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Volumn 42, Issue 2, 2016, Pages 153-175

Child and youth experiences and perspectives of cerebral palsy: A qualitative systematic review

Author keywords

Cerebral palsy; Qualitative synthesis; Youth

Indexed keywords

ADOLESCENT; CEREBRAL PALSY; CHILD; COPING BEHAVIOR; DAILY LIFE ACTIVITY; FEMALE; HANDICAPPED CHILD; HUMAN; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; MALE; PATHOPHYSIOLOGY; PRESCHOOL CHILD; PSYCHOLOGY; QUALITATIVE RESEARCH; RECREATION; SOCIAL PARTICIPATION; YOUNG ADULT;

EID: 85000607415     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/cch.12309     Document Type: Review
Times cited : (58)

References (57)
  • 1
    • 84877295345 scopus 로고    scopus 로고
    • Mental health in children with cerebral palsy: does screening capture the complexity?
    • Bjorgaas, H., Elgen, I., Boe, T. & Hysing, M. (2013) Mental health in children with cerebral palsy: does screening capture the complexity? Scientific World Journal, 1-7.
    • (2013) Scientific World Journal , pp. 1-7
    • Bjorgaas, H.1    Elgen, I.2    Boe, T.3    Hysing, M.4
  • 2
    • 84922568457 scopus 로고    scopus 로고
    • Living in transition: experiences of health and well-being and the needs of adolescents with cerebral palsy
    • Bjorquist, E., Nordmark, E. & Hallstrom, I. (2016) Living in transition: experiences of health and well-being and the needs of adolescents with cerebral palsy. Child: Care, Health & Development, 41, 258-265.
    • (2016) Child: Care, Health & Development , vol.41 , pp. 258-265
    • Bjorquist, E.1    Nordmark, E.2    Hallstrom, I.3
  • 4
    • 84886422041 scopus 로고    scopus 로고
    • The bodily experience of cerebral palsy: a journey to self-awareness
    • Brunton, L. & Bartlett, D. (2013) The bodily experience of cerebral palsy: a journey to self-awareness. Disability & Rehabilitation, 35, 1981-1990.
    • (2013) Disability & Rehabilitation , vol.35 , pp. 1981-1990
    • Brunton, L.1    Bartlett, D.2
  • 5
    • 0020321030 scopus 로고
    • Chronic illness as biographical disruption
    • Bury, M. (1982) Chronic illness as biographical disruption. Sociology of Health & Illness, 4, 167-182.
    • (1982) Sociology of Health & Illness , vol.4 , pp. 167-182
    • Bury, M.1
  • 6
    • 34249776369 scopus 로고    scopus 로고
    • Being in pain: a phenomenological study of young people with cerebral palsy
    • Castle, K., Imms, C. & Howie, L. (2007) Being in pain: a phenomenological study of young people with cerebral palsy. Developmental Medicine & Child Neurology, 49, 445-449.
    • (2007) Developmental Medicine & Child Neurology , vol.49 , pp. 445-449
    • Castle, K.1    Imms, C.2    Howie, L.3
  • 7
    • 85000459393 scopus 로고    scopus 로고
    • Critical appraisal skills programme..Accessed September 4, 2014
    • Critical Appraisal Skills Programme International. (2010) Critical appraisal skills programme. http://www.caspinternational.org/?o=1012. Accessed September 4, 2014.
    • (2010)
  • 9
    • 84867289668 scopus 로고    scopus 로고
    • Looking to the future: adolescents with cerebral palsy talk about their aspirations: a narrative study
    • Cussen, A., Howie, L. & Imms, C. (2012) Looking to the future: adolescents with cerebral palsy talk about their aspirations: a narrative study. Disability & Rehabilitation, 34, 2103-2110.
    • (2012) Disability & Rehabilitation , vol.34 , pp. 2103-2110
    • Cussen, A.1    Howie, L.2    Imms, C.3
  • 11
    • 63349099503 scopus 로고    scopus 로고
    • Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents
    • Davis, E., Shelly, A., Waters, E., et al. (2009) Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents. Developmental Medicine & Child Neurology, 51, 193-199.
    • (2009) Developmental Medicine & Child Neurology , vol.51 , pp. 193-199
    • Davis, E.1    Shelly, A.2    Waters, E.3
  • 12
    • 0038772392 scopus 로고    scopus 로고
    • Managing chronic pain in children and adolescents: we need to address the embarrassing lack of data for this common problem
    • Eccleston, C. & Malleson, P. (2003) Managing chronic pain in children and adolescents: we need to address the embarrassing lack of data for this common problem. British Medical Journal, 326, 1408-1409.
