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Volumn 16, Issue 1, 2010, Pages 60-65

Transition to adult health care for adolescents with spina bifida: Research issues

Author keywords

Adult health care; Developmental health care; Health services; Health transition; Preventive health care; Satisfaction with care; Spina bifida

Indexed keywords

ADOLESCENT; ADOLESCENT HEALTH; ADULT; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; MEDICAL RESEARCH; PRIORITY JOURNAL; REVIEW; SPINA BIFIDA; SURVIVAL;

EID: 77951656341     PISSN: 19405510     EISSN: 10982779     Source Type: Journal    
DOI: 10.1002/ddrr.98     Document Type: Review
Times cited : (59)

References (46)
  • 1
    • 0036897603 scopus 로고    scopus 로고
    • A consensus statement on health care transitions for young adults with special health care needs
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians - American Society of Internal Medicine
    • American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians - American Society of Internal Medicine. 2002. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 10:1304-1306.
    • (2002) Pediatrics , vol.10 , pp. 1304-1306
  • 2
    • 0030780445 scopus 로고    scopus 로고
    • Depressive symptoms and self-concept in young people with spina bifida
    • Appleton PL, Ellis NC, Minchom PE, et al. 1997. Depressive symptoms and self-concept in young people with spina bifida. J Pediatr Psychol 22:707-722.
    • (1997) J Pediatr Psychol , vol.22 , pp. 707-722
    • Appleton, P.L.1    Ellis, N.C.2    Minchom, P.E.3
  • 3
    • 0037180255 scopus 로고    scopus 로고
    • Team approach versus ad hoc health services for young people with physical disabilities: A retrospective cohort study
    • DOI 10.1016/S0140-6736(02)11316-X
    • Bent N, Tennant A, Swift T, et al. 2002. Team approach versus ad hoc health services for young people with physical disabilities: a retrospective cohort study. Lancet 360:1280-1286. (Pubitemid 35284618)
    • (2002) Lancet , vol.360 , Issue.9342 , pp. 1280-1286
    • Bent, N.1    Tennant, A.2    Swift, T.3    Posnett, J.4    Scuffham, P.5    Chamberlain, M.A.6
  • 4
    • 34547229715 scopus 로고    scopus 로고
    • What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    • Binks JA, Barden WS, Burke TA, et al. 2007. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 88:1064-1073.
    • (2007) Arch Phys Med Rehabil , vol.88 , pp. 1064-1073
    • Binks, J.A.1    Barden, W.S.2    Burke, T.A.3
  • 5
    • 0027504256 scopus 로고
    • Transition from child-centered to adult health-care systems for adolescents with chronic conditions: A position paper of the Society for Adolescent Medicine
    • DOI 10.1016/1054-139X(93)90143-D
    • Blum RW, Garell D, Hodgman CH, et al. 1993. Transition from child-centered to adult health-are systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 14:570-576. (Pubitemid 23345069)
    • (1993) Journal of Adolescent Health , vol.14 , Issue.7 , pp. 570-576
    • Blum, R.W.1    Garell, D.2    Hodgman, C.H.3    Jorissen, T.W.4    Okinow, N.A.5    Orr, D.P.6    Slap, G.B.7
  • 6
    • 41149118986 scopus 로고    scopus 로고
    • Creating a culture of improvement: Experience of a pediatric cystic fibrosis center
    • Britton LJ, Thrasher S, Gutierrez H. 2008. Creating a culture of improvement: experience of a pediatric cystic fibrosis center. J Nurs Care Quality 23:115-120.
    • (2008) J Nurs Care Quality , vol.23 , pp. 115-120
    • Britton, L.J.1    Thrasher, S.2    Gutierrez, H.3
  • 7
    • 0036726045 scopus 로고    scopus 로고
    • Needs assessment in a spina bifida program. A comparison of the perceptions by adolescents with spina bifida and their parents
    • Buran CF, McDaniel AM, Brei T. 2002. Needs assessment in a spina bifida program. A comparison of the perceptions by adolescents with spina bifida and their parents. Clin Nurs Special 16:256-262.
    • (2002) Clin Nurs Special , vol.16 , pp. 256-262
    • Buran, C.F.1    McDaniel, A.M.2    Brei, T.3
  • 9
    • 63649127136 scopus 로고    scopus 로고
    • The transition of kidney transplant recipients: A work in progress
