-
1
-
-
84923421648
-
Big data challenges and opportunities in high-throughput sequencing
-
Ward RM, Schmieder R, Highnam G, Mittelman D: Big data challenges and opportunities in high-throughput sequencing. Syst Biomed 2013, 1:29-34.
-
(2013)
Syst Biomed
, vol.1
, pp. 29-34
-
-
Ward, R.M.1
Schmieder, R.2
Highnam, G.3
Mittelman, D.4
-
2
-
-
84899541625
-
Big data in biomedicine
-
Costa FF: Big data in biomedicine. Drug Discov Today 2014, 19:433-440.
-
(2014)
Drug Discov Today
, vol.19
, pp. 433-440
-
-
Costa, F.F.1
-
3
-
-
84904118648
-
A human rights approach to an international code of conduct for genomic and clinical data sharing
-
Knoppers BM, Harris JR, Budin-Ljøsne I, Dove ES: A human rights approach to an international code of conduct for genomic and clinical data sharing. Hum Genet 2014, 133:895-903.
-
(2014)
Hum Genet
, vol.133
, pp. 895-903
-
-
Knoppers, B.M.1
Harris, J.R.2
Budin-Ljøsne, I.3
Dove, E.S.4
-
4
-
-
84886256948
-
Preparing for responsible sharing of clinical trial data
-
Mello MM, Francer JK, Wilenzick M, Teden P, Bierer BE, Barnes M: Preparing for responsible sharing of clinical trial data. N Engl J Med 2013, 369:1651-1658.
-
(2013)
N Engl J Med
, vol.369
, pp. 1651-1658
-
-
Mello, M.M.1
Francer, J.K.2
Wilenzick, M.3
Teden, P.4
Bierer, B.E.5
Barnes, M.6
-
5
-
-
67349132836
-
Data sharing in genomics - re-shaping scientific practice
-
Kaye J, Heeney C, Hawkins N, de Vries J, Boddington P: Data sharing in genomics - re-shaping scientific practice. Nat Rev Genet 2009, 10:331-335.
-
(2009)
Nat Rev Genet
, vol.10
, pp. 331-335
-
-
Kaye, J.1
Heeney, C.2
Hawkins, N.3
Vries, J.4
Boddington, P.5
-
6
-
-
79960288854
-
Towards a data sharing code of conduct for international genomic research
-
Knoppers BM, Harris JR, Tassé AM, Budin-Ljøsne I, Kaye J, Deschênes M, Zawati MH: Towards a data sharing code of conduct for international genomic research. Genome Med 2011, 3:46-49.
-
(2011)
Genome Med
, vol.3
, pp. 46-49
-
-
Knoppers, B.M.1
Harris, J.R.2
Tassé, A.M.3
Budin-Ljøsne, I.4
Kaye, J.5
Deschênes, M.6
Zawati, M.H.7
-
7
-
-
77956312960
-
Research ethics in the era of personalized medicine: updating science's contract with society
-
Meslin EM, Cho MK: Research ethics in the era of personalized medicine: updating science's contract with society. Public Health Genomics 2010, 13:378-384.
-
(2010)
Public Health Genomics
, vol.13
, pp. 378-384
-
-
Meslin, E.M.1
Cho, M.K.2
-
8
-
-
84925533807
-
-
Edited by Magnuson JA, Fu PC Jr. New York: Springer
-
Goodman KW, Meslin EM: Ethics, Information Technology, and Public Health: Duties and Challenges in Computational Epidemiology. In Public Health Informatics and Information Systems. Edited by Magnuson JA, Fu PC Jr. New York: Springer; 2014:191-209.
-
(2014)
Ethics, Information Technology, and Public Health: Duties and Challenges in Computational Epidemiology. In Public Health Informatics and Information Systems
, pp. 191-209
-
-
Goodman, K.W.1
Meslin, E.M.2
-
9
-
-
84894378127
-
Data sharing in large research consortia: experiences and recommendations from ENGAGE
-
Budin-Ljøsne I, Isaeva J, Knoppers BM, Tassé AM, Shen H, McCarthy MI, ENGAGE Consortium, Harris JR: Data sharing in large research consortia: experiences and recommendations from ENGAGE. Eur J Hum Genet 2014, 22:317-321.
-
(2014)
Eur J Hum Genet
, vol.22
, pp. 317-321
-
-
Budin-Ljøsne, I.1
Isaeva, J.2
Knoppers, B.M.3
Tassé, A.M.4
Shen, H.5
McCarthy, M.I.6
Harris, J.R.7
-
10
-
-
84888093815
-
An ethics safe harbor for international genomics research?
-
Dove ES, Knoppers BM, Zawati MH: An ethics safe harbor for international genomics research? Genome Med 2013, 5:99-109.
