-
1
-
-
84872826516
-
Characterizing biobank organizations in the US: Results from a national survey
-
Henderson, G.E.; Cadigan, R.J.; Edwards, T.P.; Conlon, I.; Nelson, A.G.; Evans, J.P.; Davis, A.M.; Zimmer, C.; Weiner, B.J. Characterizing biobank organizations in the US: Results from a national survey. Genome Med. 2013, 5, e3.
-
(2013)
Genome Med
, vol.5
-
-
Henderson, G.E.1
Cadigan, R.J.2
Edwards, T.P.3
Conlon, I.4
Nelson, A.G.5
Evans, J.P.6
Davis, A.M.7
Zimmer, C.8
Weiner, B.J.9
-
2
-
-
0027530522
-
The Cooperative Human Tissue Network
-
LiVolsi, V.A.; Clausen, K.P.; Grizzle, W.; Newton, W.; Pretlow, T.G., 2nd; Aamodt, R. The Cooperative Human Tissue Network. An update. Cancer 1993, 71, 1391-1394.
-
(1993)
An update. Cancer
, vol.71
, pp. 1391-1394
-
-
LiVolsi, V.A.1
Clausen, K.P.2
Grizzle, W.3
Newton, W.4
Pretlow, T.G.5
Aamodt, R.6
-
3
-
-
84939265617
-
The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseases
-
Mora, M.; Angelini, C.; Bignami, F.; Bodin, A.M.; Crimi, M.; di Donato, J.H.; Felice, A.; Jaeger, C.; Karcagi, V.; LeCam, Y.; et al. The EuroBioBank Network: 10 years of hands-on experience of collaborative, transnational biobanking for rare diseases. Eur. J. Hum. Genet. 2014, doi:10.1038/ejhg.2014.272.
-
(2014)
Eur. J. Hum. Genet
-
-
Mora, M.1
Angelini, C.2
Bignami, F.3
Bodin, A.M.4
Crimi, M.5
di Donato, J.H.6
Felice, A.7
Jaeger, C.8
Karcagi, V.9
LeCam, Y.10
-
4
-
-
84896386442
-
UK biobank data: Come and get it
-
Allen, N.E.; Sudlow, C.; Peakman, T.; Collins, R.; Biobank, U.K. UK biobank data: Come and get it. Sci. Trans. Med. 2014, 6, 224ed4.
-
(2014)
Sci. Trans. Med
, vol.6
-
-
Allen, N.E.1
Sudlow, C.2
Peakman, T.3
Collins, R.4
Biobank, U.K.5
-
5
-
-
85041207785
-
-
(accessed on 1 Feburary 2015)
-
VA Million Veteran Program. Available online: http://www.research.va.gov/MVP (accessed on 1 Feburary 2015).
-
VA Million Veteran Program
-
-
-
6
-
-
79251581866
-
The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies
-
McCarty, C.A.; Chisholm, R.L.; Chute, C.G.; Kullo, I.J.; Jarvik, G.P.; Larson, E.B.; Li, R.; Masys, D.R.; Ritchie, M.D.; Roden, D.M.; et al. The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies. BMC Med. Genomics 2011, 4, e13.
-
(2011)
BMC Med. Genomics
, vol.4
-
-
McCarty, C.A.1
Chisholm, R.L.2
Chute, C.G.3
Kullo, I.J.4
Jarvik, G.P.5
Larson, E.B.6
Li, R.7
Masys, D.R.8
Ritchie, M.D.9
Roden, D.M.10
-
7
-
-
84880059657
-
The Electronic Medical Records and Genomics (eMERGE) Network: Past, present, and future
-
Gottesman, O.; Kuivaniemi, H.; Tromp, G.; Faucett, W.A.; Li, R.; Manolio, T.A.; Sanderson, S.C.; Kannry, J.; Zinberg, R.; Basford, M.A.; et al. The Electronic Medical Records and Genomics (eMERGE) Network: Past, present, and future. Genet. Med. 2013, 15, 761-771.
