메뉴 건너뛰기




Volumn 14, Issue 5, 2008, Pages 1007-1013

A pilot study on the effects of the transition of paediatric to adult health care in patients with haemophilia and in their parents: Patient and parent worries, parental illness-related distress and health-related Quality of Life

Author keywords

Haemophilia; Psychosocial effects; Quality of life; Transition

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CHILD CARE; CLINICAL ARTICLE; DISTRESS SYNDROME; FEMALE; HEALTH CARE SYSTEM; HEALTH PROGRAM; HEALTH SERVICE; HEMOPHILIA; HUMAN; MALE; PARENTAL BEHAVIOR; PILOT STUDY; PRIORITY JOURNAL; QUALITY OF LIFE; SCORING SYSTEM; SELF CONCEPT; SOCIAL PSYCHOLOGY;

EID: 51249121541     PISSN: 13518216     EISSN: 13652516     Source Type: Journal    
DOI: 10.1111/j.1365-2516.2008.01798.x     Document Type: Article
Times cited : (34)

References (26)
  • 1
    • 0035822038 scopus 로고
    • The hemophiliac - From royal genes to gene therapy
    • Mannucci PM, Tuddenham EGD. The hemophiliac - from royal genes to gene therapy. N Engl J Med 1991; 344: 1733-79.
    • (1991) N Engl J Med , vol.344 , pp. 1733-1779
    • Mannucci, P.M.1    Tuddenham, E.G.D.2
  • 2
    • 0038101450 scopus 로고
    • Haemophilias A and B
    • Bolton-Maggs P, Pasi JK. Haemophilias A and B. Lancet 1993; 361: 1801-9.
    • (1993) Lancet , vol.361 , pp. 1801-1809
    • Bolton-Maggs, P.1    Pasi, J.K.2
  • 3
    • 0029101536 scopus 로고
    • Transition to adult health care: Setting the stage
    • Blum RW. Transition to adult health care: Setting the stage. J Adolesc Health 1995; 17: 3-5.
    • (1995) J Adolesc Health , vol.17 , pp. 3-5
    • Blum, R.W.1
  • 4
    • 0029130846 scopus 로고
    • Global trends of young people with chronic and disabling conditions
    • Suris JC. Global trends of young people with chronic and disabling conditions. J Adolesc Health 1995; 17: 17-22.
    • (1995) J Adolesc Health , vol.17 , pp. 17-22
    • Suris, J.C.1
  • 6
    • 0036717592 scopus 로고
    • The transition of adolescents with diabetes from the children's health care service into the adult health care service: A review of the literature
    • Flemming E, Carter B, Gillibrand W. The transition of adolescents with diabetes from the children's health care service into the adult health care service: A review of the literature. J Clin Nurs 1992; 11: 560-7.
    • (1992) J Clin Nurs , vol.11 , pp. 560-567
    • Flemming, E.1    Carter, B.2    Gillibrand, W.3
  • 7
    • 34547229715 scopus 로고    scopus 로고
    • What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida
    • Binks JA, Barden W, Burke TA, Young NL. What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil 1997; 88: 1064-73.
    • (1997) Arch Phys Med Rehabil , vol.88 , pp. 1064-1073
    • Binks, J.A.1    Barden, W.2    Burke, T.A.3    Young, N.L.4
  • 8
    • 0029130845 scopus 로고
    • Between two worlds: Bridging the cultures of child health and adult medicine
    • Rosen DS. Between two worlds: Bridging the cultures of child health and adult medicine. J Adolesc Health 1995; 17: 10-6.
    • (1995) J Adolesc Health , vol.17 , pp. 10-16
    • Rosen, D.S.1
  • 9
    • 0032771165 scopus 로고    scopus 로고
    • Transition from paediatric to adult care. Bridging the gap or passing the buck?
    • Viner R. Transition from paediatric to adult care. Bridging the gap or passing the buck?. Arch Dis Child 1999; 81: 271-5.
    • (1999) Arch Dis Child , vol.81 , pp. 271-275
    • Viner, R.1
  • 10
    • 0035515688 scopus 로고
    • Transitional care for young adult survivors of childhood cancer
    • Hobbie WL, Ogle S. Transitional care for young adult survivors of childhood cancer. Semin Oncol Nurs 1991; 17: 268-73.
    • (1991) Semin Oncol Nurs , vol.17 , pp. 268-273
    • Hobbie, W.L.1    Ogle, S.2
  • 11
    • 2542567961 scopus 로고
    • Transition of young people with respiratory diseases to adult health care
    • Rosen DS. Transition of young people with respiratory diseases to adult health care. Pediatr Respir Rev 1994; 5: 124-31.
    • (1994) Pediatr Respir Rev , vol.5 , pp. 124-131
    • Rosen, D.S.1
  • 12
    • 20244390637 scopus 로고
    • Growing up and moving on: Transition from pediatric to adult care
    • McDonagh JE. Growing up and moving on: Transition from pediatric to adult care. Pediatr Transplant 1995; 9: 364-72.
    • (1995) Pediatr Transplant , vol.9 , pp. 364-372
    • McDonagh, J.E.1
  • 13
    • 27744550029 scopus 로고
    • Addressing transition to adult health care for adolescents with special health care needs
    • Scal P, Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 1995; 115: 1607-12.
    • (1995) Pediatrics , vol.115 , pp. 1607-1612
