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Volumn 26, Issue 6, 2017, Pages 1393-1404

Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective

Author keywords

HRQoL; Patient engagement; Patient involvement; Patient reported outcomes; Values

Indexed keywords

ARTICLE; CANADA; EVIDENCE BASED PRACTICE; EXPLORATORY RESEARCH; FRANCE; GERMANY; HEALTH SERVICES RESEARCH; HUMAN; MAJOR CLINICAL STUDY; NETHERLANDS; NORWAY; PATIENT ENGAGEMENT; PATIENT PARTICIPATION; PATIENT-REPORTED OUTCOME; PRIORITY JOURNAL; QUALITY OF LIFE; SWEDEN; UNITED KINGDOM; UNITED STATES; HEALTH STATUS; INTERNATIONAL COOPERATION; METHODOLOGY;

EID: 85001752295     PISSN: 09629343     EISSN: 15732649     Source Type: Journal    
DOI: 10.1007/s11136-016-1465-5     Document Type: Article
Times cited : (31)

References (23)
  • 2
    • 84885348617 scopus 로고    scopus 로고
    • Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—Lessons learnt from a decade of collaboration in OMERACT: a qualitative study
    • PID: 23975104
    • de Wit, M., Abma, T., Koelewijn-Van Loon, M., Collins, S., & Kirwan, J. (2013). Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences—Lessons learnt from a decade of collaboration in OMERACT: a qualitative study. BMJ Open., 3(8), e003311.
    • (2013) BMJ Open. , vol.3 , Issue.8
    • de Wit, M.1    Abma, T.2    Koelewijn-Van Loon, M.3    Collins, S.4    Kirwan, J.5
  • 3
    • 84859982367 scopus 로고    scopus 로고
    • Patient and public involvement in patient-reported outcome measures: evolution not revolution
    • PID: 22428752
    • Staniszewska, S., Haywood, K. L., Brett, J., & Tutton, L. (2012). Patient and public involvement in patient-reported outcome measures: evolution not revolution. Patient, 5(2), 79–87.
    • (2012) Patient , vol.5 , Issue.2 , pp. 79-87
    • Staniszewska, S.1    Haywood, K.L.2    Brett, J.3    Tutton, L.4
  • 4
    • 84928780482 scopus 로고    scopus 로고
    • Patient and public engagement in health-related quality of life and patient-reported outcomes research: What is important and why should we care? Findings from the first ISOQOL patient engagement symposium
    • PID: 25194573
    • Haywood, K., Brett, J., Salek, S., Marlett, N., Penman, C., Shklarov, S., et al. (2015). Patient and public engagement in health-related quality of life and patient-reported outcomes research: What is important and why should we care? Findings from the first ISOQOL patient engagement symposium. Quality of Life Research, 24(5), 1069–1076.
    • (2015) Quality of Life Research , vol.24 , Issue.5 , pp. 1069-1076
    • Haywood, K.1    Brett, J.2    Salek, S.3    Marlett, N.4    Penman, C.5    Shklarov, S.6    Norris, C.7    Santana, M.J.8    Staniszewska, S.9
  • 8
  • 9
    • 67649649676 scopus 로고    scopus 로고
    • Avoidable waste in the production and reporting of research evidence
    • PID: 19525005
    • Chalmers, I., & Glasziou, P. (2009). Avoidable waste in the production and reporting of research evidence. Lancet, 374(9683), 86–89.
    • (2009) Lancet , vol.374 , Issue.9683 , pp. 86-89
    • Chalmers, I.1    Glasziou, P.2
  • 11
    • 84903179385 scopus 로고    scopus 로고
    • Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: A modified Delphi study
    • COI: 1:STN:280:DC%2BC2cfjsFalug%3D%3D, PID: 24939808
    • Snape, D., Kirkham, J., Britten, N., Froggatt, K., Gradinger, F., Lobban, F., et al. (2014). Exploring perceived barriers, drivers, impacts and the need for evaluation of public involvement in health and social care research: A modified Delphi study. BMJ Open, 4(6), e004943.