-
(2013)
Genet. Med
, vol.15
, pp. 761-771
-
-
Gottesman, O.1
Kuivaniemi, H.2
Tromp, G.3
Faucett, W.A.4
Li, R.5
Manolio, T.A.6
Sanderson, S.C.7
Kannry, J.8
Zinberg, R.9
Basford, M.A.10
-
8
-
-
84857146745
-
Use of diverse electronic medical record systems to identify genetic risk for type 2 diabetes within a genome-wide association study
-
Kho, A.N.; Hayes, M.G.; Rasmussen-Torvik, L.; Pacheco, J.A.; Thompson, W.K.; Armstrong, L.L.; Denny, J.C.; Peissig, P.L.; Miller, A.W.; Wei, W.Q.; et al. Use of diverse electronic medical record systems to identify genetic risk for type 2 diabetes within a genome-wide association study. J. Am. Med. Inform. Assoc. 2012, 19, 212-218.
-
(2012)
J. Am. Med. Inform. Assoc
, vol.19
, pp. 212-218
-
-
Kho, A.N.1
Hayes, M.G.2
Rasmussen-Torvik, L.3
Pacheco, J.A.4
Thompson, W.K.5
Armstrong, L.L.6
Denny, J.C.7
Peissig, P.L.8
Miller, A.W.9
Wei, W.Q.10
-
9
-
-
34248594090
-
A common variant in the FTO gene is associated with body mass index and predisposes to childhood and adult obesity
-
Frayling, T.M.; Timpson, N.J.; Weedon, M.N.; Zeggini, E.; Freathy, R.M.; Lindgren, C.M.; Perry, J.R.; Elliott, K.S.; Lango, H.; Rayner, N.W.; et al. A common variant in the FTO gene is associated with body mass index and predisposes to childhood and adult obesity. Science 2007, 316, 889-894.
-
(2007)
Science
, vol.316
, pp. 889-894
-
-
Frayling, T.M.1
Timpson, N.J.2
Weedon, M.N.3
Zeggini, E.4
Freathy, R.M.5
Lindgren, C.M.6
Perry, J.R.7
Elliott, K.S.8
Lango, H.9
Rayner, N.W.10
-
10
-
-
78649246183
-
Association of genetic risk variants with expression of proximal genes identifies novel susceptibility genes for cardiovascular disease
-
Folkersen, L.; van't Hooft, F.; Chernogubova, E.; Agardh, H.E.; Hansson, G.K.; Hedin, U.; Liska, J.; Syvanen, A.C.; Paulsson-Berne, G.; Franco-Cereceda, A.; et al. Association of genetic risk variants with expression of proximal genes identifies novel susceptibility genes for cardiovascular disease. Circ. Cardiovasc. Genet. 2010, 3, 365-373.
-
(2010)
Circ. Cardiovasc. Genet
, vol.3
, pp. 365-373
-
-
Folkersen, L.1
van't Hooft, F.2
Chernogubova, E.3
Agardh, H.E.4
Hansson, G.K.5
Hedin, U.6
Liska, J.7
Syvanen, A.C.8
Paulsson-Berne, G.9
Franco-Cereceda, A.10
-
11
-
-
58149161560
-
Loci influencing lipid levels and coronary heart disease risk in 16 European population cohorts
-
Aulchenko, Y.S.; Ripatti, S.; Lindqvist, I.; Boomsma, D.; Heid, I.M.; Pramstaller, P.P.; Penninx, B.W.; Janssens, A.C.; Wilson, J.F.; Spector, T.; et al. Loci influencing lipid levels and coronary heart disease risk in 16 European population cohorts. Nat. Genet. 2009, 41, 47-55.
