메뉴 건너뛰기




Volumn 30, Issue 10, 2016, Pages 950-959

Lived experiences of parents caring for a child with a life-limiting condition in Australia: A qualitative study

Author keywords

caregiver; experiences; life limiting condition; Paediatric palliative care; qualitative

Indexed keywords

ADOLESCENT; AUSTRALIA; CAREGIVER; CHILD; CLINICAL ARTICLE; CONTROLLED STUDY; DNA TRANSCRIPTION; GRIEF; HOSPICE; HUMAN; HUMAN TISSUE; PALLIATIVE THERAPY; PERSONAL EXPERIENCE; QUALITATIVE RESEARCH; RESPONSIBILITY; SOCIAL ISOLATION; SOCIAL SUPPORT; THEMATIC ANALYSIS; TRAVEL; WELLBEING; CHILD PARENT RELATION; CROSS-SECTIONAL STUDY; FEMALE; MALE; PARENT; PROSPECTIVE STUDY;

EID: 84995741388     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216316634245     Document Type: Article
Times cited : (75)

References (33)
  • 1
    • 0141595075 scopus 로고    scopus 로고
    • The dying child: How is care different?
    • Hynson JL, Gillis J, Collins JJ, et al. The dying child: how is care different? Med J Aust 2003; 179 (6): S20-S22.
    • (2003) Med J Aust , vol.179 , Issue.6 , pp. S20-S22
    • Hynson, J.L.1    Gillis, J.2    Collins, J.J.3
  • 3
    • 78650288229 scopus 로고    scopus 로고
    • Disease trajectories and ACT/RCPCH categories in paediatric palliative care
    • Wood F, Simpson S, Barnes E, et al. Disease trajectories and ACT/RCPCH categories in paediatric palliative care. Palliat Med 2010; 24 (8): 796-806.
    • (2010) Palliat Med , vol.24 , Issue.8 , pp. 796-806
    • Wood, F.1    Simpson, S.2    Barnes, E.3
  • 4
    • 84901003094 scopus 로고    scopus 로고
    • Patterns of diagnoses among children and young adults with life-limiting conditions: A secondary analysis of a national dataset
    • Fraser LK, Lidstone V, Miller M, et al. Patterns of diagnoses among children and young adults with life-limiting conditions: a secondary analysis of a national dataset. Palliat Med 2014; 28 (6): 513-520.
    • (2014) Palliat Med , vol.28 , Issue.6 , pp. 513-520
    • Fraser, L.K.1    Lidstone, V.2    Miller, M.3
  • 5
    • 84859412442 scopus 로고    scopus 로고
    • Rising national prevalence of life-limiting conditions in children in England
    • Fraser LK, Miller M, Hain R, et al. Rising national prevalence of life-limiting conditions in children in England. Pediatrics 2012; 129 (4): e923-e929.
    • (2012) Pediatrics , vol.129 , Issue.4 , pp. e923-e929
    • Fraser, L.K.1    Miller, M.2    Hain, R.3
  • 6
    • 40349102014 scopus 로고    scopus 로고
    • Paediatric palliative care: Challenges and emerging ideas
    • Liben S, Papadatou D, Wolfe J,. Paediatric palliative care: challenges and emerging ideas. Lancet 2008; 371 (9615): 852-864.
    • (2008) Lancet , vol.371 , Issue.9615 , pp. 852-864
    • Liben, S.1    Papadatou, D.2    Wolfe, J.3
  • 7
    • 67650710996 scopus 로고    scopus 로고
    • Health among caregivers of children with health problems: Findings from a Canadian population-based study
    • Brehaut JC, Kohen DE, Garner RE, et al. Health among caregivers of children with health problems: findings from a Canadian population-based study. Am J Public Health 2009; 99 (7): 1254-1262.
    • (2009) Am J Public Health , vol.99 , Issue.7 , pp. 1254-1262
    • Brehaut, J.C.1    Kohen, D.E.2    Garner, R.E.3
  • 8
    • 84923417463 scopus 로고    scopus 로고
    • A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions
