Key implications of data sharing in pediatric genomics

JAMA Pediatrics

Volumn 172, Issue 5, 2018, Pages 476-481

  Rahimzadeh, Vasiliki ^a   Schickhardt, Christoph ^b   Knoppers, Bartha M ^a   Sénécal, Karine ^a   Vears, Danya F ^c   Fernandez, Conrad V ^d   Pfister, Stefan ^e   Plon, Sharon ^f   Terry, Sharon ^g   Williams, Janet ^h   Williams, Marc S ^h   Cornel, Martina ⁱ   Friedman, Jan M ^j,k  

^a MCGILL UNIVERSITY   (Canada)

^b UNIVERSITY HOSPITAL HEIDELBERG   (Germany)

^c Centre for Biomedical Ethics and Law   (Belgium)

^d DALHOUSIE UNIVERSITY   (Canada)

^e GERMAN CANCER RESEARCH CENTER DKFZ   (Germany)

^f BAYLOR COLLEGE OF MEDICINE   (United States)

^g GENETIC ALLIANCE   (United States)

^h GENOMIC MEDICINE INSTITUTE   (United States)

ⁱ VU UNIVERSITY MEDICAL CENTER   (Netherlands)

^j UNIVERSITY OF BRITISH COLUMBIA   (Canada)

^k CHILDREN S AND WOMEN S HEALTH CENTRE OF BRITISH COLUMBIA   (Canada)

more..

Author keywords

[No Author keywords available]

Indexed keywords

DATA ANALYSIS; FEEDBACK SYSTEM; GENOMICS; HUMAN; MEDICAL ETHICS; PARENTAL CONSENT; PEDIATRICS; POLICY; PRIORITY JOURNAL; PRIVACY; REVIEW; WHOLE EXOME SEQUENCING; WHOLE GENOME SEQUENCING; CHILD; CHILD HEALTH CARE; COMPUTER SECURITY; ETHICS; GENETIC PRIVACY; GENETICS; INFORMATION DISSEMINATION; INFORMED CONSENT; LEGISLATION AND JURISPRUDENCE; PROCEDURES; RISK ASSESSMENT;

CHILD; CHILD HEALTH SERVICES; COMPUTER SECURITY; ETHICS, MEDICAL; GENETIC PRIVACY; GENETIC RESEARCH; GENOMICS; HUMANS; INFORMATION DISSEMINATION; INFORMED CONSENT; PARENTAL CONSENT; RISK ASSESSMENT;

EID: 85046829610     PISSN: 21686203     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamapediatrics.2017.5500     Document Type: Review

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