-
1
-
-
29944441322
-
Principles and indicators of successful consumer involvement in NHS research: Results of a Delphi study and subgroup analysis
-
Boote J, Barber R, Cooper C. Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis. Health Policy 2006;75:280-97.
-
(2006)
Health Policy
, vol.75
, pp. 280-297
-
-
Boote, J.1
Barber, R.2
Cooper, C.3
-
2
-
-
84878391110
-
Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences
-
de Wit M, Abma T, Koelewijn-van Loon M, Collins S, Kirwan J. Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences. BMJ Open 2013;3:e002241.
-
(2013)
BMJ Open
, vol.3
-
-
De Wit, M.1
Abma, T.2
Koelewijn-van Loon, M.3
Collins, S.4
Kirwan, J.5
-
3
-
-
12444281830
-
Outcomes from the patient perspective workshop at OMERACT 6
-
Kirwan J, Heiberg T, Hewlett S, Hughes R, Kvien T, Ahlmen M, et al. Outcomes from the patient perspective workshop at OMERACT 6. J Rheumatol 2003;30:86.
-
(2003)
J Rheumatol
, vol.30
, pp. 86
-
-
Kirwan, J.1
Heiberg, T.2
Hewlett, S.3
Hughes, R.4
Kvien, T.5
Ahlmen, M.6
-
4
-
-
84899720690
-
Updating the OMERACT Filter: Implications of Filter 2.0 to select outcome instruments through assessment of "truth": Content, face and construct validity
-
Tugwell P, Boers M, D'Agostino MA, Beaton D, Boonen A, Bingham CO 3rd, et al. Updating the OMERACT Filter: Implications of Filter 2.0 to select outcome instruments through assessment of "truth": content, face and construct validity. J Rheumatol 2014;41:1000-4.
-
(2014)
J Rheumatol
, vol.41
, pp. 1000-1004
-
-
Tugwell, P.1
Boers, M.2
D'Agostino, M.A.3
Beaton, D.4
Boonen, A.5
Bingham, C.O.6
-
6
-
-
84876845207
-
The COMET (Core Outcome Measures in Effectiveness Trials) Initiative
-
Williamson PR, Altman DG, Blazeby JM, Clarke M, Gargon E. The COMET (Core Outcome Measures in Effectiveness Trials) Initiative. Trials 2011;12 Suppl 1:A70.
-
(2011)
Trials
, vol.12
, pp. A70
-
-
Williamson, P.R.1
Altman, D.G.2
Blazeby, J.M.3
Clarke, M.4
Gargon, E.5
-
7
-
-
79953301130
-
European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects
-
de Wit M, Berlo SE, Aanerud GJ, Aletaha D, Bijlsma JW, Croucher L, et al. European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Ann Rheum Dis 2011;70:722-6.
-
(2011)
Ann Rheum Dis
, vol.70
, pp. 722-726
-
-
De Wit, M.1
Berlo, S.E.2
Aanerud, G.J.3
Aletaha, D.4
Bijlsma, J.W.5
Croucher, L.6
-
8
-
-
84899739711
-
Updating the OMERACT filter at OMERACT 11
-
Kirwan JR, Boers M, Tugwell P. Updating the OMERACT filter at OMERACT 11. J Rheumatol 2014;41:975-7.
-
(2014)
J Rheumatol
, vol.41
, pp. 975-977
-
-
Kirwan, J.R.1
Boers, M.2
Tugwell, P.3
-
9
-
-
77954500563
-
Community engagement in research: Frameworks for education and peer review
-
Ahmed SM, Palermo AS. Community engagement in research: frameworks for education and peer review. Am J Pub Health 2010;10:1380-7.
-
(2010)
Am J Pub Health
, vol.10
, pp. 1380-1387
-
-
Ahmed, S.M.1
Palermo, A.S.2
-
10
-
-
70349449836
-
Participatory action research with older adults: Key principles in practice
-
Blair T, Minkler M. Participatory action research with older adults: key principles in practice. Gerontologist 2009;49:651-62.
