Caring, employment, and quality of life: Comparison of employed and nonemployed mothers of adults with intellectual disability

American Journal on Intellectual and Developmental Disabilities

Volumn 115, Issue 5, 2010, Pages 406-420

  Chou, Yueh Ching ^a   Pu, Cheng Yun ^a   Kröger, Teppo ^b   Fu, Li Yeh ^c  

^a NATIONAL YANG MING UNIVERSITY   (Taiwan)

^b UNIVERSITY OF JYVÄSKYLÄ   (Finland)

^c NATIONAL CHENGCHI UNIVERSITY   (Taiwan)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ADULT CHILD; ARTICLE; CAREGIVER; CLASSIFICATION; COST OF ILLNESS; DAILY LIFE ACTIVITY; EMPLOYMENT; FEMALE; HEALTH STATUS; HUMAN; INCOME; MALE; MIDDLE AGED; MOTHER; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; RESPITE CARE; SOCIAL SUPPORT; TAIWAN;

ACTIVITIES OF DAILY LIVING; ADULT; ADULT CHILDREN; CAREGIVERS; COST OF ILLNESS; EMPLOYMENT; FEMALE; HEALTH STATUS; HUMANS; INCOME; MALE; MIDDLE AGED; MOTHERS; QUALITY OF LIFE; RESPITE CARE; SOCIAL SUPPORT; TAIWAN;

EID: 77958189267     PISSN: 19447558     EISSN: None     Source Type: Journal    
DOI: 10.1352/1944-7558-115.5.406     Document Type: Article

References (71)

