Self-advocacy and supported learning for mothers with learning difficulties

Journal of Learning Disabilities

Volumn 7, Issue 2, 2003, Pages 165-193

  Booth, Tim ^a   Booth, Wendy ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Learning difficulties; Mothers; Parenting; Self advocacy; Supported learning

Indexed keywords

AWARENESS; FEMALE; HEALTH CARE FINANCING; HEALTH EDUCATION; HEALTH PROGRAM; HUMAN; LEARNING DISORDER; MOTHER; PRIORITY JOURNAL; REVIEW; SELF CONCEPT; SKILL; SOCIAL SUPPORT;

EID: 0037534904     PISSN: 14690047     EISSN: None     Source Type: Journal    
DOI: 10.1177/1469004703007002006     Document Type: Review

References (63)

1. BELSKY, J. (1984) 'The Determinants of Parenting: A Process Model', Child Development 55 (1): 83-96.
2. BOOTH, T. (2000) 'Parents with Learning Difficulties, Child Protection and the Courts', Representing Children 13 (3): 175-88.
3. BOOTH, T. & BOOTH, W. (1993) 'Parenting with Learning Difficulties: Lessons for Practitioners', British Journal of Social Work 23 (5): 459-80.
4. BOOTH, T. & BOOTH, W. (1994) 'Parental Adequacy, Parenting Failure and Parents with Learning Difficulties', Health and Social Care in the Community 2 (3): 161-72.
5. BOOTH, T. & BOOTH, W. (1996) 'Supported Parenting for People with Learning Difficulties: Lessons from Wisconsin', Representing Children 9 (2): 99-107.
6. BOOTH, T. & BOOTH, W. (1998a) Growing Up with Parents Who Have Learning Difficulties. London: Routledge.
7. BOOTH, T. & BOOTH, W. (1998b) 'System Abuse and the Power of Advocacy', Impact 11 (1): 22-3.
8. BOOTH, T. & BOOTH, W. (2001) 'Supported Parenting for Mothers and Fathers with Learning Difficulties: Practice Points: The Support Gap'. Available at: http://www.supported-parenting.com/practicepoints/supportgap.html.
9. BOOTH, W. & BOOTH, T. ( 1998c) Advocacy for Parents with Learning Difficulties: Developing Advocacy Support. Brighton: Pavilion.
10. BROWN, J., SEELY, P., COLLINS, A. & DUGUID, P. (1989) 'Situated Cognition and the Culture of Learning', Educational Researcher 18 (Jan.-Feb.): 32-42.
11. CAMPION, M. J. (1994) Learning To Be Mum. London: Arrowhead.
12. CANTERBURY PARTNERSHIP PROJECT (1999) Maternity Services for Women with Learning Difficulties. London: Maternity Alliance.
13. CZUKAR, G. (1983) 'Legal Aspects of Parenthood for Mentally Retarded Persons', Canadian Journal of Community Mental Handicap 2 (2): 57-69.
14. DEPARTMENT OF HEALTH (2001) Valuing People: A New Strategy for Learning Disability for the 21st Century. Cm. 5086. London: Stationery Office.
15. DFEE (1998) The Learning Age: A Renaissance for a New Britain. Cm 3790. London: HMSO.
16. DOWDNEY, L. & SKUSE, D. (1993) 'Parenting Provided by Adults with Mental Retardation', Journal of Child Psychology and Psychiatry 34 (1): 25-47.
17. EDMONDS, J. (2000) 'On Being a Mother: A Positive Identity in the Face of Adversity', Clinical Psychology Forum 137 (March): 21-5.
18. ELY, L., WILSON, C. & PHILLIPS, E. (1998) 'Issues around Service Provision for Parents with an Intellectual Disability', Interaction 11 (3): 7-14.
19. ESPE-SHERWINDT, M. (1991) 'The ISFP and Parents with Special Needs/Mental Retardation', Topics in Early Childhood Special Education 11 (3): 107-20.
20. FELDMAN, M., LÉGER, M. & WALTON-ALLEN, N. (1997) 'Stress in Mothers with Intellectual Disabilities', Journal of Child and Family Studies 6 (4): 471-85.
21. FRANZ, J. (1995) Building on a Vision: Creative Community Responses for Families with Complex Needs. Madison: Wisconsin Council on Developmental Disabilities.
22. GOODINGE, S. (2000) A Jigsaw of Services: Inspection of Services to Support Disabled Adults in their Parenting Role. London: Social Services Inspectorate, Department of Health.
