker, G. R., Wannon, M., & Gribble, P. A. (1992). Test comparisons among stress-affected, stress-resilient and nonclassified fourth through sixth grade urban children. Journal of Community Psychology, 20, 200-214.
28. Davis, C. S., & Dollard, N. (2004). Team process and adherence to wraparound principles in a children's community mental health care system of care. Department of Child and Family Studies, Louis de la Parte Florida Mental Health Institute, University of South Florida. Unpublished manuscript.
29. Derogatis, L. R. (2001). Brief Symptom Inventory (BSI-18): Administration, scoring, and procedures manual. Minneapolis, MN: NCS Pearson, Inc.
30. Dunst, C. J., Johanson, C., Trivette, C. M., & Hamby, D. (1991). Family-oriented early intervention policies and practices: Family-centered or not? Exceptional Children, 58, 115-126.
31. Dunst, C. J., Trivette, C. M., & Deal, A. G. (Eds.). (1994). Supporting and strengthening families. Cambridge, MA: Brookline Books.
32. Epstein, M. H. (2004). BERS-2: Behavioral and Emotional Rating Scale examiners manual (2nd ed.). Austin, TX: Pro-Ed.
33. Epstein, M. H., Nordness, P. D., Kutash, K., Duchnowski, A., Schrepf, S., Benner, G., et al. (2003). Assessing the wraparound process during family planning meetings. Journal of Behavioral Health Services & Research, 30, 352-362.
34. Farmer, T. W., & Farmer, E. M. Z. (2001). Developmental science, systems of care, and prevention of emotional and behavioral problems in youth. American Journal of Orthopsychiatry, 71, 171-181.
35. Farmer, T. W., Farmer, E. M. Z., & Gut, D. (1999). Implications of social development research for school based interventions for aggressive youth with emotional and behavioral disorders. Journal of Emotional and Behavioral Disorders., 7, 130-136.
36. Friedman, R. M. (1994). Restructuring of systems to emphasize prevention and family support. Journal of Clinical Child Psychology, 23(Suppl), 40-47.
37. Friedman, R. M., Katz-Leavy, J. W., Manderscheid, R. W., & Sondheimer, D. L. (1999). Prevalence of serious emotional disturbance: An update. In R. W. Manderscheid & M. J. Henderson (Eds.), Mental health, United States, 1998 (pp. 110-112). Rockville, MD: US Department of Health and Human Services.
38. Goldman, S. K. (1999). The conceptual framework for wraparound. In B. J. Burns & S. K. Goldman (Eds.), Systems of care: Promising practices in children's mental health, 1998 series: Vol. IV. Promising practices in wraparound for children with severe emotional disorders and their families (pp. 27-34). Washington, DC: Center for Effective Collaboration and Practice, American Institutes for Research.
39. Goodman, S. H., & Gotlib, I. H. (1999). Risk for psychopathology in the children of depressed mothers: A developmental model for understanding mechanisms of transmission. Psychological Review, 106, 458-490.
40. Graves, K. N. (2005). The links among perceived adherence to the system of care philosophy, consumer satisfaction, and improvements in child functioning. Journal of Child and Family Studies, 14, 403-415.
41. Graves, K. N., & Shelton, T. L. (2007). Family empowerment as a mediator between family-centered systems of care and changes in child functioning: Identifying an important mechanism of change. Journal of Child and Family Studies, 16, 556-566.
42. Handron, D. S., Dosser, D. A., Jr., McCammon, S. L., & Powell, J. Y. (1998). "Wraparound"-The wave of the future: Theoretical and professional practice implications for children and families with complex needs. Journal of Family Nursing, 4, 65-86.
43. Hernandez, M. (Ed.). (2003). Special series: Children's mental health policy. Journal of Emotional and Behavioral Disorders, 11, 1-58.
44. Hodges, S., Ferreira, K., Israel, N., & Mazza, J. (2006). Strategies of system of care implementation: Making change in complex systems. Tampa: Department of Child and Family Studies, Louis de la Part Florida Mental Health Institute, University of South Florida.
45. Hodges, S., Ferreira, K., Israel, N., & Mazza, J. (2010). Systems of care, featherless bipeds, and the measure of all things. Evaluation and Program Planning, 33, 4-10.
46. Holden, E. W., & Brannan, A. M. (Eds.). (2002). Special issue: Evaluating systems of care: The Comprehensive Community Mental Health Services for Children and Their Families Program. Children's Services: Social Policy, Research, and Practice, 5, 1-74.
47. Holden, E. W., Santiago, R. L., Manteuffel, B. A., Stephens, R. L., Brannan, A. M., Soler, R., et al. (2003). Systems of care demonstration projects: Innovation, evaluation, and sustainability. In A. J. Pumariega & N. C. Winters (Eds.), The handbook of child and adolescent systems of care: The new community psychiatry (pp. 432-458). San Francisco, CA: Jossey-Bass.
48. Huang, L., Stroul, B., Friedman, R., Mrazek, P., Friesen, B., Pires, S., et al. (2005). Transforming mental health care for children and their families. American Psychologist, 60, 615-627.
49. Illback, R. J. (1997). Creating responsive systems of care: Professional and organizational challenges. In R. Illback, C. T. Cobb, & H. M. Joseph Jr. (Eds.), Integrated services for children and families: Opportunities for psychological practice. Washington, D. C.: American Psychological Association.
50. Institute of Medicine. (2005). Improving the quality of health care for mental and substance-use conditions: Quality chasm series.
51. Keele-Lien, A., Grant, E. A., Reinhart, C., Swink, N., & Wituk, S. (2009). Certified peer specialist services: Benefits for providers and recipients of services. Poster presented at the biennial conference of the Society for Community Research and Action, Montclair, NJ.
