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Volumn 31, Issue 4, 2011, Pages 362-389

Quality of life of adolescents and young adults born at high risk

Author keywords

Adolescents and young adults; congenital heart disease; high risk newborn; premature; quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CONGENITAL HEART MALFORMATION; HUMAN; PREMATURITY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE;

EID: 80054076976     PISSN: 01942638     EISSN: 15413144     Source Type: Journal    
DOI: 10.3109/01942638.2011.572151     Document Type: Article
Times cited : (11)

References (84)
  • 1
    • 0034181618 scopus 로고    scopus 로고
    • Emerging adulthood: A theory of development from the late teens through the twenties
    • Arnett, J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55, 469-480.
    • (2000) American Psychologist , vol.55 , pp. 469-480
    • Arnett, J.1
  • 2
    • 33744806658 scopus 로고    scopus 로고
    • Young adults experiences of living with congenital heart disease
    • DOI 10.1016/j.ijcard.2005.08.006, PII S016752730501048X
    • Berghammer, M., Dellborg, M., & Ekman, I. (2006). Young adults experiences of living with congenital heart disease. International Journal of Cardiology, 110, 340-347. (Pubitemid 43831213)
    • (2006) International Journal of Cardiology , vol.110 , Issue.3 , pp. 340-347
    • Berghammer, M.1    Dellborg, M.2    Ekman, I.3
  • 3
    • 33847183176 scopus 로고    scopus 로고
    • Exploring health-related experiences of children and young people with congenital heart disease
    • Birks, Y., Sloper, P., Lewin, R., & Parsons, J. (2007). Exploring health-related experiences of children and young people with congenital heart disease. Health Expectations, 10, 16-29.
    • (2007) Health Expectations , vol.10 , pp. 16-29
    • Birks, Y.1    Sloper, P.2    Lewin, R.3    Parsons, J.4
  • 5
    • 0035814658 scopus 로고    scopus 로고
    • Importance of differentiating health status from quality of life
    • DOI 10.1016/S0140-6736(00)03562-5
    • Bradley, C. (2001). Importance of differentiating health status from quality of life. Lancet, 357, 7-8. (Pubitemid 32056492)
    • (2001) Lancet , vol.357 , Issue.9249 , pp. 7-8
    • Bradley, C.1
  • 6
    • 0036135897 scopus 로고    scopus 로고
    • Methodological and statistical considerations for threats to internal validity in pediatric outcome data: Response shift in self-report outcomes
    • DOI 10.1093/jpepsy/27.1.97
    • Brossart, D. F., Clay, D. L., & Willson, V. L. (2002). Methodological and statistical considerations for threats to internal validity in pediatric outcome data: Response shift in self-report outcomes. Journal of Pediatric Psychology, 27, 97-107. (Pubitemid 34019652)
    • (2002) Journal of Pediatric Psychology , vol.27 , Issue.1 , pp. 97-107
    • Brossart, D.F.1    Clay, D.L.2    Willson, V.L.3
  • 7
    • 58649095470 scopus 로고    scopus 로고
    • Exercise performance and quality of life following surgical repair of anomalous aortic origin of a coronary artery in the pediatric population
    • Brothers, J. A.,McBride, M.G.,Marino, B. S., Tomlinson, R. S., Seliem, M. A., Pampaloni,M.H., et al. (2009). Exercise performance and quality of life following surgical repair of anomalous aortic origin of a coronary artery in the pediatric population. Journal of Thoracic & Cardiovascular Surgery, 137, 380-384.