-
(2009)
Nat. Genet
, vol.41
, pp. 47-55
-
-
Aulchenko, Y.S.1
Ripatti, S.2
Lindqvist, I.3
Boomsma, D.4
Heid, I.M.5
Pramstaller, P.P.6
Penninx, B.W.7
Janssens, A.C.8
Wilson, J.F.9
Spector, T.10
-
12
-
-
67650155260
-
Biobanks for biomarkers in neurological disorders: The Da Vinci bridge for optimal clinico-pathological connection
-
Ravid, R. Biobanks for biomarkers in neurological disorders: The Da Vinci bridge for optimal clinico-pathological connection. J. Neurol. Sci. 2009, 283, 119-126.
-
(2009)
J. Neurol. Sci
, vol.283
, pp. 119-126
-
-
Ravid, R.1
-
13
-
-
77949658437
-
A rare variant of the TYK2 gene is confirmed to be associated with multiple sclerosis
-
Mero, I.L.; Lorentzen, A.R.; Ban, M.; Smestad, C.; Celius, E.G.; Aarseth, J.H.; Myhr, K.M.; Link, J.; Hillert, J.; Olsson, T.; et al. A rare variant of the TYK2 gene is confirmed to be associated with multiple sclerosis. Eur. J. Hum. Genet. 2010, 18, 502-504.
-
(2010)
Eur. J. Hum. Genet
, vol.18
, pp. 502-504
-
-
Mero, I.L.1
Lorentzen, A.R.2
Ban, M.3
Smestad, C.4
Celius, E.G.5
Aarseth, J.H.6
Myhr, K.M.7
Link, J.8
Hillert, J.9
Olsson, T.10
-
14
-
-
75649110777
-
CACNA1C (rs1006737) is associated with schizophrenia
-
Nyegaard, M.; Demontis, D.; Foldager, L.; Hedemand, A.; Flint, T.J.; Sorensen, K.M.; Andersen, P.S.; Nordentoft, M.; Werge, T.; Pedersen, C.B.; et al. CACNA1C (rs1006737) is associated with schizophrenia. Mol. Psychiatry 2010, 15, 119-121.
-
(2010)
Mol. Psychiatry
, vol.15
, pp. 119-121
-
-
Nyegaard, M.1
Demontis, D.2
Foldager, L.3
Hedemand, A.4
Flint, T.J.5
Sorensen, K.M.6
Andersen, P.S.7
Nordentoft, M.8
Werge, T.9
Pedersen, C.B.10
-
15
-
-
39749084656
-
Genome-wide association of major depression: Description of samples for the GAIN Major Depressive Disorder Study: NTR and NESDA biobank projects
-
Boomsma, D.I.; Willemsen, G.; Sullivan, P.F.; Heutink, P.; Meijer, P.; Sondervan, D.; Kluft, C.; Smit, G.; Nolen, W.A.; Zitman, F.G.; et al. Genome-wide association of major depression: Description of samples for the GAIN Major Depressive Disorder Study: NTR and NESDA biobank projects. Eur. J. Hum. Genet. 2008, 16, 335-342.
-
(2008)
Eur. J. Hum. Genet
, vol.16
, pp. 335-342
-
-
Boomsma, D.I.1
Willemsen, G.2
Sullivan, P.F.3
Heutink, P.4
Meijer, P.5
Sondervan, D.6
Kluft, C.7
Smit, G.8
Nolen, W.A.9
Zitman, F.G.10
-
16
-
-
84883168131
-
Telethon Network of Genetic Biobanks: A key service for diagnosis and research on rare diseases
-
Filocamo, M.; Baldo, C.; Goldwurm, S.; Renieri, A.; Angelini, C.; Moggio, M.; Mora, M.; Merla, G.; Politano, L.; Garavaglia, B.; et al. Telethon Network of Genetic Biobanks: A key service for diagnosis and research on rare diseases. Orphanet J. Rare Dis. 2013, 8, e129.
-
(2013)
Orphanet J. Rare Dis
, vol.8
-
-
Filocamo, M.1
Baldo, C.2
Goldwurm, S.3
Renieri, A.4
Angelini, C.5
Moggio, M.6
Mora, M.7
Merla, G.8
Politano, L.9
Garavaglia, B.10
-
17
-
-
84865503818
-
Public perception towards biobanking in Jordan
-
Ahram, M.; Othman, A.; Shahrouri, M. Public perception towards biobanking in Jordan. Biopreserv. Biobank. 2012, 10, 361-365.