    • (2003) British Medical Journal , vol.326 , pp. 1408-1409
    • Eccleston, C.1    Malleson, P.2
  • 14
    • 34547575194 scopus 로고    scopus 로고
    • Young people's experiences using electric powered indoor-outdoor wheelchairs (EPIOCs): potential for enhancing users' development?
    • Evans S., Neophytou, C., Souza, L. & Frank, A. (2007) Young people's experiences using electric powered indoor-outdoor wheelchairs (EPIOCs): potential for enhancing users' development? Disability & Rehabilitation, 29, 1281-1294.
    • (2007) Disability & Rehabilitation , vol.29 , pp. 1281-1294
    • Evans, S.1    Neophytou, C.2    Souza, L.3    Frank, A.4
  • 15
    • 0141653826 scopus 로고    scopus 로고
    • 'I value what you have to say': seeking the perspective of children with a disability, not just their parents
    • Garth, B. & Aroni, R. (2003) 'I value what you have to say': seeking the perspective of children with a disability, not just their parents. Disability & Society, 18, 561-576.
    • (2003) Disability & Society , vol.18 , pp. 561-576
    • Garth, B.1    Aroni, R.2
  • 16
    • 84155167897 scopus 로고    scopus 로고
    • Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy
    • Gibson, B., Teachman, G., Wright, V., Fehlings, D., Young, N. & McKeever, P. (2011) Children's and parents' beliefs regarding the value of walking: rehabilitation implications for children with cerebral palsy. Child: Care, Health & Development, 38, 61-69.
    • (2011) Child: Care, Health & Development , vol.38 , pp. 61-69
    • Gibson, B.1    Teachman, G.2    Wright, V.3    Fehlings, D.4    Young, N.5    McKeever, P.6
  • 17
    • 63149140835 scopus 로고    scopus 로고
    • Association between bullying and psychosomatic problems: a meta-analysis
    • Gini, G. & Pozzoli, T. (2009) Association between bullying and psychosomatic problems: a meta-analysis. Pediatrics, 123, 1059-1065.
    • (2009) Pediatrics , vol.123 , pp. 1059-1065
    • Gini, G.1    Pozzoli, T.2
  • 18
    • 35648934584 scopus 로고    scopus 로고
    • Health issues in young adults with cerebral palsy: towards a life-span perspective
    • Hilberink, S., Roebroeck, M., Nieuwstraten, W., et al. (2007) Health issues in young adults with cerebral palsy: towards a life-span perspective. Journal of Rehabilitation Medicine, 39, 605-611.
    • (2007) Journal of Rehabilitation Medicine , vol.39 , pp. 605-611
    • Hilberink, S.1    Roebroeck, M.2    Nieuwstraten, W.3
  • 19
    • 68549113059 scopus 로고    scopus 로고
    • Assistive devices and cerebral palsy: the use of assistive devices at school by children with cerebral palsy
    • Huang, I., Sugden, D. & Beveridge, S. (2009) Assistive devices and cerebral palsy: the use of assistive devices at school by children with cerebral palsy. Child: Care, Health & Development, 35, 698-708.
    • (2009) Child: Care, Health & Development , vol.35 , pp. 698-708
    • Huang, I.1    Sugden, D.2    Beveridge, S.3
  • 21
    • 79956373305 scopus 로고    scopus 로고
    • "I do a lot of things": children with cerebral palsy's competence for everyday activities
    • Kramer, J. & Hammel, J. (2011) "I do a lot of things": children with cerebral palsy's competence for everyday activities. International Journal of Disability & Developmental Education, 58, 121-136.
    • (2011) International Journal of Disability & Developmental Education , vol.58 , pp. 121-136
    • Kramer, J.1    Hammel, J.2
  • 22
    • 77649098567 scopus 로고    scopus 로고
    • Prioritizing illness: Self-managing multiple chronic diseases
    • Lindsay, S. (2009) Prioritizing illness: Self-managing multiple chronic diseases. Canadian Journal of Sociology, 34, 983-1002.
    • (2009) Canadian Journal of Sociology , vol.34 , pp. 983-1002
    • Lindsay, S.1
  • 23
    • 84881535995 scopus 로고    scopus 로고
    • Perspectives of adolescents with cerebral palsy on the ethical and social challenges encountered in healthcare services
    • Lariviere-Bastien, D., Majnemer, A., Shevell, M. & Racine, E. (2011) Perspectives of adolescents with cerebral palsy on the ethical and social challenges encountered in healthcare services. Narrative Inquiry and Bioethics, 1, 43-54.
