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Volumn 16, Issue 1, 2010, Pages 76-81

Optimizing health care for adults with spina bifida

Author keywords

Adult health care; Developmental disability; Health services; Secondary conditions; Spina bifida

Indexed keywords

ADULT; ADULT DISEASE; DISABILITY; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; MEDICAL RESEARCH; PRIORITY JOURNAL; REVIEW; SPINA BIFIDA; SURVIVAL;

EID: 77951659467     PISSN: 19405510     EISSN: 10982779     Source Type: Journal    
DOI: 10.1002/ddrr.99     Document Type: Review
Times cited : (37)

References (66)
  • 1
    • 36049041390 scopus 로고    scopus 로고
    • Urological follow-up of adult spina bifida patients
    • DOI 10.1002/nau.20447
    • Ahmad I, Granitsiotis P. 2007. Urological follow-up of adult spina bifida patients. Neurourol Urodyn 26:978-980. (Pubitemid 350085896)
    • (2007) Neurourology and Urodynamics , vol.26 , Issue.7 , pp. 978-980
    • Ahmad, I.1    Granitsiotis, P.2
  • 3
    • 34547688783 scopus 로고    scopus 로고
    • Patients with spina bifida and bladder cancer: Atypical presentation, advanced stage and poor survival
    • Austin JC, Elliott S, Cooper CS. 2007. Patients with spina bifida and bladder cancer: atypical presentation, advanced stage and poor survival. J Urol 178:798-801.
    • (2007) J Urol , vol.178 , pp. 798-801
    • Austin, J.C.1    Elliott, S.2    Cooper, C.S.3
  • 4
    • 34548763200 scopus 로고    scopus 로고
    • Sexual health in adult men with spina bifida
    • DOI 10.1100/tsw.2007.191
    • Bong GW, Rovner ES. Sexual health in adult men with spina bifida. 2007. Sci World J 7:1466-1469. (Pubitemid 47435429)
    • (2007) TheScientificWorldJournal , vol.7 , pp. 1466-1469
    • Bong, G.W.1    Rovner, E.S.2
  • 5
    • 0242317804 scopus 로고    scopus 로고
    • Arterial vascular properties in individuals with spina bifida
    • Boot CRL, vanLangen H, Hopman MTE. 2003. Arterial vascular properties in individuals with spina bifida. Spinal Cord 41:242-246.
    • (2003) Spinal Cord , vol.41 , pp. 242-246
    • Boot, C.R.L.1    Vanlangen, H.2    Hopman, M.T.E.3
  • 6
    • 77951659766 scopus 로고    scopus 로고
    • Neurosurgical management of spina bifida
    • Bowman R, McLone D. 2010. Neurosurgical management of spina bifida. Dev Disabil Res Rev 16:82-87.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 82-87
    • Bowman, R.1    McLone, D.2
  • 9
    • 55249096682 scopus 로고    scopus 로고
    • Cardiovascular disease risk factors and the relationships with physical activity, aerobic fitness, and body fat in adolescents and young adults with myelomeningocele
    • Buffart LM, van den Berg-Emons RJ, Burdorf A, et al. 2008b. Cardiovascular disease risk factors and the relationships with physical activity, aerobic fitness, and body fat in adolescents and young adults with myelomeningocele. Arch Phys Med Rehabil 89:2167-2173.
    • (2008) Arch Phys Med Rehabil , vol.89 , pp. 2167-2173
    • Buffart, L.M.1    Van Den Berg-Emons, R.J.2    Burdorf, A.3
  • 10
    • 70350498926 scopus 로고    scopus 로고
    • Lifestyle, participation, and health-related quality of life in adolescents and young adults with myelomeningocele
    • Buffart LM, van den Berg-Emons RJG, van Meetern J, et al. 2009. Lifestyle, participation, and health-related quality of life in adolescents and young adults with myelomeningocele. Dev Med Child Neurol 51:886-894.
    • (2009) Dev Med Child Neurol , vol.51 , pp. 886-894
    • Buffart, L.M.1    Van Den Berg-Emons, R.J.G.2    Van Meetern, J.3
  • 12
    • 69049113487 scopus 로고    scopus 로고
    • Centers for Disease Control and Prevention (CDC). National Center for Health Statistics. Hyattsville, MD: US Department of Health and Human Services, Centers for Disease Control and Prevention
    • Centers for Disease Control and Prevention (CDC). 2007. National Center for Health Statistics. National Health and Nutrition Examination Survey 2005-2006. Hyattsville, MD: US Department of Health and Human Services, Centers for Disease Control and Prevention.
