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Volumn 3, Issue 1, 2017, Pages

What patients with pulmonary fibrosis and their partners think: A live, educative survey in the Netherlands and Germany

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY; ARTICLE; CLINICAL TRIAL; COPING BEHAVIOR; CULTURAL FACTOR; DISEASE COURSE; GERMANY; HEALTH STATUS; HEALTH SURVEY; HOSPITAL; HUMAN; KNOWLEDGE; LEARNING; LUNG FIBROSIS; MAJOR CLINICAL STUDY; MEDICAL EDUCATION; NURSE SPECIALIST; PATIENT CARE; QUALITY OF LIFE; QUESTIONNAIRE;

EID: 85114078151     PISSN: None     EISSN: 23120541     Source Type: Journal    
DOI: 10.1183/23120541.00065-2016     Document Type: Article
Times cited : (31)

References (36)
  • 1
    • 84881669432 scopus 로고    scopus 로고
    • An official American Thoracic Society/European Respiratory Society statement: Update of the international multidisciplinary classification of the idiopathic interstitial pneumonias
    • Travis WD, Costabel U, Hansell DM, et al. An official American Thoracic Society/European Respiratory Society statement: update of the international multidisciplinary classification of the idiopathic interstitial pneumonias. Am J Respir Crit Care Med 2013; 188: 733-748.
    • (2013) Am J Respir Crit Care Med , vol.188 , pp. 733-748
    • Travis, W.D.1    Costabel, U.2    Hansell, D.M.3
  • 3
    • 81755173974 scopus 로고    scopus 로고
    • Living with idiopathic pulmonary fibrosis: An in-depth qualitative survey of European patients
    • Schoenheit G, Becattelli I, Cohen AH. Living with idiopathic pulmonary fibrosis: an in-depth qualitative survey of European patients. Chron Respir Dis 2011; 8: 225-231.
    • (2011) Chron Respir Dis , vol.8 , pp. 225-231
    • Schoenheit, G.1    Becattelli, I.2    Cohen, A.H.3
  • 4
    • 84884509247 scopus 로고    scopus 로고
    • The palliative care needs for fibrotic interstitial lung disease: A qualitative study of patients, informal caregivers and health professionals
    • Bajwah S, Higginson IJ, Ross JR, et al. The palliative care needs for fibrotic interstitial lung disease: a qualitative study of patients, informal caregivers and health professionals. Palliat Med 2013; 27: 869-876.
    • (2013) Palliat Med , vol.27 , pp. 869-876
    • Bajwah, S.1    Higginson, I.J.2    Ross, J.R.3
  • 5
    • 84969871855 scopus 로고    scopus 로고
    • The lived experience with idiopathic pulmonary fibrosis: A qualitative study
    • Overgaard D, Kaldan G, Marsaa K, et al. The lived experience with idiopathic pulmonary fibrosis: a qualitative study. Eur Respir J 2016; 47: 1472-1480.
    • (2016) Eur Respir J , vol.47 , pp. 1472-1480
    • Overgaard, D.1    Kaldan, G.2    Marsaa, K.3
  • 6
    • 84949193567 scopus 로고    scopus 로고
    • The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): Results of a qualitative study
    • Sampson C, Gill BH, Harrison NK, et al. The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study. BMC Pulm Med 2015; 15: 155.
    • (2015) BMC Pulm Med , vol.15 , pp. 155
    • Sampson, C.1    Gill, B.H.2    Harrison, N.K.3
  • 7
    • 84927176270 scopus 로고    scopus 로고
    • Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis
    • Duck A, Spencer LG, Bailey S, et al. Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis. J Adv Nurs 2015; 71: 1055-1065.
    • (2015) J Adv Nurs , vol.71 , pp. 1055-1065
    • Duck, A.1    Spencer, L.G.2    Bailey, S.3
  • 8
    • 84919783095 scopus 로고    scopus 로고
    • Improving care for patients with idiopathic pulmonary fibrosis (IPF) in the UK: A round table discussion
    • Thickett DR, Kendall C, Spencer LG, et al. Improving care for patients with idiopathic pulmonary fibrosis (IPF) in the UK: a round table discussion. Thorax 2014; 69: 1136-1140.
