Unmeasured costs of a child's death: Perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer

Journal of Clinical Oncology

Volumn 29, Issue 8, 2011, Pages 1007-1013

  Dussel, Veronica ^a   Bona, Kira ^a   Heath, John A ^a   Hilden, Joanne M ^a   Weeks, Jane C ^a   Wolfe, Joanne ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ACCOUNTING; ADULT; ARTICLE; AUSTRALIA; CHILD DEATH; COPING BEHAVIOR; CROSS-SECTIONAL STUDY; ECONOMIC ASPECT; FAMILY; FEMALE; FINANCE; FINANCIAL MANAGEMENT; HEALTH CARE COST; HOUSEHOLD; HUMAN; INCOME; MAJOR CLINICAL STUDY; MALE; NEOPLASM; POVERTY; PRIORITY JOURNAL; RETROSPECTIVE STUDY; UNITED STATES; WORK;

ABSENTEEISM; ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AUSTRALIA; CHILD; CHILD MORTALITY; CHILD, PRESCHOOL; COST CONTROL; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; EMPLOYMENT; FAMILY; FEMALE; FUND RAISING; HOSPITALS, PEDIATRIC; HUMANS; INCOME; MALE; MIDDLE AGED; NEOPLASMS; POVERTY; QUESTIONNAIRES; RETROSPECTIVE STUDIES; TIME FACTORS; UNITED STATES;

EID: 79952751070     PISSN: 0732183X     EISSN: 15277755     Source Type: Journal    
DOI: 10.1200/JCO.2009.27.8960     Document Type: Article

References (26)

1. Kellie SJ, Howard SC: Global child health priorities: What role for paediatric oncologists? Eur J Cancer 44:2388-2396, 2008
2. Lansky SB, Black JL, Cairns NU: Childhood cancer: Medical costs. Cancer 52:762-766, 1983
3. Lansky SB, Cairns NU, Clark GM, et al: Childhood cancer: Nonmedical costs of the illness. Cancer 43:403-408, 1979 (Pubitemid 9128847)
4. Patterson JM, Holm KE, Gurney JG: The impact of childhood cancer on the family: A qualitative analysis of strains, resources, and coping behaviors. Psychooncology 13:390-407, 2004 (Pubitemid 38832605)
5. Eiser C, Upton P: Costs of caring for a child with cancer: A questionnaire survey. Child Care Health Dev 33:455-459, 2007 (Pubitemid 46909333)
6. Heath JA, Lintuuran RM, Rigguto G, et al: Childhood cancer: Its impact and financial costs for Australian families. Pediatr Hematol Oncol 23:439-448, 2006 (Pubitemid 44174051)
7. Bloom BS, Knorr RS, Evans AE: The epidemiology of disease expenses. The costs of caring for children with cancer. JAMA 253:2393-2397, 1985
8. Dockerty JD, Skegg DC, Williams SM: Economic effects of childhood cancer on families. J Paediatr Child Health 39:254-258, 2003 (Pubitemid 36714134)
9. Bodkin CM, Pigott TJ, Mann JR: Financial burden of childhood cancer. B Med J (Clin Res Ed) 284:1542-1544, 1982 (Pubitemid 12100190)
10. Limburg H, Shaw AK, McBride ML: Impact of childhood cancer on parental employment and sources of income: A Canadian pilot study. Pediatr Blood Cancer 51:93-98, 2008 (Pubitemid 351717397)
11. Feudtner C, Silveira MJ, Christakis DA: Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 109:656-660, 2002
12. Wolfe J, Grier HE, Klar N, et al: Symptoms and suffering at the end of life in children with cancer. N Engl J Med 342:326-333, 2000 (Pubitemid 30075247)
13. Mack JW, Joffe S, Hilden JM, et al: Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol 26:4759-4764, 2008
14. Heath JA, Clarke NE, Donath SM, et al: Symptoms and suffering at the end of life in children with cancer: An Australian perspective. Med J Aust 192:71-75, 2010
15. Streiner DL, Norman GR: Health Measurement Scales: A Practical Guide to Their Development and Use (ed 2). New York, NY, Oxford Medical Publications, 1995
16. Smeeding T: Globalization, Inequality and the Rich Countries of the G-20: Evidence from the Luxembourg Income Study (LIS). Luxembourg Income Study (LIS) Working Paper Series, No. 320, July 2002. http://www.lisproject.org/
17. Organisation for Economic Co-operation and Development (OECD), Directorate of Employment, Labour and Social Affairs: What are equivalence scales? OECD Project on Income Distribution and Poverty. http://www.oecd.org/ LongAbstract/0,3425, en-2649-33933-35411112-1-1-1-1,00.html
18. Organisation for Economic Co-operation and Development (OECD): OECD: Stat Extracts - Income distribution. http://stats.oecd.org
19. McIntyre D, Thiede M, Dahlgren G, et al: What are the economic consequences for households of illness and of paying for health care in low-and middle-income country contexts? Soc Sci Med 62:858-865, 2006
20. Xu K, Evans DB, Kawabata K, et al: Household catastrophic health expenditure: A multicountry analysis. Lancet 362:111-117, 2003 (Pubitemid 36831020)
21. Okumura MJ, Van Cleave J, Gnanasekaran S, et al: Understanding factors associated with work loss for families caring for CSHCN. Pediatrics 124: S392-S398, 2009
22. Clemans-Cope L, Perry CD, Kenney GM, et al: Access to and use of paid sick leave among lowincome families with children. Pediatrics 122:e480-e486, 2008
23. Parish SL, Shattuck PT, Rose RA: Financial burden of raising CSHCN: Association with State Policy Choices. Pediatrics 124:S435-S442, 2009
24. Sauerborn R, Adams A, Hien M: Household strategies to cope with the economic costs of illness. Soc Sci Med 43:291-301, 1996
25. Rothman KJ, Greenland S: Precision and Validity in Epidemiologic Studies, in Rothman KJ, Greenland S (eds): Modern epidemiology (ed 2). Philadelphia, PA, Lippincott-Raven, 1998, pp 113-134
26. Galbraith AA, Wong ST, Kim SE, et al: Out-of-pocket financial burden for low-income families with children: Socioeconomic disparities and effects of insurance. Health Serv Res 40:1722-1736, 2005 (Pubitemid 41814233)