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Volumn 15, Issue 1, 2015, Pages

The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): Results of a qualitative study

Author keywords

Care pathways; Idiopathic pulmonary fibrosis; Key turning points; Palliative care; Patient and carer experience

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CLINICAL ARTICLE; COMMUNICATION SKILL; COPING BEHAVIOR; FEMALE; FIBROSING ALVEOLITIS; FUNCTIONAL STATUS; HEALTH CARE NEED; HEALTH STATUS; HUMAN; MALE; NEEDS ASSESSMENT; PALLIATIVE THERAPY; PATIENT ATTITUDE; PATIENT CARE; PROGNOSIS; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; SYMPTOM ASSESSMENT; CROSS-SECTIONAL STUDY; HEALTH SERVICE; MIDDLE AGED; SEVERITY OF ILLNESS INDEX; VERY ELDERLY;

EID: 84949193567     PISSN: None     EISSN: 14712466     Source Type: Journal    
DOI: 10.1186/s12890-015-0145-5     Document Type: Article
Times cited : (80)

References (28)
  • 1
    • 34047134989 scopus 로고    scopus 로고
    • Idiopathic Pulmonary Fibrosis - New Insights
    • Verma S, Slutsky A. Idiopathic Pulmonary Fibrosis - New Insights. N Engl J Med. 2007;356(13):1370-2.
    • (2007) N Engl J Med , vol.356 , Issue.13 , pp. 1370-1372
    • Verma, S.1    Slutsky, A.2
  • 2
    • 84875981812 scopus 로고    scopus 로고
    • The increasing secondary care burden of idiopathic pulmonary fibrosis: hospital admission trends from 1998 to 2010
    • Navaratnam V, Fogarty A, Glendening R, McKeever T, Hubbard R. The increasing secondary care burden of idiopathic pulmonary fibrosis: hospital admission trends from 1998 to 2010. Chest. 2013;143(4):1078-84.
    • (2013) Chest , vol.143 , Issue.4 , pp. 1078-1084
    • Navaratnam, V.1    Fogarty, A.2    Glendening, R.3    McKeever, T.4    Hubbard, R.5
  • 3
    • 0031934999 scopus 로고    scopus 로고
    • Survival in Patients with Cryptogenic Fibrosing Alveolitis
    • Hubbard R, Johnston I, Britton J. Survival in Patients with Cryptogenic Fibrosing Alveolitis. Chest. 1998;113(2):396-400.
    • (1998) Chest , vol.113 , Issue.2 , pp. 396-400
    • Hubbard, R.1    Johnston, I.2    Britton, J.3
  • 4
    • 84888399697 scopus 로고    scopus 로고
    • Epidemiology of idiopathic pulmonary fibrosis
    • 25
    • Ley B, Collard H. Epidemiology of idiopathic pulmonary fibrosis. Clin Epidemiol. 2013;11/25(5):483-92.
    • (2013) Clin Epidemiol , vol.11 , Issue.5 , pp. 483-492
    • Ley, B.1    Collard, H.2
  • 5
    • 27644475951 scopus 로고    scopus 로고
    • Patients' perspectives on how idiopathic pulmonary fibrosis affects the quality of their lives
    • Swigris J, Stewart A, Gould M, Wilson S. Patients' perspectives on how idiopathic pulmonary fibrosis affects the quality of their lives. Health Qual Life Outcomes. 2005;3:61-9.
    • (2005) Health Qual Life Outcomes , vol.3 , pp. 61-69
    • Swigris, J.1    Stewart, A.2    Gould, M.3    Wilson, S.4
  • 6
    • 35548999591 scopus 로고    scopus 로고
    • Health-Related Quality of Life in Patients with Idiopathic Pulmonary Fibrosis--Cross-Sectional and Longitudinal Study
    • Tomioka H, Imanaka K, Hashimoto K, Iwasaki H. Health-Related Quality of Life in Patients with Idiopathic Pulmonary Fibrosis--Cross-Sectional and Longitudinal Study. Intern Med. 2007;46:1533-42.
    • (2007) Intern Med , vol.46 , pp. 1533-1542
    • Tomioka, H.1    Imanaka, K.2    Hashimoto, K.3    Iwasaki, H.4
  • 8
    • 84881546403 scopus 로고    scopus 로고
    • Interventions to Improve Symptoms and Quality of Life of Patients with Fibrotic Interstitial Lung Disease: A Systematic Review of the Literature
    • Bajwah S, Ross J, Peacock J, Higginson I, Wells A, Patel A, et al. Interventions to Improve Symptoms and Quality of Life of Patients with Fibrotic Interstitial Lung Disease: A Systematic Review of the Literature. Thorax. 2013;68:867-79.