    • (2014) Thorax , vol.69 , pp. 1136-1140
    • Thickett, D.R.1    Kendall, C.2    Spencer, L.G.3
  • 9
    • 84958073682 scopus 로고    scopus 로고
    • European IPF Patient Charter: Unmet needs and a call to action for healthcare policymakers
    • Bonella F, Wijsenbeek M, Molina-Molina M, et al. European IPF Patient Charter: unmet needs and a call to action for healthcare policymakers. Eur Respir J 2016; 47: 597-606.
    • (2016) Eur Respir J , vol.47 , pp. 597-606
    • Bonella, F.1    Wijsenbeek, M.2    Molina-Molina, M.3
  • 10
    • 84961213677 scopus 로고    scopus 로고
    • Health-related quality of life in patients with idiopathic pulmonary fibrosis
    • Yount SE, Beaumont JL, Chen SY, et al. Health-related quality of life in patients with idiopathic pulmonary fibrosis. Lung 2016; 194: 227-234.
    • (2016) Lung , vol.194 , pp. 227-234
    • Yount, S.E.1    Beaumont, J.L.2    Chen, S.Y.3
  • 11
    • 84988968024 scopus 로고    scopus 로고
    • Accuracy and reliability of internet resources for information on idiopathic pulmonary fibrosis
    • Fisher JH, O’Connor D, Flexman AM, et al. Accuracy and reliability of internet resources for information on idiopathic pulmonary fibrosis. Am J Respir Crit Care Med 2016; 194: 218-225.
    • (2016) Am J Respir Crit Care Med , vol.194 , pp. 218-225
    • Fisher, J.H.1    O’Connor, D.2    Flexman, A.M.3
  • 12
    • 84954316523 scopus 로고    scopus 로고
    • Qualitative European survey of patients with idiopathic pulmonary fibrosis: Patients’ perspectives of the disease and treatment
    • Russell AM, Ripamonti E, Vancheri C. Qualitative European survey of patients with idiopathic pulmonary fibrosis: patients’ perspectives of the disease and treatment. BMC Pulm Med 2016; 16: 10.
    • (2016) BMC Pulm Med , vol.16 , pp. 10
    • Russell, A.M.1    Ripamonti, E.2    Vancheri, C.3
  • 13
    • 79955989587 scopus 로고    scopus 로고
    • Quick and easy self-rating of Generalized Anxiety Disorder: Validity of the Dutch web-based GAD-7, GAD-2 and GAD-SI
    • Donker T, van Straten A, Marks I, et al. Quick and easy self-rating of Generalized Anxiety Disorder: validity of the Dutch web-based GAD-7, GAD-2 and GAD-SI. Psychiatry Res 2011; 188: 58-64.
    • (2011) Psychiatry Res , vol.188 , pp. 58-64
    • Donker, T.1    van Straten, A.2    Marks, I.3
  • 14
    • 84977578945 scopus 로고    scopus 로고
    • Impact of comorbidities on mortality in patients with idiopathic pulmonary fibrosis
    • Kreuter M, Ehlers-Tenenbaum S, Palmowski K, et al. Impact of comorbidities on mortality in patients with idiopathic pulmonary fibrosis. PLoS One 2016; 11: e0151425.
    • (2016) PLoS One , vol.11
    • Kreuter, M.1    Ehlers-Tenenbaum, S.2    Palmowski, K.3
  • 15
    • 84937407681 scopus 로고    scopus 로고
    • Management of patients with idiopathic pulmonary fibrosis in clinical practice: The INSIGHTS-IPF registry
    • Behr J, Kreuter M, Hoeper MM, et al. Management of patients with idiopathic pulmonary fibrosis in clinical practice: the INSIGHTS-IPF registry. Eur Respir J 2015; 46: 186-196.
    • (2015) Eur Respir J , vol.46 , pp. 186-196
    • Behr, J.1    Kreuter, M.2    Hoeper, M.M.3
  • 16
    • 84942847054 scopus 로고    scopus 로고
    • Psychosocial consequences of living with breathlessness due to advanced disease
    • Janssen DJ, Wouters EF, Spruit MA. Psychosocial consequences of living with breathlessness due to advanced disease. Curr Opin Support Palliat Care 2015; 9: 232-237.
    • (2015) Curr Opin Support Palliat Care , vol.9 , pp. 232-237
    • Janssen, D.J.1    Wouters, E.F.2    Spruit, M.A.3
  • 17
    • 85006677776 scopus 로고    scopus 로고
    • A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis
    • Belkin A, Albright K, Swigris JJ. A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis. BMJ Open Respir Res 2014; 1: e000007.