1. Allen, T. D., Herst, D. E. L., Bruck, C. S., & Sutton, M. (2000). Consequences associated with work-to-family conflict: A review and agenda for future research. Journal of Occupational Health Psychology, 5, 278-308.
2. Baldwin, S. (1985). The costs of caring. Families with disabled children. London: Routledge & Kegan Paul.
3. Barnett, R. (2002). Role stress/strain and workfamily. Retrieved from http://wfinetwork.bc.edu/encyclopedia-entry.phd?id5255&area5All
4. Barnett, R. C., & Hyde, J. S. (2001). Women, men, work, and family: An expansionist theory. American Psychologist, 56, 781-796.
5. Bem, S. L. (1993). The lenses of gender. New Haven: Yale University Press.
6. Brough, P., O'Driscoll, M. P., & Kalliath, T. J. (2005). The ability of 'family friendly' organizational resources to predict work-family conflict and job and family satisfaction. Stress and Health, 21, 223-234. (Pubitemid 41614628)
7. Brown, I., Anand, S., Fung, W. L. A., Isaacs, B., & Baum, N. (2003). Family quality of life: Canadian results from an international study. Journal of Developmental and Physical Disabilities, 15, 207-230.
8. Browne, G., & Bramston, P. (1998). Stress and the quality of life in the parents of young people with intellectual disabilities. Journal of Psychiatric and Mental Health Nursing, 5, 415-421.
9. Carlson, D. S., Kacmar, K. M., & Williams, L. J. (2000). Construction and initial validation of a multidimensional measure of work-family conflict. Journal of Vocational Behavior, 56, 249-276.
10. Chang, T. J., Tarn, Y. H., Hsieh, C. L., Liou, W. S., Shaw, J. W., & Chiou, X. G. (2007). Taiwanese version of the EQ-5D: Validation in a representative sample of the Taiwanese population. Journal of Formosan Medical Association, 106, 1023-1031.
11. Chou, Y. C. (1985). Study of the social difficulties of the parents of mentally retarded children. Unpublished master's thesis, Graduate School of Social Work, Tunghai University, Taiwan. [in Chinese]
12. Chou, Y. C. (1996). The impact on families and factors affecting families' decision to seek various care models for adults with developmental disabilities in Taiwan. Journal of Special Education, 14, 45-66. [in Chinese]
13. Chou, Y. C., Kröger, T., Chiao, C., & Fu, L. Y. (2009). Effects of paid work and caregiving on women's well-being in Taiwan. Unpublished manuscript, National Yang-Ming University, Taipei, Taiwan.
14. Chou, Y. C., Lee, Y. C., Lin, L. C., Chang, A. L., & Huang, W. Y. (2008). Social services utilization by adults with intellectual disabilities and their families. Social Science & Medicine, 66, 2474-2485.
15. Chou, Y. C., Lee, Y. C., Lin, L. C., Kröger, T., & Chang, A. N. (2009). Older and younger family caregivers of adults with intellectual disability: Factors associated with future plans. Intellectual and Developmental Disabilities, 47, 282-294.
16. Chou, Y. C., Lin, L. C., Chang, A. L., & Schalock, R. L. (2007). The quality of life of family caregivers of adults with intellectual disabilities in Taiwan. Journal of Applied Research in Intellectual Disabilities, 20, 200-210.
17. Chou, Y. C., & Palley, H. A. (1998). The impact of having a child with developmental disabilities on the family in Taiwan: Cultural context review. Social Development Issues, 20(3), 35-52.
18. Department of Social Affairs, Ministry of Interior, Taiwan, Republic of China. (2009). Social Assistance Law. June 8, 2009. Retrieved from http://sowf.moi.gov.tw/10/new10.htm [in Chinese]
19. Department of Statistics, Ministry of Interior, Taiwan, Republic of China. (2007). National survey of life needs among people with disabilities- Summary report. November 15, 2007. Retrieved from http://www.moi.gov.tw/stat/ index.asp [In Chinese]
20. Dunst, C. J., Jenkins, V., & Trivette, C. (1984). Family Support Scale: Reliability and validity. Journal of Individual, Family, and Community Wellness, 1(4), 45-52.
21. Einam, M., & Cuskelly, M. (2002). Paid employment of mothers and fathers of an adult child with multiple disabilities. Journal of Intellectual Disability Research, 46, 158-167. (Pubitemid 34156999)
22. Evandrou, M., & Glaser, K. (2004). Family, work and quality of life: Changing economic and social roles through the lifecourse. Ageing & Society, 24, 771-791. (Pubitemid 39306300)
23. Fast, J. E., Williamson, D. L., & Keating, N. C. (1999). The hidden costs of informal elder care. Journal of Family and Economic Issues, 20, 301-326.
24. Freedman, R. I., Litchfield, L. C., & Warfield, M. E. (1995). Balancing work and family: Perspectives of parents of children with develop-mental disabilities. Families in society. Journal of Contemporary Human Services, 76, 507-514.
25. Green, J. M., Renfrew, M. J., & Curtis, P. A. (2000). Continuity of carer: What matters to women? A review of the evidence. Midwifery, 16, 186-196.
26. Gutek, B. A., Searle, S., & Klepa, L. (1991). Rational versus gender role expectations for work-family conflict. Journal of Applied Psychology, 76, 560-568.
27. Heller, T., Caldwell, J., & Factor, A. (2007). Aging family caregivers: Policies and practices. Mental Retardation and Developmental Disabilities Research Reviews, 13, 136-142. (Pubitemid 47092767)
28. Heller, T., Hsieh, K., & Rowitz, L. (1997). Maternal and paternal caregiving of persons with mental retardation across the lifespan. Family Relations, 46, 407-415. (Pubitemid 127171617)
29. Jokinen, N. S., & Brown, R. I. (2005). Family quality of life from the perspective of older parents. Journal of Intellectual Disability Research, 49, 789-793. (Pubitemid 41403999)
30. Kinnunen, U., Feldt, T., Geurts, S., & Pulkkinen, L. (2006). Types of work-family interface: Well-being correlates of negative and positive spillover between work and family. Scandinavian Journal of Psychology, 47, 149-162. (Pubitemid 43428039)
31. Kinnunen, U., Geurts, S., & Mauno, S. (2004). Work-to-family conflict and its relationship with satisfaction and well-being: A one-year longitudinal study on gender differences. Work & Stress, 18, 1-22. (Pubitemid 38724780)
32. Konrad, A. M., & Mangel, R. (2000). The impact of work-life programs on firm productivity. Strategic Management Journal, 21, 1225-1237.
33. Kossek, E. E., & Ozeki, C. (1998). Work-family conflict, policies, and the job-life satisfaction relationship: A review and directions for organizational behavior-human resources research. Journal of Applied Psychology, 83, 139-149.
34. Kou, M. Y., & Wang, T. F. (2006). A study of selfefficacy, parenting stress and quality of life of the mothers with developmental delayed children. Journal of Ching-kou, 24, 28-46. [in Chinese]
