Quality of life experienced by adolescents and young adults with congenital heart disease

Pediatric Cardiology

Volumn 32, Issue 8, 2011, Pages 1132-1138

  Teixeira, Flávio Miguel ^a,d   Coelho, Rosália Maria ^a,d   Proença, Cidália ^a,d   Silva, Ana Margarida ^a,d   Vieira, Daniela ^a,d   Vaz, Cláudia ^a,d   Moura, Cláudia ^b,e   Viana, Victor ^b   Areias, José Carlos ^b,e   Areias, Maria Emília Guimarães ^a,c  

^a UNIVERSITY INSTITUTE OF HEALTH SCIENCES IUCS   (Portugal)

^b UNIVERSITY OF PORTO   (Portugal)

^c UNIVERSITY OF COIMBRA   (Portugal)

^d UNIPSA Unidade de Investigação de Psicologia e Saúde   (Portugal)

^e Unidade de Investigação e Desenvolvimento Cardiovascular Do Porto   (Portugal)

Author keywords

Congenital heart disease; Quality of life; Social support

Indexed keywords

ACADEMIC ACHIEVEMENT; ADOLESCENT; ADULT; ARTICLE; CHILD; CONGENITAL HEART DISEASE; COPING BEHAVIOR; DIAGNOSTIC INTERVIEW SCHEDULE; ENVIRONMENTAL FACTOR; FAMILY FUNCTIONING; FEMALE; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; PHYSICAL CAPACITY; QUALITY OF LIFE; QUESTIONNAIRE; SCHEDULE FOR AFFECTIVE DISORDERS AND SCHIZOPHRENIA LIFETIME INTERVIEW; SCHOOL CHILD; SELF CONCEPT; SELF REPORT; SOCIAL INTERACTION; SOCIAL NETWORK; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT;

ADOLESCENT; ADULT; CHILD; EDUCATIONAL STATUS; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; QUALITY OF LIFE; SOCIAL SUPPORT; YOUNG ADULT;

EID: 83555173473     PISSN: 01720643     EISSN: 14321971     Source Type: Journal    
DOI: 10.1007/s00246-011-0039-0     Document Type: Article

References (23)

1. Y Birks P Sloper R Lewin J Parsons 2006 Exploring health-related experiences of children and young people with congenital heart disease Health Expect 10 16 29 10.1111/j.1369-7625.2006.00412.x
2. M Brickner L Hillis R Lange 2000 Congenital heart disease in adults: first of two parts N Engl J Med 342 256 263 10648769 10.1056/NEJM200001273420407 1:STN:280:DC%2BD3c%2FpvVSmuw%3D%3D (Pubitemid 30058959)
3. P Claessens P Moons B Casterlé N Cannaerts W Budts M Gewilling 2005 What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients Eur J Cardiovasc Nurs 4 3 10 15718186 10.1016/j.ejcnurse.2004.12.003 (Pubitemid 40249373)
4. L Daliento D Mapelli B Volpe 2006 Measurement of cognitive outcome and quality of life in congenital heart disease Heart 92 569 574 16537785 10.1136/hrt.2004.057273
5. M Fekkes R Kamphuis J Ottenkamp E Verrips T Vogels M Kamphuis S Verloove-Vanhorick 2001 Health-related quality of life in young adults with minor congenital heart disease Psychol Health 16 239 250 10.1080/ 08870440108405502 (Pubitemid 33677921)
6. E Foster D Driscoll I Russel K Usark 2001 Task force 2: special health care needs of adults with congenital heart disease JACC 31 1161 1198
7. L Goldbeck J Melches 2005 Quality of life in families of children with congenital heart disease Qual Life Res 14 1915 1924 16155778 10.1007/s11136-005-4327-0 (Pubitemid 41279613)
8. L Goldbeck J Melches 2006 The impact of the severity of disease and social disadvantage on quality of life in families with congenital cardiac disease Cardiol Young 16 67 75 16454880 10.1017/S1047951105002118 (Pubitemid 43193158)
9. M Grootenhuis H Koopman E Verrips A Vogels B Last 2007 Health-related quality of life problems of children aged 8-11 years with a chronic disease Dev Neurorehab 10 27 33 10.1080/13682820600691017 1:STN:280:DC%2BD2szptVCjtw%3D%3D (Pubitemid 47555467)
10. J Hoffman S Kaplan 2002 The incidence of congenital heart disease J Am Coll Cardiol 39 1890 1900 12084585 10.1016/S0735-1097(02)01886-7 (Pubitemid 34628268)
11. Y Krol M Grootenhuis A Destrée-Vonk L Lubbers H Koopman B Last 2003 Health-related quality of life in children with congenital heart disease Psychol Health 18 251 260 10.1080/0887044021000058076 (Pubitemid 36364015)
12. B Latal S Helfricht J Fischer U Bauersfeld M Landolt 2009 Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: a systematic review BMC Pediatr 9 1 10 10.1186/1471-2431-9-6
13. O Loup C Weissenfluh B Gahl M Schwerzmann T Carrel A Kadner 2009 Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery Eur J Cardiothorac Surg 36 105 111 19442530 10.1016/j.ejcts.2009.03.023
14. R McMurray L Kendall J Parsons J Quirk G Veldtman R Lewin P Sloper 2001 A life less ordinary: growing up and coping with congenital heart disease Coronary Health Care 5 51 57 10.1054/chec.2001.0112 (Pubitemid 33026372)
15. P Moons K Deyk K Marquet L Bleser S Geest W Budts 2009 Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study Eur J Cardiovasc Nurs 8 151 157 19097943 10.1016/j.ejcnurse.2008.11.001
16. P Moons K Deyk K Marquet E Raes L Bleser W Budts S Geest 2005 Individual quality of life in adults with congenital heart disease: a paradigm shift Eur Heart J 26 298 307 15618044 10.1093/eurheartj/ehi054 (Pubitemid 40222368)
17. D Nousi A Christou 2010 Factors affecting the quality of life in children with congenital heart disease Health Sci J 4 94 100
18. M Rose K Köhler F Köhler B Sawitzky H Fliege B Klapp 2005 Determinants of quality of life of patients with congenital heart disease Qual Life Res 14 35 43 15789939 10.1007/s11136-004-0611-7 (Pubitemid 40249079)
19. A Spijkerboer E Utens W De Koning A Bogers W Helbing F Verhulst 2006 Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease Qual Life Res 15 663 673 16688499 10.1007/s11136-005-3692-z 1:STN:280:DC%2BD28znvFaktg%3D%3D (Pubitemid 43843974)
20. BM Ternested K Wall H Oddsson T Riesenfeld I Grith J Schollin 2001 Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect Pediatr Cardiol 22 128 132 10.1007/s002460010178 (Pubitemid 32147839)
21. A Vaz Serra M Canavarro M Simões M Pereira S Gameiro M Quartilho D Rijo C Carona T Paredes 2006 Estudos psicométricos do instrumento de avaliação da Qualidade de Vida da Organização Mundial de Saúde (WHOQOL-Bref) para Português de Portugal Psiquiatria Clínica 27 41 49
22. YR Tak M McCubbin 2002 Family stress, perceived social support, and coping following the diagnosis of a child's congenital heart disease J Adv Nurs 39 190 198 12100663 10.1046/j.1365-2648.2002.02259.x
23. E van Rijen E Utens J Ross-Hesselink F Meijboom R van Domburg J Roelandt F Verhulst 2004 Styles of coping and social support in a cohort of adults with congenital heart disease Cardiol Young 14 122 130 15691400 10.1017/ S1047951104002033 (Pubitemid 43115338)