    • (2011) Narrative Inquiry and Bioethics , vol.1 , pp. 43-54
    • Lariviere-Bastien, D.1    Majnemer, A.2    Shevell, M.3    Racine, E.4
  • 25
    • 84907194851 scopus 로고    scopus 로고
    • A qualitative synthesis of adolescents' experiences of living with spina bifida
    • Lindsay, S. (2014) A qualitative synthesis of adolescents' experiences of living with spina bifida. Qualitative Health Research, 24, 1298-1309.
    • (2014) Qualitative Health Research , vol.24 , pp. 1298-1309
    • Lindsay, S.1
  • 26
    • 82955207512 scopus 로고    scopus 로고
    • Experiences of social exclusion and bullying at school among children and youth with cerebral palsy
    • Lindsay S. & McPherson, A. (2012a) Experiences of social exclusion and bullying at school among children and youth with cerebral palsy. Disability & Rehabilitation, 34, 101-109.
    • (2012) Disability & Rehabilitation , vol.34 , pp. 101-109
    • Lindsay, S.1    McPherson, A.2
  • 27
    • 84867402372 scopus 로고    scopus 로고
    • Strategies for disability awareness and social inclusion: listening to the voices of children with cerebral palsy
    • Lindsay S. & McPherson, A. (2012b) Strategies for disability awareness and social inclusion: listening to the voices of children with cerebral palsy. Child: Care, Health & Development, 38, 809-816.
    • (2012) Child: Care, Health & Development , vol.38 , pp. 809-816
    • Lindsay, S.1    McPherson, A.2
  • 28
    • 84889262762 scopus 로고    scopus 로고
    • Disclosure and accommodations at work among people with disabilities
    • Lindsay, S., McDougall, C. & Sanford, R. (2013) Disclosure and accommodations at work among people with disabilities. Disability & Rehabilitation, 35, 2227-2236.
    • (2013) Disability & Rehabilitation , vol.35 , pp. 2227-2236
    • Lindsay, S.1    McDougall, C.2    Sanford, R.3
  • 29
    • 84893095649 scopus 로고    scopus 로고
    • A systematic review of self-management interventions for children and youth with physical disabilities
    • Lindsay, S., Kingsnorth, S., McDougall, C. & Keating, H. (2014) A systematic review of self-management interventions for children and youth with physical disabilities. Disability & Rehabilitation, 36, 276-288.
    • (2014) Disability & Rehabilitation , vol.36 , pp. 276-288
    • Lindsay, S.1    Kingsnorth, S.2    McDougall, C.3    Keating, H.4
  • 30
    • 84924706343 scopus 로고    scopus 로고
    • An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers and job counselors
    • Lindsay, S., McDougall, C., Menna-Dack, D., Sanford, R. & Adams, T. (2015) An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers and job counselors. Disability & Rehabilitation, 37, 701-711.
    • (2015) Disability & Rehabilitation , vol.37 , pp. 701-711
    • Lindsay, S.1    McDougall, C.2    Menna-Dack, D.3    Sanford, R.4    Adams, T.5
  • 31
    • 85000864262 scopus 로고    scopus 로고
    • Weather, disability, vulnerability and resilience: exploring how youth with a physical disability experience winter
    • early online
    • Lindsay, S. & Yantzi, N. (2015) Weather, disability, vulnerability and resilience: exploring how youth with a physical disability experience winter. Disability & Rehabilitationearly online.
    • (2015) Disability & Rehabilitation
    • Lindsay, S.1    Yantzi, N.2
  • 32
    • 27344440408 scopus 로고    scopus 로고
    • Beginning the transition to adulthood: the experiences of six families with youths with cerebral palsy
    • Magill-Evans, J., Wiart, L., Darrah, J. & Kratochvil M. (2005) Beginning the transition to adulthood: the experiences of six families with youths with cerebral palsy. Physical & Occupational Therapy Pediatrics, 25, 19-36.
    • (2005) Physical & Occupational Therapy Pediatrics , vol.25 , pp. 19-36
    • Magill-Evans, J.1    Wiart, L.2    Darrah, J.3    Kratochvil, M.4
  • 33
    • 0141496362 scopus 로고    scopus 로고
    • A qualitative analysis of the benefits of strength training for young people with cerebral palsy
    • McBurney, H., Taylor, N., Dodd, K. & Kerr, G. (2003) A qualitative analysis of the benefits of strength training for young people with cerebral palsy. Developmental Medicine & Child Neurology, 45, 658-664.