    • Chaturvedi S, Jones C, Walker R, et al. 2009. The transition of kidney transplant recipients: a work in progress. Pediatr Nephrol 24:1055-1060.
    • (2009) Pediatr Nephrol , vol.24 , pp. 1055-1060
    • Chaturvedi, S.1    Jones, C.2    Walker, R.3
  • 10
    • 77951660701 scopus 로고    scopus 로고
    • The cognitive phenotype of spina bifida myelomeningocele
    • Dennis M, Barnes M. 2010. The cognitive phenotype of spina bifida myelomeningocele. Dev Disabil Res Rev 16:31-39.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 31-39
    • Dennis, M.1    Barnes, M.2
  • 11
    • 57849116488 scopus 로고    scopus 로고
    • Rehabilitation and medical management of the adult with spina bifida
    • Dicianno BE, Kurowski BG, Yang JMJ, et al. 2008. Rehabilitation and medical management of the adult with spina bifida. Am J Phys Med Rehab 87:1026-1050.
    • (2008) Am J Phys Med Rehab , vol.87 , pp. 1026-1050
    • Dicianno, B.E.1    Kurowski, B.G.2    Yang, J.M.J.3
  • 12
    • 50049099579 scopus 로고    scopus 로고
    • Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care
    • Duguépéroux I, Tamalet A, Sermet-Gaudelus I, et al. 2008. Clinical changes of patients with cystic fibrosis during transition from pediatric to adult care. J Adolesc Health 43:459-465.
    • (2008) J Adolesc Health , vol.43 , pp. 459-465
    • Duguépéroux, I.1    Tamalet, A.2    Sermet-Gaudelus, I.3
  • 13
    • 61449127370 scopus 로고    scopus 로고
    • Enhancing knowledge and clinical skills through an adolescent medicine workshop
    • Feddock CA, Hoellein AR, Griffith CH, et al. 2009. Enhancing knowledge and clinical skills through an adolescent medicine workshop. Arch Pediatr Adolesc Med 163:256-260.
    • (2009) Arch Pediatr Adolesc Med , vol.163 , pp. 256-260
    • Feddock, C.A.1    Hoellein, A.R.2    Griffith, C.H.3
  • 14
    • 51249121541 scopus 로고    scopus 로고
    • A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: Patient and parent worries, parental illness-related distress and health-related quality of life
    • Geerts E, Van De Wiel H, Tamminga R. 2008. A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: patient and parent worries, parental illness-related distress and health-related quality of life. Haemophilia 14:1007-1013.
    • (2008) Haemophilia , vol.14 , pp. 1007-1013
    • Geerts, E.1    Van De Wiel, H.2    Tamminga, R.3
  • 15
    • 77951655344 scopus 로고    scopus 로고
    • Psychosocial and family functioning in spina bifida
    • Holmbeck G, Devine KA. 2010. Psychosocial and family functioning in spina bifida. Dev Disabil Res Rev 16:40-46.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 40-46
    • Holmbeck, G.1    Devine, K.A.2
  • 16
    • 52049094467 scopus 로고    scopus 로고
    • A review of the evidence for the medical home for children with special health care needs
    • Homer CJ, Klatka K, Romm D, et al. 2008. A review of the evidence for the medical home for children with special health care needs. Pediatrics 122:e922-e937.
    • (2008) Pediatrics , vol.122
    • Homer, C.J.1    Klatka, K.2    Romm, D.3
  • 17
    • 77951659779 scopus 로고    scopus 로고
    • Ipsos-Eureka Social Research Institute. Draft Report of Findings
    • Ipsos-Eureka Social Research Institute. 2008. Review of transition of young adult clinics. Draft Report of Findings.
    • (2008) Review of Transition of Young Adult Clinics
  • 19
    • 50049114686 scopus 로고    scopus 로고
    • Transition from pediatric to adult services: Are we getting it right?
    • Kennedy A, Sawyer SM. 2008. Transition from pediatric to adult services: are we getting it right? Curr Opinion Pediatrics 20:403-1309
    • (2008) Curr Opinion Pediatrics , vol.20 , pp. 403-1309
    • Kennedy, A.1    Sawyer, S.M.2
  • 20
    • 36749039240 scopus 로고    scopus 로고
    • Adolescents born with spina bifida: Experiential worlds and biopsychosocial developmental challenges
    • Kinavey C. 2007. Adolescents born with spina bifida: experiential worlds and biopsychosocial developmental challenges. Issue Comprehensive Pediatr Nurs 30:147-164.
    • (2007) Issue Comprehensive Pediatr Nurs , vol.30 , pp. 147-164
    • Kinavey, C.1
  • 21
