Modeling contextual influences on parents with intellectual disability and their children

American Journal on Intellectual and Developmental Disabilities

Volumn 116, Issue 6, 2011, Pages 419-437

  Wade, Catherine ^a,b   Llewellyn, Gwynnyth ^b   Matthews, Jan ^a  

^a Parenting Research Centre   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CHILD; CHILD CARE; CHILD PARENT RELATION; DEMOGRAPHY; EARLY CHILDHOOD INTERVENTION; EDUCATION; FEMALE; HEALTH PROMOTION; HUMAN; INFANT; INTELLECTUAL IMPAIRMENT; NEWBORN; PREGNANCY; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; QUALITY OF LIFE; SOCIAL ENVIRONMENT; SOCIAL SUPPORT;

ADULT; CHILD; CHILD CARE; CHILD OF IMPAIRED PARENTS; CHILD, PRESCHOOL; EARLY INTERVENTION (EDUCATION); EDUCATION; FEMALE; HEALTH PROMOTION; HUMANS; INFANT; INFANT, NEWBORN; INTELLECTUAL DISABILITY; MODELS, PSYCHOLOGICAL; PARENTING; PREGNANCY; QUALITY OF LIFE; RESIDENCE CHARACTERISTICS; SOCIAL ENVIRONMENT; SOCIAL SUPPORT;

EID: 82455185026     PISSN: 19447515     EISSN: 19447558     Source Type: Journal    
DOI: 10.1352/1944-7558-116.6.419     Document Type: Article

References (116)

1. Andersen, J., & Gerbing, D. (1988). Structural equation modeling in practice: A review and recommended two-step approach. Psychological Bulletin, 103, 411-423.
2. Andresen, P., & Telleen, S. (1992). The relationship between social support and maternal behaviors and attitudes: A meta-analytic review. American Journal of Community Psychology, 20, 753-774.
3. Andron, L., & Tymchuk, A. (1987). Parents who are mentally retarded. In A. Craft (Ed.), Mental handicap and sexuality: Issues and perspectives (pp. 238-262). Wells, Kent, United Kingdom: Costello.
4. Arbuckle, J. (2007). AMOS (Release 16.0) [software]. Spring House, PA: Amos Development.
5. Attree, P. (2005). Parenting support in the context of poverty: A meta-synthesis of the qualitative evidence. Health and Social Care in the Community, 13, 330-337.
6. Aunos, M., Feldman, M., & Goupil, G. (2008). Mothering with intellectual disabilities: Relationship between social support, health and well-being, parenting and child behaviour outcomes. Journal of Applied Research in Intellectual Disabilities, 21, 320-330.
7. Australian Bureau of Statistics. (2001). Socioeconomic indexes for areas, Australia (Information paper). Canberra: Australian Bureau of Statistics.
8. Australian Bureau of Statistics. (2002). 2015.0 census of population and housing: Selected social and housing characteristics. Retrieved January 22, 2004, from www.abs.gov. au
9. Belsky, J. (1993). Etiology of child maltreatment: A developmental- ecological analysis. Psychological Bulletin, 114, 413-434.
10. Belsky, J., Melhuish, E., Barnes, J., Leyland, A., & Romaniuk, H. (2006). Effects of Sure Start local programmes on children and families: Early findings from a quasi-experimental, cross sectional study. British Medical Journal, 332, 1476.
11. Boivin, M., Perusse, D., Saysset, V., Tremblay, N., & Tremblay, R. (2000). Longitudinal study of child development in Quebec (ELDEQ 1998-2002): 5 month old infants, parenting and family relations (Vol. 1, No. 10). Quebec, Canada: L'Institut de la statistique du Quebec.
12. Booth, T., & Booth, W. (1999). Parents together: Action research and advocacy support for parents with learning difficulties. Health and Social Care in the Community, 7, 464-474.
13. Booth, T., & Booth, W. (2003). Self-advocacy and supported learning for mothers with learning difficulties. Journal of Learning Disabilities, 7, 165-193. (Pubitemid 36665321)
14. Booth, T., & Booth, W. (2004). Parents with intellectual disability (ID), child protection and the courts. Journal of Intellectual Disability Research, 48 (4 & 5), 379.