    • Scal, P.1    Ireland, M.2
  • 14
    • 0034927388 scopus 로고
    • Transition from pediatric to adult oriented health care: A challenge for patients with chrionic disease
    • Calahan ST, Feinstein Winitzer R, Keenan P. Transition from pediatric to adult oriented health care: A challenge for patients with chrionic disease. Curr Opin Pediatr 1991; 13: 310-6.
    • (1991) Curr Opin Pediatr , vol.13 , pp. 310-316
    • Calahan, S.T.1    Feinstein Winitzer, R.2    Keenan, P.3
  • 15
    • 1542603726 scopus 로고
    • Transition to adult health care for adolescents and young adults with chronic conditions
    • Rosen DS, Blum RW, Britto M, Sawyer SM, Siegel DM. Transition to adult health care for adolescents and young adults with chronic conditions. J Adolesc Health 1993; 33: 309-11.
    • (1993) J Adolesc Health , vol.33 , pp. 309-311
    • Rosen, D.S.1    Blum, R.W.2    Britto, M.3    Sawyer, S.M.4    Siegel, D.M.5
  • 16
    • 17644393873 scopus 로고
    • Smoothing the transition to adult care
    • Bennet DL, Towns SJ, Steinbeck KS. Smoothing the transition to adult care. MJA 1995; 182: 373-4.
    • (1995) MJA , vol.182 , pp. 373-374
    • Bennet, D.L.1    Towns, S.J.2    Steinbeck, K.S.3
  • 17
    • 0035203734 scopus 로고
    • Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views
    • Boyle MP, Faqrukhi Z, Nosky ML. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol 1991; 32: 428-36.
    • (1991) Pediatr Pulmonol , vol.32 , pp. 428-436
    • Boyle, M.P.1    Faqrukhi, Z.2    Nosky, M.L.3
  • 18
    • 33646155481 scopus 로고    scopus 로고
    • Health-related quality of life in adults with hemophilia: The patient perspective
    • Flood E, Szende A, Rentz A et al. Health-related quality of life in adults with hemophilia: The patient perspective. J Thromb Haemost 2003; 1(Suppl. 1): P0657.
    • (2003) J Thromb Haemost , vol.1 , Issue.SUPPL. 1
    • Flood, E.1    Szende, A.2    Rentz, A.3
  • 19
    • 0003565177 scopus 로고
    • On Surviving Childhood Cancer. Late Psychological Consequences for Patients, Parents, and Siblings
    • PhD Thesis, Erasmus University Rotterdam, Rotterdam
    • van Dongen-Melman JEWM. On Surviving Childhood Cancer. Late Psychological Consequences for Patients, Parents, and Siblings. PhD Thesis, Erasmus University Rotterdam, Rotterdam, 1995.
    • (1995)
    • van Dongen-Melman, J.E.W.M.1
  • 21
    • 23844475384 scopus 로고
    • Quality of life in childhood onset growth hormone-deficient patients in the transition phase from childhood to adulthood
    • Attanasio AF, Shavrikova EP, Blum WF, Shalet SM. Quality of life in childhood onset growth hormone-deficient patients in the transition phase from childhood to adulthood. J Clin Endocrinol Metab 1995; 90: 4525-9.
    • (1995) J Clin Endocrinol Metab , vol.90 , pp. 4525-4529
    • Attanasio, A.F.1    Shavrikova, E.P.2    Blum, W.F.3    Shalet, S.M.4
  • 22
    • 0023387740 scopus 로고
    • Appraisals of control and predictability in adapting to a chronic disease
    • Affleck G, Tenne H, Pfeifer C, Fifield J. Appraisals of control and predictability in adapting to a chronic disease. J Pers Soc Psychol 1987; 53: 273-9.
    • (1987) J Pers Soc Psychol , vol.53 , pp. 273-279
    • Affleck, G.1    Tenne, H.2    Pfeifer, C.3    Fifield, J.4
  • 23
    • 0034533965 scopus 로고    scopus 로고
    • Fibromyalgia, physical activity, and daily functioning: The importance of efficacy and health related quality of life
    • Culos-Reed SN, Brawley LR. Fibromyalgia, physical activity, and daily functioning: The importance of efficacy and health related quality of life. Arthritis Care Res 1999; 13: 343-51.
    • (1999) Arthritis Care Res , vol.13 , pp. 343-351
    • Culos-Reed, S.N.1    Brawley, L.R.2
  • 25
    • 34248549383 scopus 로고    scopus 로고
    • Psychological aspects and coping styles of parents with haemophilic child undergoing a programme of counselling and psychological support
    • Bottos ASM, Zanon E, Sartori MT, Girolami A. Psychological aspects and coping styles of parents with haemophilic child undergoing a programme of counselling and psychological support. Haemophilia 1997; 13: 305-10.
    • (1997) Haemophilia , vol.13 , pp. 305-310
    • Bottos, A.S.M.1    Zanon, E.2    Sartori, M.T.3    Girolami, A.4
  • 26
    • 19944408601 scopus 로고
    • Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL)
    • The HAEMO-QOL Group
    • Mackensen S von, Bullinger M, The HAEMO-QOL Group. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe (Haemo-QoL). Haemophilia 1994; 10: 17-25.
    • (1994) Haemophilia , vol.10 , pp. 17-25
    • von Mackensen, S.1    Bullinger, M.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.