Symptoms, comorbidities, and health care in advanced chronic obstructive pulmonary disease or chronic heart failure

Journal of Palliative Medicine

Volumn 14, Issue 6, 2011, Pages 735-743

  Janssen, Daisy J A ^a,b,c   Spruit, Martijn A ^a   Uszko Lencer, Nicole H ^a,c   Schols, Jos M G A ^b   Wouters, Emiel F M ^a,d  

^a Program Development Centre   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c Proteion Thuis ^*  (Netherlands)

^d MAASTRICHT UNIVERSITY MEDICAL CENTER   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; AGED; ANGINA PECTORIS; ANXIETY; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; COMORBIDITY; CONSULTATION; COUGHING; CROSS-SECTIONAL STUDY; DIABETES MELLITUS; DIZZINESS; DYSPNEA; EDEMA; FATIGUE; HEALTH CARE; HEART FAILURE; HEART INFARCTION; HUMAN; INSOMNIA; MAJOR CLINICAL STUDY; MALE; MEDICAL ASSISTANT; MEDICAL CARE; MICTURITION; MOOD DISORDER; MOUTH DISCOMFORT; MUSCLE CRAMP; MUSCLE WEAKNESS; OBSERVATIONAL STUDY; OCCUPATIONAL THERAPY; PANIC; PATIENT SATISFACTION; RESTLESS LEGS SYNDROME; SYMPTOM;

AGED; COMORBIDITY; CROSS-SECTIONAL STUDIES; FEMALE; HEART FAILURE; HUMANS; MALE; MIDDLE AGED; NETHERLANDS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE;

EID: 79958204042     PISSN: 10966218     EISSN: 15577740     Source Type: Journal    
DOI: 10.1089/jpm.2010.0479     Document Type: Article

References (41)