23. HEIGHWAY, S. (1992) Helping Parents Parent:A Practice Guide for Supporting Families Headed by Parents with Cognitive Limitations. Supported Parenting Project. Madison: Wisconsin Council on Developmental Disabilities.
24. HOFFMAN, C., MANDEVILLE, H., WEBSTER, S. K., HEIGHWAY, S., ULLMER, D., MINCBERG, B., SNODGRASS, P., MURPHY-SIMON, K. & WENGER, B. (1990) The Amelioration of Health Problems of Children with Parents with Mental Retardation 1987-1990. Madison: Wisconsin Council on Developmental Disabilities and the Waisman Center on Mental Retardation and Human Development.
25. HOME OFFICE (1998) Supporting Families: A Consultation Document. London: HMSO.
26. KIDD WEBSTER, S. (1988) Service Delivery to Families in Wisconsin in which Parents have Mental Retardation. Madison, WI: Waisman Center on Mental Retardation and Human Development.
27. KIDD WEBSTER, S. & ULLMER, D. (no date) The Positive Parenting Project: An Evaluation of a Prevention Program for Families Headed by Parents with Mental Retardation. Madison, WI: Webster.
28. KNIGHT, J. (2001) 'Jackie's Story', Disability, Pregnancy and Parenthood international 36 (October): 5.
29. KURTZ, L. F. (1997) Self-Help and Support Groups: A Handbook for Practitioners. London: Sage.
30. LLEWELLYN, G. (1991) 'Parents with Intellectual Disability: Parent and Professional Perspectives', paper presented at the IASSMD International Conference on Mental Retardation, Hong Kong, March.
31. LLEWELLYN, G., MCCONNELL, D. & BYE, R. (1995) Parents with Intellectual Disability: Support and Services Required by Parents with Intellectual Disability. Sydney: Faculty of Health Sciences, University of Sydney.
32. MCGAW, S. (1993) 'The Special Parenting Service: Supporting Parents with Learning Difficulties', Disability, Pregnancy and Parenthood International 4 (October): 8-10.
33. MCGAW, S. (1996) 'Services for Parents with Learning Disabilities', Tizard Learning Disability Review 1 (1): 21-8.
34. MCGAW, S. (2000) What Works for Parents with Learning Disabilities? Barkingside: Barnardo's.
35. MOORE, M. & GOODLEY, D. (1999) People with Learning Difficulties and Performing Arts: Maximising the Benefits of Participation. Sheffield: Inclusive Education Research Centre, The University of Sheffield.
36. MULLENDER, A. & WARD, D. (1991) Self-Directed Groupwork: Users Take Action for Empowerment. London: Whiting and Birch.
37. NEW YORK STATE COMMISSION ON QUALITY OF CARE FOR THE MENTALLY DISABLED (1993) Serving Parents Who Are Mentally Retarded: A Review of Eight Parenting Programs in New York State. New York: New York State Commission on Quality of Care for the Mentally Disabled.
38. NICHOLSON, J. (1997) Parents with Learning Disabilities: A Survey of Current Services in the Mansfield and Ashfield Areas. Mansfield: Central Nottinghamshire Healthcare Trust.
39. RAPOPORT, R., RAPOPORT, R., STRELITZ, Z. & KEW, S. (1977) Fathers, Mothers and Others: Towards New Alliances. London: Routledge and Kegan Paul.
40. SHEFFIELD CITY COUNCIL (1997) Help Yourself: Your Guide to Voluntary and Community Organisations in Sheffield. Sheffield: Sheffield Libraries and Information Services in association with Voluntary Action Sheffield and Sheffield Health Authority.
41. SIMONS, K. (1992) 'Sticking Up for Yourself': Self-Advocacy and People with Learning Difficulties. York: Joseph Rowntree Foundation.
42. SNODGRASS, P. (1993) What's Wrong With You? Thoughts about Helping Families Where Parents Have Cognitive Limitations. Madison: Health Promotion Project, Department of Health and Human Issues, University of Wisconsin-Madison.
43. SNODGRASS, P. (2000) 'A Conversation with Polly: An Interview by Dolores Ullmer Liamba', in D. ULLMER LIAMBA (ed.) Cultivating Competence, 2nd edn, pp. 57-67. Madison: Wisconsin Council on Developmental Disabilities.