15. Booth, T., Booth, W., & McConnell, D. (2005). The prevalence and outcomes of care proceedings involving parents with learning difficulties in the family courts. Journal of Applied Research in Intellectual Disabilities, 18, 7-17. (Pubitemid 40317679)
16. Booth, W., & Booth, T. (1993). Accentuate the positive: A personal profile of a parent with learning difficulties. Disability, Handicap & Society, 8, 377-392.
17. Bradley, R. H., Whiteside, L., Mundfrom, D. J., Casey, P. H., Kelleher, K. J., & Pope, S. K. (1994). Early indications of resilience and their relation to experiences in the home environments of low birthweight, premature children living in poverty. Child Development, 65 (2 Spec No.), 346-360.
18. Brody, G., Ge, X., Kim, S., Murry, V., Simons, R., Gibbons, F., et al. (2003). Neighborhood disadvantage moderates associations of parenting and older sibling problem attitudes and behavior with conduct disorders in African American children. Journal of Consulting and Clinical Psychology, 71, 211-222. (Pubitemid 36323926)
19. Brody, G., Stoneman, Z., Smith, T., & Gibson, N. (1999). Sibling relationships in rural African American families. Journal of Marriage and the Family, 61, 1046-1057.
20. Bronfenbrenner, U. (1989). Ecological systems theory. Annals of Child Development, 22, 723-742.
21. Bronfenbrenner, U., & Ceci, S. J. (1994). Nature-nurture reconceptualized in developmental perspective: A bioecological model. Psychological Review, 101, 568-586. (Pubitemid 24976817)
22. Bronfenbrenner, U., & Morris, P. (1998). The ecology of developmental processes. In W. Damon & R. Lerner (Eds.), Handbook of child psychology: Vol. 1. Theoretical models of human development (5th ed., pp. 993-1028). New York: Wiley.
23. Budd, K., & Greenspan, S. (1984). Mentally retarded mothers. In E. Blechman (Ed.), Behavior modification with women (pp. 477-506). New York: Guilford Press.
24. Campbell, S., Matestic, P., von Stauffenberg, C., Mohan, R., & Kirchner, T. (2007). Trajectories of maternal depressive symptoms, maternal sensitivity, and children's functioning at school entry. Developmental Psychology, 43, 1202-1215.
25. Church, A., & Katibak, M. (1991). Home environment, nutritional status, and maternal intelligence as determinants of intellectual development in rural Philippine preschool children. Intelligence, 15, 49-78.
26. Coleman, P., & Karraker, K. (1997). Self-efficacy and parenting quality: Findings and future applications. Developmental Review, 18, 47-85.
27. Conger, R., Wallace, L., Sun, Y., Simons, R., McLoyd, V., & Brody, G. (2002). Economic pressure in African American families: A replication and extension of the family stress model. Developmental Psychology, 38, 179-193.
28. Coren, E., Hutchfield, J., Thomae, M., & Gustafsson, C. (2010). Parent training support for intellectually disabled parents. Campbell Systematic Reviews. DOI: 10.4073/csr.2010.3.
29. Dowdney, L., & Skuse, D. (1993). Parenting provided by adults with mental retardation. Journal of Child Psychology and Psychiatry, 34, 25-47. (Pubitemid 23141611)
30. Emerson, E. (2007). Poverty and people with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 107-113. (Pubitemid 47092763)
31. Feldman, M. (1986). Research on parenting by mentally retarded persons. Psychiatric Clinics of North America, 9, 777-796. (Pubitemid 17195090)
32. Feldman, M. (1994). Parenting education for parents with intellectual disabilities: A review of outcome studies. Research in Developmental Disabilities, 15, 299-332. (Pubitemid 24239723)
33. Feldman, M. (2002a). Children of parents with intellectual disabilities. In R. McMahon & R. Peters (Eds.), The effects of parental dysfunction on children (pp. 205-223). New York: Kluwer Academic/Plenum.
34. Feldman, M. (2002b). Parents with intellectual disabilities and their children: Impediments and supports. In D. Griffiths & P. Federoff (Eds.), Ethical dilemmas: Sexuality and developmental disability (pp. 255-292). Kingston, NY: NADD Press.