-
(2009)
Gerontologist
, vol.49
, pp. 651-662
-
-
Blair, T.1
Minkler, M.2
-
11
-
-
85011927987
-
Guidance on effective involvement of patients. Draft guidelines on effective involvement
-
Internet. Accessed March 16, 2015
-
Kent A. Guidance on effective involvement of patients. Draft guidelines on effective involvement (2006). Draft guideline on good practice on patient and public engagement in HTA [Internet. Accessed March 16, 2015.] Available from: www.htai.org/index.php?id=746#c2730
-
(2006)
Draft Guideline on Good Practice on Patient and Public Engagement in HTA
-
-
Kent, A.1
-
12
-
-
34547600794
-
Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care research user group: A qualitative case study
-
Lindenmeyer A, Hearnshaw H, Sturt J, Ormerod R, Aitchison G. Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care research user group: a qualitative case study. Health Expect 2007;10:268-77.
-
(2007)
Health Expect
, vol.10
, pp. 268-277
-
-
Lindenmeyer, A.1
Hearnshaw, H.2
Sturt, J.3
Ormerod, R.4
Aitchison, G.5
-
13
-
-
1242340292
-
Patient and clinician collaboration in the design of a national randomized breast cancer trial
-
Marsden J, Bradburn J. Patient and clinician collaboration in the design of a national randomized breast cancer trial. Health Expect 2004;7:6-17.
-
(2004)
Health Expect
, vol.7
, pp. 6-17
-
-
Marsden, J.1
Bradburn, J.2
-
15
-
-
84855909579
-
The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research
-
Staniszewska S, Brett J, Mockford C, Barber R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care 2011;27:391-9.
-
(2011)
Int J Technol Assess Health Care
, vol.27
, pp. 391-399
-
-
Staniszewska, S.1
Brett, J.2
Mockford, C.3
Barber, R.4
-
16
-
-
61349169640
-
Patients as partners in responsive research: Methodological notions for collaborations in mixed research terms
-
Abma TA, Nierse CJ, Widdershoven GA. Patients as partners in responsive research: Methodological notions for collaborations in mixed research terms. Qual Health Res 2009;19:401-15.
-
(2009)
Qual Health Res
, vol.19
, pp. 401-415
-
-
Abma, T.A.1
Nierse, C.J.2
Widdershoven, G.A.3
-
17
-
-
79960470645
-
Consumers as researchers - Innovative experiences in UK National Health Service Research
-
Caldon LJ, Marshall-Cork H, Speed G, Reed MW, Collins KA. Consumers as researchers - innovative experiences in UK National Health Service Research. Int J Consumer Studies 2010;34:547-50.
-
(2010)
Int J Consumer Studies
, vol.34
, pp. 547-550
-
-
Caldon, L.J.1
Marshall-Cork, H.2
Speed, G.3
Reed, M.W.4
Collins, K.A.5
-
18
-
-
84876902259
-
A practice-based tool for engaging stakeholders in future research: A synthesis of current practices
-
Guise JM, O'Haire C, McPheeters M, Most C, LaBrant L, Lee K, et al. A practice-based tool for engaging stakeholders in future research: a synthesis of current practices. J Clin Epidemiol 2013;66:666-74.
-
(2013)
J Clin Epidemiol
, vol.66
, pp. 666-674
-
-
Guise, J.M.1
O'Haire, C.2
McPheeters, M.3
Most, C.4
LaBrant, L.5
Lee, K.6
-
19
-
-
33747879240
-
Patients and professionals as research partners: Challenges, practicalities, and benefits
-
Hewlett S, Wit Md, Richards P, Quest E, Hughes R, Heiberg T, Kirwan J. Patients and professionals as research partners: challenges, practicalities, and benefits. Arthritis Rheum 2006;55:676-80.
-
(2006)
Arthritis Rheum
, vol.55
, pp. 676-680
-
-
Hewlett, S.1
Wit, Md.2
Richards, P.3
Quest, E.4
Hughes, R.5
Heiberg, T.6
Kirwan, J.7
-
20
-
-
84866514240
-
Patients advocates' role in clinical trials: Perspectives from Cancer and Leukemia Group B investigators and advocates
-
Katz ML, Archer LE, Peppercorn JM, Kereakoglow S, Collyar DE, Burstein HJ, et al. Patients advocates' role in clinical trials: perspectives from Cancer and Leukemia Group B investigators and advocates. Cancer 2012;118:4801-5.
