메뉴 건너뛰기




Volumn 99, Issue 5, 2014, Pages 413-419

Patient-reported quality of life outcomes for children with serious congenital heart defects

Author keywords

[No Author keywords available]

Indexed keywords

ABSENTEEISM; ADOLESCENT; ARTICLE; CHILD; CHILDHOOD DISEASE; COHORT ANALYSIS; COMORBIDITY; CONGENITAL HEART MALFORMATION; CONTROLLED STUDY; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY (TOPIC); OUTCOME ASSESSMENT; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; RETROSPECTIVE STUDY; SCHOOL; SELF REPORT; SOCIAL BEHAVIOR; SOCIAL PARTICIPATION; SOCIAL PSYCHOLOGY; SPORT; NATIONAL HEALTH SERVICE; SCHOOL CHILD; UNITED KINGDOM;

EID: 84898549217     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/archdischild-2013-305130     Document Type: Article
Times cited : (61)

References (35)
  • 1
    • 0035873990 scopus 로고    scopus 로고
    • Mortality associated with congenital heart defects in the United States: Trends and racial disparities, 1979-1997
    • Boneva RS, Botto LD, Moore CA, et al. Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979-1997. Circulation 2001;103:2376-81. (Pubitemid 32448803)
    • (2001) Circulation , vol.103 , Issue.19 , pp. 2376-2381
    • Boneva, R.S.1    Botto, L.D.2    Moore, C.A.3    Yang, Q.4    Correa, A.5    Erickson, J.D.6
  • 2
    • 60949110963 scopus 로고    scopus 로고
    • Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: A systematic review
    • Latal B, Helfricht S, Fischer JE, et al . Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr 2009;9:6.
    • (2009) BMC Pediatr , vol.9 , pp. 6
    • Latal, B.1    Helfricht, S.2    Fischer, J.E.3    Al, E.4
  • 5
    • 48749089418 scopus 로고    scopus 로고
    • Department of Health (England). London: The Stationery Office, accessed 23 Aug 2013
    • Department of Health (England). High quality care for all: NHS next stage review final report. London: The Stationery Office, 2008. http://www.official- documents.gov.uk/document/cm74/7432/7432.pdf (accessed 23 Aug 2013).
    • (2008) High Quality Care for All: NHS Next Stage Review Final Report
  • 6
    • 67651241048 scopus 로고    scopus 로고
    • Use of patient-reported outcomes in clinical practice
    • Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet 2009;374:369-70.
    • (2009) Lancet , vol.374 , pp. 369-370
    • Snyder, C.F.1    Aaronson, N.K.2
  • 7
    • 84874334842 scopus 로고    scopus 로고
    • Patient reported outcome measures could help transform healthcare
    • Black N. Patient reported outcome measures could help transform healthcare. BMJ 2013;346:f167.
    • (2013) BMJ , vol.346
    • Black, N.1
  • 8
    • 48449093719 scopus 로고    scopus 로고
    • Parent-child agreement across child health-related quality of life instruments: A review of the literature
    • Upton P, Lawford J, Eiser C. Parent-child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res 2008;17:895-913.
    • (2008) Qual Life Res , vol.17 , pp. 895-913
    • Upton, P.1    Lawford, J.2    Eiser, C.3
  • 9
    • 0035743751 scopus 로고    scopus 로고
    • Exploring links between the concepts of quality of life and resilience
    • DOI 10.1080/13638490210124024
    • Lawford J, Eiser C. Exploring links between the concepts of Quality of Life and resilience. Pediatr Rehabil 2001;4:209-16. (Pubitemid 34746753)
    • (2001) Pediatric Rehabilitation , vol.4 , Issue.4 , pp. 209-216
    • Lawford, J.1    Eiser, C.2
  • 10
    • 44449137650 scopus 로고    scopus 로고
    • Quality of life in children with heart disease as perceived by children and parents
    • Uzark K, Jones K, Slusher J, et al. Quality of life in children with heart disease as perceived by children and parents. Pediatrics 2008;121:e1060-7.
    • (2008) Pediatrics , vol.121
    • Uzark, K.1    Jones, K.2    Slusher, J.3
  • 11
    • 0035081336 scopus 로고    scopus 로고
    • A review of measures of quality of life for children with chronic illness
    • DOI 10.1136/adc.84.3.205
    • Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001;84:205-11. (Pubitemid 32250825)
    • (2001) Archives of Disease in Childhood , vol.84 , Issue.3 , pp. 205-211
    • Eiser, C.1    Morse, R.2
  • 12
    • 43049179995 scopus 로고    scopus 로고
