Comparative Analysis: Implementation of a Pre-operative Educational Intervention to Decrease Anxiety Among Parents of Children With Congenital Heart Disease

Journal of Pediatric Nursing

Volumn 35, Issue , 2017, Pages 144-148

  Simeone, Silvio ^a   Pucciarelli, Gianluca ^b   Perrone, Marco ^a   Rea, Teresa ^a   Gargiulo, Gianpaolo ^a   Dell'Angelo, Grazia ^a   Guillari, Assunta ^a   Comentale, Giuseppe ^a   Palma, Gaetano ^a   Vosa, Carlo ^a  

^a FEDERICO II UNIVERSITY HOSPITAL   (Italy)

^b UNIVERSITY OF ROME TOR VERGATA   (Italy)

Author keywords

Anxiety; Cardiac surgery; Congenital heart disease; Nursing educational intervention

Indexed keywords

ADULT; ANXIETY; ATTITUDE TO HEALTH; CHILD; CHILD PARENT RELATION; CONGENITAL HEART MALFORMATION; COPING BEHAVIOR; EDUCATION; FEMALE; HEALTH EDUCATION; HUMAN; MALE; MIDDLE AGED; NURSING; PARENT; PREOPERATIVE CARE; PRESCHOOL CHILD; PROCEDURES; PSYCHOLOGY;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; CHILD; CHILD, PRESCHOOL; FEMALE; HEALTH EDUCATION; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; PARENT-CHILD RELATIONS; PARENTS; PREOPERATIVE CARE;

EID: 85010518736     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2017.01.008     Document Type: Article

References (59)