-
(2012)
Cancer
, vol.118
, pp. 4801-4805
-
-
Katz, M.L.1
Archer, L.E.2
Peppercorn, J.M.3
Kereakoglow, S.4
Collyar, D.E.5
Burstein, H.J.6
-
21
-
-
79960099634
-
Collaboration and co-ownership in research: Dynamics and dialogues between patient research partners and professional researchers in a research team
-
Nierse CJ, Schipper K, van Zadelhoff E, van de Griendt J, Abma TA. Collaboration and co-ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team. Health Expect 2012;15:242-54.
-
(2012)
Health Expect
, vol.15
, pp. 242-254
-
-
Nierse, C.J.1
Schipper, K.2
Van Zadelhoff, E.3
Van De Griendt, J.4
Abma, T.A.5
-
22
-
-
0036718407
-
A service users' research advisory group from the perspectives of both service users and researchers
-
Rhodes P, Nocon A, Booth M, Chowdrey MY, Fabian A, Lambert N, et al. A service users' research advisory group from the perspectives of both service users and researchers. Health Soc Care Community 2002;10:402-9.
-
(2002)
Health Soc Care Community
, vol.10
, pp. 402-409
-
-
Rhodes, P.1
Nocon, A.2
Booth, M.3
Chowdrey, M.Y.4
Fabian, A.5
Lambert, N.6
-
23
-
-
0037362137
-
Overcoming the challenges to consumer involvement in cancer research
-
Stevens T, Wilde D, Hunt J, Ahmedzai SH. Overcoming the challenges to consumer involvement in cancer research. Health Expect 2003;6:81-8.
-
(2003)
Health Expect
, vol.6
, pp. 81-88
-
-
Stevens, T.1
Wilde, D.2
Hunt, J.3
Ahmedzai, S.H.4
-
24
-
-
78149489456
-
Critical appraisal guidelines for assessing the quality and impact of user involvement in research
-
Wright D, Foster C, Amir Z, Elliott J, Wilson R. Critical appraisal guidelines for assessing the quality and impact of user involvement in research. Health Expect 2010;13:359-68.
-
(2010)
Health Expect
, vol.13
, pp. 359-368
-
-
Wright, D.1
Foster, C.2
Amir, Z.3
Elliott, J.4
Wilson, R.5
-
25
-
-
84927005888
-
-
Internet. Accessed March 3, 2015
-
Boers M, Kirwan JR, Tugwell P, Beaton D, Bingham CO 3rd, Conaghan PG, et al. The OMERACT handbook. [Internet. Accessed March 3, 2015.] Available from: www.omeract.org/pdf/OMERACT-Handbook.pdf
-
The OMERACT Handbook
-
-
Boers, M.1
Kirwan, J.R.2
Tugwell, P.3
Beaton, D.4
Bingham, C.O.5
Conaghan, P.G.6
-
27
-
-
84937512541
-
Do not forget the professional - The value of the FIRST model for guiding the structural involvement of patients in rheumatology research
-
Jan 31 (E-pub ahead of print)
-
de Wit MP, Elberse JE, Broerse JE, Abma TA. Do not forget the professional - the value of the FIRST model for guiding the structural involvement of patients in rheumatology research. Health Expect 2013 Jan 31 (E-pub ahead of print)
-
(2013)
Health Expect
-
-
De Wit, M.P.1
Elberse, J.E.2
Broerse, J.E.3
Abma, T.A.4
-
28
-
-
84885348617
-
Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences - Lessons learned from a decade of collaboration in OMERACT
-
de Wit M, Abma T, Koelewijn-van Loon M, Collins S, Kirwan J. Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences - lessons learned from a decade of collaboration in OMERACT. BMJ Open 2013;3:e003311.
-
(2013)
BMJ Open
, vol.3
-
-
De Wit, M.1
Abma, T.2
Koelewijn-van Loon, M.3
Collins, S.4
Kirwan, J.5
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