    • (2009) Journal of Thoracic & Cardiovascular Surgery , vol.137 , pp. 380-384
    • Brothers, J.A.1    McBride, M.G.2    Marino, B.S.3    Tomlinson, R.S.4    Seliem, M.A.5    Pampaloni, M.H.6
  • 8
    • 0037224233 scopus 로고    scopus 로고
    • Functional outcome at adolescence for infants less than 801 G birth weight: Perceptions of children and parents
    • DOI 10.1038/sj.jp.7210850
    • Brown, K. J., Kilbride, H. W., Turnbull, W., & Lemanek, K. (2003). Functional outcome at adolescence for infants less than 801 g birth weight: Perceptions of children and parents. Journal of Perinatology, 23, 41-47. (Pubitemid 36322388)
    • (2003) Journal of Perinatology , vol.23 , Issue.1 , pp. 41-47
    • Brown, K.J.1    Kilbride, H.W.2    Turnbull, W.3    Lemanek, K.4
  • 9
    • 34548715202 scopus 로고    scopus 로고
    • Determinants of health-related quality of life in adults with congenital heart disease
    • DOI 10.1111/j.1747-0803.2007.00117.x
    • Bruto, V. C., Harrison, D. A., Fedak, P.W. M., Rockert,W., & Siu, S. C. (2007). Determinants of health-related quality of life in adults with congenital heart disease. Congenital Heart Disease, 2, 301-313. (Pubitemid 47423391)
    • (2007) Congenital Heart Disease , vol.2 , Issue.5 , pp. 301-313
    • Bruto, V.C.1    Harrison, D.A.2    Fedak, P.W.M.3    Rockert, W.4    Siu, S.C.5
  • 10
    • 13844254309 scopus 로고    scopus 로고
    • What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients
    • DOI 10.1016/j.ejcnurse.2004.12.003
    • Claessens, P., Moons, P., de Casterle, B. D., Cannaerts, N., Budts, W., & Gewillig. M. (2005). What does it mean to live with a congenital heart disease? A qualitative study on the lived experiences of adult patients. European Journal of Cardiovascular Nursing, 4, 3-10. (Pubitemid 40249373)
    • (2005) European Journal of Cardiovascular Nursing , vol.4 , Issue.1 , pp. 3-10
    • Claessens, P.1    Moons, P.2    De Casterle, B.D.3    Cannaerts, N.4    Budts, W.5    Gewillig, M.6
  • 11
    • 34249068797 scopus 로고    scopus 로고
    • Quality of life, depressed mood, and self-esteem in adolescents with heart disease
    • DOI 10.1097/PSY.0b013e318051542c, PII 0000684220070500000004
    • Cohen, M., Mansoor, D., Langut, H., & Lorber, A. (2007). Quality of life, depressed mood, and self-esteem in adolescents with heart disease. Psychosomatic Medicine, 69, 313-318. (Pubitemid 46800290)
    • (2007) Psychosomatic Medicine , vol.69 , Issue.4 , pp. 313-318
    • Cohen, M.1    Mansoor, D.2    Langut, H.3    Lorber, A.4
  • 12
    • 1542314339 scopus 로고    scopus 로고
    • Health, lifestyle, and quality of life for young adults born very preterm
    • DOI 10.1136/adc.2003.030197
    • Cooke, R. W. I. (2004). Health, lifestyle, and quality of life for young adults born very preterm. Archives of Disease in Childhood, 89, 201-206. (Pubitemid 38325806)
    • (2004) Archives of Disease in Childhood , vol.89 , Issue.3 , pp. 201-206
    • Cooke, R.W.I.1
  • 15
    • 22344455083 scopus 로고    scopus 로고
    • Evaluating health-related quality-of-life studies in paediatric populations: Some conceptual, methodological and developmental considerations and recent applications
    • DOI 10.2165/00019053-200523070-00003
    • De Civita, M., Regier, D., Alamgir, A. H., Anis, A. H., Fitzgerald, M. J., & Marra, C. A. (2005). Evaluating health-related quality-of-life studies in paediatric populations: Some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics, 23, 659-685. (Pubitemid 41003075)
    • (2005) PharmacoEconomics , vol.23 , Issue.7 , pp. 659-685
    • De Civita, M.1    Regier, D.2    Alamgir, A.H.3    Anis, A.H.4    FitzGerald, M.J.5    Marra, C.A.6
  • 17
    • 0036454070 scopus 로고    scopus 로고
    • Health-related quality of life of preterm children and their caregivers
    • DOI 10.1002/mrdd.10041
    • Donohue, P. K. (2002). Health-related quality of life of preterm children and their caregivers. Mental Retardation and Developmental Disabilities Research Reviews, 8, 293-297. (Pubitemid 35453800)
    • (2002) Mental Retardation and Developmental Disabilities Research Reviews , vol.8 , Issue.4 , pp. 293-297
    • Donohue, P.K.1
  • 18
    • 0036116828 scopus 로고    scopus 로고
    • Transition of care to adult congenital heart centres: What do patients know about their heart condition?
    • Dore, A., Guise, P. D., & Mercier, L. (2002). Transition of care to adult congenital heart centres: What do patients know about their heart condition? Canadian Journal of Cardiology, 18, 141-146. (Pubitemid 34406616)
    • (2002) Canadian Journal of Cardiology , vol.18 , Issue.2 , pp. 141-146
    • Dore, A.1    De Guise, P.2    Mercier, L.-A.3
  • 19
    • 77149124966 scopus 로고    scopus 로고
    • Long-term outcomes of very preterm or tiny infants
    • Doyle, L. W., & Saigal, S. (2009). Long-term outcomes of very preterm or tiny infants. NeoReviews, 10, e130-e137.
