An evaluation of the paediatric acquired brain injury community outreach programme (PABICOP)

Brain Injury

Volumn 20, Issue 11, 2006, Pages 1189-1205

  McDougall, Janette ^a   Servais, Michelle ^a   Sommerfreund, Joy ^a   Rosen, Ellen ^b   Gillett, Jane ^c   Gray, Janice ^a   Somers, Sara ^a   Frid, Pamela ^a   Dewit, David ^d   Pearlman, Lisa ^b   Hicock, Frances ^a  

^a THAMES VALLEY CHILDREN S CENTRE   (Canada)

^b LONDON HEALTH SCIENCES CENTRE   (Canada)

^c HAMILTON HEALTH SCIENCES   (Canada)

^d CENTRE FOR ADDICTION AND MENTAL HEALTH   (Canada)

Author keywords

Acquired brain injury; Child outcomes; Community outreach; Family outcomes; Paediatric ABI; Program evaluation; Rehabilitation

Indexed keywords

ACADEMIC ACHIEVEMENT; ADOLESCENT; ADULT; ARTICLE; BRAIN INJURY; CAREGIVER SUPPORT; CHILD; CHILD BEHAVIOR CHECKLIST; CHILDHOOD INJURY; COMMUNITY BASED REHABILITATION; COMMUNITY REINTEGRATION; COMPETENCE; CONTROLLED STUDY; EMPOWERMENT; FAMILY CENTERED CARE; FEMALE; FOLLOW UP; HEALTH CARE QUALITY; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PARENT COUNSELING; PATIENT SATISFACTION; PRETEST POSTTEST CONTROL GROUP DESIGN; QUASI EXPERIMENTAL STUDY; SOCIAL SUPPORT;

EID: 33751371324     PISSN: 02699052     EISSN: 1362301X     Source Type: Journal    
DOI: 10.1080/02699050600975541     Document Type: Article

References (68)