35. Kröger, T. (Ed.). (2004). Families, work and social care in Europe. Luxembourg: European Communities.
36. Kröger, T. (2005). Interplay between informal and formal care for older people: The state of the Nordic research. In M. Szebehely (Ed.), ldreomsorgsforskning i Norden: En kunskapsöversikt (pp. 243-280). Copenhagen: Nordic Council of Ministers.
37. Kuhlthau, K. A., & Perrin, J. M. (2001). Child health status and parental employment. Archives of Pediatrics & Adolescent Medicine, 155, 1346-1350. (Pubitemid 33139590)
38. Lawton, M. P., & Brody, E. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179-186.
39. Lin, W. S. (1994). Mothers' stress, psychological symptom, and sources who have a teenage child with mental retardation. Unpublished master's thesis, School of Nursing, Medical College, Taiwan University, Taiwan.
40. Lippe, T. V., Jager, A., & Kops, Y. (2003). Combination pressure: The work family balance in European countries (draft). Retrieved from http://www.hwf.at/downloads/open-area/publications/forum-publications-12.pdf
41. Mactavish, J. B., Mackay, K. J., Iwasaki, Y., & Betteridge, D. (2007). Family caregivers of individuals with intellectual disability: Perspective on life quality and the role of vacations. Journal of Leisure Research, 39, 127-155. (Pubitemid 46358223)
42. Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The Barthel index. Maryland State Medicine Journal, 14, 61-65.
43. McConkey, R. (2005). Fair shares? Supporting families caring for adult persons with intellectual disabilities. Journal of Intellectual Disability Research, 49, 600-612. (Pubitemid 40990616)
44. Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disabilities. Journal of Intellectual Disability Research, 45, 535-543. (Pubitemid 33107576)
45. Parish, S. L., Seltzer, M. M., Greenberg, J. S., & Floyd, F. (2004). Economic implications of caregiving at midlife: Comparing parents with and without children who have developmental disabilities. Mental Retardation, 42, 413-426. (Pubitemid 39563545)
46. Pavalko, E. K., & Henderson, K. A. (2006). Combining care work and paid work: Do workplace policies make a difference? Research on Aging, 28, 359-374.
47. Perrone, K. M. (2000). Balancing life roles to achieve career happiness and life satisfaction.Career Planning and Adult Development Journal, 15, 49-58.
48. Pleck, J. H. (1977). The work-family role system. Social Problems, 24, 417-427.
49. Poston, D., Turnbull, A., Park, J., Mannan, H., Marquis, J., & Wang, M. (2003). Family quality of life: A qualitative inquiry. Mental Retardation, 41, 313-328.
50. Robinson, J., & Spitze, G. (1992). Whistle while you work? The effect of household task performance on women's and men's wellbeing. Social Science Quarterly, 73, 844-861.
51. Ross, C. E., & Huber, J. (1985). Hardship and depression. Journal of Health and Social Behavior, 26, 312-327. (Pubitemid 16203202)
52. Schields, M. (2004). Stress, health and the benefit of social support. Health Reports (Statistics Canada, Catalogue-82-003), 15, 9-38.
53. Seltzer, G. B., Schupf, N., & Wu, H.-S. (2001). A prospective study of menopause in women with Down's syndrome. Journal of Intellectual Disability Research, 45, 1-7. (Pubitemid 32156769)
54. Shearn, J., & Todd, S. (2000). Maternal employment and family responsibilities: The perspectives of mothers of children with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 13, 109-131.
55. Shu, B. C. (2002). The family caregivers of children with intellectual disability: An example of mothers with autistic children. Nursing Magazine, 49, 22-28. [in Chinese]
56. Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H., & Wang, M. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49, 777-783. (Pubitemid 41403997)
57. Thyen, U., Kuhlthau, K., & Perrin, J. M. (1999). Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics, 103, 1235-1242. (Pubitemid 29258799)
58. Todd, S., & Shearn, J. (1996). Struggle with time: The careers of parents with adult sons and daughters with learning disabilities. Disability & Society, 11, 379-401. (Pubitemid 126490569)
59. Tsau, C. C., & Chuang, Y. L. (2007). The study on parents' psychological adaptation of parenting young children with autism. Eastern Taiwan Journal of Special Education, 96, 109-124. [in Chinese]
60. U.S. Valuation of the EuroQOL EQ-5D Health States. (2005, December). Rockville, MD: Agency for Healthcare Research and Quality.Retrieved June 20, 2007, from http://www.ahrq.gov/rice/EQ5Dproj.htm
61. Voydanoff, P. (2002). Linkages between the workfamily interface and work, family and individual outcomes. Journal of Family Issues, 23, 138-164. (Pubitemid 36649919)
62. Voydanoff, P. (2005). Work demands and workfamily and family-work conflict: Direct and indirect relationships. Journal of Family Issues, 26, 707-726. (Pubitemid 41480607)
63. Walden, S., Pistrang, N., & Joyce, T. (2000). Parents of adults with intellectual disabilities: Quality of life and experiences of caring. Journal of Applied Research in Intellectual Disabilities, 13, 62-76.
64. Walker, L. S., Ortiz-Valdes, J. A., & Newbrough, J. R. (1989). The role of maternal employment and depression in the psychological adjustment of chronically ill, mentally retarded, and well children. Journal of Pediatric Psychology, 14, 357-370. (Pubitemid 19237403)
65. Wang, T. M. (1994). Families conditions of having a child with mental retardation. Journal of Special Education, 10, 119-141. [in Chinese]
66. Wu, C. L. (2006). The experience of a mother who has a child with severe intellectual disabilities: How I accept I have a special child. Disability Study, 4, 136-139. [in Chinese]
67. Yao, G., Chung, C. W., Yu, C. F., & Wang, J. D. (2002). Development and verification of reliability and validity of the WHOQOL- BREF Taiwan Version. Journal of the Formosan Medical Association, 101, 342-351. (Pubitemid 34704858)
68. Yao, G. K. P., & World Health Organization Quality of Life (WHOQOL). Taiwan Version Development Group. (2004). WHOQOL- BREF Taiwan Version-Development and handbook (2nd ed.). Taipei, Taiwan: WHOQOL Taiwan Version Development Group.
69. Yeandle, S., Bennett, C., Buckner, L., Shipton, L., & Suokas, A. (2006). Who cares wins: The social and business benefits of supporting employed carers. London: Carers UK.
70. Yeandle, S., Wigfield, A., Crompton, R., & Dennett, J. (2002). Employed carers and family-friendly employment policies. Bristol/York: Policy Press.
71. Young, H., & Grundy, E. (2008).Longitudinalperspectives oncaregiving, employment history and marital status in midlife in England and Wales. Health and Social Care in the Community, 16, 388-399.