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Volumn 14, Issue 1, 2011, Pages 17-25

Assessing the privacy risks of data sharing in genomics

Author keywords

Access to information; Confidentiality; Genetic privacy; Genetic research ethics; Genome human; Genomics; Humans; Information dissemination; Informed consent; Internet

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; COMPUTER SECURITY; FORENSIC SCIENCE; GENETIC DATABASE; GENETIC PRIVACY; GENETICS; GENOMICS; INFORMATION PROCESSING; INFORMATION RETRIEVAL; MEDICAL INFORMATION; MEDICOLEGAL ASPECT; PRIORITY JOURNAL; PROFESSIONAL SECRECY; RISK ASSESSMENT;

EID: 78650415869     PISSN: 16624246     EISSN: None     Source Type: Journal    
DOI: 10.1159/000294150     Document Type: Article
Times cited : (97)

References (44)
  • 1
    • 2942522665 scopus 로고    scopus 로고
    • How (not) to protect genomic data privacy in a distributed network: Using trail re-identification to evaluate and design anonymity protection systems
    • Malin B, Sweeney L: How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems. J Biomed Inform 2004; 37: 179-192.
    • (2004) J Biomed Inform , vol.37 , pp. 179-192
    • Malin, B.1    Sweeney, L.2
  • 2
    • 33748995094 scopus 로고    scopus 로고
    • Genomic research and datamining technology implications for personal privacy and informed consent
    • Tavani HT: Genomic research and datamining technology implications for personal privacy and informed consent. Ethics Inf Technol 2004; 6: 15-28.
    • (2004) Ethics Inf Technol , vol.6 , pp. 15-28
    • Tavani, H.T.1
  • 3
    • 33746456536 scopus 로고    scopus 로고
    • Ethical issues in medical- sequencing research: Implications of genotype-phenotype studies for individuals and populations
    • spec No 1
    • Foster MW, Sharp RR: Ethical issues in medical- sequencing research: implications of genotype-phenotype studies for individuals and populations. Hum Mol Genet 2006; 15(spec No 1):R45-R49.
    • (2006) Hum Mol Genet , vol.15
    • Foster, M.W.1    Sharp, R.R.2
  • 4
    • 34547779363 scopus 로고    scopus 로고
    • Identifiability in genomic research
    • Lowrance WW, Collins FS: Identifiability in genomic research. Science 2007; 317: 600-602.
    • (2007) Science , vol.317 , pp. 600-602
    • Lowrance, W.W.1    Collins, F.S.2
  • 6
    • 55549116026 scopus 로고    scopus 로고
    • When consent gets in the way
    • Taylor P: When consent gets in the way. Nature 2008; 456: 32-33.
    • (2008) Nature , vol.456 , pp. 32-33
    • Taylor, P.1
  • 8
    • 51149088120 scopus 로고    scopus 로고
    • Genetic privacy. Whole-genome data not anonymous, challenging assumptions
    • Couzin J: Genetic privacy. Whole-genome data not anonymous, challenging assumptions. Science 2008; 321: 1278.
    • (2008) Science , vol.321 , pp. 1278
    • Couzin, J.1
  • 9
    • 67349288553 scopus 로고    scopus 로고
    • DNA databases shut after identities compromised
    • Anonymous
    • Anonymous: DNA databases shut after identities compromised. Nature 2008; 455: 13.
    • (2008) Nature , vol.455 , pp. 13
  • 10
    • 0000674690 scopus 로고    scopus 로고
    • Scenarios of attack: The data intruder's perspective on statistical disclosure risk
    • Elliot MJ, Dale A: Scenarios of attack: the data intruder's perspective on statistical disclosure risk. Netherlands Official Statistics 1999; 14: 6-10.
    • (1999) Netherlands Official Statistics , vol.14 , pp. 6-10
    • Elliot, M.J.1    Dale, A.2
  • 11
    • 56049112782 scopus 로고    scopus 로고
    • Genomic anonymity: Have we already lost it?
    • Greenbaum D, Du J, Gerstein M: Genomic anonymity: have we already lost it? Am J Bioeth 2008; 8: 71-74.
    • (2008) Am J Bioeth , vol.8 , pp. 71-74
    • Greenbaum, D.1    Du, J.2    Gerstein, M.3
  • 12
    • 3042849144 scopus 로고    scopus 로고