35. Feldman, M., & Case, L. (1999). Teaching childcare and safety skills to parents with intellectual disabilities through self-learning. Journal of Intellectual and Developmental Disability, 24, 27-44. (Pubitemid 29142248)
36. Feldman, M., Case, L., & Sparks, B. (1992). Effectiveness of a child-care training program for parents at-risk for child neglect. Canadian Journal of Behavioural Science, 24, 14-28.
37. Feldman, M., Leger, M., & Walton-Allen, N. (1997). Stress in mothers with intellectual disabilities. Journal of Child and Family Studies, 6, 471-485.
38. Feldman, M., Sparks, B., & Case, L. (1993). Effectiveness of home-based early intervention on the language development of children of mothers with mental retardation. Research in Developmental Disabilities, 14, 387-408. (Pubitemid 23350147)
39. Feldman, M., Towns, F., Betel, J., Case, L., Rincover, A., & Rubino, C. (1986). Parent Education Project II: Increasing stimulating interactions of developmentally handicapped mothers. Journal of Applied Behavior Analysis, 19, 23-37.
40. Feldman, M., Varghese, J., Ramsay, J., & Rajska, D. (2002). Relationships between social support, stress and mother-child interactions in mothers with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 15, 314-323. (Pubitemid 36725515)
41. Feldman, M., & Walton-Allen, N. (1997). Effects of maternal mental retardation and poverty on intellectual, academic, and behavioral status of school-age children. American Journal on Mental Retardation, 101, 352-364. (Pubitemid 27061354)
42. Field, T. (1995). Infants of depressed mothers. Infant Behavior & Development, 18, 1-13.
43. Garbarino, J., Bradshaw, C., & Kostelny, K. (2005). Neighborhood and community influences on parenting. In T. Luster & L. Okagaki (Eds.), Parenting: An ecological perspective (pp. 297-318): New York: Routledge.
44. Ge, X., Conger, R., Cadoret, R., Neiderhiser, J., Yates, W., Troughton, E., et al. (1996). The developmental interface between nature and nurture: A mutual influence model of child antisocial behavior and parent behaviors. Developmental Psychology, 32, 574-589.
45. Gelfand, D., & Teti, D. (1990). The effects of maternal depression on children. Clinical Psychology Review, 10, 329-353. (Pubitemid 20362287)
46. Glascoe, F. (2005). Screening for developmental and behavioral problems. Mental Retardation and Developmental Disabilities Research Review, 11, 173-179. (Pubitemid 41434676)
47. Glascoe, F. (2006). Parents' evaluation of developmental status. Nashville, TN: Ellsworth & Vandermeer Press.
48. Graham, H. (2005). Intellectual disabilities and socioeconomic inequalities in health: An overview of research. Journal of Applied Research in Intellectual Disabilities, 18, 101-111. (Pubitemid 40801746)
49. Guttentag, C., Pedrosa-Josic, C., Landry, S., Smith, K., & Swank, P. (2006). Individual variability in parenting profiles and predictors of change: Effects of an intervention with disadvantaged mothers. Journal of Applied Developmental Psychology, 27, 349-369. (Pubitemid 43899459)
50. Harnish, J., Dodge, K., Valente, E., & the Conduct Problems Prevention Research Group. (1995). Mother-child interaction quality as a partial mediator of the roles of maternal depressive symptomatology and socioeconomic status in the development of child behavior problems. Child Development, 66, 739-753.
51. Hart, B., & Risley, T. (1995). Meaningful differences: In the everyday experience of young American children. Baltimore: Brookes.
52. Hertzman, C., & Wiens, M. (1996). Child development and long-term outcomes: A population health perspective and summary of successful interventions. Social Science and Medicine, 43, 1083-1095.
53. Ho, C., Bluestein, D., & Jenkins, J. (2008). Cultural differences in the relationship between parenting and children's behavior. Developmental Psychology, 44, 507-522.