1. Adams, H.A., A perioperative education program for pediatric patients and their parents. AORN Journal 93:4 (2011), 472–481, 10.1016/j.aorn.2010.11.030.
2. Agarwal, H.S., Wolfram, K.B., Slayton, J.M., Saville, B.R., Cutrer, W.B., Bichell, D.P., Deshpande, J.K., Template of patient-specific summaries facilitates education and outcomes in paediatric cardiac surgery units. Interactive Cardiovascular and Thoracic Surgery 17:4 (2013), 704–709, 10.1093/icvts/ivt293.
3. Agostini, F., Monti, F., Neri, E., Dellabartola, S., de Pascalis, L., Bozicevic, L., Parental anxiety and stress before pediatric anesthesia: A pilot study on the effectiveness of preoperative clown intervention. Journal of Health Psychology 19:5 (2014), 587–601, 10.1177/1359105313475900.
4. Akinci, S.B., Kose, E.A., Ocal, T., Aypar, U., The effects of maternal presence during anesthesia induction on the mother's anxiety and changes in children's behavior. The Turkish Journal of Pediatrics 50:6 (2008), 566–571.
5. Bernier, P.L., Stefanescu, A., Samoukovic, G., Tchervenkov, C.I., The challenge of congenital heart disease worldwide: Epidemiologic and demographic facts. Seminars in Thoracic and Cardiovascular Surgery. Pediatric Cardiac Surgery Annual 13:1 (2010), 26–34, 10.1053/j.pcsu.2010.02.005.
6. Bertoletti, J., Marx, G.C., Hattge Junior, S.P., Pellanda, L.C., Quality of life and congenital heart disease in childhood and adolescence. Arquivos Brasileiros de Cardiologia 102:2 (2014), 192–198.
7. Bracht, M., O'Leary, L., Lee, S.K., O'Brien, K., Implementing family-integrated care in the NICU: A parent education and support program. Advances in Neonatal Care 13:2 (2013), 115–126, 10.1097/ANC.0b013e318285fb5b.
8. Bratt, E.L., Jarvholm, S., Ekman-Joelsson, B.M., Mattson, L.A., Mellander, M., Parent's experiences of counselling and their need for support following a prenatal diagnosis of congenital heart disease—A qualitative study in a Swedish context. BMC Pregnancy and Childbirth, 15, 2015, 171, 10.1186/s12884-015-0610-4.
9. Bright, M.A., Franich-Ray, C., Anderson, V., Northam, E., Cochrane, A., Menahem, S., Jordan, B., Infant cardiac surgery and the father-infant relationship: Feelings of strength, strain, and caution. Early Human Development 89:8 (2013), 593–599, 10.1016/j.earlhumdev.2013.03.001.
10. Brosig, C.L., Mussatto, K.A., Kuhn, E.M., Tweddell, J.S., Psychosocial outcomes for preschool children and families after surgery for complex congenital heart disease. Pediatric Cardiology 28:4 (2007), 255–262, 10.1007/s00246-006-0013-4.
11. Chahal, N., Manlhiot, C., Colapinto, K., Van Alphen, J., McCrindle, B.W., Rush, J., Association between parental anxiety and compliance with preoperative requirements for pediatric outpatient surgery. Journal of Pediatric Health Care 23:6 (2009), 372–377, 10.1016/j.pedhc.2008.08.002.
12. Chundamala, J., Wright, J.G., Kemp, S.M., An evidence-based review of parental presence during anesthesia induction and parent/child anxiety. Canadian Journal of Anaesthesia 56:1 (2009), 57–70, 10.1007/s12630-008-9008-3.
13. Dahan-Oliel, N., Majnemer, A., Mazer, B., Quality of life of adolescents and young adults born at high risk. Physical & Occupational Therapy in Pediatrics 31:4 (2011), 362–389, 10.3109/01942638.2011.572151.
14. Dale, M.T., Solberg, O., Holmstrom, H., Landolt, M.A., Eskedal, L.T., Vollrath, M.E., Mothers of infants with congenital heart defects: Well-being from pregnancy through the child's first six months. Quality of Life Research 21:1 (2012), 115–122, 10.1007/s11136-011-9920-9.
15. Doherty, N., McCusker, C., Molloy, B., Mulholland, C., Rooney, N., Craig, B., Casey, F., Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease. Journal of Reproductive and Infant Psychology 27:4 (2009), 390–400, 10.1080/02646830903190920.
16. Dolk, H., Loane, M., Garne, E., European Surveillance of Congenital Anomalies Working, Group, Congenital heart defects in Europe: Prevalence and perinatal mortality, 2000 to 2005. Circulation 123:8 (2011), 841–849, 10.1161/CIRCULATIONAHA.110.958405.
17. Dulfer, K., Helbing, W.A., Duppen, N., Utens, E.M., Associations between exercise capacity, physical activity, and psychosocial functioning in children with congenital heart disease: A systematic review. European Journal of Preventive Cardiology 21:10 (2014), 1200–1215, 10.1177/2047487313494030.
18. Eagleson, K.J., Justo, R.N., Ware, R.S., Johnson, S.G., Boyle, F.M., Health-related quality of life and congenital heart disease in Australia. Journal of Paediatrics and Child Health 49:10 (2013), 856–864, 10.1111/jpc.12296.
19. Engstrom, A., Dicksson, E., Contreras, P., The desire of parents to be involved and present. Nursing in Critical Care, 2014, 10.1111/nicc.12103.
