Parents with Intellectual Disability in a Population Context

Current Developmental Disorders Reports

Volumn 2, Issue 2, 2015, Pages 119-126

  Llewellyn, Gwynnyth ^a   Hindmarsh, Gabrielle ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Administrative datasets; Parents with intellectual disability; Population studies; Vulnerable parent groups

Indexed keywords

EID: 85017070020     PISSN: None     EISSN: 21962987     Source Type: Journal    
DOI: 10.1007/s40474-015-0042-x     Document Type: Article

References (45)

1. World Health Organization, OHCHR, UN Women, UNAIDS, UNDP, UNFPA, et al. Eliminating forced, coercive and otherwise involuntary sterilization: an interagency statement. Geneva: World Health Organization; 2014.
2. Mickelson P. The feebleminded parent: a study of 90 family cases. Am J Ment Def. 1947;51:644–53.
3. Tymchuk AJ. Predicting adequacy of parenting by people with mental retardation. Child Abuse Negl. 1992;16:165–78. DOI: 10.1016/0145-2134(92)90025-M
4. Wilson S, McKenzie K, Quayle E, Murray G. A systematic review of interventions to promote social support and parenting skills in parents with an intellectual disability. Child Care Health Dev. 2013;40:7–19. This article reviewed two types of intervention for parents with intellectual disabilities. Behavioural based interventions were found to be more effective in parental skills teaching than less intensive interventions. Some positive changes in social relationships were found but the generalizability of the results was restricted by study design limitations. DOI: 10.1111/cch.12023
5. IASSID Special Interest Research Group on Parents and Parenting with Intellectual Disabilities. Parents labelled with intellectual disability: position of the IASSID SIRG on parents and parenting with intellectual disabilities. J Appl Res Intellect. 2008;21:296–307. DOI: 10.1111/j.1468-3148.2008.00435.x
6. Reinders H. Persons with disabilities as parents: what is the problem? J Appl Res Intellect. 2008;21:308–14. DOI: 10.1111/j.1468-3148.2008.00445.x
7. Mayes R, Sigurjonsdottir HB. Becoming a mother—becoming a father. In: Llewellyn G, Traustadottir R, McConnell D, Sigurjonsdottir HB, editors. Parents with intellectual disabilities. Past, present and futures. Chichester, UK: Wiley-Blackwell; 2010. p. 17–32.
8. Gough D, Oliver S, Thomas J. An introduction to systematic reviews. London: Sage; 2012.
9. Feldman M. Parenting education for parents with intellectual disabilities: a review of outcome studies. Res Dev Disabil. 1994;15:299–332. DOI: 10.1016/0891-4222(94)90009-4
10. Wade C, Llewellyn G, Matthews J. Review of parent training interventions for parents with intellectual disability. J Appl Res Intellect. 2008;21:351–66. DOI: 10.1111/j.1468-3148.2008.00449.x
11. Coren E, Hutchfield J, Thomae M, Gustafsson C. Parent training support for intellectually disabled parents. Campbell Systematic Review. 2010;3.
12. McConnell D, Llewellyn G, Ferronato L. Disability and decision-making in Australian care proceedings. Int J Law Policy Fam. 2002;16:273–301. DOI: 10.1093/lawfam/16.2.270
13. Feldman MA. Parents with intellectual disabilities and their children: impediments and supports. In: Griffiths D, Federoff P, editors. Ethical dilemmas: sexuality and developmental disability. Kingston: NADD Press; 2002. p. 255–92.
14. Wade C, Llewellyn G, Matthews J. Modelling contextual influences on parents with intellectual disability and their children. Am J Intellect Dev Disabil. 2011;116:419–37. DOI: 10.1352/1944-7558-116.6.419
15. Shonkoff J, Phillips D. From neurons to neighborhoods: the science of early childhood development. Washington: National Academy Press; 2000.
16. Wen X. The definition and prevalence of intellectual disability in Australia. AIHW Catalogue no. DIS 2. Canberra: AIHW; 1997.
17. National Council on Disability. (2012). Rocking the cradle: Ensuring the rights of parents with disabilities and their children. Washington, DC: Author. Retrieved from http://www.ncd.gov/publications/2012/Sep272012/
18. McConnell D, Mayes R, Llewellyn G. Women with intellectual disability at risk of adverse pregnancy and birth outcomes. J Intellect Disabil Res. 2008;52:529–35. DOI: 10.1111/j.1365-2788.2008.01061.x
19. Goldacre AD, Gray R, Goldacre MJ. Childbirth in women with intellectual disability: characteristics of their pregnancies and outcomes in an archived epidemiological dataset. J Intellect Disabil Res. 2014. doi:10.1111/jir.12169.
20. Hoglund B, Lindgren P, Larsson M. Pregnancy and birth outcomes of women with intellectual disability in Sweden: a national register study between 1999 and 2007. Acta Obstet Gyn Scan. 2012;91:1381–7. Secondary analysis utilising two linked population health registers showed women with intellectual disability have a higher risk of adverse pregnancy and delivery outcomes compared to women without intellectual disability and no other psychiatric diagnosis. DOI: 10.1111/j.1600-0412.2012.01509.x
21. Hoglund B, Lindgren P, Larsson M. Newborns of mothers with intellectual disability have a higher risk of perinatal death and being small for gestational age. Acta Obstet Gynaecol Scand. 2012;91:1409–14. DOI: 10.1111/j.1600-0412.2012.01537.x
