Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure

Pediatric Nephrology

Volumn 25, Issue 8, 2010, Pages 1477-1485

  Wiedebusch, Silvia ^a   Konrad, Martin ^a   Foppe, Helmut ^a   Reichwald Klugger, Evelyn ^b   Schaefer, Franz ^b   Schreiber, Vera ^a   Muthny, Fritz A ^a  

^a UNIVERSITY HOSPITAL MÜNSTER   (Germany)

^b UNIVERSITY HOSPITAL HEIDELBERG   (Germany)

Author keywords

Chronic renal failure; Coping; Health related quality of life; Parents; Psychosocial strains

Indexed keywords

ADULT; ARTICLE; CHILD; CHRONIC KIDNEY FAILURE; CONSERVATIVE TREATMENT; COPING BEHAVIOR; FATHER; FEMALE; HUMAN; KIDNEY GRAFT; MAJOR CLINICAL STUDY; MALE; MENTAL STRESS; MOTHER; PARENTAL ATTITUDE; PARENTAL STRESS; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SOCIAL STRESS; ADAPTIVE BEHAVIOR; CROSS-SECTIONAL STUDY; FAMILY; MIDDLE AGED; PARENT; PSYCHOLOGY; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHILD; CROSS-SECTIONAL STUDIES; FAMILY; FATHERS; FEMALE; HUMANS; KIDNEY FAILURE, CHRONIC; MALE; MIDDLE AGED; MOTHERS; PARENTS; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 77954427276     PISSN: 0931041X     EISSN: None     Source Type: Journal    
DOI: 10.1007/s00467-010-1540-z     Document Type: Article

References (30)