    • (2009) NeoReviews , vol.10
    • Doyle, L.W.1    Saigal, S.2
  • 20
    • 4344610338 scopus 로고    scopus 로고
    • Validating measures of pediatric health status, functional status, and health-related quality of life: Key methodological challenges and strategies
    • DOI 10.1367/A03-101R.1
    • Drotar, D. (2004). Validating measures of pediatric health status, functional status, and healthrelated quality of life: Key methodological challenges and strategies. Ambulatory Pediatrics, 4, 358-364. (Pubitemid 39136597)
    • (2004) Ambulatory Pediatrics , vol.4 , Issue.4 SUPPL. , pp. 358-364
    • Drotar, D.1
  • 23
    • 4344563009 scopus 로고    scopus 로고
    • Use of quality of life measures in clinical trials
    • DOI 10.1367/A03-112R.1
    • Eiser, C. (2004). Use of quality of life measures in clinical trials. Ambulatory Pediatrics, 4, 395-399. (Pubitemid 39136602)
    • (2004) Ambulatory Pediatrics , vol.4 , Issue.4 SUPPL. , pp. 395-399
    • Eiser, C.1
  • 25
    • 0345735903 scopus 로고    scopus 로고
    • Comparing directly measured standard gamble scores to HUI2 and HUI3 utility scores: Group- and individual-level comparisons
    • DOI 10.1016/S0277-9536(03)00254-5
    • Feeny, D., Furlong, W., Saigal, S., & Sun, J. (2004). Comparing directly measured standard gamble scores to HUI2 and HUI3 utility scores: Group-and individual-level comparisons. Social Science and Medicine, 58, 799-809. (Pubitemid 37524002)
    • (2004) Social Science and Medicine , vol.58 , Issue.4 , pp. 799-809
    • Feeny, D.1    Furlong, W.2    Saigal, S.3    Sun, J.4
  • 26
    • 0036753696 scopus 로고    scopus 로고
    • HRQL and severity of brain ultrasound findings in a cohort of adolescents who were born preterm
    • DOI 10.1016/S1054-139X(01)00407-4, PII S1054139X01004074
    • Feingold, E., Sheir-Neiss, G.,Melnychuk, J., Bachrach, S., & Paul, D. (2002). HRQL and severity of brain ultrasound findings in a cohort of adolescents who were born preterm. Journal of Adolescent Health, 31, 234-239. (Pubitemid 35291893)
    • (2002) Journal of Adolescent Health , vol.31 , Issue.3 , pp. 234-239
    • Feingold, E.1    Sheir-Neiss, G.2    Melnychuk, J.3    Bachrach, S.4    Paul, D.5
  • 28
    • 33644857243 scopus 로고    scopus 로고
    • Conceptual model of health-related quality of life
    • DOI 10.1111/j.1547-5069.2005.00058.x
    • Ferrans, C., Zerwic, J., Wilbur, J., & Larson, J. L. (2005). Conceptual model of health-related quality of life. Journal of Nursing Scholarship, 37, 336-342. (Pubitemid 43961386)
    • (2005) Journal of Nursing Scholarship , vol.37 , Issue.4 , pp. 336-342
    • Ferrans, C.E.1    Zerwic, J.J.2    Wilbur, J.E.3    Larson, J.L.4
  • 29
    • 0037318149 scopus 로고    scopus 로고
    • Motor, cognitive, and behavioural disorders in children born very preterm
    • Foulder-Hughes, L., & Cooke, R. (2003).Motor, cognitive, and behavioural disorders in children born very preterm. Developmental Medicine & Child Neurology, 45, 97-103. (Pubitemid 36798206)
    • (2003) Developmental Medicine and Child Neurology , vol.45 , Issue.2 , pp. 97-103
    • Foulder-Hughes, L.A.1    Cooke, R.W.I.2
  • 30
    • 60849118152 scopus 로고    scopus 로고
    • On the frontier of adulthood: Emerging themes and new directions
    • In R. A. Settersen, F. F. Furstenberg, & R. G. Rumbaut (Eds.). Chicago: University of Chicago Press
    • Furstenberg, F. F., Rumbaut, R. G., & Settersen, R. A. (2005). On the frontier of adulthood: Emerging themes and new directions. In R. A. Settersen, F. F. Furstenberg, & R. G. Rumbaut (Eds.), On the frontier of adulthood: Theory, research, and public policy. Chicago: University of Chicago Press.
    • (2005) On the Frontier of Adulthood: Theory, Research, and Public Policy
    • Furstenberg, F.F.1    Rumbaut, R.G.2    Settersen, R.A.3
  • 31
    • 68549087140 scopus 로고    scopus 로고
    • Most very low birth weight subjects do well as adults
    • Gaddlin, P. O., Finnstrom, O., Sydsjo, G., & Leijon, I. (2009).Most very low birth weight subjects do well as adults. Acta Paediatrica, 98, 1513-1520.
    • (2009) Acta Paediatrica , Issue.98 , pp. 1513-1520
    • Gaddlin, P.O.1    Finnstrom, O.2    Sydsjo, G.3    Leijon, I.4
  • 32
    • 60749125533 scopus 로고    scopus 로고
    • Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease
    • Gratz, A., Hess, J., & Hager, A. (2009). Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease. European Heart Journal, 30, 497-504.