54. Hur, J. (1997). Review of research on parent training for parents with intellectual disability: Methodological issues. International Journal of Disability, Development and Education, 44, 147-162. (Pubitemid 128147347)
55. International Association for the Scientific Study of Intellectual Disabilities, Special Interest Research Group on Parents and Parenting with Intellectual Disabilities (2008). Parents labelled with intellectual disability: Position of the IASSID SIRG on parents and parenting with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 21, 296-307.
56. Jones, T., & Prinz, R. (2005). Potential roles of parental self-efficacy in parent and child adjustment: A review. Clinical Psychology Review, 25, 341-363. (Pubitemid 40404051)
57. Kelley, S., Sikka, A., & Venkatesan, S. (1997). A review of research on parental disability: Implications for research and counseling practice. Rehabilitation Counseling Bulletin, 2, 105-119.
58. Kelly, J., & Barnard, K. (2000). Assessment of parent-child interaction: Implications for early intervention. In S. Meisels & J. Shonkoff (Eds.), Handbook of early childhood intervention (2nd ed., pp. 258-289). Cambridge, United Kingdom: Cambridge University Press.
59. Kline, R. (2005). Principles and practices of structural equation modeling (2nd ed.). New York: Guilford Press.
60. Knudsen, E., Heckman, J., Cameron, J., & Shonkoff, J. (2006). Economic, neurobiological, and behavioral perspectives on building America's future workforce. Proceedings of the National Academy of Sciences, 103, 10155-10162. (Pubitemid 44051137)
61. Landry, S., Smith, K., & Swank, P. (2006). Responsive parenting: Establishing early foundations for social, communication, and independent problem-solving skills. Developmental Psychology, 42, 627-642. (Pubitemid 44118142)
62. Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support networks. Journal of Intellectual Disability Research, 46 (Pt. 1), 17-34. (Pubitemid 34121266)
63. Llewellyn, G., McConnell, D., Honey, A., Mayes, R., & Russo, D. (2003). Promoting health and home safety for children of parents with intellectual disability: A randomized controlled trial. Research in Developmental Disabilities, 24, 405-431. (Pubitemid 37393466)
64. Llewellyn, G., McConnell, D., & Mayes, R. (2003). Health of mothers with intellectual limitations. Australian and New Zealand Journal of Public Health, 27, 17-19. (Pubitemid 36253713)
65. Lovejoy, M., Graczyk, P., O'Hare, E., & Neuman, G. (2000). Maternal depression and parenting behavior: A meta-analytic review. Clinical Psychology Review, 20, 561-592. (Pubitemid 30326803)
66. Lundahl, B., Risser, H., & Lovejoy, C. (2006). A meta-analysis of parent training: Moderators and follow-up effects. Clinical Psychology Review, 26, 86-104. (Pubitemid 41805071)
67. Marsh, H., Balla, J., & McDonald, R. (1988). Goodness-of-fit indexes in confirmatory factor analysis: The effect of sample size. Psychological Bulletin, 103, 391-410.
68. Martin, S. L., Ramey, C. T., & Ramey, S. (1990). The prevention of intellectual impairment in children of impoverished families: findings of a randomized trial of educational day care. American Journal of Public Health, 80, 844-847. (Pubitemid 20202202)
69. McConnell, D., Matthews, J., Llewellyn, G., Mildon, R., & Hindmarsh, G. (2008). "Healthy Start." A national strategy for parents with intellectual disability and their children. Journal of Policy and Practice in Intellectual Disabilities, 5, 194-202.
70. McGaw, S. (1998). Working with parents who happen to have intellectual disabilities. In E. Emerson, C. Hatton, J. Bromley, & A. Caine (Eds.), Clinical psychology and people with intellectual disabilities (pp. 193-209). Chichester, United Kingdom: Wiley.
71. McGaw, S., Shaw, T., & Beckley, K. (2007). Prevalence of psychopathology across a service population of parents with intellectual disabilities and their children. Journal of Policy and Practice in Intellectual Disabilities, 4, 11-22.
72. McGue, M., Elkins, I., Walden, B., & Iacono, W. G. (2005). Perceptions of the parent-adolescent relationship: A longitudinal investigation. Developmental Psychology, 41, 971-984. (Pubitemid 41759635)
73. McLoyd, V. (1990). The impact of economic hardship on black families and children: Psychological distress, parenting and socioemotional development. Child Development, 61, 311-346.