    • (2007) National Health and Nutrition Examination Survey 2005-2006
  • 14
    • 77951660701 scopus 로고    scopus 로고
    • The cognitive phenotype of spina bifida myelomeningocele
    • Dennis M, Barnes M. 2010. The cognitive phenotype of spina bifida myelomeningocele. Dev Disabil Res Rev 16:31-39.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 31-39
    • Dennis, M.1    Barnes, M.2
  • 15
    • 0030748915 scopus 로고    scopus 로고
    • Determination of independent risk factors and comparative analysis of diagnostic methods for immediate type latex allergy in spina bifida patients
    • De Swert LF, Van Laer KM, Verpoorten CM, et al. 1997. Determination of independent risk factors and comparative analysis of diagnostic methods for immediate type latex allergy in spina bifida patients. Clin Exp Allergy 27:1067-1076.
    • (1997) Clin Exp Allergy , vol.27 , pp. 1067-1076
    • De Swert, L.F.1    Van Laer, K.M.2    Verpoorten, C.M.3
  • 16
    • 23844542168 scopus 로고    scopus 로고
    • Long-term survival of individuals with myelomeningocele
    • Davis BE, Daley CM, Shurtleff DB, et al. 2005. Long-term survival of individuals with myelomeningocele. Pediatr Neurosurg 41:186-191.
    • (2005) Pediatr Neurosurg , vol.41 , pp. 186-191
    • Davis, B.E.1    Daley, C.M.2    Shurtleff, D.B.3
  • 17
    • 57849116488 scopus 로고    scopus 로고
    • Rehabilitation and medical management of the adult with spina bifida
    • Dicianno BE, Kurkowski BG, Yang JMJ, et al. 2008. Rehabilitation and medical management of the adult with spina bifida. Am J Phys Med and Rehabil 87:1027-1050.
    • (2008) Am J Phys Med and Rehabil , vol.87 , pp. 1027-1050
    • Dicianno, B.E.1    Kurkowski, B.G.2    Yang, J.M.J.3
  • 19
    • 70349758771 scopus 로고    scopus 로고
    • Obesity across the lifespan among persons with spina bifida
    • Dosa NP, Foley JT, Eckrich M, et al. 2009. Obesity across the lifespan among persons with spina bifida. Disabil Rehabil 31:914-920.
    • (2009) Disabil Rehabil , vol.31 , pp. 914-920
    • Dosa, N.P.1    Foley, J.T.2    Eckrich, M.3
  • 21
    • 17344387419 scopus 로고    scopus 로고
    • Non-selective intervention in newborn babies with open spina bifida: The outcome 30 years on for the complete cohort
    • Hunt GM. 1999. Non-selective intervention in newborn babies with open spina bifida: the outcome 30 years on for the complete cohort. Eur J Pediatr Surg 9:S5-S8.
    • (1999) Eur J Pediatr Surg , vol.9
    • Hunt, G.M.1
  • 23
    • 38149021554 scopus 로고    scopus 로고
    • Reproductive health care for women with spina bifida
    • Jackson AB, Mott PK. 2007. Reproductive health care for women with spina bifida. Sci World J 7:1875-1883.
    • (2007) Sci World J , vol.7 , pp. 1875-1883
    • Jackson, A.B.1    Mott, P.K.2
  • 24
    • 20844462385 scopus 로고    scopus 로고
    • Reproductive issues for women with spina bifida
    • Jackson AB, Sipski ML. 2005. Reproductive issues for women with spina bifida. J Spinal Cord Med 28:81-91.
