Obtaining the views of children and young people with autism spectrum disorders about their experience of daily life and social care support

British Journal of Learning Disabilities

Volumn 38, Issue 1, 2010, Pages 10-20

  Preece, David ^a   Jordan, Rita ^a  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

Author keywords

Autism; Communication; Disabled children; Research

Indexed keywords

EID: 77949908367     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1111/j.1468-3156.2009.00548.x     Document Type: Article

References (62)

1. Anderson D. Barnardos family link scheme: retrospective study 1996, Dundee, Barnardos
2. Aston G. Through the eyes of autism. Good Autism Pract 2000, 1:57-61.
3. Baird G, Simonoff E, Pickles A, Chandler S, Loucas T. Prevalence of disorders of the autistic spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). Lancet 2006, 368:210-5.
4. Bell DM, Cameron L. From Dare I say...? to I dare say: a case example illustrating the extension of the use of Talking Mats to people with learning disabilities who are able to speak well but unwilling to do so. Br J Learn Disabil 2008, 36:122-7.
5. Beresford B, Tozer R. Finding out about outcomes of social care for children and young people with autistic spectrum disorders 2003, York, University of York Social Policy Research Unit
6. Beresford B, Tozer R, Rabiee P, Sloper P. Developing an approach to involving children with autistic spectrum disorders in a social care research project. Br J Learn Disabil 2004, 32:180-5.
7. Bogdashina O. Communication issues in autism and Asperger syndrome 2005, London, Jessica Kingsley
8. Boucher J, Lewis V. Memory impairments and communication in relatively able autistic children. J Child Psychol Psychiatry 1989, 30:99-122.
9. Bowler DM, Gardiner JM, Grice SJ. Episodic memory and remembering in adults with Asperger syndrome. J Autism Dev Disord 2000, 30:295-304.
10. Brewster S. Putting words into their mouths? Interviewing people with learning disabilities and little/no speech. Br J Learn Disabil 2004, 32:166-9.
11. Bruner J, Feldman C. Theories of mind and the problem of autism. Understanding other minds: perspectives from autism 1993, 267-91. Baron-Cohen S, Tager-Flusberg HCohen DJ. In, editors, Oxford, Oxford University Press
12. Cameron L, Murphy J. Enabling young people with a learning disability to make choices at a time of transition. Br J Learn Disabil 2002, 30:105-112.
13. Capps L, Kehres J, Sigman M. Conversational abilities among children with autism and children with developmental delays. Autism 1998, 2:325-44.
14. Research with children: perspectives and practice 2000, Christensen PJames A. Eds, London, Routledge Falmer
15. Connors C, Stalker K. The views and experiences of disabled children and their siblings - a positive approach 2003, London, Jessica Kingsley
16. Children Act 2004, London, HMSO
17. Dodd L. Supporting the siblings of young children with disabilities. Br J Spec Educ 2004, 31:41-9.
18. Flack R, Harris J, Jordan R, Wimpory D. The special educational needs of children with autism. Unit 3: communication 1996, Birmingham, School of Education, University of Birmingham
19. Frost L, Bondy A. The picture exchange communication system - training manual 2002, 2nd ed, Newark, DE, Pyramid Educational Products
20. Gerland G. Life on the outside 2003, London, Souvenir Press
21. Groden J, Cautela J, Prince S, Berryman J. The impact of stress and anxiety on individuals with autism and developmental disabilities. Behavioral issues in autism 1994, 178-94. Schopler E, Mesibov GB, In, editors, New York, Plenum
22. Aiming high for disabled children: better support for families 2007, Norwich, Office of Public Sector Information
23. Howlin P. Children with autism and Asperger syndrome: a guide for practitioners and carers 1998, Chichester, John Wiley & Sons
24. Jackson L. Freaks, Geeks and Asperger syndrome: a user guide to adolescence 2002, London, Jessica Kingsley
25. Jones G, Ellins G, Guldberg K, Jordan R, MacLeod A. A Review of the needs and services for 10-18 year old children and young people diagnosed with Asperger syndrome living in Northern Ireland 2007, Birmingham, University of Birmingham
26. Jordan R. Autistic spectrum disorders: an introductory handbook for practitioners 1999, London, David Fulton
27. Jordan R, Powell S. Understanding and teaching children with autism 1995, Chichester, Wiley
28. Koegel RL, Schriebmann L, Loos LM, Dirlich-Wilhelm H, Dunlap G. Consistent stress profiles in mothers of children with autism. J Autism Dev Disord 1992, 22:205-16.
29. Lymbery M. Social work at the crossroads. Br J Soc Work 2001, 31:369-84.