    • (2009) European Heart Journal , vol.30 , pp. 497-504
    • Gratz, A.1    Hess, J.2    Hager, A.3
  • 33
    • 34447119465 scopus 로고    scopus 로고
    • Self-reported health status and health-related quality of life of teenagers who were born before 29 weeks' gestational age
    • DOI 10.1542/peds.2006-2034
    • Gray, R., Petrou, S., Hockley, C., & Gardner, F. (2007). Self-reported health status and healthrelated quality of life of teenagers who were born before 29 weeks' gestational age. Pediatrics, 120, e86-e93. (Pubitemid 47036221)
    • (2007) Pediatrics , vol.120 , Issue.1
    • Gray, R.1    Petrou, S.2    Hockley, C.3    Gardner, F.4
  • 34
    • 16544375221 scopus 로고    scopus 로고
    • Outcomes of congenital heart disease: Areview
    • Green,A. (2004). Outcomes of congenital heart disease:Areview. PediatricNursing, 30, 280-284.
    • (2004) PediatricNursing , vol.30 , pp. 280-284
    • Green, A.1
  • 35
    • 0028094477 scopus 로고
    • Health status, quality of life, and the individual
    • DOI 10.1001/jama.272.8.630
    • Guyatt, G., & Cook, D. (1994). Health status, quality of life, and the individual. Journal of the American Medical Association, 272, 630-631. (Pubitemid 24255223)
    • (1994) Journal of the American Medical Association , vol.272 , Issue.8 , pp. 630-631
    • Guyatt, G.H.1    Cook, D.J.2
  • 36
    • 36148955094 scopus 로고    scopus 로고
    • Self-perceived health, functioning and well-being of very low birth weight infants at age 20 years
    • Hack, M., Cartar, L., Schluchter, M., Klein, N., & Forrest, C. B. (2007). Self-perceived health, functioning and well-being of very low birth weight infants at age 20 years. Journal of Pediatrics, 151, 635-641.
    • (2007) Journal of Pediatrics , vol.151 , pp. 635-641
    • Hack, M.1    Cartar, L.2    Schluchter, M.3    Klein, N.4    Forrest, C.B.5
  • 37
    • 15844376336 scopus 로고    scopus 로고
    • Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease
    • DOI 10.1136/hrt.2003.032722
    • Hager, A., & Hess, J. (2005). Comparison of health related quality of life with cardiopulmonary exercise testing in adolescents and adults with congenital heart disease. Heart, 91, 517-520. (Pubitemid 40432788)
    • (2005) Heart , vol.91 , Issue.4 , pp. 517-520
    • Hager, A.1    Hess, J.2
  • 39
    • 3042749247 scopus 로고    scopus 로고
    • Occupational performance challenges for children with congenital heart disease: A literature review
    • Imms,C. (2004).Occupational performance challenges for childrenwith congenital heart disease: A literature review. Canadian Journal of Occupational Therapy, 71, 161-172. (Pubitemid 38879822)
    • (2004) Canadian Journal of Occupational Therapy , vol.71 , Issue.3 , pp. 161-172
    • Imms, C.1
  • 42
    • 3142602894 scopus 로고    scopus 로고
    • Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky
    • DOI 10.1016/j.amjcard.2004.03.082, PII S0002914904005302
    • Jefferies, J. L., Noonan, J. A., Keller, B. B.,Wilson, J. F., & Griffith, C., III. (2004). Quality of life and social outcomes in adults with congenital heart disease living in rural areas of Kentucky. American Journal of Cardiology, 94, 263-266. (Pubitemid 38902889)
    • (2004) American Journal of Cardiology , vol.94 , Issue.2 , pp. 263-266
    • Jefferies, J.L.1    Noonan, J.A.2    Keller, B.B.3    Wilson, J.F.4    Griffith III, C.5
  • 44
    • 0036217798 scopus 로고    scopus 로고
    • Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease
    • Kamphuis, M., Ottenkamp, J., Vliegen, H. W., Vogels, T., Zwinderman, K. H., Kamphuis, R. P., et al. (2002). Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart, 87, 356-362. (Pubitemid 34270949)
    • (2002) Heart , vol.87 , Issue.4 , pp. 356-362
    • Kamphuis, M.1    Ottenkamp, J.2    Vliegen, H.W.3    Vogels, T.4    Zwinderman, K.H.5    Kamphuis, R.P.6    Verloove-Vanhorick, S.P.7
  • 46
    • 23644437528 scopus 로고    scopus 로고
    • Biopsychosocial experiences of adults with congenital heart disease: Review of the literature
    • DOI 10.1016/j.ahj.2004.08.025, PII S000287030400537X
    • Kovacs, A. H., Sears, S. F., & Saidi, A. S. (2005). Biopsychosocial experiences of adults with congenital heart disease: Review of the literature. American Heart Journal, 150, 193-201. (Pubitemid 41116240)
    • (2005) American Heart Journal , vol.150 , Issue.2 , pp. 193-201
    • Kovacs, A.H.1    Sears, S.F.2    Saidi, A.S.3
  • 47
    • 0037379570 scopus 로고    scopus 로고
    • Health related quality of life in children with congenital heart disease
    • DOI 10.1080/0887044021000058076
    • Krol, Y., Grootenhuis, M. A., Destree-Vonk, A., Lubbers, L. J., Koopman, H. M., & Last, B. F. (2003). Health related quality of life in children with congenital heart disease. Psychology & Health, 18, 251-260. (Pubitemid 36364015)
    • (2003) Psychology and Health , vol.18 , Issue.2 , pp. 251-260
    • Krol, Y.1    Grootenhuis, M.A.2    Destree-Vonk, A.3    Lubbers, L.J.4    Koopman, H.M.5    Last, B.F.6
  • 48
    • 60949110963 scopus 로고    scopus 로고
    • Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: A systematic review
    • Latal, B., Helfricht, S., Fischer, J. E., Bauersfeld, U., & Landolt, M. A. (2009). Psychological adjustment and quality of life in children and adolescents following open-heart surgery for congenital heart disease: A systematic review. BMC Pediatrics, 9:6.