    • The development of the pediatric cardiac quality of life inventory: A quality of life measure for children and adolescents with heart disease
    • Marino BS, Shera D, Wernovsky G, et al. The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease. Qual Life Res 2008;17:613-26.
    • (2008) Qual Life Res , vol.17 , pp. 613-626
    • Marino, B.S.1    Shera, D.2    Wernovsky, G.3
  • 13
    • 30344435904 scopus 로고    scopus 로고
    • The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ measurement model in 25,000 children
    • DOI 10.1586/14737167.5.6.705
    • Varni JW, Burwinkle TM, Seid M. The PedsQL™ as a pediatric patient-reported outcome: reliability and validity of the PedsQL™ Measurement Model in 25,000 children. Expert Rev Pharmacoecon Outcomes Res 2005;5:705-19. (Pubitemid 43055864)
    • (2005) Expert Review of Pharmacoeconomics and Outcomes Research , vol.5 , Issue.6 , pp. 705-719
    • Varni, J.W.1    Burwinkle, T.M.2    Seid, M.3
  • 14
    • 0034024681 scopus 로고    scopus 로고
    • Temporal variability in birth prevalence of cardiovascular malformations
    • Wren C, Richmond S, Donaldson L. Temporal variability in birth prevalence of cardiovascular malformations. Heart 2000;83:414-19. (Pubitemid 30316755)
    • (2000) Heart , vol.83 , Issue.4 , pp. 414-419
    • Wren, C.1    Richmond, S.2    Donaldson, L.3
  • 15
    • 0036089152 scopus 로고    scopus 로고
    • Quality of life in adults with congenital heart disease
    • Lane DA, Lip GY, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002;88:71-5. (Pubitemid 34665008)
    • (2002) Heart , vol.88 , Issue.1 , pp. 71-75
    • Lane, D.A.1    Lip, G.Y.H.2    Millane, T.A.3
  • 16
    • 78650842652 scopus 로고    scopus 로고
    • Ethics, governance and consent in the UK: Implications for research into the longer-term outcomes of congenital heart defects
    • Knowles RL, Bull C, Wren C, et al. Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects. Arch Dis Child 2011;96:14-20.
    • (2011) Arch Dis Child , vol.96 , pp. 14-20
    • Knowles, R.L.1    Bull, C.2    Wren, C.3
  • 17
    • 84898542517 scopus 로고
    • OPCS. London: HMSO
    • OPCS. General household survey, number 22. London: HMSO, 1991.
    • (1991) General Household Survey , Issue.22
  • 18
    • 85047669320 scopus 로고    scopus 로고
    • Statistical inference for a linear function of medians: Confidence intervals, hypothesis testing, and sample size requirements
    • Bonett DG, Price RM. Statistical inference for a linear function of medians: confidence intervals, hypothesis testing, and sample size requirements. Psychol Methods 2002;7:370-83.
    • (2002) Psychol Methods , vol.7 , pp. 370-383
    • Bonett, D.G.1    Price, R.M.2
  • 20
    • 71249138148 scopus 로고    scopus 로고
    • Sinh-arcsinh distributions
    • Jones MC, Pewsey A. Sinh-arcsinh distributions. Biometrika 2009;96:761-80.
    • (2009) Biometrika , vol.96 , pp. 761-780
    • Jones, M.C.1    Pewsey, A.2
  • 21
    • 34548523100 scopus 로고    scopus 로고
    • Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales
    • Varni J, Limbers C, Burwinkle T. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health Qual Life Outcomes 2007;5:43.
    • (2007) Health Qual Life Outcomes , vol.5 , pp. 43
    • Varni, J.1    Limbers, C.2    Burwinkle, T.3
  • 22
    • 77949485989 scopus 로고    scopus 로고
    • Health-related quality of life across pediatric chronic conditions
    • Ingerski LM, Modi AC, Hood KK, et al . Health-related quality of life across pediatric chronic conditions. J Pediatr 2010;156:639-44.
    • (2010) J Pediatr , vol.156 , pp. 639-644
    • Ingerski, L.M.1    Modi, A.C.2    Hood, K.K.3    Al, E.4
  • 23
    • 79959340528 scopus 로고    scopus 로고
    • Health-related quality of life in patients with congenitally corrected transposition of the great arteries
    • Gaies MG, Watnick CS, Gurney JG, et al. Health-related quality of life in patients with congenitally corrected transposition of the great arteries. J Thorac Cardiovasc Surg 2011;142:136-41.
    • (2011) J Thorac Cardiovasc Surg , vol.142 , pp. 136-141
    • Gaies, M.G.1    Watnick, C.S.2    Gurney, J.G.3
  • 24
    • 77749261748 scopus 로고    scopus 로고
    • Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina?
