Registered Nurses’ experiences of patient participation in hospital care: supporting and hindering factors patient participation in care

Scandinavian Journal of Caring Sciences

Volumn 32, Issue 2, 2018, Pages 612-621

  Oxelmark, Lena ^a,b   Ulin, Kerstin ^a   Chaboyer, Wendy ^a,c,d   Bucknall, Tracey ^e,f   Ringdal, Mona ^a  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b SAHLGRENSKA UNIVERSITY HOSPITAL   (Sweden)

^c Centre of Research Excellence in Nursing Interventions   (Sweden)

^d GRIFFITH UNIVERSITY   (Australia)

^e DEAKIN UNIVERSITY   (Australia)

^f School of Exercise and Nutrition Sciences   (Australia)

Author keywords

care; enablers; nurses; obstacles; partnering with patients; patient participation

Indexed keywords

CLINICAL STUDY; CONVERSATION; DATA ANALYSIS; DNA TRANSCRIPTION; DOCTOR PATIENT RELATION; FEMALE; HEAD; HOSPITAL CARE; HUMAN; INTERVIEW; MALE; NURSING CARE; PATIENT PARTICIPATION; PATIENT SAFETY; REGISTERED NURSE; RESPONSIBILITY; SWEDEN; TEAMWORK; UNIVERSITY HOSPITAL; ADULT; DECISION MAKING; HEALTH PERSONNEL ATTITUDE; MIDDLE AGED; NURSE; NURSE PATIENT RELATIONSHIP; NURSING STAFF; PATIENT CARE; PROCEDURES; PSYCHOLOGY; STATISTICS AND NUMERICAL DATA; YOUNG ADULT;

ADULT; ATTITUDE OF HEALTH PERSONNEL; DECISION MAKING; FEMALE; HUMANS; MALE; MIDDLE AGED; NURSE-PATIENT RELATIONS; NURSES; NURSING STAFF, HOSPITAL; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; SWEDEN; YOUNG ADULT;

EID: 85021814834     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/scs.12486     Document Type: Article

References (50)