-
(2013)
Genome Med
, vol.5
, pp. 99-109
-
-
Dove, E.S.1
Knoppers, B.M.2
Zawati, M.H.3
-
12
-
-
84859922074
-
The tension between data sharing and the protection of privacy in genomics research
-
Kaye J: The tension between data sharing and the protection of privacy in genomics research. Annu Rev Genomics Hum Genet 2012, 13:415-431.
-
(2012)
Annu Rev Genomics Hum Genet
, vol.13
, pp. 415-431
-
-
Kaye, J.1
-
13
-
-
84920052871
-
Is Data the new oil?
-
Rotella P: Is Data the new oil? Forbes Tech; 2012. http://forbes.com/sites/perryrotella/2012/04/02/is-data-the-new-oil .
-
(2012)
Forbes Tech
-
-
Rotella, P.1
-
14
-
-
84904129278
-
Transborder Data Flows and Data Privacy Law
-
Oxford: Oxford University Press
-
Kuner C: Transborder Data Flows and Data Privacy Law. Oxford: Oxford University Press; 2013.
-
(2013)
-
-
Kuner, C.1
-
15
-
-
84940483608
-
-
Public population project in genomics and society. http://www.p3g.org .
-
-
-
-
16
-
-
84860789494
-
ELSI 2.0 for genomics and society
-
Kaye J, Meslin EM, Knoppers BM, Juengst ET, Deschênes M, Cambon-Thomsen A, Chalmers D, De Vries J, Edwards K, Hoppe N, Kent A, Adebamowo C, Marshall P, Kato K: ELSI 2.0 for genomics and society. Science 2012, 336:673-674.
-
(2012)
Science
, vol.336
, pp. 673-674
-
-
Kaye, J.1
Meslin, E.M.2
Knoppers, B.M.3
Juengst, E.T.4
Deschênes, M.5
Cambon-Thomsen, A.6
Chalmers, D.7
Vries, J.8
Edwards, K.9
Hoppe, N.10
Kent, A.11
Adebamowo, C.12
Marshall, P.13
Kato, K.14
-
17
-
-
84940502275
-
-
European Union: Directive 95/46/EC of the European Parliament and of the Council on the Protection of Individuals With Regard to the Processing of Personal Data and on the Free Movement of Such Data. EUR-Lex;
-
European Union: Directive 95/46/EC of the European Parliament and of the Council on the Protection of Individuals With Regard to the Processing of Personal Data and on the Free Movement of Such Data. EUR-Lex; 1995. http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:31995L0046:en:HTML .
-
(1995)
-
-
-
18
-
-
80053396302
-
Commission decisions on the adequacy of the protection of personal data in third countries
-
Commission decisions on the adequacy of the protection of personal data in third countries. http://ec.europa.eu/justice/data-protection/document/international-transfers/adequacy/index_en.htm .
-
-
-
-
19
-
-
84940558050
-
The Transfer of Personal Data to Third Countries and International Organisations by EU Institutions and Bodies (Position Paper)
-
European Data Protection Supervisor: The Transfer of Personal Data to Third Countries and International Organisations by EU Institutions and Bodies (Position Paper). EDPS; 2014. https://secure.edps.europa.eu/EDPSWEB/webdav/site/mySite/shared/Documents/Supervision/Papers/14-07-14_transfer_third_countries_EN.pdf .
-
(2014)
EDPS
-
-
-
20
-
-
84940571348
-
U.S.-EU Safe Harbor Framework
-
U.S. Department of Commerce International Trade Administration: U.S.-EU Safe Harbor Framework. Export.gov; 2014. http://export.gov/safeharbor .
-
(2014)
Export.gov
-
-
-
21
-
-
84940528618
-
-
U.S.-EU Safe Harbor List. https://safeharbor.export.gov/list.aspx .
-
-
-
-
22
-
-
84940477646
-
-
Report on the US NSA Surveillance Programme, Surveillance Bodies in Various Member States and Their Impact on EU citizens' Fundamental Rights and on Transatlantic Cooperation in Justice and Home Affairs (2013/2188(INI)). European Parliament
-
European Parliament: Report on the US NSA Surveillance Programme, Surveillance Bodies in Various Member States and Their Impact on EU citizens' Fundamental Rights and on Transatlantic Cooperation in Justice and Home Affairs (2013/2188(INI)). European Parliament; http://www.europarl.europa.eu/sides/getDoc.do?type=REPORT&mode=XML&reference=A7-2014-0139&language=EN .
-
-
-
-
23
-
-
84940539062
-
Overview on Binding Corporate Rules
-
European Commission: Overview on Binding Corporate Rules. European Commission Justice Portfolio; 2013. http://ec.europa.eu/justice/data-protection/document/international-transfers/binding-corporate-rules/index_en.htm .