    • (2003) Developmental Medicine & Child Neurology , vol.45 , pp. 658-664
    • McBurney, H.1    Taylor, N.2    Dodd, K.3    Kerr, G.4
  • 34
    • 84907069762 scopus 로고    scopus 로고
    • The unfinished body: the medical and social reshaping of disabled young bodies
    • McLaughlin, J. & Coleman-Fountain, E. (2014) The unfinished body: the medical and social reshaping of disabled young bodies. Social Science & Medicine, 120, 76-84.
    • (2014) Social Science & Medicine , vol.120 , pp. 76-84
    • McLaughlin, J.1    Coleman-Fountain, E.2
  • 37
    • 84871434158 scopus 로고    scopus 로고
    • Adapted bikes: what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling
    • Pickering, D., Horrocks, L., Visser, K. & Todd, G. (2013a) Adapted bikes: what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling. Disability & Rehabilitation: Assistive Technology, 8, 30-37.
    • (2013) Disability & Rehabilitation: Assistive Technology , vol.8 , pp. 30-37
    • Pickering, D.1    Horrocks, L.2    Visser, K.3    Todd, G.4
  • 38
    • 84890549420 scopus 로고    scopus 로고
    • Every picture tells a story: interviews and diaries with children with cerebral palsy about adapted cycling
    • Pickering, D., Horrocks, L., Visser, K. & Todd, G. (2013b) Every picture tells a story: interviews and diaries with children with cerebral palsy about adapted cycling. Journal of Pediatrics & Child Health, 49, 1040-1044.
    • (2013) Journal of Pediatrics & Child Health , vol.49 , pp. 1040-1044
    • Pickering, D.1    Horrocks, L.2    Visser, K.3    Todd, G.4
  • 39
    • 84884980434 scopus 로고    scopus 로고
    • Respect for autonomy in the health care context: observations from a qualitative study of young adults with cerebral palsy
    • Racine, E., Lariviere-Bastien, D., Bell, E., Majnemer, A. & Shevell, M. (2012) Respect for autonomy in the health care context: observations from a qualitative study of young adults with cerebral palsy. Child: Care, Health & Development, 39, 873-879.
    • (2012) Child: Care, Health & Development , vol.39 , pp. 873-879
    • Racine, E.1    Lariviere-Bastien, D.2    Bell, E.3    Majnemer, A.4    Shevell, M.5
  • 44
    • 84905719422 scopus 로고    scopus 로고
    • 'He does not see himself as being different': the perspectives of children and caregivers on relevant areas functioning in cerebral palsy
    • Schiariti, V., Sauve, K., Klassen, A., O'Donnell, M., Cieza, A. & Masse, L. (2014) 'He does not see himself as being different': the perspectives of children and caregivers on relevant areas functioning in cerebral palsy. Developmental Medicine & Child Neurology, 56, 853-861.
    • (2014) Developmental Medicine & Child Neurology , vol.56 , pp. 853-861
    • Schiariti, V.1    Sauve, K.2    Klassen, A.3    O'Donnell, M.4    Cieza, A.5    Masse, L.6
  • 45
    • 69249208549 scopus 로고    scopus 로고
    • Quality of life from the perspective of adolescents with cerebral palsy: 'I just think I'm a normal kid and happen to have a disability
    • Shikako-Thomas, K., Lach, L., Majnemer, A. & Nimigon, J. (2009) Quality of life from the perspective of adolescents with cerebral palsy: 'I just think I'm a normal kid and happen to have a disability. Qualitative Life Research, 18, 825-832.
    • (2009) Qualitative Life Research , vol.18 , pp. 825-832
    • Shikako-Thomas, K.1    Lach, L.2    Majnemer, A.3    Nimigon, J.4
  • 46
    • 34447510943 scopus 로고    scopus 로고
    • Experiences of use of the cerebral palsy hemiplegic hand in young persons treated with upper extremity surgery
    • Skold, A., Josephsson, S. & Eliasson, A. (2007) Experiences of use of the cerebral palsy hemiplegic hand in young persons treated with upper extremity surgery. Journal of Hand Therapy, 20, 262-273.