1. WHO. Exploring patient participation in reducing health-care-related safety risks. In WHOLIS, World Health Organisation Regional Office for Europe. 2013, WHO, Copenhagen, Denmark
2. Carlsson P, Clarin C, Gabrielsson L, Gullberg A, Svedberg E, Jacobsson M. Din skyldighet att informera och göra göra patienten delaktig. In: Handbok för vårdgivare, chefer och personal Aktuell från 1 januari 2015 (Your responsibility to inform and make the patient participating Handbook for caregivers, managers and staff), (Eriksson B, Törnblom C eds), 2015, Socialstyrelsen, avdelningen för kunskapsstöd, Stockholm
3. Ekman I, Swedberg K, Taft C, Lindseth A, Norberg A, Brink E, et al. Person-centered care–ready for prime time. Eur J Cardiovasc Nurs 2011; 10: 248–51
4. Morgan S, Yoder LH. A concept analysis of person-centered care. J Holist Nurs 2012; 30: 6–15
5. Sahlsten M, Larsson IE, Sjostrom B, Plos KAE. An analysis of the concept of patient participation. Nurs Forum 2008; 43: 2–11
6. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D. Patient participation: current knowledge and applicability to patient safety. Mayo Clin Proc 2010; 85: 53–62
7. Wellard S, Lillibridge J, Beanland C, Lewis M. Consumer participation in acute care settings: an Australian experience. Int J Nurs Pract 2003; 9: 255–60
8. Iedema R, Allen S, Britton K, Gallagher TH. What do patients and relatives know about problems and failures in care? BMJ Qual Saf 2012; 21: 198–205
9. Peat M, Entwistle V, Hall J, Birks Y, Golder S, Group P. Scoping review and approach to appraisal of interventions intended to involve patients in patient safety. J Health Serv Res Policy 2010; 15(Suppl. 1): 17–25
10. Weingart SN, Zhu J, Chiappetta L, Stuver SO, Schneider EC, Epstein AM, et al. Hospitalized patients’ participation and its impact on quality of care and patient safety. Int J Qual Health Care 2011; 23: 269–77
11. Tobiano G, Marshall A, Bucknall T, Chaboyer W. Patient participation in nursing care on medical wards: an integrative review. Int J Nurs Stud 2015; 52: 1107–20
12. Angel S, Frederiksen KN. Challenges in achieving patient participation: a review of how patient participation is addressed in empirical studies. Int J Nurs Stud 2015; 52: 1525–38
13. Koutantji M, Davis R, Vincent C, Coulter A. The patient's role in patient safety: engaging patients, their representatives, and health professionals. Clin Risk 2005; 11: 99–104
14. Berger Z, Flickinger TE, Pfoh E, Martinez KA, Dy SM. Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review. BMJ Qual Saf 2014; 23: 548–55
15. Vaismoradi M, Jordan S, Kangasniemi M. Patient participation in patient safety and nursing input – a systematic review. J Clin Nurs 2015; 24: 627–39
16. Fumagalli LP, Radaelli G, Lettieri E, Bertele P, Masella C. Patient Empowerment and its neighbours: clarifying the boundaries and their mutual relationships. Health Policy 2015; 119: 384–94
17. Gallivan J, Kovacs BK, Bellows M, Eigenseher C. The many faces of patient engagement. J Participat Med. 2012; 4: e32
18. Snyder H, Engstrom J. The antecedents, forms and consequences of patient involvement: a narrative review of the literature. Int J Nurs Stud 2016; 53: 351–78
19. Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing J Adv Nurs 2013; 69: 4–15
20. Scholl I, Zill JM, Harter M, Dirmaier J. An integrative model of patient-centeredness – a systematic review and concept analysis. PLoS ONE 2014; 9: e107828
21. Thórarinsdóttir K, Kristjánsson K. Patients’ perspectives on person-centred participation in health care: a framework analysis. Nurs Ethics 2013; 21: 129–147
22. McMurray A, Chaboyer W, Wallis M, Johnson J, Gehrke T. Patients’ perspectives of bedside nursing handover. Collegian 2011; 18: 19–26
23. Tobiano G, Chaboyer W, McMurray A. Family members’ perceptions of the nursing bedside handover. J Clin Nurs 2013; 22: 192–200
24. Swenne CL, Skytt B. The ward round–patient experiences and barriers to participation. Scand J Caring Sci 2014; 28: 297–304
25. Salloch S, Ritter P, Wascher S, Vollmann J, Schildmann J. Medical expertise and patient involvement: a multiperspective qualitative observation study of the patient's role in oncological decision making. Oncologist 2014; 19: 654–60
26. Florin J, Ehrenberg A, Ehnfors M. Patient participation in clinical decision-making in nursing: a comparative study of nurses’ and patients’ perceptions. J Clin Nurs 2006; 15: 1498–508
27. Florin J, Ehrenberg A, Ehnfors M. Clinical decision-making: predictors of patient participation in nursing care. J Clin Nurs 2008; 17: 2935–44
28. Tobiano G, Marshall A, Bucknall T, Chaboyer W. Activities patients and nurses undertake to promote patient participation. J Nurs Scholarsh 2016; 48: 362–70
29. Tobiano G, Bucknall T, Marshall A, Guinane J, Chaboyer W. Patients’ perceptions of participation in nursing care on medical wards. Scand J Caring Sci 2016; 30: 260–70
30. Tobiano G, Bucknall T, Marshall A, Guinane J, Chaboyer W. Nurses’ views of patient participation in nursing care. J Adv Nurs 2015; 71: 2741–52
31. Jewell SE. Patient participation: what does it mean to nurses? J Adv Nurs 1994; 19: 433–8
32. Penney W, Wellard SJ. Hearing what older consumers say about participation in their care. Int J Nurs Pract 2007; 13: 61–68
33. Rozenblum R, Lisby M, Hockey PM, Levtizion-Korach O, Salzberg CA, Lipsitz S, et al. Uncovering the blind spot of patient satisfaction: an international survey. BMJ Qual Saf 2011; 20: 959–65
34. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3: 77–101
35. Boyatzis RE. Transforming Qualitative Information. Thematic Analysis and Code Development. 1998, SAGE Publications Inc, London New Delhi
36. Patton MQ. Qualitative Research and Evaluation Methods, 3rd edn. 2002, Sage Publications, Thousand Oaks, AC
37. Polit DF, Beck CT. Nursing Research: Generating and Assessing Evidence for Nursing Practice, 10th edn. 2016, Williams & Wilkins, Lippincott
38. Rickham PP. Human experimentation. code of ethics of the world medical association. Declaration of Helsinki. Br Med J 1964; 2: 177
39. Gallant MH, Beaulieu MC, Carnevale FA. Partnership: an analysis of the concept within the nurse-client relationship. J Adv Nurs 2002; 40: 149–57
40. Wiggins MS. The partnership and care delivery model: an examination of the core concept and the need for a new mode of care. J Nurs Manag 2008; 16: 629–38
41. International Alliance of Patients’ Organizations, IAPO. The global voice for patient-centred healthcare. https://www.iapo.org.uk 2016 (last accessed 5 March 2017)
42. McCormack B, Karlsson B, Dewing J, Lerdal A. Exploring person-centredness: a qualitative meta-synthesis of four studies. Scand J Caring Sci 2010; 24: 620–34
43. Sahlsten M, Larsson IE, Sjostrom B, Plos KA. Nurse strategies for optimising patient participation in nursing care. Scand J Caring Sci 2009; 23: 490–7
44. Sahlsten M, Larsson IE, Lindencrona CSC, Plos KAE. Patient participation in nursing care: an interpretation by Swedish registered nurses. J Clinl Nurs 2005; 14: 35–42
45. Weber H, Stockli M, Nubling M, Langewitz WA. Communication during ward rounds in internal medicine. An analysis of patient-nurse-physician interactions using RIAS. Patient Educ Couns 2007; 67: 343–8
46. Ridelberg M, Roback K, Nilsen P. Facilitators and barriers influencing patient safety in Swedish hospitals: a qualitative study of nurses’ perceptions. BMC Nurs 2014; 13: 23
47. Interprofessional Education Collaborative Expert Panel. (2011). Core competencies for interprofessional collaborative practice: Report of an expert panel. Washington, D.C.: Interprofessional Education Collaborative
48. Grande SW, Faber MJ, Durand MA, Thompson R, Elwyn G. A classification model of patient engagement methods and assessment of their feasibility in real-world settings. Patient Educ Couns 2014; 95: 281–7
49. Chaboyer W, McMurray A, Marshall A, Gillespie B, Roberts S, Hutchinson AM, et al. Patient engagement in clinical communication: an exploratory study. Scand J Caring Sci 2016; 30: 565–73
50. Flynn M. Patient partnership. World Ir Nurs Midwifery 2015; 23: 29 – 1p