Consultation with children with autistic spectrum disorders about their experience of short-term residential care

British Journal of Learning Disabilities

Volumn 30, Issue 3, 2002, Pages 97-104

  Preece, David ^a  

^a Northamptonshire Social Care and Health and John Greenwood Shipman Centre   (United Kingdom)

Author keywords

Autism; Consultation; Short term care

Indexed keywords

EID: 33845614839     PISSN: 13544187     EISSN: 14683156     Source Type: Journal    
DOI: 10.1046/j.1468-3156.2002.00179.x     Document Type: Article

References (46)

1. Allison H.G. (1999) Valuing residential care staff in services for autism. Good Autism Practice, 1999: 91-97.
2. Anderson D. (1996) Barnardos Family Link Scheme: retrospective study. London, Barnardos.
3. Barson C. (1998) Autism: supporting the family. A report on the short term-care needs of children with autism in Wales. London, National Autistic Society.
4. Bassey M. (1999) Case study research in educational settings. Buckingham, Open University.
5. Beresford B. (1994) Positively parents: caring for a severely disabled child. London, HMSO.
6. Beresford B. (1997) Personal accounts: involving disabled children in research. London, The Stationery Office.
7. Brady P. (1998) Shaping family support: a study of specialist community-based support for families of people with autism spectrum disorders. Nottingham, National Autistic Society.
8. Bristol M.M. & Schopler E. (1983) Coping and stress in families of autistic adolescents. In: Schopler E., Mesibov G.B., editors. Autism in adolescents and adults. New York, NY, Plenum Press: 251-278.
9. Capps L., Kehres J. & Sigman M. (1998) Conversational abilities among children with autism and children with developmental delays. Autism, 2: 325-44.
10. Department of Health (DoH) (1991) The Children Act 1989. Guidance and regulations, Vols 1-9. London, HMSO.
11. Factor D.C., Perry A. & Freeman N. (1990) Stress, social support and respite care use in families with autistic children. / Autism Dev Disorders, 20: 139-16.
12. Flack R., Harris J., Jordan R. & Wimpory D. (1996) The special educational needs of children with autism. Unit 3: communication. Birmingham, University of Birmingham.
13. Garfin D.G. & Lord C. (1986) Communication as a social problem in autism. In: Schopler E., Mesibov G.B., editors. Social behavior in autism. New York, NY, Plenum Press: 133-152.
14. Green L., Fein D., Joy S. & Waterhouse L. (1995) Cognitive functioning in autism: an overview. In: Schopler E., Mesibov G.B., editors. Learning and cognition in autism. New York, NY, Plenum Press: 13-32.
15. Griffiths M. (1998) Educational research for social justice. Buckingham, Open University.
16. Groden J., Cautela J., Prince S. & Berryman J. (1994) The impact of stress and anxiety on individuals with autism and developmental disabilities. In: Schopler E., Mesibov G.B., editors. Behavioral issues in autism. New York, NY, Plenum Press: 178-194.
17. Happé F. (1994) Autism: an introduction to psychological theory. London, UCL Press.
18. Hobson R.P. (1993) Autism and the development of mind. Hove, Psychology Press.
19. Howlin P. (1998) Children with autism and Asperger syndrome: a guide for practitioners and carers. Chichester, Wiley.
20. Jarrold C, Boucher J. & Russell J. (1997) Language profiles in children with autism: theoretical and methodological implications. Autism, 2: 57-76.
21. Jordan R. (1999) Autistic spectrum disorders: an introductory handbook for practitioners. London, David Fulton.
22. Jordan R. & Powell S. (1995) Understanding and teaching children with autism. Chichester, Wiley.
23. Lincoln A.J., Allen M.H. & Kilman A. (1995) The assessment and interpretation of intellectual abilities in people with autism. In: Schopler E., Mesibov G.B., editors. Learning and cognition in autism. New York, NY, Plenum Press: 89-118.
24. Marchant R., Jones M., Julyan A. & Giles A. (1999) Listening on all channels: consulting with disabled children and young people. Brighton, Triangle.
25. Mesibov G.B. (1986) A cognitive program for teaching social behaviors to verbal autistic adolescents and adults. In: Schopler E., Mesibov G.B., editors. Social behavior in autism. New York, NY, Plenum Press: 265-284.
26. Mesibov G.B., Adams L. & Klinger L. (1997) Autism: understanding the disorder. New York, NY, Plenum Press.
27. Mesibov G.B., Schopler E. & Hearsey K.A. (1994) Structured teaching. In: Schopler E., Mesibov G.B., editors. Behavioral issues in autism. New York, NY, Plenum Press: 195-210.
28. Middleton L. (1999) Disabled children: challenging social exclusion. Oxford, Blackwell.
29. Minkes J., Robinson C. & Weston C. (1994) Consulting the children: interviews with children using residential respite care services. Disability Soc, 9: 47-57.
30. Morris J. (1998a) Still missing? Vol. 2: disabled children and the Children Act. London, Who Cares?. Trust.
31. Morris J. (1998b) Don't leave us out: involving disabled children and young people with communication impairments. York, Joseph Rowntree Foundation.
32. Morris J. (1998c) Still missing? Vol. 1: the experiences of disabled children and young people living away from home. London, Who Cares? Trust.
33. Peeters T. & Gillberg C. (1999) Autism: medical and educational aspects, 2nd edn. London, Whurr.
34. Peeters T. & Jordan R. (1999) What makes a good practitioner in the field of autism? Good Autism Practice, 1999: 85-9.
35. Powell S. & Jordan R. (1997) Rationale for the approach. In: Powell S., Jordan R., editors. Autism and learning: a guide to good practice. London, David Fulton: 1-14.
36. Preece D.R., Lovett K., Lovett P. & Burke C. (2000) The adoption of TEACCH in Northamptonshire, UK. Int Mental Health, 29: 19-32.
37. Prewett B. (1999) Short-term break, long-term benefit: family-based short-term care for disabled children and adults. Sheffield, University of Sheffield.
38. Randall P. & Parker J. (1999) Supporting the families of children with autism. Chichester, Wiley.
39. Rodgers J. (1999) Trying to get it right: undertaking research involving people with learning difficulties. Disability Soc, 14: 421-33.
40. Russell P. (1998) Having a say I Disabled children and effective partnership in decision making. Section 1 - the report. London, Council for Disabled Children.
41. Sargent J.A. (1995) The future of respite care resources for children with autism in North East Essex. Colchester, Essex County Council.
42. Schopler E., Mesibov G.B. & Hearsey K. (1995) Structured teaching in the TEACCH system. In: Schopler E., Mesibov G.B., editors. Learning and cognition in autism. New York, NY, Plenum Press: 243-268.
43. Swisher L. & Demetras M.J. (1985) The expressive language characteristics of autistic children compared with mentally retarded or specific language-impaired children. In: Schopler E., Mesibov G.B., editors. Communication problems in autism. New York, NY, Plenum Press: 147-162.
44. Ward. L. (1997) Seen and heard: involving disabled children and young people in research and development projects. York, Joseph Rowntree Foundation.
45. Williams T. & Vaish R. (1999) Autobiographical memory in the autistic syndromes. In: Linfoot G., editor. From research into therapy: a collection of papers from the conference held at Van Mildert College, University of Durham, April 7th -9th 1999. Sunderland, Autism Research Unit and Autism North Ltd.: 81-90.
46. Wing L. (1993) The definition and prevalence of autism: a review. European Child Adolescent Psychiatry, 2: 61-74.