-
(2013)
European Commission Justice Portfolio
-
-
-
24
-
-
84940557625
-
List of Companies for Which the EU BCR Cooperation Procedure is Closed
-
European Commission: List of Companies for Which the EU BCR Cooperation Procedure is Closed. European Commission Justice Portfolio; 2014. http://ec.europa.eu/justice/data-protection/document/international-transfers/binding-corporate-rules/bcr_cooperation/index_en.htm .
-
(2014)
European Commission Justice Portfolio
-
-
-
25
-
-
84940568097
-
Model Contracts for the Transfer of Personal Data to Third Countries
-
European Commission: Model Contracts for the Transfer of Personal Data to Third Countries. European Commission Justice Portfolio; 2013. http://ec.europa.eu/justice/data-protection/document/international-transfers/transfer/index_en.htm .
-
(2013)
European Commission Justice Portfolio
-
-
-
26
-
-
84940572669
-
Personal Information Protection and Electronic Documents Act
-
Canada: Personal Information Protection and Electronic Documents Act. Department of Justice; 2000. http://laws-lois.justice.gc.ca/eng/acts/P-8.6/FullText.html .
-
(2000)
Department of Justice;
-
-
-
27
-
-
84940554181
-
APEC Cross-Border Privacy Rules System Program Requirements
-
Asia-Pacific Economic Cooperation: APEC Cross-Border Privacy Rules System Program Requirements. APEC; http://apec.org/~/media/Files/Groups/ECSG/CBPR/CBPR-ProgramRequirements.pdf .
-
APEC
-
-
-
28
-
-
84940504335
-
-
Cross border privacy rules system. http://www.cbprs.org/default.aspx .
-
-
-
-
29
-
-
84940539816
-
-
Opinion 02/2014 on a Referential for Requirements for Binding Corporate Rules Submitted to National Data Protection Authorities in the EU and Cross-Border Privacy Rules Submitted to APEC CBPR Accountability Agents. European Commission;
-
Article 29 Data Protection Working Party: Opinion 02/2014 on a Referential for Requirements for Binding Corporate Rules Submitted to National Data Protection Authorities in the EU and Cross-Border Privacy Rules Submitted to APEC CBPR Accountability Agents. European Commission; 2014. http://ec.europa.eu/justice/data-protection/article-29/documentation/opinion-recommendation/files/2014/wp212_en.pdf .
-
(2014)
-
-
-
30
-
-
77951468117
-
The value of using top-down and bottom-up approaches for building trust and transparency in biobanking
-
Meslin EM: The value of using top-down and bottom-up approaches for building trust and transparency in biobanking. Public Health Genomics 2010, 13:207-214.
-
(2010)
Public Health Genomics
, vol.13
, pp. 207-214
-
-
Meslin, E.M.1
-
31
-
-
84897578458
-
Privacy protectionism and health information: is there any redress for harms to health?
-
Allen J, Holman CD, Meslin EM, Stanley F: Privacy protectionism and health information: is there any redress for harms to health? J Law Med 2013, 21:473-485.
-
(2013)
J Law Med
, vol.21
, pp. 473-485
-
-
Allen, J.1
Holman, C.D.2
Meslin, E.M.3
Stanley, F.4
-
32
-
-
84940482932
-
-
Data Protection Principles for the 21st Century: Revising the 1980 OECD Guidelines. Oxford Internet Institute;
-
Cate FH, Cullen P, Mayer-Schönberger V: Data Protection Principles for the 21st Century: Revising the 1980 OECD Guidelines. Oxford Internet Institute; 2014. http://oii.ox.ac.uk/publications/Data_Protection_Principles_for_the_21st_Century.pdf .
-
(2014)
-
-
Cate, F.H.1
Cullen, P.2
Mayer-Schönberger, V.3
-
34
-
-
33645758791
-
Research ethics across the 49th parallel: The potential value of pilot testing "equivalent protections" in Canadian research institutions
-
Lavery JV, McDonald M, Meslin EM: Research ethics across the 49th parallel: The potential value of pilot testing "equivalent protections" in Canadian research institutions. Health Law Rev 2005, 13:86-96.
-
(2005)
Health Law Rev
, vol.13
, pp. 86-96
-
-
Lavery, J.V.1
McDonald, M.2
Meslin, E.M.3
-
35
-
-
84940500740
-
-
Global Alliance for Genomics and Health. http://www.genomicsandhealth.org .
-
-
-
-
36
-
-
84888084483
-
Creating a Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data (White Paper)
-
Global Alliance
-
Global Alliance for Genomics and Health: Creating a Global Alliance to Enable Responsible Sharing of Genomic and Clinical Data (White Paper). Global Alliance; 2013. http://genomicsandhealth.org/files/public/White%20Paper%20June%203%20final.pdf .
-
-
-
|