    • (2007) Journal of Hand Therapy , vol.20 , pp. 262-273
    • Skold, A.1    Josephsson, S.2    Eliasson, A.3
  • 47
    • 84885449136 scopus 로고    scopus 로고
    • "It's the participation that motivates him": physical activity experiences of youth with cerebral palsy and their parents
    • Shimmell, L., Gorter, J., Jackson, D., Wright, M. & Galuppi, B. (2013) "It's the participation that motivates him": physical activity experiences of youth with cerebral palsy and their parents. Physical & Occupational Therapy in Pediatrics, 33, 405-420.
    • (2013) Physical & Occupational Therapy in Pediatrics , vol.33 , pp. 405-420
    • Shimmell, L.1    Gorter, J.2    Jackson, D.3    Wright, M.4    Galuppi, B.5
  • 48
    • 84859518840 scopus 로고    scopus 로고
    • Social participation of adolescents with cerebral palsy: trade-offs and choices
    • Stewart, D., Lawless, J., Shimmell, L., et al. (2012) Social participation of adolescents with cerebral palsy: trade-offs and choices. Physical & Occupational Therapy in Pediatrics, 32, 167-179.
    • (2012) Physical & Occupational Therapy in Pediatrics , vol.32 , pp. 167-179
    • Stewart, D.1    Lawless, J.2    Shimmell, L.3
  • 49
    • 84865582096 scopus 로고    scopus 로고
    • Children's experiences of living with juvenile idiopathic arthritis: thematic synthesis of qualitative studies
    • Tong, A., Jones, C. & Singh-Grewal, D. (2012) Children's experiences of living with juvenile idiopathic arthritis: thematic synthesis of qualitative studies. Arthritis Care Research, 64, 1392-1404.
    • (2012) Arthritis Care Research , vol.64 , pp. 1392-1404
    • Tong, A.1    Jones, C.2    Singh-Grewal, D.3
  • 51
    • 84865311378 scopus 로고    scopus 로고
    • Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy
    • Verschuren, O., Wiart L., Hermans D. & Ketelaar M. (2012) Identification of facilitators and barriers to physical activity in children and adolescents with cerebral palsy. Journal of Pediatrics, 161, 488-494.
    • (2012) Journal of Pediatrics , vol.161 , pp. 488-494
    • Verschuren, O.1    Wiart, L.2    Hermans, D.3    Ketelaar, M.4
  • 52
    • 84881331705 scopus 로고    scopus 로고
    • Stages of change in physical activity behavior in children and adolescents with cerebral palsy
    • Verschuren, O., Wiart, L. & Ketelaar, M. (2013) Stages of change in physical activity behavior in children and adolescents with cerebral palsy. Disability & Rehabilitation, 35, 1630-1635.
    • (2013) Disability & Rehabilitation , vol.35 , pp. 1630-1635
    • Verschuren, O.1    Wiart, L.2    Ketelaar, M.3
  • 53
    • 70350034019 scopus 로고    scopus 로고
    • I've never not had it so I don't really know what it's like not to: nondifference and biographical disruption among children and young people with cystic fibrosis
    • Williams, B., Corlett, J., Dowell, J., Coyle, J. & Mukopadhyay, S. (2009) I've never not had it so I don't really know what it's like not to: nondifference and biographical disruption among children and young people with cystic fibrosis. Qualitative Health Research, 19, 1443-1455.
    • (2009) Qualitative Health Research , vol.19 , pp. 1443-1455
    • Williams, B.1    Corlett, J.2    Dowell, J.3    Coyle, J.4    Mukopadhyay, S.5
  • 55
    • 84891447785 scopus 로고    scopus 로고
    • Pain, pain anxiety and emotional and behavioural problems in children with cerebral palsy
    • Yamaguchi, R., Perry, N. & Hines, M. (2014) Pain, pain anxiety and emotional and behavioural problems in children with cerebral palsy. Disability & Rehabilitation, 36, 125-130.
    • (2014) Disability & Rehabilitation , vol.36 , pp. 125-130
    • Yamaguchi, R.1    Perry, N.2    Hines, M.3
  • 57
    • 70450193771 scopus 로고    scopus 로고
    • Transition to adult-oriented health care: perspectives of youth and young adults with complex physical disabilities
    • Young, N., Barden, W., Mills, W., Burke, T., Law, M. & Boydell, K. (2009) Transition to adult-oriented health care: perspectives of youth and young adults with complex physical disabilities. Physical & Occupational Therapy in Pediatrics, 29, 345-361.
    • (2009) Physical & Occupational Therapy in Pediatrics , vol.29 , pp. 345-361
    • Young, N.1    Barden, W.2    Mills, W.3    Burke, T.4    Law, M.5    Boydell, K.6


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