1. BJ van der Heijden PC van Dijk K Verrier-Jones KJ Jager JD Briggs 2004 Renal replacement therapy in children: data from 12 registries in Europe Pediatr Nephrol 19 213 221 10.1007/s00467-003-1376-x 14685843
2. MA Lewis J Shaw M Sinha S Adalat F Hussain C Inward 2009 UK renal registry 11th annual report Nephron Clin Pract 111 suppl 1 c257 c267 10.1159/000210002 19542701
3. MD Aldridge 2008 How do families adjust to having a child with chronic kidney failure? A systematic review Nephrol Nurs J 35 157 162 18472684
4. A Tong A Lowe P Sainsbury JC Craig 2008 Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies Pediatrics 121 349 360 10.1542/peds.2006-3470 18245427
5. N Zelikovsky AP Schast D Jean-Francois 2007 Parent stress and coping: waiting for a child to receive a kidney transplant J Clin Psychol Med Settings 14 320 329 10.1007/s10880-007-9084-5
6. SJ Anthony D Hebert L Todd M Korus V Langlois R Pool LA Robinson A Williams SM Pollock-Barziv 2010 Child and parental perspectives of multidimensional quality of life outcomes after kidney transplantation Pediatr Transplant 14 249 256 10.1111/j.1399-3046.2009.01214.x 19686446
7. GS Young L Libman Mintzer D Seacord M Castaneda V Mesrkhani ML Stuber 2003 Symptoms of posttraumatic stress disorder in parents of transplant recipients: incidence, severity, and related factors Pediatrics 111 725 731 10.1542/peds.111.6.e725
8. LM Farley DR DeMaso E D'Angelo C Kinnamon H Bastardi CE Hill ED Blume DE Logan 2007 Parenting stress and parental post-traumatic stress disorder in families after pediatric heart transplantation J Heart Lung Transplant 26 120 126 10.1016/j.healun.2006.11.013 17258144
9. TC Tsai SI Liu JD Tsai LH Chou 2006 Psychosocial effects on caregivers for children on chronic peritoneal dialysis Kidney Int 70 1983 1987 10.1038/sj.ki.5001535 16985519
10. J Heaton J Noyes P Sloper R Shah 2005 Families experiences of caring for technology-dependent children: a temporal perspective Health Soc Care Community 13 441 450 10.1111/j.1365-2524.2005.00571.x 16048532
11. ES de Paula LC Nascimento SM Rocha 2008 Roles assessment in families of children with chronic renal failure on peritoneal dialysis Int J Nurs Pract 14 215 220 10.1111/j.1440-172X.2008.00683.x 18460062
12. G Cimete 2002 Stress factors and coping strategies of parents with children treated by hemodialysis: a qualitative study J Pediatr Nurs 17 297 306 10.1053/jpdn.2002.126712 12219330
13. JE Douglas B Hulson RS Trompeter 1998 Psycho-social outcome of parents and young children after renal transplantation Child Care Health Dev 24 73 83 10.1046/j.1365-2214.1998.00056.x 1:STN:280:DyaK1c7jtVSgsQ%3D%3D 9468781
14. SL Goldstein N Graham T Burwinkle B Warady R Farrah JW Varni 2006 Health-related quality of life in pediatric patients with ESRD Pediatr Nephrol 21 846 850 10.1007/s00467-006-0081-y 16703376
15. MC Chiu CF Ng LP Lee WM Lai SC Lau 2007 Automated peritoneal dialysis in children and adolescents-benefits: a survey of patients and parents on health-related quality of life Perit Dial Int 27 138 142
16. SL Goldstein NM Rosburg BA Warady M Seikaly R McDonald C Limbers JW Varni 2009 Pediatric end stage renal disease health-related quality of life differs by modality: a PedsQL ESRD analysis Pediatr Nephrol 24 1553 1560 10.1007/s00467-009-1174-1 19421787
17. WM Lai 2009 Quality of life in children with end-stage renal disease: does treatment modality matter? Perit Dial Int 29 190 191
18. J Rosenkranz E Reichwald-Klugger J Oh M Turzer O Mehls F Schaefer 2005 Psychosocial rehabilitation and satisfaction with life in adults with childhood-onset of end-stage renal disease Pediatr Nephrol 20 1288 1294 10.1007/s00467-005-1952-3 15942781
19. U Ravens-Sieberer M Morfeld REK Stein DJ Jessop M Bullinger U Thyen 2001 Der Familien-Belastungs-Fragebogen (FaBel-Fragebogen). Testung und Validierung der deutschen Version der "Impact on family scale" bei Familien mit behinderten Kindern Psychother Psychosom Med Psychol 51 384 393 10.1055/s-2001-16899 1:STN:280:DC%2BD3MrmsFOjsA%3D%3D 11533885
20. MP Krause F Petermann 1998 Konstruktion einer Bewältigungsskala für Eltern behinderter Kinder (Soziale Orientierungen von Eltern behinderter Kinder-SOEBEK) Kindheit und Entwicklung 7 112 120
21. Muthny FA (1989) FKV-Freiburger Fragebogen zur Krankheitsverarbeitung. Manual, Hogrefe Verlag, Göttingen
22. L Goldbeck M Storck 2002 Das Ulmer Lebensqualitäts-Inventar für Eltern chronisch kranker Kinder (ULQIE): entwicklung und psychometrische Eigenschaften Z Klin Psychol Psychother 31 31 39 10.1026//1616-3443.31.1.31
23. L Goldbeck 2006 The impact of newly diagnosed chronic paediatric conditions on parental quality of life Qual Life Res 15 1121 1131 10.1007/s11136-006-0068-y 16972156
24. Frei U, Schober-Halstenberg HJ (2008) Nierenersatztherapie in Deutschland. QuaSi Niere gGmbH, Berlin
25. S Wiedebusch FA Muthny 2009 Eltern von chronisch kranken Kindern. Lebensqualität, psychosoziale Belastungen und Bedürfnisse Monatsschr Kinderheilkd 157 903 910 10.1007/s00112-009-1996-8
26. ML Burke GG Eakes MA Hainsworth 1999 Milestones of chronic sorrow: perspectives of chronically ill and bereaved persons and family caregivers J Fam Nurs 5 374 387 10.1177/107484079900500402
27. Roos S (2002) Chronic sorrow: a living loss. Brunner-Routledge, New York
28. L Simons LM Ingerski DM Janicke 2007 Social support, coping, and psychological distress in mothers and fathers of pediatric transplant candidates: a pilot study Pediatr Transplant 11 781 787 10.1111/j.1399-3046. 2007.00726.x 17910657
29. AM Bottos E Zanon MT Sartori A Girolami 2007 Psychological aspects and coping styles of parents with heamophilic child undergoing a programme of counselling and psychological support Haemophilia 13 305 310 10.1111/j.1365-2516.2006.01428.x 1:STN:280:DC%2BD2s3oslOrtw%3D%3D 17498080
30. AL Friedman 2006 The broader burden of end-stage renal disease on children and their families Kidney Int 70 1893 1894 10.1038/sj.ki.5001964 1:STN:280:DC%2BD28npt1Kjtg%3D%3D 17130821