    • (2009) BMC Pediatrics , vol.9 , pp. 6
    • Latal, B.1    Helfricht, S.2    Fischer, J.E.3    Bauersfeld, U.4    Landolt, M.A.5
  • 49
    • 0036067859 scopus 로고    scopus 로고
    • Predictors of developmental disabilities after open heart surgery in young children with congenital heart defects
    • DOI 10.1067/mpd.2002.125227
    • Limperopoulos, C., Majnemer, A., Shevell, M., Rohlicek, C., Rosenblatt, B., Tchervenkov, C., et al. (2002). Predictors of developmental disabilities after open heart surgery in young children with congenital heart defects. Journal of Pediatrics, 141, 51-58. (Pubitemid 34774951)
    • (2002) Journal of Pediatrics , vol.141 , Issue.1 , pp. 51-58
    • Limperopoulos, C.1    Majnemer, A.2    Shevell, M.I.3    Rohlicek, C.4    Rosenblatt, B.5    Tchervenkov, C.6    Darwish, H.Z.7
  • 50
    • 0037226029 scopus 로고    scopus 로고
    • Physical activity levels of adolescents with congenital heart disease
    • Lunt, D., Briffa, T., Briffa, N. K., & Ramsay, J. (2003). Physical activity levels of adolescents with congenital heart disease. Journal of Physiotherapy, 49, 43-50. (Pubitemid 36321974)
    • (2003) Australian Journal of Physiotherapy , vol.49 , Issue.1 , pp. 43-50
    • Lunt, D.1    Briffa, T.2    Briffa, N.K.3    Ramsay, J.4
  • 52
    • 65349177093 scopus 로고    scopus 로고
    • Quality-of-life concerns differ among patients, parents, and medical providers in children and adolescents with congenital and acquired heart disease
    • Marino, B. S., Tomlinson, R. S., Drotar, D., Claybon, E. S., Aguirre, A., Ittenbach, R., et al. (2009). Quality-of-life concerns differ among patients, parents, and medical providers in children and adolescents with congenital and acquired heart disease. Pediatrics, 123, e708-e715.
    • (2009) Pediatrics , vol.123
    • Marino, B.S.1    Tomlinson, R.S.2    Drotar, D.3    Claybon, E.S.4    Aguirre, A.5    Ittenbach, R.6
  • 53
    • 68049122102 scopus 로고    scopus 로고
    • Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement
    • The PRISMA Group.
    • Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6, e1000097.
    • (2009) PLoS Medicine , vol.6
    • Moher, D.1    Liberati, A.2    Tetzlaff, J.3    Altman, D.G.4
  • 55
    • 33748268904 scopus 로고    scopus 로고
    • Quality of life and health status in adults with congenital heart disease: A direct comparison with healthy counterparts
    • DOI 10.1097/00149831-200606000-00017, PII 0014983120060600000017
    • Moons, P., VanDeyk, K., De Bleser, L., Marquet, K., Raes, E., De Geest, S., et al. (2006). Quality of life and health status in adults with congenital heart disease: A direct comparison with healthy counterparts. European Journal of Cardiovascular Prevention & Rehabilitation, 13, 407-413. (Pubitemid 44318652)
    • (2006) European Journal of Cardiovascular Prevention and Rehabilitation , vol.13 , Issue.3 , pp. 407-413
    • Moons, P.1    Van Deyk, K.2    De Bleser, L.3    Marquet, K.4    Raes, E.5    De Geest, S.6    Budts, W.7
  • 56
    • 23944498070 scopus 로고    scopus 로고
    • Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?