    • (2014) BMJ Open Respir Res , vol.1
    • Belkin, A.1    Albright, K.2    Swigris, J.J.3
  • 18
    • 79958204042 scopus 로고    scopus 로고
    • Symptoms, comorbidities, and health care in advanced chronic obstructive pulmonary disease or chronic heart failure
    • Janssen DJ, Spruit MA, Uszko-Lencer NH, et al. Symptoms, comorbidities, and health care in advanced chronic obstructive pulmonary disease or chronic heart failure. J Palliat Med 2011; 14: 735-743.
    • (2011) J Palliat Med , vol.14 , pp. 735-743
    • Janssen, D.J.1    Spruit, M.A.2    Uszko-Lencer, N.H.3
  • 19
    • 84901776158 scopus 로고    scopus 로고
    • Predicting anxiety and depression among family carers of people with chronic obstructive pulmonary disease
    • Jácome C, Figueiredo D, Gabriel R, et al. Predicting anxiety and depression among family carers of people with chronic obstructive pulmonary disease. Int Psychogeriatr 2014; 26: 1191-1199.
    • (2014) Int Psychogeriatr , vol.26 , pp. 1191-1199
    • Jácome, C.1    Figueiredo, D.2    Gabriel, R.3
  • 20
    • 84902864437 scopus 로고    scopus 로고
    • Five comorbidities reflected the health status in patients with chronic obstructive pulmonary disease: The newly developed COMCOLD index
    • Frei A, Muggensturm P, Putcha N, et al. Five comorbidities reflected the health status in patients with chronic obstructive pulmonary disease: the newly developed COMCOLD index. J Clin Epidemiol 2014; 67: 904-911.
    • (2014) J Clin Epidemiol , vol.67 , pp. 904-911
    • Frei, A.1    Muggensturm, P.2    Putcha, N.3
  • 21
    • 25144455029 scopus 로고    scopus 로고
    • Stress, psychological distress, and coping in patients on the waiting list for lung transplantation: An exploratory study
    • Vermeulen KM, Bosma OH, Bij W, et al. Stress, psychological distress, and coping in patients on the waiting list for lung transplantation: an exploratory study. Transpl Int 2005; 18: 954-959.
    • (2005) Transpl Int , vol.18 , pp. 954-959
    • Vermeulen, K.M.1    Bosma, O.H.2    Bij, W.3
  • 22
    • 84901761227 scopus 로고    scopus 로고
    • Patient-centred management in idiopathic pulmonary fibrosis: Similar themes in three communication models
    • Wuyts WA, Peccatori FA, Russell AM. Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models. Eur Respir Rev 2014; 23: 231-238.
    • (2014) Eur Respir Rev , vol.23 , pp. 231-238
    • Wuyts, W.A.1    Peccatori, F.A.2    Russell, A.M.3
  • 24
    • 84939880065 scopus 로고    scopus 로고
    • Identifying the benefits and risks of emerging treatments for idiopathic pulmonary fibrosis: A qualitative study
    • Bridges JF, Paly VF, Barker E, et al. Identifying the benefits and risks of emerging treatments for idiopathic pulmonary fibrosis: a qualitative study. Patient 2015; 8: 85-92.
    • (2015) Patient , vol.8 , pp. 85-92
    • Bridges, J.F.1    Paly, V.F.2    Barker, E.3
  • 25
    • 84881667320 scopus 로고    scopus 로고
    • ‘I wish I knew more …' the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: Views of patients, carers and health professionals
    • Bajwah S, Koffman J, Higginson IJ, et al. ‘I wish I knew more …' the end-of-life planning and information needs for end-stage fibrotic interstitial lung disease: views of patients, carers and health professionals. BMJ Support Palliat Care 2013; 3: 84-90.
    • (2013) BMJ Support Palliat Care , vol.3 , pp. 84-90
    • Bajwah, S.1    Koffman, J.2    Higginson, I.J.3
  • 26
    • 42649109056 scopus 로고    scopus 로고
    • An official American Thoracic Society clinical policy statement: Palliative care for patients with respiratory diseases and critical illnesses
    • Lanken PN, Terry PB, Delisser HM, et al. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008; 177: 912-927.
    • (2008) Am J Respir Crit Care Med , vol.177 , pp. 912-927
    • Lanken, P.N.1    Terry, P.B.2    Delisser, H.M.3
  • 27
    • 77954296647 scopus 로고    scopus 로고
    • Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners
    • Lindell KO, Olshansky E, Song MK, et al. Impact of a disease-management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners. Heart Lung 2010; 39: 304-313.
