-
1
-
-
0035873990
-
Mortality associated with congenital heart defects in the United States: Trends and racial disparities, 1979-1997
-
Boneva RS, Botto LD, Moore CA, et al. Mortality associated with congenital heart defects in the United States: trends and racial disparities, 1979-1997. Circulation 2001;103:2376-81. (Pubitemid 32448803)
-
(2001)
Circulation
, vol.103
, Issue.19
, pp. 2376-2381
-
-
Boneva, R.S.1
Botto, L.D.2
Moore, C.A.3
Yang, Q.4
Correa, A.5
Erickson, J.D.6
-
2
-
-
60949110963
-
Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: A systematic review
-
Latal B, Helfricht S, Fischer JE, et al . Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review. BMC Pediatr 2009;9:6.
-
(2009)
BMC Pediatr
, vol.9
, pp. 6
-
-
Latal, B.1
Helfricht, S.2
Fischer, J.E.3
Al, E.4
-
5
-
-
48749089418
-
-
Department of Health (England). London: The Stationery Office, accessed 23 Aug 2013
-
Department of Health (England). High quality care for all: NHS next stage review final report. London: The Stationery Office, 2008. http://www.official- documents.gov.uk/document/cm74/7432/7432.pdf (accessed 23 Aug 2013).
-
(2008)
High Quality Care for All: NHS Next Stage Review Final Report
-
-
-
6
-
-
67651241048
-
Use of patient-reported outcomes in clinical practice
-
Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet 2009;374:369-70.
-
(2009)
Lancet
, vol.374
, pp. 369-370
-
-
Snyder, C.F.1
Aaronson, N.K.2
-
7
-
-
84874334842
-
Patient reported outcome measures could help transform healthcare
-
Black N. Patient reported outcome measures could help transform healthcare. BMJ 2013;346:f167.
-
(2013)
BMJ
, vol.346
-
-
Black, N.1
-
8
-
-
48449093719
-
Parent-child agreement across child health-related quality of life instruments: A review of the literature
-
Upton P, Lawford J, Eiser C. Parent-child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res 2008;17:895-913.
-
(2008)
Qual Life Res
, vol.17
, pp. 895-913
-
-
Upton, P.1
Lawford, J.2
Eiser, C.3
-
9
-
-
0035743751
-
Exploring links between the concepts of quality of life and resilience
-
DOI 10.1080/13638490210124024
-
Lawford J, Eiser C. Exploring links between the concepts of Quality of Life and resilience. Pediatr Rehabil 2001;4:209-16. (Pubitemid 34746753)
-
(2001)
Pediatric Rehabilitation
, vol.4
, Issue.4
, pp. 209-216
-
-
Lawford, J.1
Eiser, C.2
-
10
-
-
44449137650
-
Quality of life in children with heart disease as perceived by children and parents
-
Uzark K, Jones K, Slusher J, et al. Quality of life in children with heart disease as perceived by children and parents. Pediatrics 2008;121:e1060-7.
-
(2008)
Pediatrics
, vol.121
-
-
Uzark, K.1
Jones, K.2
Slusher, J.3
-
11
-
-
0035081336
-
A review of measures of quality of life for children with chronic illness
-
DOI 10.1136/adc.84.3.205
-
Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child 2001;84:205-11. (Pubitemid 32250825)
-
(2001)
Archives of Disease in Childhood
, vol.84
, Issue.3
, pp. 205-211
-
-
Eiser, C.1
Morse, R.2
-
12
-
-
43049179995
-
The development of the pediatric cardiac quality of life inventory: A quality of life measure for children and adolescents with heart disease
-
Marino BS, Shera D, Wernovsky G, et al. The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease. Qual Life Res 2008;17:613-26.