    • Genetics. Genomic research and human subject privacy
    • Lin Z, Owen AB, Altman RB: Genetics. Genomic research and human subject privacy. Science 2004; 305: 183.
    • (2004) Science , vol.305 , pp. 183
    • Lin, Z.1    Owen, A.B.2    Altman, R.B.3
  • 13
    • 58149327181 scopus 로고    scopus 로고
    • The regulation of direct-to-consumer genetic tests
    • Kaye J: The regulation of direct-to-consumer genetic tests. Hum Mol Genet 2008; 17:R180-R183.
    • (2008) Hum Mol Genet , vol.17
    • Kaye, J.1
  • 14
    • 62649102411 scopus 로고    scopus 로고
    • Inferential genotyping of y chromosomes in Latter-Day Saints founders and comparison to Utah samples in the HapMap project
    • Gitschier J: Inferential genotyping of Y chromosomes in Latter-Day Saints founders and comparison to Utah samples in the HapMap project. Am J Hum Genet 2009; 84: 251-258.
    • (2009) Am J Hum Genet , vol.84 , pp. 251-258
    • Gitschier, J.1
  • 15
    • 85026267958 scopus 로고    scopus 로고
    • Sharing Data from Large-scale Biological Research Projects, Available at
    • Sharing Data from Large-scale Biological Research Projects: A system of tripartite responsibility. Available at http://www. genome.gov/Pages/Research/ WellcomeReport0303. pdf.
    • A System of Tripartite Responsibility
  • 20
    • 58349109653 scopus 로고    scopus 로고
    • On Jim Watson's APOE status: Genetic information is hard to hide
    • Nyholt DR, Yu CE, Visscher PM: On Jim Watson's APOE status: genetic information is hard to hide. Eur J Hum Genet 2009; 17: 147-149.
    • (2009) Eur J Hum Genet , vol.17 , pp. 147-149
    • Nyholt, D.R.1    Yu, C.E.2    Visscher, P.M.3
  • 22
    • 1842538795 scopus 로고    scopus 로고
    • Privacy as contextual integrity
    • Nissenbaum H: Privacy as contextual integrity. Wash Law Rev 2004; 79: 119-157.
    • (2004) Wash Law Rev , vol.79 , pp. 119-157
    • Nissenbaum, H.1
  • 23
    • 66749192419 scopus 로고    scopus 로고
    • My sister's keeper? Genomic research and the identifiability of siblings
    • Cassa CA, Schmidt B, Kohane IS, Mandl KD: My sister's keeper? Genomic research and the identifiability of siblings. BMC Med Genomics 2008; 1: 32.
    • (2008) BMC Med Genomics , vol.1 , pp. 32
    • Cassa, C.A.1    Schmidt, B.2    Kohane, I.S.3    Mandl, K.D.4
  • 24
    • 61049329066 scopus 로고    scopus 로고
    • KDD, privacy, individuality, and fairness
    • Spinello RA, Tavani HT (eds), Boston, Jones and Bartlett Publishers
    • Vedder A: KDD, privacy, individuality, and fairness; in Spinello RA, Tavani HT (eds): Readings in Cyberethics. Boston, Jones and Bartlett Publishers, 2001, pp 404-412.
    • (2001) Readings in Cyberethics , pp. 404-412
    • Vedder, A.1
  • 27
    • 0002345460 scopus 로고    scopus 로고
    • Special uniques, random uniques and sticky populations: Some counterintuitive effects of geographical detail on disclosure risk
    • Elliot M, Skinner CJ, Dale A: Special uniques, random uniques and sticky populations: some counterintuitive effects of geographical detail on disclosure risk. Research in Official Statistics 1998; 1: 53-67.
    • (1998) Research in Official Statistics , vol.1 , pp. 53-67
    • Elliot, M.1    Skinner, C.J.2    Dale, A.3
  • 28
    • 45749141802 scopus 로고    scopus 로고
    • SourceOECD (Online service): OECD glossary of statistical terms, Paris, OECD
    • Organisation for Economic Co-operation and Development, SourceOECD (Online service): OECD glossary of statistical terms. Paris, OECD, 2008.
    • (2008) Organisation for Economic Co-operation and Development
  • 29
    • 34250350521 scopus 로고    scopus 로고
    • Should genetic information be disclosed to insurers?
    • Ashcroft R: Should genetic information be disclosed to insurers? No. BMJ 2007; 334: 1197.
    • (2007) No. BMJ , vol.334 , pp. 1197
    • Ashcroft, R.1
  • 31