    • DOI 10.1136/hrt.2004.042234
    • Moons, P., Van Deyk, K., De Geest, S., Gewillig, M., & Budts,W. (2005a). Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart, 91, 1193-1198. (Pubitemid 41192398)
    • (2005) Heart , vol.91 , Issue.9 , pp. 1193-1198
    • Moons, P.1    Van Deyk, K.2    De Geest, S.3    Gewillig, M.4    Budts, W.5
  • 57
    • 67349213210 scopus 로고    scopus 로고
    • Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: A cluster analytic study
    • Moons, P., Van Deyk, K., Marquet, K., De Bleser, L., De Geest, S., & Budts,W. (2009). Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: A cluster analytic study. European Journal of Cardiovascular Nursing, 8, 151-157.
    • (2009) European Journal of Cardiovascular Nursing , vol.8 , pp. 151-157
    • Moons, P.1    Van Deyk, K.2    Marquet, K.3    De Bleser, L.4    De Geest, S.5    Budts, W.6
  • 58
    • 13544268449 scopus 로고    scopus 로고
    • Individual quality of life in adults with congenital heart disease: A paradigm shift
    • DOI 10.1093/eurheartj/ehi054
    • Moons, P., Van Deyk, K., Marquet, K., Raes, E., De Bleser, L., Budts,W., et al. (2005b). Individual quality of life in adults with congenital heart disease: A paradigm shift. European Heart Journal, 26, 298-307. (Pubitemid 40222368)
    • (2005) European Heart Journal , vol.26 , Issue.3 , pp. 298-307
    • Moons, P.1    Van Deyk, K.2    Marquet, K.3    Raes, E.4    De Bleser, L.5    Budts, W.6    De Geest, S.7
  • 60
    • 0032972521 scopus 로고    scopus 로고
    • Quality of life and the ICIDH: Towards an integrated conceptual model for rehabilitation outcomes research
    • DOI 10.1191/026921599701532072
    • Post,M.W.,Witte, L. P. D., & Schrijvers, A. J. (1999). Quality of life and the ICIDH: Towards an integrated conceptual model for rehabilitation outcomes research. Clinical Rehabilitation, 13, 5-15. (Pubitemid 29116459)
    • (1999) Clinical Rehabilitation , vol.13 , Issue.1 , pp. 5-15
    • Post, M.W.M.1    De Witte, L.P.2    Schrijvers, A.J.P.3
  • 61
    • 67349245539 scopus 로고    scopus 로고
    • Long-term development of low-risk low birth weight preterm born infants: Neurodevelopmental aspects from childhood to late adolescence
    • Reuner, G., Hassenpflug, A., Pietz, J., & Philippi, H. (2009). Long-term development of low-risk low birth weight preterm born infants: Neurodevelopmental aspects from childhood to late adolescence. Early Human Development, 85, 409-413.
    • (2009) Early Human Development , vol.85 , pp. 409-413
    • Reuner, G.1    Hassenpflug, A.2    Pietz, J.3    Philippi, H.4
  • 63
    • 67651174827 scopus 로고    scopus 로고
    • The quality of life for the young adult with neurodisability: Overview and reprise
    • Rosenbaum, P. (2009). The quality of life for the young adult with neurodisability: Overview and reprise. Developmental Medicine & Child Neurology, 51, 679-682.
    • (2009) Developmental Medicine & Child Neurology , vol.51 , pp. 679-682
    • Rosenbaum, P.1
  • 64
    • 0029758134 scopus 로고    scopus 로고
    • Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescence
    • DOI 10.1001/jama.276.6.453
    • Saigal, S., Feeny, D., Rosenbaum, P., Furlong, W., Burrows, E., & Stoskopf, B. (1996). Selfperceived health status and health-related quality of life of extremely low-birth-weight infants at adolescence. Journal of the American Medical Association, 276, 453-459. (Pubitemid 26269365)
    • (1996) Journal of the American Medical Association , vol.276 , Issue.6 , pp. 453-459
    • Saigal, S.1    Feeny, D.2    Rosenbaum, P.3    Furlong, W.4    Burrows, E.5    Stoskopf, B.6
  • 65
    • 0034053756 scopus 로고    scopus 로고
    • Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls
    • Saigal, S., Rosenbaum, P. L., Feeny, D., Burrows, E., Furlong, W., Stoskopf, B. L., et al. (2000). Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls. Pediatrics, 105, 569-574. (Pubitemid 30129673)
    • (2000) Pediatrics , vol.105 , Issue.3 , pp. 569-574
    • Saigal, S.1    Rosenbaum, P.L.2    Feeny, D.3    Burrows, E.4    Furlong, W.5    Stoskopf, B.L.6    Hoult, L.7
  • 66
    • 33947162819 scopus 로고    scopus 로고
    • Comparison of current health, functional limitations, and health care use of young adults who were born with extremely low birth weight and normal birth weight
    • DOI 10.1542/peds.2006-2328