    • (2014) BMJ Open , vol.4 , Issue.6
    • Snape, D.1    Kirkham, J.2    Britten, N.3    Froggatt, K.4    Gradinger, F.5    Lobban, F.6    Popay, J.7    Wyatt, K.8    Jacoby, A.9
  • 13
    • 84927005888 scopus 로고    scopus 로고
    • Published by OMERACT Updated,Accessed 23 June 2016
    • Chapter 8 Patient Partners and OMERACT. In: M. Boers, J. R. Kirwan, & P. Tugwell et al. The OMERACT Handbook. Published by OMERACT Updated May 2016. http://www.omeract.org/pdf/OMERACT_Handbook.pdf. Accessed 23 June 2016.
    • (2016) The OMERACT Handbook
    • Boers, M.1    Kirwan, J.R.2    Tugwell, P.3
  • 14
    • 84868303170 scopus 로고    scopus 로고
    • A creative approach to the development of an agenda for knowledge utilization: outputs from the 11th international knowledge utilization colloquium (KU 11)
    • PID: 22849391
    • Wilkinson, J. E., Rycroft-Malone, J., Davies, H. T., & McCormack, B. (2012). A creative approach to the development of an agenda for knowledge utilization: outputs from the 11th international knowledge utilization colloquium (KU 11). Worldviews on Evidence Based Nursing, 9(4), 195–199.
    • (2012) Worldviews on Evidence Based Nursing , vol.9 , Issue.4 , pp. 195-199
    • Wilkinson, J.E.1    Rycroft-Malone, J.2    Davies, H.T.3    McCormack, B.4
  • 18
    • 79953301130 scopus 로고    scopus 로고
    • European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects
    • PID: 21257615
    • de Wit, M. P. T., Berlo, S. E., Aanerud, G. J., et al. (2011). European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Annals of the Rheumatic Diseases, 70, 722–726.
    • (2011) Annals of the Rheumatic Diseases , vol.70 , pp. 722-726
    • de Wit, M.P.T.1    Berlo, S.E.2    Aanerud, G.J.3
  • 19
    • 85018527988 scopus 로고    scopus 로고
    • A way to success, EULAR—The reference cards explained
    • Caeyer, N., & de Wit, M. (2013). Patient Involvement in Research: A way to success. EULAR—The reference cards explained. http://www.eular.org/myUploadData/files/Reference_cards_explained_Booklet_pages_23-08-13_1.pdf. Accessed 23 June 2016.
    • (2013) Patient Involvement in Research
    • Caeyer, N.1    de Wit, M.2
  • 20
    • 85011915866 scopus 로고    scopus 로고
    • Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP
    • PID: 25877496
    • Cheung, P. P., deWit, M., Bingham, C. O., 3rd, Kirwan, J. R., Leong, A., March, L. M., et al. (2016). Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP. Journal of Rheumatology, 43(1), 187–193.
    • (2016) Journal of Rheumatology , vol.43 , Issue.1 , pp. 187-193
    • Cheung, P.P.1    deWit, M.2    Bingham, C.O.3    Kirwan, J.R.4    Leong, A.5    March, L.M.6    Montie, P.7    Scholte-Voshaar, M.8    Gossec, L.9
  • 22
    • 85018471232 scopus 로고    scopus 로고
    • ReseArch with Patient and Pulich involvement
    • Accessed 26 July 2016
    • ReseArch with Patient and Pulich involvement: A RealisT evaluation—The RAPPORT study. Health Services and Delivery Research, Vol 3, Issue 38. September 2015. ISSN 2050-4349. http://www.journalslibrary.nihr.ac.uk/__data/assets/pdf_file/0009/152298/FullReport-hsdr03380.pdf. Accessed 26 July 2016.
    • (2015) A RealisT evaluation—The RAPPORT study. Health Services and Delivery Research , vol.3 , pp. 38


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.