22. Hindmarsh G, Llewellyn G, Emerson E. Mothers with intellectual impairment and their 9-month-old infants. J Intellect Disabil Res. 2014. doi:10.1111/jir.12159. Utilising a large nationally representative sample, widespread disadvantage in terms of social context and poorer self-reported physical health were reported for mothers with intellectual impairment compared to their peers without intellectual impairment.
23. Hindmarsh G, Emerson E, Llewellyn G. The social and emotional wellbeing of children with mothers with cognitive limitations through early childhood. Forthcoming.
24. Emerson E, Brigham P. Health behaviours and mental health status of parents with intellectual disabilities: cross sectional study. Public Health. 2013;127:1111–6. DOI: 10.1016/j.puhe.2013.10.001
25. Emerson E, Brigham P. The developmental health of children of parents with intellectual disabilities: cross sectional study. Res Dev Disabil. 2014;35:917–21. Secondary analysis of family health visitor data set revealed significantly higher rates of exposure to environmental adversity for households with parents with intellectual disability. DOI: 10.1016/j.ridd.2014.01.006
26. Aunos M, Goupil G, Feldman M. Mothers with intellectual disabilities who do or do not have custody of their children. J Dev Disabil. 2004;10:65–79.
27. Booth T, Booth W. Parents with learning difficulties, child protection and the courts: a report to the Nuttfield Foundation. Sheffield: The University of Sheffield; 2004.
28. Booth T, Booth W. Findings from a court study of care proceedings involving parents with intellectual disabilities. J Policy Pract Intellect Disabil. 2004;1:179–81. DOI: 10.1111/j.1741-1130.2004.04032.x
29. Llewellyn G, McConnell D, Ferronato L. Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse Negl. 2003;27:235–51. DOI: 10.1016/S0145-2134(03)00004-8
30. Booth T, Booth W, McConnell D. The prevalence and outcomes of care proceedings involving parents with learning difficulties in the family courts. J Appl Res Intellect. 2005;18:7–17. DOI: 10.1111/j.1468-3148.2004.00204.x
31. Booth T, Booth W, McConnell D. Care proceedings and parents with learning difficulties: comparative prevalence and outcomes in an English and Australian court sample. Child Fam Soc Work. 2005;10:353–60. DOI: 10.1111/j.1365-2206.2005.00378.x
32. Pixa-Kettner U. Parenting with intellectual disability in Germany: results of a new nationwide study. J Appl Res Intellect. 2008;21:315–9. DOI: 10.1111/j.1468-3148.2008.00446.x
33. Australian Institute of Health and Welfare. Child protection Australia 2012-2013. 2014. Child welfare series 58. Cat. no. CWS 49. Canberra: AIHW.
34. Trocme N, Fallon B, MacLaurin B, Daciuk J, Felstiner C, Black T, et al. Major findings. Ottawa: Minister of Public Works and Government Services Canada; 2005.
35. McConnell D, Feldman M, Aunos M, Prasad N. Parental cognitive impairment and child maltreatment in Canada. Child Abuse Negl. 2011;35:621–32. DOI: 10.1016/j.chiabu.2011.04.005
36. McConnell D, Feldman M, Aunos M, Prasad N. Child maltreatment investigations involving parents with cognitive impairments in Canada. Child Maltreat. 2011;16:21–32. DOI: 10.1177/1077559510388843
37. Feldman M, McConnell D, Aunos M. Parental cognitive impairment, mental health and child outcomes in a child protection population. J Ment Health Res Intellect Disabil. 2012;5:66–90. DOI: 10.1080/19315864.2011.587632
38. Cleaver H, Nicholson D. Parental learning disability and children’s needs: family experiences and effective practice. London: Jessica Kingsley Publishers; 2007.
39. McConnell D, Llewellyn G. Disability and discrimination in statutory child protection proceedings. Disabil Soc. 2000;15:883–95. DOI: 10.1080/713662015
40. McGaw S, Ball K, Clark A. The effect of group intervention on the relationships of parents with intellectual disabilities. J Appl Res Intellect. 2002;15:354–66. DOI: 10.1046/j.1468-3148.2002.00143.x
41. McConnell D, Dalziel A, Llewellyn G, Laidlaw K, Hindmarsh G. Strengthening the social relationships of mothers with learning difficulties. Br J Learn Disabil. 2008;37:66–75. DOI: 10.1111/j.1468-3156.2008.00526.x
42. Collings S, Llewellyn G. Children of parents with intellectual disability: facing poor outcomes or faring okay? J Intellect Dev Dis. 2012;37:65–82. Comprehensive systematic review of the literature on outcomes for children of parents with intellectual disability. DOI: 10.3109/13668250.2011.648610
43. Darbyshire LV, Stenfert Kroese B. Psychological well-being and social support for parents with intellectual disabilities: risk factors and interventions. J Policy Pract Intellect Disabil. 2012;9:40–52. DOI: 10.1111/j.1741-1130.2012.00326.x
44. Booth T, Booth W. Self advocacy and supported learning for mothers with learning difficulties. J Learn Disabil. 2003;7:165–93.
45. Mayes R, Llewellyn G. Mothering differently: narratives of mothers with intellectual disability whose children have been compulsorily removed. J Intellect Dev Disabil. 2012;37:121–30. DOI: 10.3109/13668250.2012.673574