-
(2008)
Qual Life Res
, vol.17
, pp. 613-626
-
-
Marino, B.S.1
Shera, D.2
Wernovsky, G.3
-
13
-
-
30344435904
-
The PedsQL™ as a pediatric patient-reported outcome: Reliability and validity of the PedsQL™ measurement model in 25,000 children
-
DOI 10.1586/14737167.5.6.705
-
Varni JW, Burwinkle TM, Seid M. The PedsQL™ as a pediatric patient-reported outcome: reliability and validity of the PedsQL™ Measurement Model in 25,000 children. Expert Rev Pharmacoecon Outcomes Res 2005;5:705-19. (Pubitemid 43055864)
-
(2005)
Expert Review of Pharmacoeconomics and Outcomes Research
, vol.5
, Issue.6
, pp. 705-719
-
-
Varni, J.W.1
Burwinkle, T.M.2
Seid, M.3
-
14
-
-
0034024681
-
Temporal variability in birth prevalence of cardiovascular malformations
-
Wren C, Richmond S, Donaldson L. Temporal variability in birth prevalence of cardiovascular malformations. Heart 2000;83:414-19. (Pubitemid 30316755)
-
(2000)
Heart
, vol.83
, Issue.4
, pp. 414-419
-
-
Wren, C.1
Richmond, S.2
Donaldson, L.3
-
15
-
-
0036089152
-
Quality of life in adults with congenital heart disease
-
Lane DA, Lip GY, Millane TA. Quality of life in adults with congenital heart disease. Heart 2002;88:71-5. (Pubitemid 34665008)
-
(2002)
Heart
, vol.88
, Issue.1
, pp. 71-75
-
-
Lane, D.A.1
Lip, G.Y.H.2
Millane, T.A.3
-
16
-
-
78650842652
-
Ethics, governance and consent in the UK: Implications for research into the longer-term outcomes of congenital heart defects
-
Knowles RL, Bull C, Wren C, et al. Ethics, governance and consent in the UK: implications for research into the longer-term outcomes of congenital heart defects. Arch Dis Child 2011;96:14-20.
-
(2011)
Arch Dis Child
, vol.96
, pp. 14-20
-
-
Knowles, R.L.1
Bull, C.2
Wren, C.3
-
17
-
-
84898542517
-
-
OPCS. London: HMSO
-
OPCS. General household survey, number 22. London: HMSO, 1991.
-
(1991)
General Household Survey
, Issue.22
-
-
-
18
-
-
85047669320
-
Statistical inference for a linear function of medians: Confidence intervals, hypothesis testing, and sample size requirements
-
Bonett DG, Price RM. Statistical inference for a linear function of medians: confidence intervals, hypothesis testing, and sample size requirements. Psychol Methods 2002;7:370-83.
-
(2002)
Psychol Methods
, vol.7
, pp. 370-383
-
-
Bonett, D.G.1
Price, R.M.2
-
20
-
-
71249138148
-
Sinh-arcsinh distributions
-
Jones MC, Pewsey A. Sinh-arcsinh distributions. Biometrika 2009;96:761-80.
-
(2009)
Biometrika
, vol.96
, pp. 761-780
-
-
Jones, M.C.1
Pewsey, A.2
-
21
-
-
34548523100
-
Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales
-
Varni J, Limbers C, Burwinkle T. Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health Qual Life Outcomes 2007;5:43.
-
(2007)
Health Qual Life Outcomes
, vol.5
, pp. 43
-
-
Varni, J.1
Limbers, C.2
Burwinkle, T.3
-
22
-
-
77949485989
-
Health-related quality of life across pediatric chronic conditions
-
Ingerski LM, Modi AC, Hood KK, et al . Health-related quality of life across pediatric chronic conditions. J Pediatr 2010;156:639-44.
-
(2010)
J Pediatr
, vol.156
, pp. 639-644
-
-
Ingerski, L.M.1
Modi, A.C.2
Hood, K.K.3
Al, E.4
-
23
-
-
79959340528
-
Health-related quality of life in patients with congenitally corrected transposition of the great arteries
-
Gaies MG, Watnick CS, Gurney JG, et al. Health-related quality of life in patients with congenitally corrected transposition of the great arteries. J Thorac Cardiovasc Surg 2011;142:136-41.
-
(2011)
J Thorac Cardiovasc Surg
, vol.142
, pp. 136-141
-
-
Gaies, M.G.1
Watnick, C.S.2
Gurney, J.G.3
-
24
-
-
77749261748
-
Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina?
-
Tahirović E, Begić H, Nurkić M, et al. Does the severity of congenital heart defects affect disease-specific health-related quality of life in children in Bosnia and Herzegovina? Eur J Pediatr 2010;169:349-53.
-
(2010)
Eur J Pediatr
, vol.169
, pp. 349-353
-
-
Tahirović, E.1
Begić, H.2
Nurkić, M.3
-
25
-
-
77949261575
-
Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™
-
Berkes A, Varni J, Pataki I, et al. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™. Eur J Pediatr 2010;169:333-47.
-
(2010)
Eur J Pediatr
, vol.169
, pp. 333-347
-
-
Berkes, A.1
Varni, J.2
Pataki, I.3
-
26
-
-
70349561833
-
Functional health status of adolescents after the Fontan procedure - comparison with their siblings
-
Manlhiot C, Knezevich S, Radojewski E, et al. Functional health status of adolescents after the Fontan procedure - comparison with their siblings. Can J Cardiol 2009;25:e294-300.