    • (2005) J Spinal Cord Med , vol.28 , pp. 81-91
    • Jackson, A.B.1    Sipski, M.L.2
  • 25
    • 77951659234 scopus 로고    scopus 로고
    • Anomalous development of brain structure and function in spina bifida myelomeningocele
    • Juranek J, Salman M. 2010. Anomalous development of brain structure and function in spina bifida myelomeningocele. Dev Disabil Res Rev 16:23-30.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 23-30
    • Juranek, J.1    Salman, M.2
  • 27
    • 0032936589 scopus 로고    scopus 로고
    • Sleep disordered breathing in patients with myelomeningocele: The missed diagnosis
    • DOI 10.1017/S0012162299000079
    • Kirk VG, Morielli A, Brouillette RT. 1999. Sleep-disordered breathing in patients with myelomeningocele: the missed diagnosis. Dev Med Child Neurol 41:40-43. (Pubitemid 29027545)
    • (1999) Developmental Medicine and Child Neurology , vol.41 , Issue.1 , pp. 40-43
    • Kirk, V.G.1    Morielli, A.2    Brouillette, R.T.3
  • 29
    • 77951653361 scopus 로고    scopus 로고
    • Optimizing health care for children with spina bifida
    • Liptak G, El Samra A. 2010. Optimizing health care for children with spina bifida. Dev Disabil Res Rev 16:66-75.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 66-75
    • Liptak, G.1    El Samra, A.2
  • 30
    • 77951655679 scopus 로고    scopus 로고
    • Journey into the unknown: A survey into the effects of ageing on the health of people with spina bifida and/or hydrocephalus in the West Midlands area
    • Long G, Green J. 2009. Journey into the unknown: a survey into the effects of ageing on the health of people with spina bifida and/or hydrocephalus in the West Midlands area. Cerebrospinal Fluid Res 6:S29.
    • (2009) Cerebrospinal Fluid Res , vol.6
    • Long, G.1    Green, J.2
  • 32
    • 0034110122 scopus 로고    scopus 로고
    • Issues of medical management in adults with spina bifida
    • McDonnell GV, McCann JP. 2000. Issues of medical management in adults with spina bifida. Child's Nerv Syst 16:222-227. (Pubitemid 30316935)
    • (2000) Child's Nervous System , vol.16 , Issue.4 , pp. 222-227
    • McDonnell, G.V.1    McCann, J.P.2
  • 33
    • 0034492888 scopus 로고    scopus 로고
    • Prevalence of the chiari/hydrosyringomyelia complex in adults with spina bifida: Preliminary results
    • McDonnell GV, McCann JP, Craig JJ, et al. 2000. Prevalence of the chiari/hydrosyringomyelia complex in adults with spina bifida: preliminary results. Eur J Pediatr Surg 10:18-19.
    • (2000) Eur J Pediatr Surg , vol.10 , pp. 18-19
    • McDonnell, G.V.1    McCann, J.P.2    Craig, J.J.3
  • 34
    • 33847149870 scopus 로고    scopus 로고
    • Postnatal surgery for myelomeningocele
    • Wyszynski DF, editor. New York: Oxford University Press
    • Miller JP, Cohen AR. 2006. Postnatal surgery for myelomeningocele. In: Wyszynski DF, editor. Neural tube defects: from origin to treatment. New York: Oxford University Press. p231-240.
    • (2006) Neural Tube Defects: From Origin to Treatment , pp. 231-240
    • Miller, J.P.1    Cohen, A.R.2
  • 35
    • 62149122983 scopus 로고    scopus 로고
    • Adolescent paraplegia, morbid obesity, and pickwickian syndrome: Outcome of gastric bypass surgery
    • Miyano G, Kalra M, Inge TH. 2009. Adolescent paraplegia, morbid obesity, and pickwickian syndrome: outcome of gastric bypass surgery. J Pediatr Surg 44:e41-e44.
    • (2009) J Pediatr Surg , vol.44
    • Miyano, G.1    Kalra, M.2    Inge, T.H.3
  • 36
    • 0027721939 scopus 로고
    • A new clinic for young adults with spina bifida and/or hydrocephalus - age 16-25 years
    • Morgan DJR, M.C. Blackburn MC, Bax MCO. 1993. A new clinic for young adults with spina bifida and/or hydrocephalus - age 16-25 years. Eur J Pediatr Surg 3:S23-S24.
    • (1993) Eur J Pediatr Surg , vol.3
    • Morgan, D.J.R.1    Blackburn Mc, M.C.2    Bax, M.C.O.3
  • 38
    • 33645145046 scopus 로고    scopus 로고
    • Transitional and health issues of adults with neural tube defects
    • Nehring WM, Faux SA. 2006. Transitional and health issues of adults with neural tube defects. J Nurs Scholarsh 38:63-70.
    • (2006) J Nurs Scholarsh , vol.38 , pp. 63-70
    • Nehring, W.M.1    Faux, S.A.2
  • 40
    • 0031794762 scopus 로고    scopus 로고
    • Latex provocation tests in patients with spina bifida: Who is at risk of becoming symptomatic?