    • Remedios C, Willenberg L, Zordan R, et al. A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions. Palliat Med 2015; 29 (3): 223-230.
    • (2015) Palliat Med , vol.29 , Issue.3 , pp. 223-230
    • Remedios, C.1    Willenberg, L.2    Zordan, R.3
  • 9
    • 0037308527 scopus 로고    scopus 로고
    • Mortality in parents after death of a child in Denmark: A nationwide follow-up study
    • Li J, Precht DH, Mortensen PB, et al. Mortality in parents after death of a child in Denmark: a nationwide follow-up study. Lancet 2003; 361 (9355): 363-367.
    • (2003) Lancet , vol.361 , Issue.9355 , pp. 363-367
    • Li, J.1    Precht, D.H.2    Mortensen, P.B.3
  • 10
    • 0034000715 scopus 로고    scopus 로고
    • Predictors of distress in parents of children with cancer: A prospective study
    • Sloper P,. Predictors of distress in parents of children with cancer: a prospective study. J Pediatr Psychol 2000; 25 (2): 79-91.
    • (2000) J Pediatr Psychol , vol.25 , Issue.2 , pp. 79-91
    • Sloper, P.1
  • 11
    • 77954427276 scopus 로고    scopus 로고
    • Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure
    • Wiedebusch S, Konrad M, Foppe H, et al. Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure. Pediatr Nephrol 2010; 25 (8): 1477-1485.
    • (2010) Pediatr Nephrol , vol.25 , Issue.8 , pp. 1477-1485
    • Wiedebusch, S.1    Konrad, M.2    Foppe, H.3
  • 12
    • 79956117581 scopus 로고    scopus 로고
    • Differences on psychosocial outcomes between male and female caregivers of children with life-limiting illnesses
    • Schneider M, Steele R, Cadell S, et al. Differences on psychosocial outcomes between male and female caregivers of children with life-limiting illnesses. J Pediatr Nurs 2011; 26 (3): 186-199.
    • (2011) J Pediatr Nurs , vol.26 , Issue.3 , pp. 186-199
    • Schneider, M.1    Steele, R.2    Cadell, S.3
  • 13
    • 58049194305 scopus 로고    scopus 로고
    • Impact of caring for a child with cancer on parents' health-related quality of life
    • Klassen AF, Klaassen R, Dix D, et al. Impact of caring for a child with cancer on parents' health-related quality of life. J Clin Oncol 2008; 26 (36): 5884-5889.
    • (2008) J Clin Oncol , vol.26 , Issue.36 , pp. 5884-5889
    • Klassen, A.F.1    Klaassen, R.2    Dix, D.3
  • 14
    • 33750601503 scopus 로고    scopus 로고
    • The impact of newly diagnosed chronic paediatric conditions on parental quality of life
    • Goldbeck L,. The impact of newly diagnosed chronic paediatric conditions on parental quality of life. Qual Life Res 2006; 15 (7): 1121-1131.
    • (2006) Qual Life Res , vol.15 , Issue.7 , pp. 1121-1131
    • Goldbeck, L.1
  • 15
    • 40449139759 scopus 로고    scopus 로고
    • Supportive and palliative care needs of families of children who die from cancer: An Australian study
    • Monterosso L, Kristjanson LJ,. Supportive and palliative care needs of families of children who die from cancer: an Australian study. Palliat Med 2008; 22 (1): 59-69.
    • (2008) Palliat Med , vol.22 , Issue.1 , pp. 59-69
    • Monterosso, L.1    Kristjanson, L.J.2
  • 16
    • 38549139985 scopus 로고    scopus 로고
    • Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: Evidence to guide the development of a palliative care service
    • Monterosso L, Kristjanson LJ, Aoun S, et al. Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service. Palliat Med 2007; 21 (8): 689-696.