30. Manthorpe J, Moriarty J, Rapaport J, Clough R, Cornes M. 'There are wonderful social workers out there but it's a lottery': older people's views about social workers. Br J Soc Work 2007, 38:1132-50.
31. Marchant R, Jones M, Julyan A, Giles A. Listening on all channels: consulting with disabled children and young people 1999, Brighton, Triangle
32. Marchant R, Crisp A, Jones M. " What We Think!" views of children and young people in Southwark 2001, Brighton, Triangle
33. Mesibov GB, Shea V, Schopler E. The TEACCH approach to autism spectrum disorders 2005, New York, Kluwer
34. Middleton L. Disabled children: challenging social exclusion 1999, Oxford, Blackwell
35. Miles M, Huberman A. Qualitative data analysis 1994, 2nd ed, London, Sage
36. Morris J. Don't leave us out: involving disabled children and young people with communication impairments 1998, York, Joseph Rowntree Foundation
37. Mottron L, Morasse K, Belleville S. A study of memory functioning in individuals with autism. J Child Psychol Psychiatry 2001, 42:253-60.
38. Murphy J, Cameron L. The effectiveness of Talking Mats® with people with intellectual disability. Br J Learn Disabil 2008, 36:232-41.
39. Ockelford A. Objects of reference 1993, London, RNIB
40. Pierce K, Glad KS, Schreibman L. Social perception in children with autism: an attentional deficit. J Autism Dev Disord 1997, 27:265-82.
41. Powell S, Jordan R. Using photographs to develop autobiographical memory in children with autism. Living with autism: the individual, the family and the professional 1992, 79-88. Lowden G, Shattock P. In, editors, , Sunderland, University of Sunderland Autism Research Unit
42. Preece DR. Consultation with children with autistic spectrum disorders about their experience of short-term residential care. Br J Learn Disabil 2002, 30:97-104.
43. Preece D, Jordan R. Short breaks services for children with autistic spectrum disorders: factors associated with service use and non-use. J Autism Dev Disord 2007, 37:374-85.
44. Radcliffe JJL, Turk V. Distress in children with learning disabilities at a respite unit: perspectives on their experiences. Br J Learn Disabil 2007, 36:91-101.
45. Randall P, Parker J. Supporting the families of children with autism 1999, Chichester, Wiley
46. Reid DH, Green CW. Person-centred planning with people who have severe multiple disabilities: validated practices and misapplications. Person-centred planning research practice and future directions 2002, Holburn S, Vietze PM. In, editors, Baltimore, Paul H. Brookes
47. Robinson C, Stalker K. Respite care: the consumer's view 1990, Bristol, Norah Fry Research Centre
48. Robson C. Real world research 2002, 2nd ed, Oxford, Blackwell
49. Rodgers J. Trying to get it right: understanding research involving people with learning difficulties. Disabil Soc 1999, 14:421-33.
50. Rosenblatt J, Bloom P, Koegel RL. Overselective responding: description, implications and intervention. Teaching Children with autism: Strategies for initiating positive interactions and improving learning opportunities 1995, 33-42. Koegel RL, Koegel LK, In, editors, Baltimore, MD, Brookes
51. Sainsbury C. Martian in the playground 2000, Bristol, Lucky Duck
52. Sargent JA. The future of respite care resources for children with autism in North East Essex 1995, Colchester, Essex County Council
53. Schopler E, Mesibov GB, Hearsey K. Structured teaching in the TEACCH system. Learning and cognition in autism 1995, 243-68. Schopler E, Mesibov GB, In, editors, New York, Plenum
54. Siegel B. The world of the autistic child 1996, Oxford, Oxford University Press
55. Taylor K. The participation of children with multi-sensory impairment in person-centred planning. Br J Spec Educ 2007, 34:204-11.
56. Convention on the rights of persons with disabilities 2006, New York, United Nations
57. Volkmar FR, Carter A, Grossman J, Klin A. Social development in autism. Autism and pervasive developmental disorders 1997, 173-94. Cohen DJ, Volkmar FR, In, editors, 2nd ed, New York, Wiley
58. Ware J. Ascertaining the views of people with profound and multiple learning disabilities. Br J Learn Disabil 2004, 32:175-9.
59. Watson D, Abbott D, Townsley R. Listen to me, too! Lessons from involving children with complex healthcare needs in research about multi-agency services. Child Care Health Dev 2006, 33:90-5.
60. Whitehurst T. Liberating silent voices - perspectives of children with profound and complex learning needs on inclusion. Br J Learn Disabil 2006, 35:55-61.
61. Wing L. The definition and prevalence of autism: a review. Eur Child Adolesc Psychol 1993, 2:61-74.
62. Wing L, Gould J. Severe impairments of social interaction and associated abnormalities in children: epidemiology and classification. J Autism Dev Disord 1979, 9:11-29.