44. SOCIAL SERVICES INSPECTORATE (1998) Inspection of Services to Support Disabled Adults in their Parenting Role: Southampton. Bristol: West Inspection Group, Department of Health.
45. SOCIAL SERVICES INSPECTORATE (1999a) Inspection of Services to Support Disabled Adults in Their Parenting Role: Cornwall County Council. Bristol: West Inspection Group, Department of Health.
46. SOCIAL SERVICES INSPECTORATE (1999b) Inspection of Services to Support Disabled Adults in Their Parenting Role: Doncaster Metropolitan Borough Council. Gateshead: North Eastern Inspection Group, Department of Health.
47. SOCIAL SERVICES INSPECTORATE (1999c) Inspection of Services to Support Disabled Adults in Their Parenting Role: London Borough of Merton. London: London West Inspection Group, Department of Health.
48. SOCIAL SERVICES INSPECTORATE (1999d) Inspection of Services to Support Disabled Adults in Their Parenting Role: Northamptonshire County Council. Bristol: West Inspection Group, Department of Health.
49. SOCIAL SERVICES INSPECTORATE (1999e) Inspection of Services to Support Disabled Adults in Their Parenting Role: Sefton. Manchester: North West Inspection Group, Department of Health.
50. SOCIAL SERVICES INSPECTORATE (1999f) Inspection of Services to Support Disabled Adults in Their Parenting Role: Thurrock. London: London Inspection Group, Department of Health.
51. SUTCLIFFE, J. (1990) Adults with Learning Difficulties: Education for Choice and Empowerment. Leicester: NIACE in association with the Open University Press.
52. SUTCLIFFE, J. & JACOBSEN, Y. (1998) All Things Being Equal? A Practical Guide to Widening Participation for Adults with Learning Difficulties in Continuing Education. Leicester: NIACE.
53. SWEET, M. (1990) Discovering the Parent's Language of Learning: An Educational Approach to Supporting Parents with Mental Retardation. Madison, WI: Wisconsin Council on Developmental Disabilities.
54. ULLMER, D., KIDD WEBSTER, S. & MCMANUS, M. (1991) Cultivating Competence: Models of Support for Families Headed by Parents with Cognitive Limitations - A National Resource Directory. Madison: Waisman Center on Mental Retardation and Human Development and Wisconsin Council on Developmental Disabilities.
55. ULLMER LIAMBA, D. (ed.) (2000a) Cultivating Competence, 2nd edn. Madison: Wisconsin Council on Developmental Disabilities.
56. ULLMER LIAMBA, D. (2000b) 'Moms' Day Out', in D. ULLMER LIAMBA (ed.) Cultivating Competence, 2nd edn, pp. 69-77. Madison: Wisconsin Council on Developmental Disabilities.
57. WALTON-ALLEN, N. (1993) 'Psychological Distress and Parenting by Mothers with Mental Retardation', unpublished doctoral dissertation, University of Toronto.
58. WALTON-ALLEN, N. & FELDMAN, M. (1991) 'Perception of Service Needs by Parents Who Are Mentally Retarded and Their Social Service Workers', Comprehensive Mental Health Care 1 (2): 137-47.
59. WATKINS, C. (1995) 'Beyond Status: The Americans with Disabilities Act and the Parental Rights of People Labeled Developmentally Disabled or Mentally Retarded', California Law Review 83 (6): 1415-75.
60. WHITTAKER, A. (1993) 'Parents with Learning Disabilities: Notes from a Workshop Given by Elfrida Rathbone Women as Parents Group', in A. CRAFT (ed.) Parents with Learning Disabilities, pp. 29-34. Kidderminster: British Institute of Learning Disabilities.
61. WORRELL, B. (1988) Advice for Advisors. Ontario: National People First Project.
62. YODER, M. (1993) 'The Process: Some How-To's', paper presented at the First National Conference on Supported Parenting, Madison, WI, 29 September.
63. YOUNG, S., YOUNG, B. & FORD, D. (1997) 'Parents with a Learning Disability: Research Issues and Informed Practice', Disability and Society 12 (1): 57-68.