-
(2012)
Biopreserv. Biobank
, vol.10
, pp. 361-365
-
-
Ahram, M.1
Othman, A.2
Shahrouri, M.3
-
18
-
-
71849090072
-
Public opinion about the importance of privacy in biobank research
-
Kaufman, D.J.; Murphy-Bollinger, J.; Scott, J.; Hudson, K.L. Public opinion about the importance of privacy in biobank research. Am. J. Hum. Genet. 2009, 85, 643-654.
-
(2009)
Am. J. Hum. Genet
, vol.85
, pp. 643-654
-
-
Kaufman, D.J.1
Murphy-Bollinger, J.2
Scott, J.3
Hudson, K.L.4
-
19
-
-
79956066390
-
Patient perspectives on group benefits and harms in genetic research
-
Goldenberg, A.J.; Hull, S.C.; Wilfond, B.S.; Sharp, R.R. Patient perspectives on group benefits and harms in genetic research. Public Health Genomics 2011, 14, 135-142.
-
(2011)
Public Health Genomics
, vol.14
, pp. 135-142
-
-
Goldenberg, A.J.1
Hull, S.C.2
Wilfond, B.S.3
Sharp, R.R.4
-
20
-
-
84892392181
-
Biobanking for research: A survey of patient population attitudes and understanding
-
Rahm, A.K.; Wrenn, M.; Carroll, N.M.; Feigelson, H.S. Biobanking for research: A survey of patient population attitudes and understanding. J. Community Genet. 2013, 4, 445-450.
-
(2013)
J. Community Genet
, vol.4
, pp. 445-450
-
-
Rahm, A.K.1
Wrenn, M.2
Carroll, N.M.3
Feigelson, H.S.4
-
21
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke, A.A.; Wolf, W.A.; Hebert-Beirne, J.; Smith, M.E. Public and biobank participant attitudes toward genetic research participation and data sharing. Public Health Genomics 2010, 13, 368-377.
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smith, M.E.4
-
22
-
-
84906055006
-
Native Hawaiian views on biobanking
-
Taualii, M.; Davis, E.L.; Braun, K.L.; Tsark, J.U.; Brown, N.; Hudson, M.; Burke, W. Native Hawaiian views on biobanking. J. Cancer Educ. 2014, 29, 570-576.
-
(2014)
J. Cancer Educ
, vol.29
, pp. 570-576
-
-
Taualii, M.1
Davis, E.L.2
Braun, K.L.3
Tsark, J.U.4
Brown, N.5
Hudson, M.6
Burke, W.7
-
23
-
-
84893609873
-
Public preferences regarding informed consent models for participation in population-based genomic research
-
Platt, J.; Bollinger, J.; Dvoskin, R.; Kardia, S.L.; Kaufman, D. Public preferences regarding informed consent models for participation in population-based genomic research. Genet. Med. 2014, 16, 11-18.
-
(2014)
Genet. Med
, vol.16
, pp. 11-18
-
-
Platt, J.1
Bollinger, J.2
Dvoskin, R.3
Kardia, S.L.4
Kaufman, D.5
-
24
-
-
85027937468
-
Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions
-
Pullman, D.; Etchegary, H.; Gallagher, K.; Hodgkinson, K.; Keough, M.; Morgan, D.; Street, C. Personal privacy, public benefits, and biobanks: A conjoint analysis of policy priorities and public perceptions. Genet. Med. 2012, 14, 229-235.
-
(2012)
Genet. Med
, vol.14
, pp. 229-235
-
-
Pullman, D.1
Etchegary, H.2
Gallagher, K.3
Hodgkinson, K.4
Keough, M.5
Morgan, D.6
Street, C.7
-
25
-
-
33748972418
-
Measuring trust in medical researchers
-
Hall, M.A.; Camacho, F.; Lawlor, J.S.; Depuy, V.; Sugarman, J.; Weinfurt, K. Measuring trust in medical researchers. Med. Care 2006, 44, 1048-1053.