1. Murray CJ, Lopez AD: Alternative projections of mortality and disability by cause 1990-2020: Global Burden of Disease Study. Lancet 1997;349:1498-504. (Pubitemid 27216360)
2. Curtis JR: Palliative and end-of-life care for patients with severe COPD. Eur Respir J 2008;32:796-803.
3. Jaarsma T, Beattie JM, Ryder M, Rutten FH, McDonagh T, Mohacsi P, Murray SA, Grodzicki T, Bergh I, Metra M, Ekman I, Angermann C, Leventhal M, Pitsis A, Anker SD, Gavazzi A, Ponikowski P, Dickstein K, Delacretaz E, Blue L, Strasser F, McMurray J; Advanced Heart Failure Study Group of the HFA of the ESC: Palliative care in heart failure: A position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail 2009;11:433-443.
4. Bausewein C, Booth S, Gysels M, Kuhnbach R, Haberland B, Higginson IJ: Understanding breathlessness: Cross-sectional comparison of symptom burden and palliative care needs in chronic obstructive pulmonary disease and cancer. J Palliat Med 2010;13:1109-1118.
5. Blinderman CD, Homel P, Billings JA, Tennstedt S, Portenoy RK: Symptom distress and quality of life in patients with advanced chronic obstructive pulmonary disease. J Pain Symptom Manage 2009;38:115-123.
6. Blinderman CD, Homel P, Billings JA, Portenoy RK, Tennstedt SL: Symptom distress and quality of life in patients with advanced congestive heart failure. J Pain Symptom Manage 2008;35:594-603. (Pubitemid 351707757)
7. Janssen DJ, Spruit MS, Wouters EF, Schols JM: Daily symptom burden in end-stage chronic organ failure: A systematic review. Palliat Med 2008;22:938-948.
8. Elkington H, White P, Addington-Hall J, Higgs R, Edmonds P: The healthcare needs of chronic obstructive pulmonary disease patients in the last year of life. Palliat Med 2005;19: 485-491. (Pubitemid 41430822)
9. Yohannes AM, Roomi J, Connolly MJ: Elderly people at home disabled by chronic obstructive pulmonary disease. Age Ageing 1998;27:523-525. (Pubitemid 28404620)
10. Rutten FH, Cramer MJ, Grobbee DE, Sachs AP, Kirkels JH, Lammers JW, Hoes AW: Unrecognized heart failure in elderly patients with stable chronic obstructive pulmonary disease. Eur Heart 2005;26:1887-1894. (Pubitemid 41253302)
11. Sin DD, Anthonisen NR, Soriano JB, Agusti AG: Mortality in COPD: Role of comorbidities. Eur Respir J 2006;28:1245-1257. (Pubitemid 44883863)
12. Janssen DJ, Wouters EF, Schols JM, Spruit MA: Selfperceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: The research protocol. BMC Palliat Care 2008;7:5.
13. Janssen DJ, Spruit MA, Schols JM, Wouters EF: A call for high-quality advance care planning in outpatients with severe COPD or chronic heart failure. Chest 2010 (in press).
14. Charlson ME, Pompei P, Ales KL, MacKenzie: A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. J Chronic Dis 1987; 40:373-383. (Pubitemid 17055592)
15. Standardization of Spirometry, 1994 Update. American Thoracic Society. Am J Respir Crit Care Med. 1995;152:1107-1136.
16. Rutten FH, Cramer MJ, Zuithoff NP, Lammers KW, Verweij W, Grobbee DE, Hoes AW: Comparison of B-type natriuretic peptide assays for identifying heart failure in stable elderly patients with a clinical diagnosis of chronic obstructive pulmonary disease. Eur J Heart Fail 2007;9:651-659. (Pubitemid 46711268)
17. Jensen MP, Karoly P, Braver S: The measurement of clinical pain intensity: A comparison of six methods. Pain 1986;27: 117-126. (Pubitemid 16003213)
18. Zigmond AS, Snaith RP: The hospital anxiety and depression scale. Acta Psychiatr Scand 1983;67:361-370. (Pubitemid 13098606)
19. Altman DG, Gore SM, Gardner MJ, Pocock SJ: Statistical guidelines for contributors to medical journals. Br Med J (Clin Res Ed) 1983;286:1489-1493.
20. Collins SL, Moore RA, McQuay HJ: The visual analogue pain intensity scale: What is moderate pain in millimetres? Pain 1997;72:95-97. (Pubitemid 27321906)
21. Buist AS, McBurnie MA, Vollmer WM, Gillespie S, Burney P, Mannino DM, Menezes AM, Sullivan SD, Lee TA, Weiss KB, Jensen RL, Marks GB, Gulsvik A, Nizankowska-Mogilnicka E; BOLD Collaborative Research Group: International variation in the prevalence of COPD (the BOLD Study): A population- based prevalence study. Lancet 2007;370:741-750. (Pubitemid 47321907)
22. Witte KK, Clark AL: Beta-blockers and inspiratory pulmonary function in chronic heart failure. J Card Fail 2005;11: 112-116. (Pubitemid 40269785)