    • 67650519734 scopus 로고    scopus 로고
    • Medical data, new information technologies and the need for normative principles other than privacy rules
    • Freeman MD, Lewis AD (eds), Oxford, Oxford University Press
    • Vedder A: Medical data, new information technologies and the need for normative principles other than privacy rules; in Freeman MD, Lewis AD (eds): Law and Medicine: Current Legal Issues. Oxford, Oxford University Press, 2000, pp 441-459.
    • (2000) Law and Medicine: Current Legal Issues , pp. 441-459
    • Vedder, A.1
  • 32
    • 12344321539 scopus 로고    scopus 로고
    • Race and ethnicity in the genome era: The complexity of the constructs
    • Bonham VL, Warshauer-Baker E, Collins FS: Race and ethnicity in the genome era: the complexity of the constructs. Am Psychol 2005; 60: 9-15.
    • (2005) Am Psychol , vol.60 , pp. 9-15
    • Bonham, V.L.1    Warshauer-Baker, E.2    Collins, F.S.3
  • 33
    • 32144461010 scopus 로고    scopus 로고
    • Stigma race and disease in 20th century America
    • Wailoo K: Stigma, race, and disease in 20th century America. Lancet 2006; 367: 531-533.
    • (2006) Lancet , vol.367 , pp. 531-533
    • Wailoo, K.1
  • 34
    • 46749135225 scopus 로고    scopus 로고
    • Duffy antigen receptor for chemokines mediates trans-infection of HIV-1 from red blood cells to target cells and affects HIVAIDS susceptibility
    • He W, Neil S, Kulkarni H, Wright E, Agan BK, Marconi VC, Dolan MJ, Weiss RA, Ahuja SK: Duffy antigen receptor for chemokines mediates trans-infection of HIV-1 from red blood cells to target cells and affects HIVAIDS susceptibility. Cell Host Microbe 2008; 4: 52-62.
    • (2008) Cell Host Microbe , vol.4 , pp. 52-62
    • He, W.1    Neil, S.2    Kulkarni, H.3    Wright, E.4    Agan, B.K.5    Marconi, V.C.6    Dolan, M.J.7    Weiss, R.A.8    Ahuja, S.K.9
  • 35
    • 85026210245 scopus 로고    scopus 로고
    • S v United Kingdom (30562/04) Marper v United Kingdom (30566/04) (2008) 25 BHRC 557. European Court of Human Rights
    • S v United Kingdom (30562/04) Marper v United Kingdom (30566/04) (2008) 25 BHRC 557. European Court of Human Rights.
  • 36
    • 70449403940 scopus 로고    scopus 로고
    • Police access to DNA samples and information
    • Kaye J: Police access to DNA samples and information. Genomics Soc Policy 2006; 2: 16-27.
    • (2006) Genomics Soc Policy , vol.2 , pp. 16-27
    • Kaye, J.1
  • 37
    • 7044231098 scopus 로고    scopus 로고
    • The ethics of biobanks
    • Hansson SO: The ethics of biobanks. Camb Q Healthc Ethics 2004; 13: 319-326.
    • (2004) Camb Q Healthc Ethics , vol.13 , pp. 319-326
    • Hansson, S.O.1
  • 38
    • 58149223088 scopus 로고    scopus 로고
    • The ethical challenges of genetic databases: Safeguarding altruism and trust
    • Campbell AV: The ethical challenges of genetic databases: safeguarding altruism and trust. Kings Law J 2007; 18: 227-245.
    • (2007) Kings Law J , vol.18 , pp. 227-245
    • Campbell, A.V.1
  • 39
    • 85026207396 scopus 로고    scopus 로고
    • R v Lloyd (James) [2007] EWCA Crim 1388. Court of Appeal (Criminal Division), UK
    • R v Lloyd (James) [2007] EWCA Crim 1388. Court of Appeal (Criminal Division), UK.
  • 41
    • 56449106586 scopus 로고    scopus 로고
    • Research ethics. Certificates of confidentiality and compelled disclosure of data
    • Beskow LM, Dame L, Costello EJ: Research ethics. Certificates of confidentiality and compelled disclosure of data. Science 2008; 322: 1054-1055.
    • (2008) Science , vol.322 , pp. 1054-1055
    • Beskow, L.M.1    Dame, L.2    Costello, E.J.3
  • 43
    • 78650419385 scopus 로고    scopus 로고
    • Our missing million
    • November 9
    • Cohen N: Our missing million. The Observer, November 9, 2009.
    • (2009) The Observer
    • Cohen, N.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.