    • (2013) Thorax , vol.68 , pp. 867-879
    • Bajwah, S.1    Ross, J.2    Peacock, J.3    Higginson, I.4    Wells, A.5    Patel, A.6
  • 9
    • 84898849450 scopus 로고    scopus 로고
    • Connective Tissue Disease Related Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis: Provisional Core Sets of Domains and Instruments for Use in Clinical Trials
    • Saketkoo L, Mittoo S, Huscher D, Khanna D, Delaripa P, Distler O, et al. Connective Tissue Disease Related Interstitial Lung Diseases and Idiopathic Pulmonary Fibrosis: Provisional Core Sets of Domains and Instruments for Use in Clinical Trials. Thorax. 2014;69:436-44.
    • (2014) Thorax , vol.69 , pp. 436-444
    • Saketkoo, L.1    Mittoo, S.2    Huscher, D.3    Khanna, D.4    Delaripa, P.5    Distler, O.6
  • 10
    • 84949214527 scopus 로고    scopus 로고
    • The Diagnosis and Management of Suspected Idiopathic Pulmonary Fibrosis
    • Accessed 01 December 2015.
    • National Institute for Health and Care Excellence. The Diagnosis and Management of Suspected Idiopathic Pulmonary Fibrosis. NICE clinical guidelines, 2013;163: www.nice.org.uk/guidance/cg163/evidence/full-guideline-190086877. Accessed 01 December 2015.
    • (2013) NICE clinical guidelines , vol.163
  • 11
    • 79952717349 scopus 로고    scopus 로고
    • An Official Ats/Ers/Jrs/Alat Statement: Idiopathic Pulmonary Fibrosis: Evidence-Based Guidelines for Diagnosis and Management
    • Raghu G, Collard H, Egan J, Martinez F, Behr J, Brown K, et al. An Official Ats/Ers/Jrs/Alat Statement: Idiopathic Pulmonary Fibrosis: Evidence-Based Guidelines for Diagnosis and Management. Am J Respir Crit Care Med. 2011;183(6):788-824.
    • (2011) Am J Respir Crit Care Med , vol.183 , Issue.6 , pp. 788-824
    • Raghu, G.1    Collard, H.2    Egan, J.3    Martinez, F.4    Behr, J.5    Brown, K.6
  • 12
    • 80051795063 scopus 로고    scopus 로고
    • Comprehensive Care of the Patient with Idiopathic Pulmonary Fibrosis
    • Lee J, McLaughlin S, Collard H. Comprehensive Care of the Patient with Idiopathic Pulmonary Fibrosis. Curr Opin Pulm Med. 2011;17:348-54.
    • (2011) Curr Opin Pulm Med , vol.17 , pp. 348-354
    • Lee, J.1    McLaughlin, S.2    Collard, H.3
  • 13
    • 77951198850 scopus 로고    scopus 로고
    • Interpretative Phenomenological Analysis: Theory, Method and Research
    • London: Sage
    • Smith J, Flowers P, Larkin M. Interpretative Phenomenological Analysis: Theory, Method and Research. London: Sage 2009.
    • (2009)
    • Smith, J.1    Flowers, P.2    Larkin, M.3
  • 14
    • 0032759278 scopus 로고    scopus 로고
    • Qualitative Methods: What Are They and Why Use Them?
    • Sofaer S. Qualitative Methods: What Are They and Why Use Them? Health Serv Res. 1999;34(5pt2):1101-18.
    • (1999) Health Serv Res , vol.34 , Issue.5 , pp. 1101-1118
    • Sofaer, S.1
  • 15
    • 0003410128 scopus 로고    scopus 로고
    • Qualitative Research Methods for the Social Sciences
    • 8th Ed.Essex: Pearson.
    • Berg B, Lune H. Qualitative Research Methods for the Social Sciences. 8th Ed. 2011;Essex: Pearson.
    • (2011)
    • Berg, B.1    Lune, H.2
  • 16
    • 0009223868 scopus 로고    scopus 로고
    • Qualitative Research in Healthcare
    • 3rd Ed. London: Wiley-Blackwell
    • Pope C, Mays N. Qualitative Research in Healthcare 3rd Ed. London: Wiley-Blackwell 2006.
    • (2006)
    • Pope, C.1    Mays, N.2
  • 17
    • 13844318314 scopus 로고    scopus 로고
    • Idiopathic Pulmonary Fibrosis: Challenges and Opportunities for the Clinician and Investigator
    • Swigris J, Kuschner W, Kelsey J, Gould M. Idiopathic Pulmonary Fibrosis: Challenges and Opportunities for the Clinician and Investigator. Chest. 2005;127:275-83.
    • (2005) Chest , vol.127 , pp. 275-283
    • Swigris, J.1    Kuschner, W.2    Kelsey, J.3    Gould, M.4