23. Falk K, Patel H, Swedberg K, Ekman I: Fatigue in patients with chronic heart failure-A burden associated with emotional and symptom distress. Eur J Cardiovasc Nurs 2009;8: 91-96.
24. Lanken PN, Terry PB, Delisser HM, Fahy BF, Hansen- Flaschen J, Heffner JE, Levy M, Mularski RA, Osborne ML, Prendergast TJ, Rocker G, Sibbald WJ, Wilfond B, Yankaskas JR; ATS End-of-Life Care Task Force: An official American Thoracic Society clinical policy statement: Palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008;177:912-927. (Pubitemid 351600670)
25. Au DH, Udris EM, Fihn SD, McDonell MB, Curtis JR: Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer. Arch Intern Med 2006;166:326-331. (Pubitemid 43244320)
26. Johnson MJ, McDonagh TA, Harkness A, McKay SE, Dargie HJ: Morphine for the relief of breathlessness in patients with chronic heart failure-A pilot study. Eur J Heart Fail 2002; 4:753-756. (Pubitemid 35403084)
27. Abernethy AP, Currow DC, Frith P, Fazekas BS, McHugh A, Bui C: Randomised, double blind, placebo controlled crossover trial of sustained release morphine for the management of refractory dyspnoea. BMJ 2003;327:523-528.
28. Poole PJ, Veale AG, Black PN: The effect of sustained-release morphine on breathlessness and quality of life in severe chronic obstructive pulmonary disease. Am J Respir Crit Care Med 1998;157:1877-1880.
29. Currow DC, Plummer J, Frith P, Abernethy AP: Can we predict which patients with refractory dyspnea will respond to opioids? J Palliat Med 2007;10:1031-1036. (Pubitemid 350073568)
30. Lacasse Y, Rousseau L, Maltais F: Prevalence of depressive symptoms and depression in patients with severe oxygendependent chronic obstructive pulmonary disease. J Cardiopulm Rehabil 2001;21:80-86. (Pubitemid 32275132)
31. Janssen DJ, Spruit MA, Leue C, Gijsen C, Hameleers H, Schols JM, Wouters EF; Ciro network: Symptoms of anxiety and depression in COPD patients entering pulmonary rehabilitation. Chron Respir Dis 2010;7:147-157.
32. Rabe KF, Hurd S, Anzueto A, Barnes PJ, Buist SA, Calverley P, Fukuchi Y, Jenkins C, Rodriguez-Roisin R, van Weel C, Zielinski J; Global Initiative for Chronic Obstructive Lung Disease: Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease: GOLD executive summary. Am J Respir Crit Care Med. 2007;176: 532-555. (Pubitemid 47403272)
33. Decramer M, Lacquet LM, Fagard R, Rogiers P: Corticosteroids contribute to muscle weakness in chronic airflow obstruction. Am J Respir Crit Care Med 1994;150:11-16. (Pubitemid 24209929)
34. Schols AM, Wesseling G, Kester AD, de Vries G, Mostert R, Slangen J, Wouters EF: Dose dependent increased mortality risk in COPD patients treated with oral glucocorticoids. Eur Respir J 2001;17:337-342. (Pubitemid 32600598)
35. Langer D, Hendriks E, Burtin C, Probst V, van der Schans C, Paterson W, Verhoef-de Wijk M, Straver R, Klaassen M, Troosters T, Decramer M, Ninane V, Delguste P, Muris J, Gosselink R: A clinical practice guideline for physiotherapists treating patients with chronic obstructive pulmonary disease based on a systematic review of available evidence. Clin Rehabil 2009;23:445-462.
36. Spruit MA, Eterman RM, Hellwig VA, Janssen PP, Wouters EF, Uszko-Lencer NH: Effects of moderate-to-high intensity resistance training in patients with chronic heart failure. Heart 2009;95:1399-1408.
37. Rees K, Taylor RS, Singh S, Coats AJ, Ebrahim S: Exercise based rehabilitation for heart failure. Cochrane Database Syst Rev 2004:CD003331.
38. Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S, Small N: Recruiting older people into a large, communitybased study of heart failure. Chronic Illn 2005;1:321-329.
39. Kirkova J, Walsh D, Russel M, Hauser K, Lasheen W: Symptom assessment in palliative medicine: Complexities and challenges. Am J Hosp Palliat Care 2010;27:75-83.
40. Dorman S, Byrne A, Edwards A: Which measurement scales should we use to measure breathlessness in palliative care? A systematic review. Palliat Med 2007;21:177-191. (Pubitemid 46958244)
41. Caraceni A, Cherny N, Fainsinger R, Kaasa S, Poulain P, Radbruch L, De Conno F: Pain measurement tools and methods in clinical research in palliative care: Recommendations of an Expert Working Group of the European Association of Palliative Care. J Pain Symptom Manage 2002;23:239-255. (Pubitemid 34219075)