1. Acquired Brain Injury Resources. Acquired Brain Injury Statistics: Based on 1996 Census Data, from Statistics Canada, from Ontario Brain Injury Association. Wellington: Waterloo. Dufferin Counties, ON. 11 October 2005 [cited 11 October 2005]; Available online at: http://www.abipn.waterloo.on.ca/documents/ontariostats.asp
2. Kraus, J.(1995) Epidemiological features of brain injury in children: Occurrence, children at risk, causes, and manner of injury severity and outcomes. In Traumatic head injury in children. (pp. 22-39). New York: Oxford University Press.
3. Kraemer, B and Blacher, J.(1997) An overview of educationally relevant effects, assessment, and school reentry. In Students with acquired brain injury: The school's response. (pp. 3-32). Baltimore Maryland: Paul H. Brooks Publishing Company.
4. Ylvisaker, M and Adelson, PD and Braga, LW and Burnett, SM and Glang, A and Feeney, T and Moore, W and Rumney, P and Todis, B. (2005) Rehabilitation and ongoing support after paediatric TBI: Twenty years of progress The Journal of Head Trauma Rehabilitation, 20, pp. 95-109.
5. Hawley, CA. (2004) Behaviour and school performance after brain injury Brain Injury, 18, pp. 645-659.
6. Hawley, CA. (2003) Reported problems and their resolution following mild, moderate and severe traumatic brain injury amongst children and adolescents in the UK Brain Injury, 17, pp. 105-129.
7. Lucyshyn, J and Nixon, C and Glang, A and Cooley, E.(1996) Comprehensive family support for behavior change in children with ABI. In Children with acquired brain injury: Educating and supporting families. (pp. 99-136). Baltimore MD: Paul H. Brooks Publishing Company.
8. Feeney, T and Ylvisaker, M. (1995) Choice and routine: Antecedent behavioural interventions for adolescents with severe traumatic brain injury Journal of Head Trauma Rehabilitation, 10, pp. 67-86.
9. Max, J and Smith, W and Sato, Y and Mattheis, P and Castillo, C and Lindgren, S and Robin, D and Stierwalt, J. (1997) Traumatic brain injury in children and adolescents: Psychiatric disorders in the first three months Journal of the American Academy of Child and Adolescent Psychiatry, 36, pp. 94-102.
10. Rivara, J and Jaffe, K and Fay, G and Polissar, N and Martin, K and Shurtleff, H and Liao, S. (1993) Family functioning and injury severity as predictors of child functioning one year following traumatic brain injury Archives of Physical and Medical Rehabilitation, 74, pp. 1047-1055.
11. Rivara, J and Jaffe, K and Polissar, N and Fay, G and Martin, K and Shurtleff, H and Liao, S. (1994) Family functioning and children's academic performance and behavior problems in the year following traumatic brain injury Archives of Physical and Medical Rehabilitation, 75, pp. 369-379.
12. Vollmer, D and Dacey, R. (1991) The management of mild and moderate head injuries Neurosurgery Clinics of North America, 2, pp. 437-455.
13. Taylor, H and Drotor, D and Wade, S and Yeates, K and Stancin, T and Klein, S.(1995) Recovery from traumatic brain injury in children: The importance of family. In Traumatic head injury in children. (pp. 188-216). New York: Oxford University Press.
14. Glang, A and Cooley, E and Nixon, C.(1993) Home/school support for families and children with traumatic brain injury: Final report. Eugene OR: Oregon Research Institute.
15. Rivara, J and Mueller, B. (1986) The epidemiology and prevention of Paediatric head injury Journal of Head Trauma Rehabilitation, 1, pp. 7-15.
16. Yeates, K and Taylor, H and Drotar, D and Wade, S and Stancin, T and Klein, S. (1997) Preinjury family environment as a determinant of recovery from traumatic brain injury in school-age children Journal of the International Neuropsychological Society, 3, pp. 617-630.
17. Hawley, CA and Ward, A and Magnay, A and Long, J. (2003) Parental stress and burden following traumatic brain injury amongst children and adolescents Brain Injury, 17, pp. 1-23.
18. Montgomery, V and Oliver, R and Reisner, A and Fallat, M. (2002) The effect of traumatic brain injury on the family The Journal of Injury, Infection, and Critical Care, 52, pp. 1121-1124.
19. Wade, S and Taylor, G and Drotar, D and Stancin, T and Yeates, K. (1996) Childhood traumatic brain injury: Initial impact on the family Journal of Learning Disabilities, 29, pp. 652-661.
20. Wade, S and Taylor, G and Drotar, D and Stancin, T and Yeates, K. (1998) Family burden and adaptation during the initial years after traumatic brain injury in children Paediatrics, 102, pp. 110-116.
21. Max, J and Castillo, C and Robin, D and Lindgren, S and Smith, W and Sato, Y and Mattheis, P and Stierwalt, J. (1998) Predictors of family functioning after traumatic brain injury in children and adolescents Journal of the American Academy of Child and Adolescent Psychiatry, 37, pp. 83-90.