-
(2006)
Med. Care
, vol.44
, pp. 1048-1053
-
-
Hall, M.A.1
Camacho, F.2
Lawlor, J.S.3
Depuy, V.4
Sugarman, J.5
Weinfurt, K.6
-
26
-
-
41549141445
-
Participant characteristics that influence consent for genetic research in a population-based survey: The Baltimore epidemiologic catchment area follow-up
-
Mezuk, B.; Eaton, W.W.; Zandi, P. Participant characteristics that influence consent for genetic research in a population-based survey: The Baltimore epidemiologic catchment area follow-up. Community Genet. 2008, 11, 171-178.
-
(2008)
Community Genet
, vol.11
, pp. 171-178
-
-
Mezuk, B.1
Eaton, W.W.2
Zandi, P.3
-
27
-
-
84873345553
-
Beliefs and attitudes towards participating in genetic research-A population based cross-sectional study
-
Kerath, S.M.; Klein, G.; Kern, M.; Shapira, I.; Witthuhn, J.; Norohna, N.; Kline, M.; Baksh, F.; Gregersen, P.; Taioli, E. Beliefs and attitudes towards participating in genetic research-A population based cross-sectional study. BMC Public Health 2013, 13, e114.
-
(2013)
BMC Public Health
, vol.13
-
-
Kerath, S.M.1
Klein, G.2
Kern, M.3
Shapira, I.4
Witthuhn, J.5
Norohna, N.6
Kline, M.7
Baksh, F.8
Gregersen, P.9
Taioli, E.10
-
28
-
-
80053167875
-
What research participants want to know about genetic research results: The impact of "genetic exceptionalism"
-
Ruiz-Canela, M.; Valle-Mansilla, J.I.; Sulmasy, D.P. What research participants want to know about genetic research results: The impact of "genetic exceptionalism". J. Empir. Res. Hum. Res. Ethics 2011, 6, 39-46.
-
(2011)
J. Empir. Res. Hum. Res. Ethics
, vol.6
, pp. 39-46
-
-
Ruiz-Canela, M.1
Valle-Mansilla, J.I.2
Sulmasy, D.P.3
-
29
-
-
84871570272
-
Why do participants enroll in population biobank studies? A systematic literature review
-
Nobile, H.; Vermeulen, E.; Thys, K.; Bergmann, M.M.; Borry, P. Why do participants enroll in population biobank studies? A systematic literature review. Expert Rev. Mol. Diagn. 2013, 13, 35-47.
-
(2013)
Expert Rev. Mol. Diagn
, vol.13
, pp. 35-47
-
-
Nobile, H.1
Vermeulen, E.2
Thys, K.3
Bergmann, M.M.4
Borry, P.5
-
30
-
-
69649090255
-
Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial
-
Helgesson, G.; Hansson, M.G.; Ludvigsson, J.; Swartling, U. Practical matters, rather than lack of trust, motivate non-participation in a long-term cohort trial. Pediatr. Diabet. 2009, 10, 408-412.
-
(2009)
Pediatr. Diabet
, vol.10
, pp. 408-412
-
-
Helgesson, G.1
Hansson, M.G.2
Ludvigsson, J.3
Swartling, U.4
-
31
-
-
84885011052
-
Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: A structured interview study
-
Sanderson, S.C.; Diefenbach, M.A.; Zinberg, R.; Horowitz, C.R.; Smirnoff, M.; Zweig, M.; Streicher, S.; Jabs, E.W.; Richardson, L.D. Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: A structured interview study. J. Community Genet. 2013, 4, 469-482.