    • Niggemann B, Buck D, Michael T, et al. 1998. Latex provocation tests in patients with spina bifida: who is at risk of becoming symptomatic? J Allergy Clin Immunol 102: 665-670.
    • (1998) J Allergy Clin Immunol , vol.102 , pp. 665-670
    • Niggemann, B.1    Buck, D.2    Michael, T.3
  • 42
    • 84898707315 scopus 로고    scopus 로고
    • Expectation of life and unexpected death in open spina bifida: 40 year complete, non-selective longitudinal cohort study
    • Oakeshott P, Hunt GM, Poulton A, et al. Expectation of life and unexpected death in open spina bifida: 40 year complete, non-selective longitudinal cohort study. Cerebrospinal Fluid Res 6:S4.
    • Cerebrospinal Fluid Res , vol.6
    • Oakeshott, P.1    Hunt, G.M.2    Poulton, A.3
  • 44
    • 0033889327 scopus 로고    scopus 로고
    • Erectile dysfunction in patients with spina bifida is a treatable condition
    • Palmer JS, Kaplan WE, Firlit CF. 2000. Erectile dysfunction in patients with spina bifida is a treatable condition. J Urol 164:958-961.
    • (2000) J Urol , vol.164 , pp. 958-961
    • Palmer, J.S.1    Kaplan, W.E.2    Firlit, C.F.3
  • 46
    • 0024379677 scopus 로고
    • Obstructive sleep apnea leading to increased intracranial pressure in a patient with hydrocephalus and syringomyelia
    • Pasterkamp H, Cardoso ER, Booth, FA. 1989. Obstructive sleep apnea leading to increased intracranial pressure in a patient with hydrocephalus and syringomyelia. Chest 95:1064-1067. (Pubitemid 19137002)
    • (1989) Chest , vol.95 , Issue.5 , pp. 1064-1067
    • Pasterkamp, H.1    Cardoso, E.R.2    Booth, F.A.3
  • 47
    • 55649089928 scopus 로고    scopus 로고
    • Neurosurgical management of adults with spina bifida
    • Wyszynski DF, editor. New York: Oxford University Press
    • Rekate HL. 2006. Neurosurgical management of adults with spina bifida. In: Wyszynski DF, editor. Neural tube defects: from origin to treatment. New York: Oxford University Press. p 241-249.
    • (2006) Neural Tube Defects: From Origin to Treatment , pp. 241-249
    • Rekate, H.L.1
  • 49
    • 67651153140 scopus 로고    scopus 로고
    • Adult outcomes and lifespan issues for people with childhood-onset physical disability
    • Roebroeck ME, Jahnsen R, Carona C, et al. 2009. Adult outcomes and lifespan issues for people with childhood-onset physical disability. Dev Med Child Neurol 51:670-678.
    • (2009) Dev Med Child Neurol , vol.51 , pp. 670-678
    • Roebroeck, M.E.1    Jahnsen, R.2    Carona, C.3
  • 50
    • 56149087664 scopus 로고    scopus 로고
    • Factors affecting shoulder pain in adolescents and young adults with spina bifida
    • Roehrig S, Like G. 2008. Factors affecting shoulder pain in adolescents and young adults with spina bifida. Pediatr Phys Ther 20:224-232.
    • (2008) Pediatr Phys Ther , vol.20 , pp. 224-232
    • Roehrig, S.1    Like, G.2
  • 51
    • 77951656341 scopus 로고    scopus 로고
    • Transition to adult health care for individuals with spina bifida
    • Sawyer S, Macnee S. 2010. Transition to adult health care for individuals with spina bifida. Dev Disabil Res Rev 16:60-65.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 60-65
    • Sawyer, S.1    Macnee, S.2
  • 52
    • 33748991719 scopus 로고    scopus 로고
    • Sexuality and seeking medical help for erectile dysfunction in young adults with spina bifida
    • DOI 10.1111/j.1442-2042.2006.01559.x
    • Shiomi T, Hirayama A, Fujimoto K, et al. 2006. Sexuality and seeking medical help for erectile dysfunction in young adults with spina bifida. Int J Urol 13:1323-1326. (Pubitemid 44453700)
    • (2006) International Journal of Urology , vol.13 , Issue.10 , pp. 1323-1326
    • Shiomi, T.1    Hirayama, A.2    Fujimoto, K.3    Hirao, Y.4
  • 53
    • 0034495610 scopus 로고    scopus 로고
    • 44 years experience with management of myelomengocele: Presidential address, society for research into hydrocephalus and spina bifda
    • Shurtleff DB. 2000. 44 years experience with management of myelomengocele: presidential address, society for research into hydrocephalus and spina bifda. Eur J Pediatr Surg 10:S5-S8.