20. Fegran, L., Helseth, S., The parent-nurse relationship in the neonatal intensive care unit context—Closeness and emotional involvement. Scandinavian Journal of Caring Sciences 23:4 (2009), 667–673, 10.1111/j.1471-6712.2008.00659.x.
21. Fischer, A.L., Butz, C., Nicholson, L., Blankenship, A., Dyke, P., Cua, C.L., Caregiver anxiety upon discharge for neonates with congenital heart disease. Congenit Heart Dis. 7:1 (2012 Jan-Feb), 41–45, 10.1111/j.1747-0803.2011.00600.x Epub 2011 Dec 18.
22. Franck, L.S., McQuillan, A., Wray, J., Grocott, M.P., Goldman, A., Parent stress levels during children's hospital recovery after congenital heart surgery. Pediatric Cardiology 31:7 (2010), 961–968, 10.1007/s00246-010-9726-5.
23. Franich-Ray, C., Bright, M.A., Anderson, V., Northam, E., Cochrane, A., Menahem, S., Jordan, B., Trauma reactions in mothers and fathers after their infant's cardiac surgery. Journal of Pediatric Psychology 38:5 (2013), 494–505, 10.1093/jpepsy/jst015.
24. Geggel, R.L., Horowitz, L.M., Brown, E.A., Parsons, M., Wang, P.S., Fulton, D.R., Parental anxiety associated with referral of a child to a pediatric cardiologist for evaluation of a Still's murmur. The Journal of Pediatrics 140:6 (2002), 747–752, 10.1067/mpd.2002.124379.
25. Harvey, K.A., Kovalesky, A., Woods, R.K., Loan, L.A., Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery. Heart & Lung 42:6 (2013), 399–406, 10.1016/j.hrtlng.2013.08.009.
26. Hearps, S.J., McCarthy, M.C., Muscara, F., Hearps, S.J., Burke, K., Jones, B., Anderson, V.A., Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease. Cardiology in the Young 24:4 (2014), 632–639, 10.1017/S1047951113000760.
27. Iavarone, A., Ziello, A.R., Pastore, F., Fasanaro, A.M., Poderico, C., Caregiver burden and coping strategies in caregivers of patients with Alzheimer's disease. Neuropsychiatric Disease and Treatment 10 (2014), 1407–1413, 10.2147/NDT.S58063.
28. Kain, Z.N., Mayes, L.C., Caldwell-Andrews, A.A., Karas, D.E., McClain, B.C., Preoperative anxiety, postoperative pain, and behavioral recovery in young children undergoing surgery. Pediatrics 118:2 (2006), 651–658, 10.1542/peds.2005-2920.
29. Kiliçarslan-Törüner, E., Kurnaz, F., Keçİalan, R., Effect of planned information provision on anxiety of parents of children who underwent cardiac surgery. Turkish Journal of Research & Development in Nursing 14:1 (2012), 11–20.
30. Kita, T., Yamamoto, M., Parental presence is a useful method for smooth induction of anesthesia in children: A postoperative questionnaire survey. Masui 58:6 (2009), 719–723.
31. Kosta, L., Harms, L., Franich-Ray, C., Anderson, V., Northam, E., Cochrane, A., Jordan, B., Parental experiences of their infant's hospitalization for cardiac surgery. Child: Care, Health and Development, 2015, 10.1111/cch.12230.
32. Landolt, M.A., Valsangiacomo Buechel, E.R., Latal, B., Health-related quality of life in children and adolescents after open-heart surgery. The Journal of Pediatrics 152:3 (2008), 349–355, 10.1016/j.jpeds.2007.07.010.
33. Lawrence, K.S., Stilley, C.S., Pollock, J.A., Webber, S.A., Quivers, E.S., A family-centered educational program to promote independence in pediatric heart transplant recipients. Progress in Transplantation 21:1 (2011), 61–66.
34. Majnemer, A., Limperopoulos, C., Shevell, M., Rohlicek, C., Rosenblatt, B., Tchervenkov, C., Health and well-being of children with congenital cardiac malformations, and their families, following open-heart surgery. Cardiology in the Young 16:2 (2006), 157–164, 10.1017/S1047951106000096.
35. Marek, J., Tomek, V., Skovranek, J., Povysilova, V., Samanek, M., Prenatal ultrasound screening of congenital heart disease in an unselected national population: A 21-year experience. Heart 97:2 (2011), 124–130, 10.1136/hrt.2010.206623.
36. Marino, B.S., Lipkin, P.H., Newburger, J.W., Peacock, G., Gerdes, M., Gaynor, J.W., Stroke, Council, Neurodevelopmental outcomes in children with congenital heart disease: Evaluation and management: A scientific statement from the American Heart Association. Circulation 126:9 (2012), 1143–1172, 10.1161/CIR.0b013e318265ee8a.
37. Menahem, S., Poulakis, Z., Prior, M., Children subjected to cardiac surgery for congenital heart disease. Part 2 - Parental emotional experiences. Interactive Cardiovascular and Thoracic Surgery 7:4 (2008), 605–608, 10.1510/icvts.2007.171066.
38. Ni, Z., Chao, Y., Xue, X., An empowerment health education program for children undergoing surgery for congenital heart diseases. Journal of Child Health Care 20:3 (2016), 354–364, 10.1177/1367493515587057.
39. Re, J., Dean, S., Menahem, S., Infant cardiac surgery: Mothers tell their story: A therapeutic experience. World Journal for Pediatric and Congenital Heart Surgery 4:3 (2013), 278–285, 10.1177/2150135113481480.
