Quality of life in children and adolescents with congenital heart diseases in Zahedan, Iran

International Journal of Pediatrics

Volumn 5, Issue 1, 2017, Pages 4193-4208

  Noori, Noor Mohammad ^a   Teimouri, Alireza ^a   Boryri, Tahereh ^b   Shafiee, Shahla ^c  

^a ZAHEDAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

^b ZAHEDAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

^c ZAHEDAN UNIVERSITY OF MEDICAL SCIENCES   (Iran)

Author keywords

Children; Congenital heart diseases; Iran; Perceived; Quality of Life

Indexed keywords

EID: 85010694701     PISSN: None     EISSN: 23455055     Source Type: Journal    
DOI: 10.22038/ijp.2016.8025     Document Type: Article

References (36)

1. Noori NM, Mehralizadeh S, Khaje A. Assessment of right ventricular function in children with congenital heart disease. Doppler tissue imaging.Saudi medical journal 2008; 29(8):1168-72.
2. Rahim F, Ebadi A, Saki G, Remazani A. Prevalence of congenital heart disease in iran: a clinical study. J Med Sci 2008 Sep 15; 8(6):547-2.
3. Amorim LF, Pires CA, Lana AM, Campos âS, Aguiar RA, Tibúrcio JD, Siqueira AL, Mota CC, Aguiar MJ. Presentation of congenital heart disease diagnosed at birth: analysis of 29, 770 newborn infants. Jornal de pediatria 2008; 84(1):83-90.
4. Moons P, Van Deyk K, Marquet K, Raes E, De Bleser L, Budts W, De Geest S. Individual quality of life in adults with congenital heart disease: a paradigm shift. European Heart Journal 2005 1; 26(3):298-307.
5. Bellinger DC, Wypij D, duPlessis AJ, et al. Neurodevelopmental status at eight years in children with dextro-transposition of the great arteries: the Boston Circulatory Arrest Trial. J ThoracCardiovasc Surg. 2003; 126(5):1385-96.
6. Mahle WT, Clancy RR, Moss EM, Gerdes M, Jobes DR, Wernovsky G. Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome. Pediatrics 2000; 105(5):1082-89.
7. World Health Organization. Constitution of the World Health Organization basic document. Geneva, Switzerland: World Health Organization; 1948.
8. Drotar D. Measuring health-related quality of life in children and adolescents. Mahwah (NJ): Lawrence Erlbaum; 1998).
9. Thorrington D, Eames K. Measuring health utilities in children and adolescents: a systematic review of the literature. PloS one 2015 14; 10(8):e0135672.
10. Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ. 2001; 322(7297):1297-1300
11. Janse AJ, Uiterwaal CS, Gemke RJ, Kimpen JL, Sinnema G. A difference in perception of quality of life in chronically ill children was found between parents and pediatricians. J Clin Epidemiol 2005; 58(5):495-502.
12. Uzark K, Jones K, Slusher J, Limberts CA, Burwinkle TM: Quality of life in children with heart disease as perceived by children and parents. Pediatrics 2008; 121:e1060-e1067.
13. Moons P, Van Deyk K, De Geest S, Gewillig M, Budts W: Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients. Heart 2005; 91:1193-98.
14. Cohen M, Mansoor D, Langut H, Lorber A: Quality of life, depressed mood, self-esteem in adolescents with heart disease. Psychosom Med 2007; 69:313-18.
15. McCrindle BW, Williams RV, Mitchell PD, Hsu DT, Paridon SM, Atz AM, et al. Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure. Circulation 2006; 113:1123-29.
16. Ternestedt BM, Wall K, Oddsson H, et al. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. PediatrCardiol2001; 22:128-32.
17. Berkes A, Pataki I, Kiss M, Kemény C, Kardos L, Varni JW, Mogyorósy G:Measuring health-related quality of life in Hungarian children version ofthe pediatric quality of life inventory™ 4.0 generic core scales and thecardiac module. Health Qual Life Outcomes 2010, 8:14.
18. Solans M, Pane S, Estrada MD, SerraSutton V, Berra S, Herdman M, et al. Healthrelated quality of life measurement in children and adolescents: a systematic review of generic and disease-specific instruments. Value Health. 2008; 11(4):742-64.
19. Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. AmbulPediatr 2003; 3: 329-41.
20. Karsdorp PA, Everaerd W, Kindt M, Mulder BJ. Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. J PediatrPsychol 2007; 32: 527-41.
21. Teixeira FM, Coelho RM, Proença C, Silva AM, Vieira D, Vaz C, Moura C, Viana V, Areias JC, Areias ME. Quality of life experienced by adolescents and young adults with congenital heart disease. Pediatric cardiology 2011; 32(8):1132-8.
22. Landolt MA, Buechel ER, Latal B. Health-related quality of life in children and adolescents after open-heart surgery.The Journal of pediatrics 2008 Mar 31; 152(3):349-55.
23. Ingerski LM, Modi AC, Hood KK, et al. Health-related quality of life across pediatricchronic conditions. J Pediatr 2010; 156:639-44.
24. Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS. Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease.Pediatric cardiology 2007; 28(4):255-62.
25. Spijkerboer AW, Utens EM, De Koning WB, Bogers AJ, Helbing WA, Verhulst FC. Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease.Quality of life research 2006; 15(4):663-73.
26. Lawoko S, Soares JJF. Quality of life among parents of children with congenital heart disease, parents of children with other diseases, and parents of healthy children. Quality of Life Research 2003; 12: 655-66.
27. MA, Buechel ER, Latal B. Healthrelated quality of life in children and adolescents after open-heart surgery. The Journal of pediatrics 2008; 152(3):349-55.
28. TM in assessing quality of life in survivors of childhood cancer. Child: care, health and development 2003; 29(2):95-102.
29. Arafa MA, Zaher SR, El-Dowaty AA, Moneeb DE.Quality of life among parents of children with heart disease.Health and Quality of Life Outcomes 2008; 6(1):1.
30. Knowles RL, Day T, Wade A, Bull C, Wren C, Dezateux C. Patient-reported quality of life outcomes for children with serious congenital heart defects. Arch Dis Child 2014;0:1-7. doi: 10.1136/archdischild-2013-305130.
31. Krol Y, Grootenhuis MA, DestréeVonk A, Lubbers LJ, Koopman HM, Last BF. Health related quality of life in children with congenital heart disease. Psychology and Health. 2003; 18(2):251-60.
32. DeMASO DR, Beardslee WR, Silbert AR, Fyler DC. Psychological functioning in children with cyanotic heart defects. Journal of Developmental & Behavioral Pediatrics 1990; 11(6): 289-94.
33. Tahirovic E, Begic H, Nurkic M, Tahirovic H, Varni JW. Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? European journal of pediatrics 2010; 169(3):349-53.
34. Berkes A, Varni JW, Pataki I, Kardos L, Kemény C, Mogyorósy G. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™. European journal of pediatrics 2010; 169(3): 333-47.
35. Manlhiot C, Knezevich S, Radojewski E, Cullen-Dean G, Williams WG, Mccrindle BW. Functional health status of adolescents after the Fontan procedure-comparison with their siblings. Canadian Journal of Cardiology. 2009; 25(9): S294-300.
36. Mussatto K, Tweddell J. Quality of life following surgery for congenital cardiac malformations in neonates and infants. Cardiol Young 2005; 15(Supp.l):174-78.