  • 18
    • 81755173974 scopus 로고    scopus 로고
    • Living with Idiopathic Pulmonary Fibrosis: An in-Depth Qualitative Survey of European Patients
    • Schoenheit G, Becattelli I, Cohen A. Living with Idiopathic Pulmonary Fibrosis: An in-Depth Qualitative Survey of European Patients. Chron Respir Dis. 2011;8(4):225-31.
    • (2011) Chron Respir Dis , vol.8 , Issue.4 , pp. 225-231
    • Schoenheit, G.1    Becattelli, I.2    Cohen, A.3
  • 19
    • 84884509247 scopus 로고    scopus 로고
    • The Palliative Care Needs for Fibrotic Interstitial Lung Disease: A Qualitative Study of Patients, Informal Caregivers and Health Professionals
    • Bajwah S, Higginson I, Ross J, Wells A, Birring S, Riley J, et al. The Palliative Care Needs for Fibrotic Interstitial Lung Disease: A Qualitative Study of Patients, Informal Caregivers and Health Professionals. Palliat Med. 2013;27:869-76.
    • (2013) Palliat Med , vol.27 , pp. 869-876
    • Bajwah, S.1    Higginson, I.2    Ross, J.3    Wells, A.4    Birring, S.5    Riley, J.6
  • 20
    • 36549063576 scopus 로고    scopus 로고
    • Consolidated Criteria for Reporting Qualitative Research (Coreq): A 32-Item Checklist for Interviews and Focus Groups
    • Tong A, Sainsbury P, Craig J. Consolidated Criteria for Reporting Qualitative Research (Coreq): A 32-Item Checklist for Interviews and Focus Groups. International J Qual Health Care. 2007;19(6):349-57.
    • (2007) International J Qual Health Care , vol.19 , Issue.6 , pp. 349-357
    • Tong, A.1    Sainsbury, P.2    Craig, J.3
  • 24
    • 84873845389 scopus 로고    scopus 로고
    • The Effectiveness of Mobile-Health Technology-Based Health Behaviour Change or Disease. Interventions for Health Care Consumers: A Systematic Review
    • Free C, Phillips G, Galli G, Watson L, Felix L, Edwards P, et al. The Effectiveness of Mobile-Health Technology-Based Health Behaviour Change or Disease. Interventions for Health Care Consumers: A Systematic Review. PLoS Med. 2013;10(1):e1001362. doi: 10.1371/journal.pmed.1001362.
    • (2013) PLoS Med , vol.10 , Issue.1
    • Free, C.1    Phillips, G.2    Galli, G.3    Watson, L.4    Felix, L.5    Edwards, P.6
  • 26
    • 84895092947 scopus 로고    scopus 로고
    • Coordination of End-of-Life Care for Patients with Lung Cancer and Those with Advanced COPD Are There Transferable Lessons? A Longitudinal Qualitative Study
    • Epiphaniou E, Shipman C, Harding R, Mason B, Murray S, Higginson I, et al. Coordination of End-of-Life Care for Patients with Lung Cancer and Those with Advanced COPD Are There Transferable Lessons? A Longitudinal Qualitative Study. Prim Care Respir J. 2014;23:46-51.
    • (2014) Prim Care Respir J , vol.23 , pp. 46-51
    • Epiphaniou, E.1    Shipman, C.2    Harding, R.3    Mason, B.4    Murray, S.5    Higginson, I.6
  • 27
    • 84896775082 scopus 로고    scopus 로고
    • Patient Expectations and Experiences in Idiopathic Pulmonary Fibrosis: Implications of Patient Surveys for Improved Care
    • Belkin A, Swigris J. Patient Expectations and Experiences in Idiopathic Pulmonary Fibrosis: Implications of Patient Surveys for Improved Care. Expert Rev Respir Med. 2014;8(2):173-8.
    • (2014) Expert Rev Respir Med , vol.8 , Issue.2 , pp. 173-178
    • Belkin, A.1    Swigris, J.2
  • 28
    • 85006677776 scopus 로고    scopus 로고
    • A Qualitative Study of Informal Caregivers' Perspectives on the Effects of Idiopathic Pulmonary Fibrosis
    • 1 e000007
    • Belkin A, Albright K, Swigris J. A Qualitative Study of Informal Caregivers' Perspectives on the Effects of Idiopathic Pulmonary Fibrosis. BMJ Open Resp Res. 2014;1:1 e000007. doi: 10.1136/bmjresp-2013-000007.
    • (2014) BMJ Open Resp Res , vol.1
    • Belkin, A.1    Albright, K.2    Swigris, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.