    • (2007) Palliat Med , vol.21 , Issue.8 , pp. 689-696
    • Monterosso, L.1    Kristjanson, L.J.2    Aoun, S.3
  • 17
    • 23144459848 scopus 로고    scopus 로고
    • Survey of psychosocial support provided by UK paediatric oncology centres
    • Mitchell W, Clarke S, Sloper P,. Survey of psychosocial support provided by UK paediatric oncology centres. Arch Dis Child 2005; 90 (8): 796-800.
    • (2005) Arch Dis Child , vol.90 , Issue.8 , pp. 796-800
    • Mitchell, W.1    Clarke, S.2    Sloper, P.3
  • 18
    • 84155172526 scopus 로고    scopus 로고
    • An exploration of parents' and young people's perspectives of hospice support
    • Kirk S, Pritchard E,. An exploration of parents' and young people's perspectives of hospice support. Child Care Health Dev 2012; 38 (1): 32-40.
    • (2012) Child Care Health Dev , vol.38 , Issue.1 , pp. 32-40
    • Kirk, S.1    Pritchard, E.2
  • 19
    • 0036383520 scopus 로고    scopus 로고
    • Do children with non-malignant life-threatening conditions receive effective palliative care? A pragmatic evaluation of a local service
    • Horrocks S, Somerset M, Salisbury C,. Do children with non-malignant life-threatening conditions receive effective palliative care? A pragmatic evaluation of a local service. Palliat Med 2002; 16 (5): 410-416.
    • (2002) Palliat Med , vol.16 , Issue.5 , pp. 410-416
    • Horrocks, S.1    Somerset, M.2    Salisbury, C.3
  • 20
    • 33644869771 scopus 로고    scopus 로고
    • The psychosocial well-being of children with chronic disease, their parents and siblings: An overview of the research evidence base
    • Barlow JH, Ellard DR,. The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child Care Health Dev 2006; 32 (1): 19-31.
    • (2006) Child Care Health Dev , vol.32 , Issue.1 , pp. 19-31
    • Barlow, J.H.1    Ellard, D.R.2
  • 21
    • 84878847575 scopus 로고    scopus 로고
    • Comparing the needs of families of children dying from malignant and non-malignant disease: An in-depth qualitative study
    • Price J, Jordan J, Prior L, et al. Comparing the needs of families of children dying from malignant and non-malignant disease: an in-depth qualitative study. BMJ Support Palliat Care 2012; 2 (2): 127-132.
    • (2012) BMJ Support Palliat Care , vol.2 , Issue.2 , pp. 127-132
    • Price, J.1    Jordan, J.2    Prior, L.3
  • 22
    • 84871664813 scopus 로고    scopus 로고
    • Living in the in-between: Families caring for a child with a progressive neurodegenerative illness
    • Rallison LB, Raffin-Bouchal S,. Living in the in-between: families caring for a child with a progressive neurodegenerative illness. Qual Health Res 2013; 23 (2): 194-206.
    • (2013) Qual Health Res , vol.23 , Issue.2 , pp. 194-206
    • Rallison, L.B.1    Raffin-Bouchal, S.2
  • 23
    • 33947718407 scopus 로고    scopus 로고
    • Impact on parents when a child has a progressive, life-threatening illness
    • Steele R, Davies B,. Impact on parents when a child has a progressive, life-threatening illness. Int J Palliat Nurs 2006; 12 (12): 576-585.
    • (2006) Int J Palliat Nurs , vol.12 , Issue.12 , pp. 576-585
    • Steele, R.1    Davies, B.2
  • 24
    • 78651501293 scopus 로고    scopus 로고
    • Parental experience at the end-of-life in children with cancer: 'Preservation' and 'letting go' in relation to loss
    • Kars MC, Grypdonck MH, de Korte-Verhoef MC, et al. Parental experience at the end-of-life in children with cancer: 'preservation' and 'letting go' in relation to loss. Support Care Cancer 2011; 19 (1): 27-35.