52. Kendziora, K., Bruns, E., Osher, D., Pacchiano, D., & Mejia, B. (2001). Systems of care: Promising practices in children's mental health, 2001 series, Vol. I. Washington, DC: Center for Effective Collaboration and Practice, American Institutes for Research.
53. Kilmer, R. P., Cook, J. R., Taylor, C. M., Kane, S. F., & Clark, L. Y. (2008). Siblings of children with severe emotional disturbances: Risks, resources, and adaptation. American Journal of Orthopsychiatry, 78, 1-10.
54. Kilmer, R. P., Cowen, E. L., Wyman, P. A., Work, W. C., & Magnus, K. M. (1998). Differences in stressors experienced by urban African American, White, and Hispanic children. Journal of Community Psychology, 26, 415-428.
55. Layzer, J. I., Goodson, B. D., Bernstein, L., & Price, C. (2001). National evaluation of family support programs volume A: The meta-analysis final report. USA: Abt Associates Inc.
56. Luthar, S. S. (1999). Children in poverty: Risk and protective factors in adjustment. Thousand Oaks, CA: Sage Publications.
57. Luthar, S. S., & Cicchetti, D. (2000). The construct of resilience: Implications for interventions and social policies. Development and Psychopathology, 12, 857-885.
58. McCammon, S. L., Cook, J. R., & Kilmer, R. P. (2002). Integrating systems-of-care values into university-based training. In D. T. Marsh & M. A. Fristad (Eds.), Handbook of serious emotional disturbance in children and adolescents (pp. 56-76). New York: Wiley.
59. Pumariega, A. J., & Winters, N. C. (Eds.). (2003). The handbook of child and adolescent systems of care: The new community psychiatry. San Francisco, CA: Jossey-Bass.
60. Rast, J., O'Day, K., & Rider, F. (2005). A post hoc comparison of child and family outcomes to fidelity of the Wraparound process for Project MATCH. In C. Newman, C. Liberton, K. Kutash, & R. M. Friedman (Eds.), The 17th Annual Research Conference Proceedings: A System of Care for Children's Mental Health (pp. 135-140). Tampa: University of South Florida, Florida Mental Health Institute Research and Training Center for Children's Mental Health.
61. Rishel, C. W., Greeno, C. G., Marcus, S. C., Shear, M. K., Anderson, C., Swartz, H. A., et al. (2006). Impact of maternal mental health status on child mental health treatment outcome. Community Mental Health Journal, 42, 1-12.
62. Shaw, D. S., Connell, A., Dishion, T. J., Gardner, F., & Wilson, M. N. (2009). Improvements in maternal depression as a mediator of intervention effects on early childhood problem behavior. Development and Psychopathology, 21, 417-439.
63. Stephens, R. L., Holden, E. W., & Hernandez, M. (2004). System of care practice review scores as predictors of behavioral symptomatology and functional impairment. Journal of Child and Family Studies, 13, 179-191.
64. Stroul, B. A., & Friedman, R. M. (1986). A system of care for children and youth with severe emotional disturbances. (Revised 1994 Edition). Washington, D. C.: Georgetown University Child Development Center, CASSP Technical Assistance Center.
65. Substance Abuse and Mental Health Services Administration (SAMHSA; no date - a). Systems of care: Welcome. Retrieved 6 Aug 2009 from: http://www. systemsofcare. samhsa. gov/.
66. Substance Abuse and Mental Health Services Administration (SAMHSA; no date - b). Systems of care: Family driven. Retrieved 6 Aug 2009 from: http://www. systemsofcare. samhsa. gov/headermenus/fd. aspx.
67. Swartz, H. A., Frank, E., Zuckoff, A., Houck, P. R., Fleming, M. A. D., Brent, D. A., et al. (2008). Brief interpersonal psychotherapy for depressed mothers whose children are receiving psychiatric treatment. American Journal of Psychiatry, 165, 1155-1162.
68. Technical Assistance Partnership for Child and Family Mental Health (no date). Core values: Family driven. Retrieved 6 Aug 2009 from: http://www. tapartnership. org/SOC/SOCvaluesTopics. php?id=topic1.
69. Tolan, P. H., & Dodge, K. A. (2005). Children's mental health as a primary care and concern: A system for comprehensive support and service. American Psychologist, 60, 601-614.
70. US Department of Health and Human Services. (1999). Mental health: A report of the Surgeon General-Executive summary. Rockville, MD: US Department of Health and Human Services, Substance Abuse and Mental Health Services Administration, Center for Mental Health Services, National Institutes of Health, National Institute of Mental Health.
71. US Department of Health and Human Services. (2008). CMHS national evaluation: Data profile report (April, 2008). Atlanta: ORC Macro.
72. VanDenBerg, J. E., & Grealish, E. M. (1996). Individualized services and supports through the wraparound process: Philosophy and procedures. Journal of Child and Family Studies, 5, 7-21.
73. Walker, J. S., Koroloff, N., & Schutte, K. (2003). Implementing high-quality collaborative individualized service/support planning: Necessary conditions. Portland, OR: Research and Training Center on Family Support and Children's Mental Health.
74. Walker, J. S., & Schutte, K. M. (2005). Quality and individualization in wraparound planning. Journal of Child and Family Studies, 14, 251-267.
75. Walrath, C. M., Holden, E. W., & Ybarra, M. Y. (2006). Understanding the pre-referral factors associated with differential 6-month incomes among children receiving system of care services. Psychological Services, 3, 35-50.
76. Wyman, P. A., Cowen, E. L., Work, W. C., Hoyt-Meyers, L. A., Magnus, K. B., & Fagen, D. B. (1999). Developmental and caregiving factors differentiating parents of young stress-affected and stress-resilient urban children: A replication and extension. Child Development, 70, 645-659.