74. Mercer, J. (1973). Labeling the mentally retarded. Berkeley: University of California Press.
75. Mickelson, P. (1947). The feebleminded parent: A study of 90 family cases: An attempt to isolate those factors associated with their successful or unsuccessful parenthood. American Journal of Mental Deficiency, 51, 644-653.
76. Mildon, R., Wade, C., & Matthews, J. (2008). Considering the contextual fit of an intervention for families headed by parents with an intellectual disability: An exploratory study. Journal of Applied Research in Intellectual Disabilities, 21, 377-387.
77. Morris, J., & Wates, M. (2006). Supporting disabled parents and parents with additional support needs. Bristol, United Kingdom: Social Care Institute for Excellence.
78. Murphy, G., & Feldman, M. (2002). Parents with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 281-284. (Pubitemid 36725512)
79. National Center for Education Statistics. (2003). Parent and family involvement in education survey of the 2003 National Household Education Surveys Program (measure/survey): Washington, DC: Author.
80. Newman, L., Stevenson, C., Bergman, L., & Boyce, P. (2007). Borderline personality disorder, mother-infant interaction and parenting perceptions: Preliminary findings. Australian and New Zealand Journal of Psychiatry, 41, 598-605. (Pubitemid 46930097)
81. O'Connor, T. (2002). Annotation: The "effects" of parenting reconsidered: Findings, challenges, and applications. Journal of Child Psychology and Psychiatry, 43, 555-572.
82. O'Connor, T., Deater-Deckard, K., Fulker, D., Rutter, M., & Plomin, R. (1998). Genotype-environment correlations in late childhood and early adolescence: Antisocial behavioral problems and coercive parenting. Developmental Psychology, 34, 970-981.
83. Paterson, G., & Sanson, A. (1999). The association of behavioural adjustment to temperament, parenting and family characteristics among 5 year old children. Social Development, 8(3).
84. Petrill, S., Pike, A., Price, T., & Plomin, R. (2004). Chaos in the home and socioeconomic status are associated with cognitive development in early childhood: Environmental mediators identified in a genetic design. Intelligence, 32, 445-460. (Pubitemid 39186199)
85. Pink, B. (2008). Information paper: An introduction to Socio-Economic Indexes for Areas (SEIFA) 2006. Canberra: Australian Bureau of Statistics.
86. Ray, N., Rubenstein, H., & Russo, N. (1994). Understanding the parents who are mentally retarded: Guidelines for family preservation programs. Child Welfare, 76, 725-743.
87. Rosenberg, S., & McTate, G. (1982, January-February). Intellectually handicapped mothers: Problems and prospects. Children Today, pp. 24-26.
88. Sanders, M., & Woolley, M. (2005). The relationship between maternal self-efficacy and parenting practices: Implications for parent training. Child Care Health & Development, 31, 65-73. (Pubitemid 40298204)
89. Sanderson, K., & Andrews, G. (2002). The SF-12 in the Australian population: Cross-validation of item selection. Australian and New Zealand Journal of Public Health, 26, 343-345.
90. Sanson, A. (1995). Child Rearing Practices Questionnaire (unpublished measure). Melbourne, Australia: University of Melbourne.
91. Schalock, R., Borthwick-Duffy, S., Bradley, V., Buntinx, W., Coulter, D., Craig, E., et al. (2010). Intellectual disability: Definition, classification, and systems of supports (11th ed.). Washington, DC: American Association on Intellectual and Developmental Disabilities.
92. Sheerin, F. (1998). Parents with learning disabilities: A review of the literature. Journal of Advanced Nursing, 28, 126-133. (Pubitemid 128454065)
93. Shonkoff, J., & Phillips, D. (Eds.). (2000). From neurons to neighborhoods: The science of early childhood development. Washington, DC: National Academy Press.