    • 0032949033 scopus 로고    scopus 로고
    • Family-centered caregiving and well-being of parents of children with disabilities: Linking process with outcome
    • DOI 10.1093/jpepsy/24.1.41
    • King G, King S, Rosenbaum P, et al. 1999. Family- centered caregiving and well-being of parents of children with disabilities: linking process with outcomes. J Pediatr Psychol 24:41-52. (Pubitemid 29055093)
    • (1999) Journal of Pediatric Psychology , vol.24 , Issue.1 , pp. 41-53
    • King, G.1    King, S.2    Rosenbaum, P.3    Goffin, R.4
  • 24
    • 70350452924 scopus 로고    scopus 로고
    • Improving care at cystic fibrosis centers through quality improvement
    • Kraynack NC, McBride JT. 2009. Improving care at cystic fibrosis centers through quality improvement. Sem Respir Crit Care Med 30:547-558.
    • (2009) Sem Respir Crit Care Med , vol.30 , pp. 547-558
    • Kraynack, N.C.1    McBride, J.T.2
  • 25
    • 77951653361 scopus 로고    scopus 로고
    • Optimizing health care for children with spina bifida
    • Liptak G, El Samra A. 2010. Optimizing health care for children with spina bifida. Dev Disabil Res Rev 16:66-75.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 66-75
    • Liptak, G.1    El Samra, A.2
  • 27
    • 27744465708 scopus 로고    scopus 로고
    • Transition planning for youth with special health care needs: Results from the national survey of children with special health care needs
    • DOI 10.1542/peds.2004-1262
    • Lotstein D, McPherson M, Strickland B et al. 2005. Transition planning for youth with special health care needs: results from the national survey of children with special health care needs. Pediatrics 115:1562-1568. (Pubitemid 43843164)
    • (2005) Pediatrics , vol.115 , Issue.6 , pp. 1562-1568
    • Lotstein, D.S.1    McPherson, M.2    Strickland, B.3    Newacheck, P.W.4
  • 28
    • 85013621434 scopus 로고    scopus 로고
    • Commentary: An interdisciplinary approach
    • McLone DG. 2008. Commentary: an interdisciplinary approach. J Pediatr Rehabil Med 1:283-284.
    • (2008) J Pediatr Rehabil Med , vol.1 , pp. 283-284
    • McLone, D.G.1
  • 29
    • 0027721939 scopus 로고
    • A new clinic for young adults with spina bifida and/or hydrocephalus - Age 16-25 years
    • Morgan DJR, Blackburn MC, Bax MCO. 1993. A new clinic for young adults with spina bifida and/or hydrocephalus - age 16-25 years. Eur J Pediatr Surg 3 (Suppl 1):23-24.
    • (1993) Eur J Pediatr Surg , vol.3 , Issue.SUPPL. 1 , pp. 23-24
    • Morgan, D.J.R.1    Blackburn, M.C.2    Bax, M.C.O.3
  • 31
    • 0028475934 scopus 로고
    • Spina bifida: The transition into adulthood begins in infancy
    • Peterson PM, Kaufman Rauen K, Brown J, et al. 1994. Spina bifida: the transition into adulthood begins in infancy. Rehabil Nurs 19:229-238.
    • (1994) Rehabil Nurs , vol.19 , pp. 229-238
    • Peterson, P.M.1    Kaufman Rauen, K.2    Brown, J.3
  • 32
    • 67651153140 scopus 로고    scopus 로고
    • Adult outcomes and lifespan issues for people with childhood-onset physical disability
    • Roebroeck ME, Jahnsen R, Carona C, et al. 2009. Adult outcomes and lifespan issues for people with childhood-onset physical disability. Dev Med Child Neurol 51:670-678.
    • (2009) Dev Med Child Neurol , vol.51 , pp. 670-678
    • Roebroeck, M.E.1    Jahnsen, R.2    Carona, C.3
  • 33
    • 1542603726 scopus 로고    scopus 로고
    • Transition to adult health care for adolescents and young adults with chronic conditions: Position paper of the Society for Adolescent Medicine
    • Society for Adolescent Medicine
    • Rosen DS, Blum RW, Britto M, et al. 2003. Society for Adolescent Medicine. Transition to adult health care for adolescents and young adults with chronic conditions: position paper of the Society for Adolescent Medicine. J Adolesc Health 33:309-311.
    • (2003) J Adolesc Health , vol.33 , pp. 309-311
    • Rosen, D.S.1    Blum, R.W.2    Britto, M.3
  • 34
    • 77951653572 scopus 로고    scopus 로고
    • Where to from here? Transition to adult heath care for young people with spina bifida
    • Liptak GS, editor. Washington DC: Spina Bifida Association
