Clinical Changes of Patients with Cystic Fibrosis during Transition from Pediatric to Adult Care

Journal of Adolescent Health

Volumn 43, Issue 5, 2008, Pages 459-465

  Duguépéroux, Ingrid ^a   Tamalet, Aline ^a,b   Sermet Gaudelus, Isabelle ^c   Le Bourgeois, Muriel ^c   Gérardin, Michèle ^d   Desmazes Dufeu, Nadine ^a   Hubert, Dominique ^a  

^a APHP ^*  (France)

^b ARMAND TROUSSEAU HOSPITAL   (France)

^c HÔPITAL NECKER ENFANTS MALADES   (France)

^d HÔPITAL ROBERT DEBRÉ   (France)

Author keywords

Adult center; Cystic fibrosis; Disease management; Pediatric center; Transition

Indexed keywords

ANTIBIOTIC AGENT; BRONCHODILATING AGENT; STEROID;

ADOLESCENT; ADULT; ARTICLE; BODY MASS; BRONCHUS; CHILD; CYSTIC FIBROSIS; FEMALE; FOLLOW UP; FORCED EXPIRATORY VOLUME; HEALTH CENTER; HOME; HUMAN; INFORMATION PROCESSING; LUNG FUNCTION; MAJOR CLINICAL STUDY; MALE; NUTRITIONAL STATUS; OUTPATIENT; PEDIATRIC HOSPITAL; PEDIATRICS; PHYSIOTHERAPY; PREDICTION; PRIORITY JOURNAL; PSEUDOMONAS AERUGINOSA; STUDENT;

ADOLESCENT; ADOLESCENT MEDICINE; ADULT; ANTI-BACTERIAL AGENTS; CYSTIC FIBROSIS; DISEASE PROGRESSION; FEMALE; HUMANS; INTERNAL MEDICINE; LUNG; MALE; PEDIATRICS; PHYSICIAN'S PRACTICE PATTERNS; RETROSPECTIVE STUDIES; YOUNG ADULT;

EID: 50049099579     PISSN: 1054139X     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jadohealth.2008.03.005     Document Type: Article

References (34)