    • (2011) Support Care Cancer , vol.19 , Issue.1 , pp. 27-35
    • Kars, M.C.1    Grypdonck, M.H.2    De Korte-Verhoef, M.C.3
  • 25
    • 74849087796 scopus 로고    scopus 로고
    • Parental and child perspectives on adaptation to childhood chronic illness: A qualitative study
    • Gannoni AF, Shute RH,. Parental and child perspectives on adaptation to childhood chronic illness: a qualitative study. Clin Child Psychol Psychiatry 2010; 15 (1): 39-53.
    • (2010) Clin Child Psychol Psychiatry , vol.15 , Issue.1 , pp. 39-53
    • Gannoni, A.F.1    Shute, R.H.2
  • 26
    • 70350680501 scopus 로고    scopus 로고
    • Quality of care at the end of life in children with cancer
    • Heath JA, Clarke NE, McCarthy M, et al. Quality of care at the end of life in children with cancer. J Paediatr Child Health 2009; 45 (11): 656-659.
    • (2009) J Paediatr Child Health , vol.45 , Issue.11 , pp. 656-659
    • Heath, J.A.1    Clarke, N.E.2    McCarthy, M.3
  • 27
    • 77956174750 scopus 로고    scopus 로고
    • The meaning of cost for families of children with congenital heart disease
    • Connor JA, Kline NE, Mott S, et al. The meaning of cost for families of children with congenital heart disease. J Pediatr Health Care 2010; 24 (5): 318-325.
    • (2010) J Pediatr Health Care , vol.24 , Issue.5 , pp. 318-325
    • Connor, J.A.1    Kline, N.E.2    Mott, S.3
  • 28
    • 36549063576 scopus 로고    scopus 로고
    • Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups
    • Tong A, Sainsbury P, Craig J,. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health C 2007; 19 (6): 349-357.
    • (2007) Int J Qual Health C , vol.19 , Issue.6 , pp. 349-357
    • Tong, A.1    Sainsbury, P.2    Craig, J.3
  • 30
    • 33750505977 scopus 로고    scopus 로고
    • Using thematic analysis in psychology
    • Braun V, Clarke V,. Using thematic analysis in psychology. Qual Res Psychol 2006; 3 (2): 77-101.
    • (2006) Qual Res Psychol , vol.3 , Issue.2 , pp. 77-101
    • Braun, V.1    Clarke, V.2
  • 31
    • 80054894100 scopus 로고    scopus 로고
    • Living through the death of a child: A qualitative study of bereaved parents' experiences
    • Price J, Jordan J, Prior L, et al. Living through the death of a child: a qualitative study of bereaved parents' experiences. Int J Nurs Stud 2011; 48 (11): 1384-1392.
    • (2011) Int J Nurs Stud , vol.48 , Issue.11 , pp. 1384-1392
    • Price, J.1    Jordan, J.2    Prior, L.3
  • 32
    • 33746853428 scopus 로고    scopus 로고
    • Childhood cancer: Its impact and financial costs for Australian families
    • Heath JA, Lintuuran RM, Rigguto G, et al. Childhood cancer: its impact and financial costs for Australian families. Pediatr Hematol Oncol 2006; 23 (5): 439-448.
    • (2006) Pediatr Hematol Oncol , vol.23 , Issue.5 , pp. 439-448
    • Heath, J.A.1    Lintuuran, R.M.2    Rigguto, G.3
  • 33
    • 79952751070 scopus 로고    scopus 로고
    • Unmeasured costs of a child's death: Perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer
    • Dussel V, Bona K, Heath JA, et al. Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer. J Clin Oncol 2011; 29 (8): 1007-1013.
    • (2011) J Clin Oncol , vol.29 , Issue.8 , pp. 1007-1013
    • Dussel, V.1    Bona, K.2    Heath, J.A.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.