-
(2013)
J. Community Genet
, vol.4
, pp. 469-482
-
-
Sanderson, S.C.1
Diefenbach, M.A.2
Zinberg, R.3
Horowitz, C.R.4
Smirnoff, M.5
Zweig, M.6
Streicher, S.7
Jabs, E.W.8
Richardson, L.D.9
-
33
-
-
13844306822
-
So what are we going to do about research using clinical information and samples?
-
Clayton, E.W. So what are we going to do about research using clinical information and samples? IRB 2004, 26, 14-15.
-
(2004)
IRB
, vol.26
, pp. 14-15
-
-
Clayton, E.W.1
-
34
-
-
84055190839
-
Engaging research participants and building trust
-
Horn, E.J.; Edwards, K.; Terry, S.F. Engaging research participants and building trust. Genet. Test. Mol. Biomark. 2011, 15, 839-840.
-
(2011)
Genet. Test. Mol. Biomark
, vol.15
, pp. 839-840
-
-
Horn, E.J.1
Edwards, K.2
Terry, S.F.3
-
35
-
-
84887969538
-
Stakeholder views on returning research results
-
Haga, S.B.; Zhao, J.Q. Stakeholder views on returning research results. Adv. Genet. 2013, 84, 41-81.
-
(2013)
Adv. Genet
, vol.84
, pp. 41-81
-
-
Haga, S.B.1
Zhao, J.Q.2
-
36
-
-
44449162023
-
Communicating the results of clinical research to participants: Attitudes, practices, and future directions
-
Shalowitz, D.I.; Miller, F.G. Communicating the results of clinical research to participants: Attitudes, practices, and future directions. PLoS Med. 2008, 5, e91.
-
(2008)
PLoS Med
, vol.5
-
-
Shalowitz, D.I.1
Miller, F.G.2
-
37
-
-
78650190160
-
Preferences regarding genetic research results: Comparing veterans and nonveterans responses
-
Arar, N.; Seo, J.; Lee, S.; Abboud, H.E.; Copeland, L.A.; Noel, P.; Parchman, M. Preferences regarding genetic research results: Comparing veterans and nonveterans responses. Public Health Genomics 2010, 13, 431-439.
-
(2010)
Public Health Genomics
, vol.13
, pp. 431-439
-
-
Arar, N.1
Seo, J.2
Lee, S.3
Abboud, H.E.4
Copeland, L.A.5
Noel, P.6
Parchman, M.7
-
38
-
-
80053386108
-
Public perspectives on returning genetics and genomics research results
-
O'Daniel, J.; Haga, S.B. Public perspectives on returning genetics and genomics research results. Public Health Genomics 2011, 14, 346-355.
-
(2011)
Public Health Genomics
, vol.14
, pp. 346-355
-
-
O'Daniel, J.1
Haga, S.B.2
-
39
-
-
78349267947
-
Communication of biobanks' research results: What do (potential) participants want? Am
-
Meulenkamp, T.M.; Gevers, S.K.; Bovenberg, J.A.; Koppelman, G.H.; van Hylckama Vlieg, A.; Smets, E.M. Communication of biobanks' research results: What do (potential) participants want? Am. J. Med. Genet. A 2010, 152A, 2482-2492.
-
(2010)
J. Med. Genet. A
, vol.152 A
, pp. 2482-2492
-
-
Meulenkamp, T.M.1
Gevers, S.K.2
Bovenberg, J.A.3
Koppelman, G.H.4
van Hylckama Vlieg, A.5
Smets, E.M.6
-
40
-
-
0023319217
-
False hopes and best data: Consent to research and the therapeutic misconception
-
Appelbaum, P.S.; Roth, L.H.; Lidz, C.W.; Benson, P.; Winslade, W. False hopes and best data: Consent to research and the therapeutic misconception. Hast. Center Rep. 1987, 17, 20-24.