94. Sofronoff, K., & Farbotko, M. (2002). The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome. Autism, 6, 271-286. (Pubitemid 34918778)
95. Teti, D., & Candelaria, M. (2002). Parenting competence. In M. Bornstein (Ed.), Handbook of parenting: Social conditions and applied parenting (Vol. 4, 2nd ed., pp. 149-180). Mahwah, NJ: Erlbaum.
96. Teti, D., & Gelfand, D. (1991). Behavioral competence among mothers of infants in the first year: The mediational role of maternal self-efficacy. Child Development, 62, 918-929.
97. Tucker, M., & Johnson, O. (1989). Competence promoting vs.competence inhibiting social support for mentally retarded mothers. Human Organization, 42, 95-107.
98. Tymchuk, A. (1990). Parents with mental retardation: A national strategy. A white paper prepared for the President's Committee on Mental Retardation. Journal of Disability Policy Studies, 1, 43-55.
99. Tymchuk, A. (1992). Predicting adequacy of parenting by people with mental retardation. Child Abuse and Neglect, 16, 165-178.
100. Tymchuk, A. (1993). Symptoms of psychopathology in mothers with mental handicap. Mental Handicap Research, 6, 18-35.
101. Tymchuk, A. (1994). Depression symptomatology in mothers with mild intellectual disability: An exploratory study. Australia and New Zealand Journal of Developmental Disabilities, 19, 111-119. (Pubitemid 24219364)
102. Tymchuk, A., & Andron, L. (1990). Mothers with mental retardation who do or do not abuse or neglect their children. Child Abuse and Neglect, 14, 313-323. (Pubitemid 20299995)
103. Tymchuk, A., & Andron, L. (1992). Project parenting: Child interactional training with mothers who are mentally handicapped. Mental Handicap Research, 5, 4-32.
104. Tymchuk, A., Andron, L., & Unger, O. (1987). Parents with mental handicaps and adequate child care-A review. Mental Handicap, 15, 49-54.
105. Tymchuk, A., & Feldman, M. (1991). Parents with mental retardation and their children: Review of research relevant to professional practice. Canadian Psychology, 32, 486-494.
106. U. S. Department of Health and Human Services. (2006). NICHD Study of Early Child Care and Youth Development (SECYD): Findings for children up to age 41/2 years. Rockville, MD: National Institute of Child Health and Human Development, National Institutes of Health.
107. Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21, 351-366.
108. Wade, C., Mildon, R., & Matthews, J. (2007). Service delivery to parents with an intellectual disability: Family-centred or professionallycentred? Journal of Applied Research in Intellectual Disabilities, 20, 87-98.
109. Ware, J., Kosinski, M., & Keller, S. (Eds.). (1998). SF-12: How to score the SF-12 Physical and Mental Health Summary Scales (3rd ed.). Lincoln, RI: QualityMetric.
110. Webster-Stratton, C., & Hooven, C. (1998). Parent training for child conduct problems. In T. Ollendick (Ed.), Comprehensive clinical psychology (pp. 185-219). Oxford, United Kingdom: Elsevier.
111. Willems, D., de Vries, J., Isarin, J., & Reinders, J. (2007). Parenting by persons with intellectual disability: An explorative study in The Netherlands. Journal of Intellectual Disability Research, 51 (Pt. 7), 537-544. (Pubitemid 47097244)
112. Wise, L. (1997). Low-income mothers with and without intellectual disability: Interactions in contextual environments. Doctoral dissertation, University of Alabama at Birmingham.
113. World Health Organization. (2008). Closing the gap in a generation: Health equity through action on the social determinants of health. Retrieved September 8, 2008, from http://www.who. int/social-determinants/final-report/en/ index.html
114. Zubrick, S. (2007). Measurement of parenting within LSAC. Paper presented at the Longitudinal Study of Australian Children Research Conference, Melbourne.
115. Zubrick, S., Smith, G., Nicholson, J., Sanson, A., Jackiewicz, T., & the LSAC Research Consortium (2008). Parenting and families in Australia (Social Policy Research Paper No. 34). Canberra: Australian Government, Department of Family, Community Services and Indigenous Affairs.
116. Zubrick, S., Williams, A., Silburn, S., & Vimpani, G. (2000, May). Indicators of social and family functioning. Canberra: Australian Government, Department of Family and Community Services.