    • Tahirović E, Begić H, Nurkić M, et al. Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? Eur J Pediatr 2010;169:349-53.
    • (2010) Eur J Pediatr , vol.169 , pp. 349-353
    • Tahirović, E.1    Begić, H.2    Nurkić, M.3
  • 25
    • 77949261575 scopus 로고    scopus 로고
    • Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™
    • Berkes A, Varni J, Pataki I, et al. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™. Eur J Pediatr 2010;169:333-47.
    • (2010) Eur J Pediatr , vol.169 , pp. 333-347
    • Berkes, A.1    Varni, J.2    Pataki, I.3
  • 26
    • 70349561833 scopus 로고    scopus 로고
    • Functional health status of adolescents after the Fontan procedure - comparison with their siblings
    • Manlhiot C, Knezevich S, Radojewski E, et al. Functional health status of adolescents after the Fontan procedure - comparison with their siblings. Can J Cardiol 2009;25:e294-300.
    • (2009) Can J Cardiol , vol.25
    • Manlhiot, C.1    Knezevich, S.2    Radojewski, E.3
  • 27
    • 79251470783 scopus 로고    scopus 로고
    • Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers
    • Kwon EN, Mussatto K, Simpson PM, et al . Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers. Congenit Heart Dis 2011;6:18-27.
    • (2011) Congenit Heart Dis , vol.6 , pp. 18-27
    • Kwon, E.N.1    Mussatto, K.2    Simpson, P.M.3    Al, E.4
  • 28
    • 84886243543 scopus 로고    scopus 로고
    • Quality of life and cognitive function in Fontan patients, a population-based study
    • Idorn L, Jensen AS, Juul K, et al. Quality of life and cognitive function in Fontan patients, a population-based study. Int J Cardiol 2013;168:3230-5.
    • (2013) Int J Cardiol , vol.168 , pp. 3230-3235
    • Idorn, L.1    Jensen, A.S.2    Juul, K.3
  • 29
    • 33646529103 scopus 로고    scopus 로고
    • Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland
    • Thomas C, Mitchell P, O'Rourke P, et al. Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. J Pediatr 2006;148:508-16.
    • (2006) J Pediatr , vol.148 , pp. 508-516
    • Thomas, C.1    Mitchell, P.2    O'Rourke, P.3
  • 30
    • 0033539389 scopus 로고    scopus 로고
    • Current and potential impact of fetal diagnosis on prevalence and spectrum of serious congenital heart disease at term in the UK
    • DOI 10.1016/S0140-6736(99)01167-8
    • Bull C. Current and potential impact of fetal diagnosis on prevalence and spectrum of serious congenital heart disease at term in the UK. British Paediatric Cardiac Association. Lancet 1999;354:1242-7. (Pubitemid 29469352)
    • (1999) Lancet , vol.354 , Issue.9186 , pp. 1242-1247
    • Bull, C.1
  • 31
    • 23844497831 scopus 로고    scopus 로고
    • Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales
    • Upton P, Eiser C, Cheung I, et al. Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2005;3:22.
    • (2005) Health Qual Life Outcomes , vol.3 , pp. 22
    • Upton, P.1    Eiser, C.2    Cheung, I.3
  • 32
    • 77951059035 scopus 로고    scopus 로고
    • Associations between sport and screen-entertainment with mental health problems in 5-year-old children
    • Griffiths LJ, Dowda M, Dezateux C, et al. Associations between sport and screen-entertainment with mental health problems in 5-year-old children. Int J Behav Nutr Phys Act 2010;7:30.
    • (2010) Int J Behav Nutr Phys Act , vol.7 , pp. 30
    • Griffiths, L.J.1    Dowda, M.2    Dezateux, C.3
  • 33
    • 0029809985 scopus 로고    scopus 로고
    • Sports participation and emotional wellbeing in adolescents
    • DOI 10.1016/S0140-6736(96)91616-5
    • Steptoe A, Butler N. Sports participation and emotional wellbeing in adolescents. Lancet 1996;347:1789-92. (Pubitemid 26323328)
    • (1996) Lancet , vol.347 , Issue.9018 , pp. 1789-1792
    • Steptoe, A.1    Butler, N.2
  • 34
    • 84859009007 scopus 로고    scopus 로고
    • Shared decision making: Really putting patients at the centre of healthcare
    • Stiggelbout AM, Van der Weijden T, De Wit MP, et al. Shared decision making: really putting patients at the centre of healthcare. BMJ 2012;344:e256.
    • (2012) BMJ , vol.344
    • Stiggelbout, A.M.1    Van Der Weijden, T.2    De Wit, M.P.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.