-
(1987)
Hast. Center Rep
, vol.17
, pp. 20-24
-
-
Appelbaum, P.S.1
Roth, L.H.2
Lidz, C.W.3
Benson, P.4
Winslade, W.5
-
41
-
-
79951863517
-
Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group
-
Fabsitz, R.R.; McGuire, A.; Sharp, R.R.; Puggal, M.; Beskow, L.M.; Biesecker, L.G.; Bookman, E.; Burke, W.; Burchard, E.G.; et al. Ethical and practical guidelines for reporting genetic research results to study participants: Updated guidelines from a National Heart, Lung, and Blood Institute working group. Circ. Cardiovasc. Genet. 2010, 3, 574-580.
-
(2010)
Circ. Cardiovasc. Genet
, vol.3
, pp. 574-580
-
-
Fabsitz, R.R.1
McGuire, A.2
Sharp, R.R.3
Puggal, M.4
Beskow, L.M.5
Biesecker, L.G.6
Bookman, E.7
Burke, W.8
Burchard, E.G.9
-
42
-
-
58149087142
-
Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research
-
Axler, R.E.; Irvine, R.; Lipworth, W.; Morrell, B.; Kerridge, I.H. Why might people donate tissue for cancer research? Insights from organ/tissue/blood donation and clinical research. Pathobiology 2008, 75, 323-329.
-
(2008)
Pathobiology
, vol.75
, pp. 323-329
-
-
Axler, R.E.1
Irvine, R.2
Lipworth, W.3
Morrell, B.4
Kerridge, I.H.5
-
43
-
-
69849116084
-
"We only did it because he asked us": Gendered accounts of participation in a population genetic data collection
-
Haddow, G. "We only did it because he asked us": Gendered accounts of participation in a population genetic data collection. Soc. Sci. Med. 2009, 69, 1010-1017.
-
(2009)
Soc. Sci. Med
, vol.69
, pp. 1010-1017
-
-
Haddow, G.1
-
44
-
-
2442491194
-
Gift relationships in genetics research
-
Tutton, R. Gift relationships in genetics research. Sci.Cult. 2002, 11, 523-542.
-
(2002)
Sci.Cult
, vol.11
, pp. 523-542
-
-
Tutton, R.1
-
45
-
-
71949131197
-
"Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose
-
Petrini, C. "Broad" consent, exceptions to consent and the question of using biological samples for research purposes different from the initial collection purpose. Soc. Sci. Med. 2010, 70, 217-220.
-
(2010)
Soc. Sci. Med
, vol.70
, pp. 217-220
-
-
Petrini, C.1
-
47
-
-
84859900558
-
From patients to partners: Participant-centric initiatives in biomedical research
-
Kaye, J.; Curren, L.; Anderson, N.; Edwards, K.; Fullerton, S.M.; Kanellopoulou, N.; Lund, D.; MacArthur, D.G.; Mascalzoni, D.; Shepherd, J.; et al. From patients to partners: Participant-centric initiatives in biomedical research. Nat. Rev. Genet. 2012, 13, 371-376.
-
(2012)
Nat. Rev. Genet
, vol.13
, pp. 371-376
-
-
Kaye, J.1
Curren, L.2
Anderson, N.3
Edwards, K.4
Fullerton, S.M.5
Kanellopoulou, N.6
Lund, D.7
MacArthur, D.G.8
Mascalzoni, D.9
Shepherd, J.10
-
48
-
-
84920651188
-
Testing an online, dynamic consent portal for large population biobank research
-
Thiel, D.B.; Platt, J.; Platt, T.; King, S.B.; Fisher, N.; Shelton, R.; Kardia, S.L. Testing an online, dynamic consent portal for large population biobank research. Public Health Genomics 2015, 18, 26-39.
-
(2015)
Public Health Genomics
, vol.18
, pp. 26-39
-
-
Thiel, D.B.1
Platt, J.2
Platt, T.3
King, S.B.4
Fisher, N.5
Shelton, R.6
Kardia, S.L.7
-
49
-
-
85041185662
-
-
(accessed on 11 January 2015)
-
Genetic Alliance Reg4ALL. Available online: https://www.reg4all.org (accessed on 11 January 2015).
-
Genetic Alliance Reg4ALL
-
-
|