Fair shares? Supporting families caring for adult persons with intellectual disabilities

Journal of Intellectual Disability Research

Volumn 49, Issue 8, 2005, Pages 600-612

  McConkey, Roy ^a  

^a UNIVERSITY OF ULSTER   (United Kingdom)

Author keywords

Family carers; Intellectual disability; Support services

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CONTROLLED STUDY; FAMILY COUNSELING; FEMALE; HEALTH CARE ACCESS; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE UTILIZATION; HEALTH SERVICES RESEARCH; HUMAN; INTELLECTUAL IMPAIRMENT; MAJOR CLINICAL STUDY; MALE; PARENTAL BEHAVIOR; PERSONALITY; PREDICTION; REGRESSION ANALYSIS; RELATIVE; SOCIAL SUPPORT; UNITED KINGDOM;

ADULT; AGED; CAREGIVERS; DAY CARE; FEMALE; HUMANS; MALE; MENTAL RETARDATION; RESIDENTIAL TREATMENT; RESPITE CARE; SOCIAL SUPPORT;

EID: 22244448682     PISSN: 09642633     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2788.2005.00697.x     Document Type: Article

References (27)

1. Barron S. & Mulvany F. (2004) National Intellectual Disability Database Committee: Annual Report 2003. Health Research Board, Dublin.
2. Birenbaum A. & Cohen H. J. (1993) On the importance of helping families: policy implications from a national study. Mental Retardation 31, 67-74.
3. Braddock D. (1999) Aging and developmental disabilities: demographic and policy issues affecting American families. Mental Retardation 37, 155-61.
4. Carers (Recognition and Services) Act, 1995. HMSO, London.
5. Cummins R. A. (2001) The subjective well-being of people caring for a family member with a severe disability at home: a review. Journal of Intellectual and Developmental Disability 26, 83-100.
6. Department of Health (1999) Family Matters: Counting Families in. Department of Health, London.
7. Department of Health (2001) Valuing People: A New Strategy for the 21st Century. Department of Health, London.
8. Emerson E., Robertson J., Gregory N., Hatton C., Kessissoglou S., Hallam A., Knapp M., Jarbrink K., Netten A. & Walsh P. N. (2000) The quality and costs of village communities, residential campuses and community-based residential supports for people with learning disabilities. Tizard Learning Disability Review. 5, 5-16.
9. Freedman R. I., Griffiths D., Krauss M. W. & Seltzer M. M. (1999) Patterns of respite use by aging mothers of adults with mental retardation. Mental Retardation 37, 93-103.
10. Grant. G. (2001) Older family carers: challenges, coping strategies and support. In: Transitions and Change in the Lives of People with Intellectual Disabilities (ed. M. Day), pp. 177-93. Jessica Kingsley, London.
11. Grant G. & Ramcharan P. (2001) Views and experiences of people with intellectual disabilities and their families. (2) The family perspective. Journal of Applied Research in Intellectual Disabilities 14, 364-80.
12. Haley W. & Perkins E. A. (2004) Current status and future directions in family caregiving and aging people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities 1, 24-30.
13. Heller T. & Factor A. (1993) Aging gamily caregivers: support resources and changes in burden and placement desire. American Journal on Mental Retardation 98, 417-26.
14. McConkey R., McConaghie J. & Barr O. (2005a) The views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities. European Journal of Mental Retardation (in press).
15. McConkey R., Milligan V., Sowney M. & Barr O. (2005b) The views of people with intellectual disabilities to their present and future living arrangements. Journal of Policy and Practice in Intellectual Disabilities (in press).
16. McConkey R., Spollen M. & Jamison J. (2003) The Administrative Prevalence of Learning Disability in Northern Ireland. Department of Health, Social Services and Public Safety, Belfast.
17. McGrother C. W., Hauck A., Bhaumik S., Thorp C. & Taub N. (1996) Community care for adults with learning disabilities and their carers: needs and outcomes from the Leicestershire register. Journal of Intellectual Disability Research 40, 183-90.
18. Moss S., Hogg J. & Horne M. (1992) Demographic characteristics of a population of people with moderate, severe and profound intellectual disability (mental handicap) over 50 years of age: age structure, IQ and adaptive behaviour skills. Journal of Intellectual Disability Research 36, 387-402.
19. Poston D., Turnbull A., Park J., Mannan H., Marquis J. & Wang M. (2003) Family quality of life: a qualitative inquiry. Mental Retardation 41, 313-28.
20. Seltzer M. M., Greenberg J. S., Floyd F. J., Pettee Y. & Hong J. (2001) Life course impacts of parenting a child with a disability. American Journal on Mental Retardation 106, 265-86.
21. Seltzer M. M., Krauss M. W., Walsh P., Conliffe C., Larson B. & Birkbeck G. (1995) Cross national comparisons of ageing mothers of adults with intellectual disabilities. Journal of Intellectual Disability Research 39, 408-18.
22. Sines D. (1999) Identifying the need for respite care for people with learning disabilities in Northern Ireland. Journal of Learning Disabilities 3, 81-91.
23. Sloper P. (1999) Models of service support for parents of disabled children. What do we know? What do we need to know? Child: Care, Health and Development 25, 85-99.
24. Smith G. C. (1997) Aging families of adults with mental retardation: patterns and correlates of service use, need, and knowledge. American Journal on Mental Retardation 102, 13-26.
25. Todd S., Shearn J., Beyer S. & Felce D. (1993) Careers in caring: the changing situations of parents caring for an offspring with learning difficulties. Irish Journal of Psychology 14, 130-53.
26. Walden S., Pistrang N. & Joyce T. (2000) Parents of adults with intellectual disabilities: quality of life and experiences of caring. Journal of Applied Research in Intellectual Disabilities 13, 62-76.
27. Williams V. (1999) In the own right: the support needs of family carers of people with learning difficulties. Mental Health Care 3, 94-5.