    • Saigal, S., Stoskopf, B., Boyle, M., Paneth, N., Pinelli, J., Streiner, D., et al. (2007). Comparison of current health, functional limitations, and health care use of young adults who were born with extremely low birth weight and normal birth weight. Pediatrics, 119, e562-e573. (Pubitemid 46407527)
    • (2007) Pediatrics , vol.119 , Issue.3
    • Saigal, S.1    Stoskopf, B.2    Boyle, M.3    Paneth, N.4    Pinelli, J.5    Streiner, D.6    Goddeeris, J.7
  • 67
    • 32144450258 scopus 로고    scopus 로고
    • Transition of extremely low-birth-weight infants from adolescence to young adulthood: Comparison with normal birth-weight controls
    • DOI 10.1001/jama.295.6.667
    • Saigal, S., Stoskopf, B., Streiner, D., Boyle, M., Pinelli, J., Paneth, N., et al. (2006a). Transition of extremely low-birth-weight infants from adolescence to young adulthood: Comparison with normal birth-weight controls. Journal of the American Medical Association, 295, 667-675. (Pubitemid 43209068)
    • (2006) Journal of the American Medical Association , vol.295 , Issue.6 , pp. 667-675
    • Saigal, S.1    Stoskopf, B.2    Streiner, D.3    Boyle, M.4    Pinelli, J.5    Paneth, N.6    Goddeeris, J.7
  • 68
    • 33749076061 scopus 로고    scopus 로고
    • Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood
    • DOI 10.1542/peds.2006-0119
    • Saigal, S., Stoskopf, B., Pinelli, J., Streiner, D., Hoult, L., Paneth, N., et al. (2006b). Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood. Pediatrics, 118, 1140-1148. (Pubitemid 46090057)
    • (2006) Pediatrics , vol.118 , Issue.3 , pp. 1140-1148
    • Saigal, S.1    Stoskopf, B.2    Pinelli, J.3    Streiner, D.4    Hoult, L.5    Paneth, N.6    Goddeeris, J.7
  • 69
  • 70
    • 0034758383 scopus 로고    scopus 로고
    • Quality of life and perceived health status in surviving adults with univentricular heart
    • Saliba, Z., Butera,G., Bonnet,D., Bonhoeffer, P.,Villain, E., Kachaner, J., et al. (2001). Quality of life and perceived health status in surviving adults with univentricular heart. Heart, 86, 69-73. (Pubitemid 32977784)
    • (2001) Heart , vol.86 , Issue.1 , pp. 69-73
    • Saliba, Z.1    Butera, G.2    Bonnet, D.3    Bonhoeffer, P.4    Villain, E.5    Kachaner, J.6    Sidi, D.7    Iserin, L.8
  • 71
    • 0037314421 scopus 로고    scopus 로고
    • Quality of life experienced by adults with congenital heart disease
    • Simko, L. C., & McGinnis, K. A. (2003). Quality of life experienced by adults with congenital heart disease. AACN Clinical Issues, 14, 42-53.
    • (2003) AACN Clinical Issues , vol.14 , pp. 42-53
    • Simko, L.C.1    McGinnis, K.A.2
  • 72
    • 0032809256 scopus 로고    scopus 로고
    • Distinguishing between quality of life and health status in quality of life research: A meta-analysis
    • DOI 10.1023/A:1008928518577
    • Smith, K. W., Avis, N. E., & Assmann, S. F. (1999). Distinguishing between quality of life and health status in quality of life research: A meta-analysis. Quality of Life Research, 8, 447-459. (Pubitemid 29379029)
    • (1999) Quality of Life Research , vol.8 , Issue.5 , pp. 447-459
    • Smith, K.W.1    Avis, N.E.2    Assmann, S.F.3
  • 73
    • 33744945011 scopus 로고    scopus 로고
    • Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease
    • DOI 10.1007/s11136-005-3692-z
    • Spijkerboer, A.W.,Utens,E.M.W. J., DeKoning,W.B., Bogers, A. J.,Helbing,W.A.,&Verhulst, F. C. (2006). Health-related quality of life in children and adolescents after invasive treatment for congenital heart disease. Quality of Life Research, 15, 663-673. (Pubitemid 43843974)
    • (2006) Quality of Life Research , vol.15 , Issue.4 , pp. 663-673
    • Spijkerboer, A.W.1    Utens, E.M.W.J.2    De Koning, W.B.3    Bogers, A.J.J.C.4    Helbing, W.A.5    Verhulst, F.C.6
  • 74
    • 0035121845 scopus 로고    scopus 로고
    • Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect
    • DOI 10.1007/s002460010178
    • Ternestedt, B. M., Wall, K., Oddsson, H., Riesenfeld, T., Groth, I., & Schollin, J. (2001). Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatric Cardiology, 22, 128-132. (Pubitemid 32147839)
    • (2001) Pediatric Cardiology , vol.22 , Issue.2 , pp. 128-132
    • Ternestedt, B.-M.1    Wall, K.2    Oddsson, H.3    Riesenfeld, T.4    Groth, I.5    Schollin, J.6
  • 75
    • 0028824086 scopus 로고
    • The world health organization quality of life assessment (WHOQOL): Position paper fromthe world health organization
    • The WHOQOL Group.