    • (2000) Eur J Pediatr Surg , vol.10
    • Shurtleff, D.B.1
  • 55
    • 77951663382 scopus 로고    scopus 로고
    • Orthopedic management of spina bifida
    • Thomson J, Segal L. 2010. Orthopedic management of spina bifida. Dev Disabil Res Rev 16:96-103.
    • (2010) Dev Disabil Res Rev , vol.16 , pp. 96-103
    • Thomson, J.1    Segal, L.2
  • 56
    • 0029157537 scopus 로고
    • Complications with shunts in adults with spina bifida
    • Tomlinson P, Sugarman ID. 1995. Complications with shunts in adults with spina bifida. BMJ 311:286-287.
    • (1995) BMJ , vol.311 , pp. 286-287
    • Tomlinson, P.1    Sugarman, I.D.2
  • 57
    • 50849087684 scopus 로고    scopus 로고
    • Efficacy of pregabalin and gabapentin for neuropathic pain in spinal-cord injury: An evidence-based evaluation of the literature
    • Tzellos TG, Papazisis G, Amaniti E, et al. 2008. Efficacy of pregabalin and gabapentin for neuropathic pain in spinal-cord injury: an evidence-based evaluation of the literature. Eur J Clin Pharmacol 64:851-858.
    • (2008) Eur J Clin Pharmacol , vol.64 , pp. 851-858
    • Tzellos, T.G.1    Papazisis, G.2    Amaniti, E.3
  • 58
    • 0037708667 scopus 로고    scopus 로고
    • U.S. Preventive Services Task Force. Agency for Healthcare Research and Quality
    • U.S. Preventive Services Task Force. 2006. The guide to clinical preventive services. Agency for Healthcare Research and Quality.
    • (2006) The Guide to Clinical Preventive Services
  • 60
    • 0242442028 scopus 로고    scopus 로고
    • Body fat, fitness and level of everyday physical activity in adolescents and young adults with meningomyelocele
    • van den Berg-Emons HJ, Bussmann JB, Meyerink HJ, et al. 2003. Body fat, fitness and level of everyday physical activity in adolescents and young adults with meningomyelocele. J Rehabil Med 35:271-275.
    • (2003) J Rehabil Med , vol.35 , pp. 271-275
    • Van Den Berg-Emons, H.J.1    Bussmann, J.B.2    Meyerink, H.J.3
  • 63
    • 0025863475 scopus 로고
    • MRC Vitamin Study Research Group, Prevention of neural tube defects: Results of the Medical Research Council Vitamin Study
    • Wald N, Sneddon J, Densem J, et al. 1991. MRC Vitamin Study Research Group, Prevention of neural tube defects: results of the Medical Research Council Vitamin Study. Lancet 338:131-137.
    • (1991) Lancet , vol.338 , pp. 131-137
    • Wald, N.1    Sneddon, J.2    Densem, J.3
  • 64
    • 85013618962 scopus 로고    scopus 로고
    • Medical care of adults with spina bifida
    • Webb TS. 2009. Medical care of adults with spina bifida. J Pediatr Rehab Med 2:3-11.
    • (2009) J Pediatr Rehab Med , vol.2 , pp. 3-11
    • Webb, T.S.1
  • 65
    • 14144251227 scopus 로고    scopus 로고
    • Myelomeningocele in young adults
    • Woodhouse CRJ. 2005. Myelomeningocele in young adults. BJU Int 95:223-230.
    • (2005) BJU Int , vol.95 , pp. 223-230
    • Woodhouse, C.R.J.1
  • 66
    • 66649114468 scopus 로고    scopus 로고
    • After the honeymoon comes divorce: Long-term use of the antegrade continence enema procedure
    • Yardley IE, Pauniaho SL, Baillie CT, et al. 2009. After the honeymoon comes divorce: long-term use of the antegrade continence enema procedure. J Ped Surg 44:1274-1276.
    • (2009) J Ped Surg , vol.44 , pp. 1274-1276
    • Yardley, I.E.1    Pauniaho, S.L.2    Baillie, C.T.3


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