-
(2009)
Can J Cardiol
, vol.25
-
-
Manlhiot, C.1
Knezevich, S.2
Radojewski, E.3
-
27
-
-
79251470783
-
Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers
-
Kwon EN, Mussatto K, Simpson PM, et al . Children and adolescents with repaired tetralogy of fallot report quality of life similar to healthy peers. Congenit Heart Dis 2011;6:18-27.
-
(2011)
Congenit Heart Dis
, vol.6
, pp. 18-27
-
-
Kwon, E.N.1
Mussatto, K.2
Simpson, P.M.3
Al, E.4
-
28
-
-
84886243543
-
Quality of life and cognitive function in Fontan patients, a population-based study
-
Idorn L, Jensen AS, Juul K, et al. Quality of life and cognitive function in Fontan patients, a population-based study. Int J Cardiol 2013;168:3230-5.
-
(2013)
Int J Cardiol
, vol.168
, pp. 3230-3235
-
-
Idorn, L.1
Jensen, A.S.2
Juul, K.3
-
29
-
-
33646529103
-
Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland
-
Thomas C, Mitchell P, O'Rourke P, et al. Quality-of-life in children and adolescents with cystic fibrosis managed in both regional outreach and cystic fibrosis center settings in Queensland. J Pediatr 2006;148:508-16.
-
(2006)
J Pediatr
, vol.148
, pp. 508-516
-
-
Thomas, C.1
Mitchell, P.2
O'Rourke, P.3
-
30
-
-
0033539389
-
Current and potential impact of fetal diagnosis on prevalence and spectrum of serious congenital heart disease at term in the UK
-
DOI 10.1016/S0140-6736(99)01167-8
-
Bull C. Current and potential impact of fetal diagnosis on prevalence and spectrum of serious congenital heart disease at term in the UK. British Paediatric Cardiac Association. Lancet 1999;354:1242-7. (Pubitemid 29469352)
-
(1999)
Lancet
, vol.354
, Issue.9186
, pp. 1242-1247
-
-
Bull, C.1
-
31
-
-
23844497831
-
Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales
-
Upton P, Eiser C, Cheung I, et al. Measurement properties of the UK-English version of the Pediatric Quality of Life Inventory 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2005;3:22.
-
(2005)
Health Qual Life Outcomes
, vol.3
, pp. 22
-
-
Upton, P.1
Eiser, C.2
Cheung, I.3
-
32
-
-
77951059035
-
Associations between sport and screen-entertainment with mental health problems in 5-year-old children
-
Griffiths LJ, Dowda M, Dezateux C, et al. Associations between sport and screen-entertainment with mental health problems in 5-year-old children. Int J Behav Nutr Phys Act 2010;7:30.
-
(2010)
Int J Behav Nutr Phys Act
, vol.7
, pp. 30
-
-
Griffiths, L.J.1
Dowda, M.2
Dezateux, C.3
-
33
-
-
0029809985
-
Sports participation and emotional wellbeing in adolescents
-
DOI 10.1016/S0140-6736(96)91616-5
-
Steptoe A, Butler N. Sports participation and emotional wellbeing in adolescents. Lancet 1996;347:1789-92. (Pubitemid 26323328)
-
(1996)
Lancet
, vol.347
, Issue.9018
, pp. 1789-1792
-
-
Steptoe, A.1
Butler, N.2
-
34
-
-
84859009007
-
Shared decision making: Really putting patients at the centre of healthcare
-
Stiggelbout AM, Van der Weijden T, De Wit MP, et al. Shared decision making: really putting patients at the centre of healthcare. BMJ 2012;344:e256.
-
(2012)
BMJ
, vol.344
-
-
Stiggelbout, A.M.1
Van Der Weijden, T.2
De Wit, M.P.3
-
35
-
-
84877603407
-
-
Oxford: Patient-reported Outcomes Measurement Group, Dept. of Public Health, University of Oxford
-
Morris C, Gibbons E, Fitzpatrick R. Child and parent reported outcome measures: a scoping report focusing on feasibility for routine use in the NHS. A report to the Department of Health . Oxford: Patient-reported Outcomes Measurement Group, Dept. of Public Health, University of Oxford, 2009.
-
(2009)
Child and Parent Reported Outcome Measures: A Scoping Report Focusing on Feasibility for Routine Use in the NHS. A Report to the Department of Health
-
-
Morris, C.1
Gibbons, E.2
Fitzpatrick, R.3
|