    • Sawyer SM. 2010. Where to from here? Transition to adult heath care for young people with spina bifida. In: Liptak GS, editor. The future is now: first world congress on spina bifida research and care. Washington DC: Spina Bifida Association.
    • (2010) The Future is Now: First World Congress on Spina Bifida Research and Care
    • Sawyer, S.M.1
  • 35
    • 0030920540 scopus 로고    scopus 로고
    • Chronic illness in adolescents - Transfer or transition to adult services?
    • Sawyer SM, Blair S, Bowes G. 1997. Chronic illness in adolescents - transfer or transition to adult services? J Paediatr Child Health 33: 88-90.
    • (1997) J Paediatr Child Health , vol.33 , pp. 88-90
    • Sawyer, S.M.1    Blair, S.2    Bowes, G.3
  • 36
    • 84898707536 scopus 로고    scopus 로고
    • Adolescent friendly health services: What have children's hospitals got to do with it?
    • in press
    • Sawyer SM, Proimos J, Towns SJ. Adolescent friendly health services: what have children's hospitals got to do with it? J Paediatr Child Health, in press.
    • J Paediatr Child Health
    • Sawyer, S.M.1    Proimos, J.2    Towns, S.J.3
  • 38
    • 0642308222 scopus 로고    scopus 로고
    • Correlates of functional status, self-management, and developmental competence outcomes in adolescents with spina bifida
    • Sawin KJ, Buran CF, Brei TJ, et al. 2003. Correlates of functional status, self-management, and developmental competence outcomes in adolescents with spina bifida. SCI Nurs 20:72-85.
    • (2003) SCI Nurs , vol.20 , pp. 72-85
    • Sawin, K.J.1    Buran, C.F.2    Brei, T.J.3
  • 40
    • 70049107729 scopus 로고    scopus 로고
    • Transition to adult services for young people with disabilities: Current evidence to guide future research
    • Stewart D. 2009. Transition to adult services for young people with disabilities: current evidence to guide future research. Devel Med Child Neurol. 51(4):169-173.
    • (2009) Devel Med Child Neurol , vol.51 , Issue.4 , pp. 169-173
    • Stewart, D.1
  • 41
    • 2342514238 scopus 로고    scopus 로고
    • Access to the medical home. Results of the National Survey of Children with Special Health Care Needs
    • Strickland B, McPherson M, Weissman G, et al. 2004. Access to the medical home. Results of the National Survey of Children with Special Health Care Needs. Pediatrics 113:1485-1492.
    • (2004) Pediatrics , vol.113 , pp. 1485-1492
    • Strickland, B.1    McPherson, M.2    Weissman, G.3
  • 42
    • 58149162862 scopus 로고    scopus 로고
    • Health risk behaviours in adolescents with chronic conditions
    • Suris JC, Michaud PA, Akre C, et al. 2008. Health risk behaviours in adolescents with chronic conditions. Pediatrics 122:e1113-e1118.
    • (2008) Pediatrics , vol.122
    • Suris, J.C.1    Michaud, P.A.2    Akre, C.3
  • 43
    • 33746561295 scopus 로고    scopus 로고
    • A multi-dimensional approach to the transition of children with developmental disabilities into young adulthood: The acquisition of adult social roles
    • DOI 10.1080/09638280500304919, PII R3876V060J085M18
    • Van Naarden Braun K, Yeargin-Allsopp M, et al. 2006. A multidimensional approach to the transition of children with developmental disabilities into young adulthood: the acquisition of adult social roles. Disabil Rehabil 28:915-928. (Pubitemid 44138066)
    • (2006) Disability and Rehabilitation , vol.28 , Issue.15 , pp. 915-928
    • Van Naarden Braun, K.1    Yeargin-Allsopp, M.2    Lollar, D.3
  • 44
    • 85013572262 scopus 로고    scopus 로고
    • Primary care providers and medical homes for individuals with spina bifida
    • Walker WO Jr. 2008. Primary care providers and medical homes for individuals with spina bifida. J Pediatr Rehab Med 1:337-344.
    • (2008) J Pediatr Rehab Med , vol.1 , pp. 337-344
    • Walker Jr., W.O.1
  • 45
    • 77951659467 scopus 로고    scopus 로고
    • Optimizing health care for adults with spina bifida
    • Webb T. 2010. Optimizing health care for adults with spina bifida. Dev Disabil Res Rev 16:76-81.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 76-81
    • Webb, T.1


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