    • (2010) Heart Lung , vol.39 , pp. 304-313
    • Lindell, K.O.1    Olshansky, E.2    Song, M.K.3
  • 28
    • 34247570651 scopus 로고    scopus 로고
    • Patient experiences with pulmonary fibrosis
    • Collard HR, Tino G, Noble PW, et al. Patient experiences with pulmonary fibrosis. Respir Med 2007; 101: 1350-1354.
    • (2007) Respir Med , vol.101 , pp. 1350-1354
    • Collard, H.R.1    Tino, G.2    Noble, P.W.3
  • 29
    • 84925511841 scopus 로고    scopus 로고
    • IPF Care: A support program for patients with idiopathic pulmonary fibrosis treated with pirfenidone in Europe
    • Duck A, Pigram L, Errhalt P, et al. IPF Care: a support program for patients with idiopathic pulmonary fibrosis treated with pirfenidone in Europe. Adv Ther 2015; 32: 87-107.
    • (2015) Adv Ther , vol.32 , pp. 87-107
    • Duck, A.1    Pigram, L.2    Errhalt, P.3
  • 30
    • 84904389342 scopus 로고    scopus 로고
    • Using an audience response system to improve learning success in practical skills training courses in dental studies - a randomised, controlled cross-over study
    • Wenz HJ, Zupanic M, Klosa K, et al. Using an audience response system to improve learning success in practical skills training courses in dental studies - a randomised, controlled cross-over study. Eur J Dent Educ 2014; 18: 147-153.
    • (2014) Eur J Dent Educ , vol.18 , pp. 147-153
    • Wenz, H.J.1    Zupanic, M.2    Klosa, K.3
  • 31
    • 3042570408 scopus 로고    scopus 로고
    • Experiences of using an interactive audience response system in lectures
    • Uhari M, Renko M, Soini H. Experiences of using an interactive audience response system in lectures. BMC Med Educ 2003; 3: 12.
    • (2003) BMC Med Educ , vol.3 , pp. 12
    • Uhari, M.1    Renko, M.2    Soini, H.3
  • 32
    • 84938357082 scopus 로고    scopus 로고
    • Evaluation of interactive teaching for undergraduate medical students using a classroom interactive response system in India
    • Datta R, Datta K, Venkatesh MD. Evaluation of interactive teaching for undergraduate medical students using a classroom interactive response system in India. Med J Armed Forces India 2015; 71: 239-245.
    • (2015) Med J Armed Forces India , vol.71 , pp. 239-245
    • Datta, R.1    Datta, K.2    Venkatesh, M.D.3
  • 33
    • 85114066881 scopus 로고    scopus 로고
    • IPF: the Patient Experience in England, Date last accessed: February 23, Date last updated: 2015
    • British Lung Foundation. Lost in the System. IPF: the Patient Experience in England. www.blf.org.uk/sites/default/files/ BLF-IPF-Report-2015-Lost-in-the-System-250215.pdf Date last accessed: February 23, 2016. Date last updated: 2015.
    • (2016) Lost in the System
  • 34
    • 85032071190 scopus 로고    scopus 로고
    • Date last accessed: February 24, 2016. Date last updated: October 28
    • Shen J, Buechler A, Byrne J, et al. Clinical Research Participation as a Care Option. www.quintiles.com/library/ white-papers/clinical-research-participation-as-a-care-option Date last accessed: February 24, 2016. Date last updated: October 28, 2015.
    • (2015) Clinical Research Participation as a Care Option
    • Shen, J.1    Buechler, A.2    Byrne, J.3
  • 35
    • 84975114815 scopus 로고    scopus 로고
    • Date last accessed: April 1, Date last updated: October 6, 2014
    • Patient-Centered Outcomes Research Institute. About us. www.pcori.org/about-us Date last accessed: April 1, 2016. Date last updated: October 6, 2014.
    • (2016) About us
  • 36
    • 84939246244 scopus 로고    scopus 로고
    • Cultural differences in palliative care in patients with idiopathic pulmonary fibrosis
    • Wijsenbeek M, Bendstrup E, Ross J, et al. Cultural differences in palliative care in patients with idiopathic pulmonary fibrosis. Chest 2015; 148: e56.
    • (2015) Chest , vol.148
    • Wijsenbeek, M.1    Bendstrup, E.2    Ross, J.3


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