1. Southern K.W., Munck A., Pollitt R.J., et al. A survey of newborn screening for cystic fibrosis in Europe. J Cyst Fibros 6 (2007) 57-65
2. Dodge J.A., Lewis P.A., Stanton M., and Wilsher J. Cystic fibrosis mortality and survival in the United Kingdom, 1947 to 2003. Eur Respir J 29 (2007) 522-526
3. Cystic Fibrosis Foundation. Patient Registry annual data report 2004 (2005), Cystic Fibrosis Foundation, Bethesda, MD
4. INED, Vaincre la Mucoviscidose. Observatoire National de la Mucoviscidose. Bilan des données 2004 (2006), INED, Paris, France
5. Davis P.B. Cystic fibrosis since 1938. Am J Respir Crit Care Med 173 (2006) 475-482
6. McDonagh J.E., and Viner R.M. Lost in transition? Between pediatric and adult Services. It's time to improve the transition of adolescents from pediatric to adult services. Br Med J 332 (2006) 435-436
7. Madge S., and Bryon M. A model for transition from pediatric to adult care in cystic fibrosis. J Pediatr Nurs 17 (2002) 283-285
8. Cameron J.S. The continued care of children with renal disease into adult life. Paediatr Nephrol 16 (2001) 680-685
9. Dommergues J.P., and Alvin P. Transition from pediatric to adult care in severe chronic diseases in children. Arch Pediatr 10 (2003) 295-299
10. Reid G.J., Irvine M.J., McCrindle B.W., et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 113 (2004) 197-205
11. Rettig P., and Athreya B.H. Adolescents with chronic disease: transiton to adult health care. Arthritis Care Res 4 (1991) 174-180
12. Sawyer S.M., Blair S., and Bowes G. Chronic illness in adolescents: transfer or transition to adult services?. J Paediatr Child Health 33 (1997) 88-90
13. Anderson D.L., Flume P.A., Hardy K.K., and Gray S. Transition programs in cystic fibrosis centers: perceptions of patients. Pediatr Pulmonol 33 (2002) 327-331
14. Conway S.P. Transition from paediatric to adult-orientated care for adolescents with cystic fibrosis. Disabil Rehabil 20 (1998) 209-216
15. Flume P.A., Anderson D.L., Hardy K.K., and Gray S. Transition programs in cystic fibrosis centers: perceptions of pediatric and adult program directors. Pediatr Pulmonol 31 (2001) 443-450
16. Hubert D., and Dusser D. Passage de la prise en charge pédiatrique à la prise en charge en médecine adulte. Rev Mal Respir 16 S3 (1999) 130-131
17. Nasr S.Z., Campbell C., and Howatt W. Transition program from pediatric to adult care for cystic fibrosis patients. J Adolesc Health 13 (1992) 682-685
18. Wallaert B., and Turck D. La mucoviscidose: transition de l'enfant à l'adulte. Rev Mal Respir 19 (2002) 401-403
19. Westwood A., Henley L., and Willcox P. Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives. J Paediatr Child Health 35 (1999) 442-445
20. American Academy of Pediatrics Committee on Children with Disabilities and Committee on Adolescence. Transition of care provided for adolescents with special health care needs. Pediatrics 98 6 Pt 1 (1996) 1203-1206
21. Welsh M.J., and Smith A.E. Molecular mechanisms of CFTR chloride channel dysfunction in cystic fibrosis. Cell 73 (1993) 1251-1254
22. Knudson R.J., Lebowitz M.D., Holberg C.J., and Burrows B. Changes in the normal maximal expiratory flow volume curve with growth and ageing. Am Rev Respir Dis 127 (1983) 725-734
23. Kerem E., Conway S., Elborn S., and Heijerman H. Standards of care for patients with cystic fibrosis: a European consensus. J Cyst Fibros 4 (2005) 7-26
24. Yankaskas J.R., Marshall B.C., Sufian B., et al. Cystic fibrosis adult care: consensus conference report. Chest 125 (2004) 1S-39S
25. Boyle M.P., Farukhi Z., and Nosky M.L. Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatr Pulmonol 32 (2001) 428-436
26. Dray X., Kanaan R., Bienvenu T., et al. Malnutrition in adults with cystic fibrosis. Eur J Clin Nutr 59 (2005) 152-154
27. Texereau J., Jamal D., Choukroun G., et al. Determinants of mortality for adults with cystic fibrosis admitted in Intensive Care Unit: a multicenter study. Respir Res 26 (2006) 7-14
28. Walters S., Britton J., and Hodson M.E. Demographic and social characteristics of adults with cystic fibrosis in the United Kingdom. Br Med J 306 (1993) 549-552
29. Burker E.J., Sedway J., and Carone S. Psychological and educational factors: better predictors of work status than FEV1 in adults with cystic fibrosis. Pediatr Pulmonol 38 (2004) 413-416
30. Tucker L.B., and Cabral D.A. Transition of the adolescent patient with rheumatic disease: issues to consider. Pediatr Clin North Am 52 (2005) 641-652
31. Bell L. Adolescents with renal disease in an adult world: meeting the challenge of transition of care. Nephrol Dial Transpl 22 (2007) 988-991
32. Savage M.O., and Besser G.M. When and how to transfer patients from paediatric to adult endocrinologists: experience from St. Bartholomew's hospital, London. Acta Pediatr Suppl 423 (1997) 127-128
33. Taylor L., Tsang A., and Drabble A. Transition of transplant patients with cystic fibrosis to adult care: today's challenges. Prog Transplant 16 (2006) 329-334
34. Sawyer S.M., Drew S., Yeo M.S., and Britto M.T. Adolescents with a chronic condition: challenges living, challenges treating. Lancet 369 (2007) 1481-1489