    • The WHOQOL Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): Position paper fromtheWorldHealth Organization. Social Science&Medicine, 41, 1403-1409.
    • (1995) Social Science&Medicine , vol.41 , pp. 1403-1409
  • 76
    • 0035121559 scopus 로고    scopus 로고
    • Longitudinal follow-up of children born preterm: Somatic and mental health, self-esteem and quality of life at age 19
    • DOI 10.1016/S0378-3782(00)00123-7, PII S0378378200001237
    • Tideman, E., Ley, D., Bjerre, I., & Forslund, M. (2001). Longitudinal follow-up of children born preterm: Somatic and mental health, self-esteem and quality of life at age 19. Early Human Development, 61, 97-110. (Pubitemid 32149653)
    • (2001) Early Human Development , vol.61 , Issue.2 , pp. 97-110
    • Tideman, E.1    Ley, D.2    Bjerre, I.3    Forslund, M.4
  • 78
    • 38649114656 scopus 로고    scopus 로고
    • Health-related quality of life for extremely low birth weight adolescents in Canada, Germany, and the Netherlands
    • Verrips, E., Vogels, T., Saigal, S., Wolke, D., Meyer, R., Hoult, L., et al. (2008). Health-related quality of life for extremely low birth weight adolescents in Canada, Germany, and the Netherlands. Pediatrics, 122, 556-561.
    • (2008) Pediatrics , vol.122 , pp. 556-561
    • Verrips, E.1    Vogels, T.2    Saigal, S.3    Wolke, D.4    Meyer, R.5    Hoult, L.6
  • 79
    • 67650085882 scopus 로고    scopus 로고
    • Sexuality and subjective well-being in male patients with congenital heart disease
    • Vigl,M., Hager,A., Bauer,U., Niggemeyer, E.,Wittstock, B., Köhn, F. M., et al. (2009). Sexuality and subjective well-being in male patients with congenital heart disease. Heart, 95, 1179-1183.
    • (2009) Heart , Issue.95 , pp. 1179-1183
    • Vigl, M.1    Hager, A.2    Bauer, U.3    Niggemeyer, E.4    Wittstock, B.5    Köhn, F.M.6
  • 80
    • 0035102978 scopus 로고    scopus 로고
    • Aspects of the quality of life of chronically ill and handicapped children and adolescents in outpatient and inpatient rehabilitation
    • Voll, R. (2001). Aspects of quality of life of chronically ill and handicapped children and adolescents in outpatient and inpatient rehabilitation. International Journal of Rehabilitation, 24, 43-49. (Pubitemid 32217657)
    • (2001) International Journal of Rehabilitation Research , vol.24 , Issue.1 , pp. 43-49
    • Voll, R.1
  • 81
    • 67651160895 scopus 로고    scopus 로고
    • Quality of life instruments for children and adolescents with neurodisabilities: How to choose the appropriate instrument
    • Waters, E., Davis, E., Ronen, G. M., Rosenbaum, P., Livingston, M., & Saigal, S. (2009). Quality of life instruments for children and adolescents with neurodisabilities: How to choose the appropriate instrument. Developmental Medicine & Child Neurology, 51, 660-669.
    • (2009) Developmental Medicine & Child Neurology , vol.51 , pp. 660-669
    • Waters, E.1    Davis, E.2    Ronen, G.M.3    Rosenbaum, P.4    Livingston, M.5    Saigal, S.6
  • 82
    • 0028893864 scopus 로고
    • Linking clinical variables with health-related quality of life.Aconceptual model of patient outcomes
    • Wilson, I.,&Cleary, P. (1995). Linking clinical variables with health-related quality of life.Aconceptual model of patient outcomes. Journal of the American Medical Association, 273, 59-65.
    • (1995) Journal of the American Medical Association , vol.273 , pp. 59-65
    • Wilson, I.1    Cleary, P.2
  • 83
    • 34548550543 scopus 로고    scopus 로고
    • Is there evidence that long-term outcomes have improved with intensive care?
    • DOI 10.1016/j.siny.2007.06.010, PII S1744165X0700087X, Perinatal Outcomes
    • Wilson-Costello, D. (2007). Is there evidence that long-term outcomes have improved with intensive care? Seminars in Fetal and Neonatal Medicine, 12, 344-354. (Pubitemid 47386048)
    • (2007) Seminars in Fetal and Neonatal Medicine , vol.12 , Issue.5 , pp. 344-354
    • Wilson-Costello, D.1
  • 84
    • 38849160142 scopus 로고    scopus 로고
    • Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: A systematic review
    • DOI 10.1542/peds.2007-0169
    • Zwicker, J.G.,&Harris, S. R. (2008). Quality of life of formerly preterm and very low birthweight infants from preschool age to adulthood: A systematic review. Pediatrics, 121, e366-e376. (Pubitemid 351198458)
    • (2008) Pediatrics , vol.121 , Issue.2
    • Zwicker, J.G.1    Harris, S.R.2


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