22. Taylor, H and Yeates, K and Wade, S and Drotor, D and Klein, S and Stancin, T. (1999) Influences on first-year recovery from traumatic brain injury in children Neuropsychology, 13, pp. 76-89.
23. Taylor, H and Yeates, K and Wade, S and Drotor, D and Stancin, T and Burant, C. (2001) Bidirectional child-family influences on outcomes of traumatic brain injury in children Journal of the International Neuropsychological Society, 7, pp. 755-767.
24. Armstrong, K and Kerns, K. (2002) The assessment of parent needs following paediatric traumatic brain injury Paediatric Rehabilitation, 5, pp. 149-160.
25. Serio, C and Kreutzer, J and Witol, A. (1997) Family needs after traumatic brain injury: A factor analytic study of the family needs questionnaire Brain Injury, 11, pp. 1-9.
26. Smith, J and Smith, D. (2000) No map, no guide: Family caregivers' perspective on their journeys through the system Care Management Journals, 2, pp. 27-33.
27. Page, C and Bornhoeft, D and Barcome, D and Knowlton, D. (1985) Providing outreach services in a rural setting utilizing a multidisciplinary team: The CARES project Rehabilitation Literature, 46, pp. 264-267.
28. Gillett, J. (2004) The Paediatric Acquired Brain Injury Community Outreach Programme (PABICOP): An innovative comprehensive model of care for children and youth with an acquired brain injury NeuroRehabilitation, 19, pp. 207-218.
29. Haley, S and Baryza, M and Lewin, J and Cioffi, M. (1991) Sensorimotor dysfunction in children with brain injury: Development of a database for evaluation research Physical and Occupational Therapy in Paediatrics, 11, pp. 1-26.
30. Bilbao, A and Kennedy, C and Chatterji, S and Üstün, B and Barquero, J and Barth, J. (2003) The ICF: Applications of the WHO model of functioning, disability, and health to brain injury rehabilitation NeuroRehabilitation, 18, pp. 239-250.
31. Bedell, G and Cohn, E and Dumas, H. (2005) Exploring parents' use of strategies to promote social participation of school-aged children with acquired brain injuries The American Journal of Occupational Therapy, 59, pp. 273-284.
32. Arroyos-Jurado, E and Paulson, J and Merrelll, K and Lindgren, S and Max, J. (2000) Traumatic brain injury in school-aged children: Academic and social outcomes Journal of School Psychology, 38, pp. 571-587.
33. Glang, A and Tyler, J and Pearson, S and Todis, B and Morvant, M. (2004) Improving educational services for students with TBI through statewide consulting teams NeuroRehabilitation, 19, pp. 219-231.
34. Glang, A and Todis, B.(1997) Providing ongoing support to educators through team-based consultation: Building capacity to serve students with ABI in general education settings. In Students with acquired brain injury: The school's response. (pp. 343-368). Baltimore MD: Paul H. Brooks Publishing Company.
35. Singer, G.(1996) Constructing supports: Helping families of children with acquired brain injury. In Children with acquired brain injury: Educating and supporting families. (pp. 1-22). Baltimore MD: Paul H. Brooks Publishing Company.
36. Singer, G and Glang, A and Nixon, C and Cooley, E and Kerns, K and Williams, D and Powers, L. (1994) A comparison of two psychological interventions for parents of children with acquired brain injury: An exploratory study Journal of Head Trauma Rehabilitation, 9, pp. 38-49.
37. Swaine, B and Pless, B and Friedman, D and Montes, J. (2000) Effectiveness of a head injury programme for children: A preliminary investigation American Journal of Physical Medicine and Rehabilitation, 79, pp. 412-420.
38. Wade, S and Michaud, L and Brown, T. (2006) Putting the pieces together: Preliminary efficacy of a family problem-solving intervention for children with traumatic brain injury Journal of Head Trauma Rehabilitation, 21, pp. 57-67.
39. Braga, L and Da Paz Júnior, A and Ylvisaker, M. (2005) Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: A randomized controlled trial Brain Injury, 19, pp. 819-831.
40. Campbell, D and Stanley, J.(1963) Experimental and quasi-experimental designs for research. Boston MS: Houghton Mifflin Company.
41. Burgess, E and Drotar, D and Taylor, H and Wade, S and Stancin, T and Yeates, K. (1999) The family burden of injury interview: Reliability and validity Journal of Head Trauma Rehabilitation, 14, pp. 394-405.
42. Teasdale, G and Jennett, B. (1974) Assessment of coma and impairment consciousness: A practice scale Lancet, 2, pp. 81-84.