40. Reller, M.D., Strickland, M.J., Riehle-Colarusso, T., Mahle, W.T., Correa, A., Prevalence of congenital heart defects in metropolitan Atlanta, 1998–2005. The Journal of Pediatrics 153:6 (2008), 807–813, 10.1016/j.jpeds.2008.05.059.
41. Rempel, G.R., Ravindran, V., Rogers, L.G., Magill-Evans, J., Parenting under pressure: A grounded theory of parenting young children with life-threatening congenital heart disease. Journal of Advanced Nursing 69:3 (2013), 619–630, 10.1111/j.1365-2648.2012.06044.x.
42. Sabzevari, S., Nematollahi, M., Mirzaei, T., Ravari, A., The burden of care: Mothers' experiences of children with congenital heart disease. International Journal of Community Based Nursing and Midwifery 4:4 (2016), 374–385.
43. Sala, L., Mirabel-Sarron, C., Gorwood, P., Pham-Scottez, A., Blanchet, A., Rouillon, F., The level of associated depression and anxiety traits improves during weight regain in eating disorder patients. Eating and Weight Disorders 16:4 (2011), e280–e284.
44. Salgado, C.L., Lamy, Z.C., Nina, R.V., de Melo, L.A., Lamy Filho, F., Nina, V.J., Pediatric cardiac surgery under the parents sight: A qualitative study. Revista Brasileira de Cirurgia Cardiovascular 26:1 (2011), 36–42.
45. Scrimin, S., Haynes, M., Altoe, G., Bornstein, M.H., Axia, G., Anxiety and stress in mothers and fathers in the 24 h after their child's surgery. Child: Care, Health and Development 35:2 (2009), 227–233, 10.1111/j.1365-2214.2008.00920.x.
46. Shimpuku, M., Futagami, S., Tajima, N., Yamawaki, H., Maruki, Y., Kodaka, Y., Sakamoto, C., Impact of eating attitude and impairment of physical quality of life between tertiary clinic and primary clinic functional dyspepsia outpatients in Japan. Journal of Neurogastroenterology and Motility 20:4 (2014), 506–515, 10.5056/jnm14015.
47. Sipek, A., Gregor, V., Sipek, A. Jr., Hudakova, J., Horacek, J., Klaschka, J., Wiesnerova, J., Incidence of congenital heart defects in the Czech Republic—Current data. Ceská Gynekologie 75:3 (2010), 221–242.
48. Solberg, O., Dale, M.T., Holmstrom, H., Eskedal, L.T., Landolt, M.A., Vollrath, M.E., Long-term symptoms of depression and anxiety in mothers of infants with congenital heart defects. Journal of Pediatric Psychology 36:2 (2011), 179–187, 10.1093/jpepsy/jsq054.
49. Spielberger, C.D., State-trait anxiety inventory: Bibliography. 1989, Consulting Psychologist Press, Palo Alto, CA.
50. Spielberger, C.D., Gorsuch, R.L., Lushene, R., Vagg, P.R., Jacobs, G.A., Manual for the state-trait anxiety inventory. 1983, Consulting Psychologist Press, Palo Alto, CA.
51. Spijkerboer, A.W., Utens, E.M., De Koning, W.B., Bogers, A.J., Helbing, W.A., Verhulst, F.C., Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease. Quality of Life Research 15:4 (2006), 663–673, 10.1007/s11136-005-3692-z.
52. Sullivan-Bolyai, S., Bova, C., Lee, M., Johnson, K., Development and pilot testing of a parent education intervention for type 1 diabetes: Parent education through simulation-diabetes. The Diabetes Educator 38:1 (2012), 50–57, 10.1177/0145721711432457.
53. Trecartin, K., Carroll, D.L., Nursing interventions for family members waiting during cardiac procedures. Clinical Nursing Research 20:3 (2011), 263–275, 10.1177/1054773811405520.
54. Utens, E.M., Versluis-Den Bieman, H.J., Verhulst, F.C., Witsenburg, M., Bogers, A.J., Hess, J., Psychological distress and styles of coping in parents of children awaiting elective cardiac surgery. Cardiology in the Young 10:3 (2000), 239–244.
55. van der Linde, D., Konings, E.E., Slager, M.A., Witsenburg, M., Helbing, W.A., Takkenberg, J.J., Roos-Hesselink, J.W., Birth prevalence of congenital heart disease worldwide: A systematic review and meta-analysis. Journal of the American College of Cardiology 58:21 (2011), 2241–2247, 10.1016/j.jacc.2011.08.025.
56. Verhaeghe, S.T., van Zuuren, F.J., Defloor, T., Duijnstee, M.S., Grypdonck, M.H., How does information influence hope in family members of traumatic coma patients in intensive care unit?. Journal of Clinical Nursing 16:8 (2007), 1488–1497, 10.1111/j.1365-2702.2006.01807.x.
57. Vrijmoet-Wiersma, C.M., Ottenkamp, J., van Roozendaal, M., Grootenhuis, M.A., Koopman, H.M., A multicentric study of disease-related stress, and perceived vulnerability, in parents of children with congenital cardiac disease. Cardiology in the Young 19:6 (2009), 608–614, 10.1017/S1047951109991831.
58. Wernovsky, G., Shillingford, A.J., Gaynor, J.W., Central nervous system outcomes in children with complex congenital heart disease. Current Opinion in Cardiology 20:2 (2005), 94–99.
59. Yildiz, A., Celebioglu, A., Olgun, H., Distress levels in Turkish parents of children with congenital heart disease. The Australian Journal of Advanced Nursing 26:3 (2009), 39–46.