43. Hall, K and Johnston, M. (1994) Part II: Measurement tools for a nationwide data system Archives of Physical and Medicine and Rehabilitation, 75, pp. SC10-SC18.
44. McDougall, J and Somers, S and Gray, J and Sommerfreund, J and Gillett, J and Rosen, E.(2000) Acquired brain injury knowledge quiz. London Ontario: Thames Valley Children's Centre. Unpublished measure; 2000
45. Man, D. (1998) The empowering of Hong Kong Chinese families with a brain damaged member: Its investigation and measurement Brain Injury, 12, pp. 245-254.
46. Stein, R and Riessman, C. (1980) The development of an impact-on-family scale: Preliminary findings Medical Care, 18, pp. 465-472.
47. Skinner, H and Steinhauer, P and Santa-Barbara, J.(1995) Family assessment measure III. Toronto: Multi-Health Systems Inc.
48. Achenbach, T.(1991) Manual for the child behavior checklist/4-18 and 1991 profile. Burlington: University of Vermont.
49. Stein, R and Jessop, D. (1990) Functional status II (R): A measure of child health status Medical Care, 28, pp. 1041-1055.
50. Wade, S and Drotar, D and Taylor, H and Stancin, T. (1995) Assessing the effects of traumatic brain injury on family functioning: Conceptual and methodological issues Journal of Paediatric Psychology, 20, pp. 737-752.
51. Waaland, P and Raines, S. (1991) Families coping with childhood neurological disability: Clinical assessment and treatment Neurorehabilitation, 1, pp. 19-27.
52. Stein, R and Jessop, D.(1984) Evaluation of a home care unit as an ambulatory ICU. Springfield VA: National Technical Information Service.
53. Skinner, H and Steinhauer, P and Sitarenios, G. (2000) Family assessment measure (FAM) and process model of family functioning Journal of Family Therapy, 22, pp. 190-210.
54. Rivara, J and Jaffe, K and Polissar, N and Fay, G and Liao, S and Martin, K. (1996) Predictors of family functioning and change 3 years after traumatic brain injury in children Archives of Physical and Medical Rehabilitation, 77, pp. 754-764.
55. Larsen, D and Attkisson, C and Hargreaves, W and Nguyen, T. (1979) Assessment of client/patient satisfaction: Development of a general scale Evaluation and Programme Planning, 2, pp. 197-207.
56. Rynard, D and Chambers, A and Klinck, A and Gray, J. (1998) School support programmes for chronically ill children: Evaluating the adjustment of children with cancer at school Children's Health Care, 27, pp. 31-46.
57. King, S and King, G and Rosenbaum, P. (2004) Evaluating health service delivery to children with chronic conditions and their families: Development of a refined Measures of Processes of Care (MPOC-20) Children's Health Care, 33, pp. 35-57.
58. King, G and Rosenbaum, P and King, S. (1996) Parents' perceptions of caregiving: Development and validation of a measure of processes Developmental Medicine and Child Neurology, 38, pp. 757-772.
59. Swaine, B and Pless, B and Friedman, D and Montes, J. (1999) Using the measure of processes of care with parents of children hospitalized for head injury American Journal of Physical Medicine and Rehabilitation, 78, pp. 323-329.
60. Lipsey, M.(1990) Design sensitivity: Statistical power for experimental research. Newbury Park: Sage Publications, Inc.
61. Games, P.(1990) Alternative analyses of repeated-measure designs by ANOVA and MANOVA. In Statistical methods in longitudinal research. (pp. 81-121). Boston: Academic Press Inc.
62. Schneider, A and Darcy, R. (1984) Policy implications of using significance tests in evaluation research Evaluation Review, 8, pp. 573-582.
63. Rothman, K. (1990) No adjustments are needed for multiple comparisons, Epidemiology, 1, pp. 43-46.
64. Schwartz, L and Taylor, G and Drotar, D and Yeates, K and Wade, S and Stancin, T. (2003) Long-term behavior problems following pediatric traumatic brain injury: Prevalence, predictors, and correlates Journal of Pediatric Psychology, 28, pp. 251-263.
65. Koskiniemi, M and Kykka, T and Nybo, T and Jarho, L. (1995) Long term outcome after severe brain injury in preschoolers is worse than expected Archives of Pediatric and Adolescent Medicine, 149, pp. 249-254.
66. McKinlay, A and Dalrymple, J and Horwood, L and Fergusson, D. (2005) Long term psychosocial outcomes after mild head injury in early childhood. Journal of Neurological Neurosurgery and Psychiatry, 73, pp. 281-288.
67. Crais, ER and Belardi, C. (1999) Family participation in child assessment: Perceptions of families and professionals Infant-Toddler Intervention, 9, pp. 209-238.
68. King, G and Law, M and King, S and Rosenbaum, P. (1998) Parents' and service providers' perceptions of the family-centredness of children's rehabilitation services Physical & Occupational Therapy in Paediatrics, 18, pp. 21-40.