All together now: Findings from a PCORI workshop to align patient-reported outcomes in the electronic health record

Journal of Comparative Effectiveness Research

Volumn 5, Issue 6, 2016, Pages 561-567

  Jensen, Roxanne E ^a,b   Snyder, Claire F ^c,d,e   Basch, Ethan ^f,g   Frank, Lori ^g   Wu, Albert W ^c,d  

^a GEORGETOWN UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b GEORGETOWN UNIVERSITY   (United States)

^c JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^e JOHNS HOPKINS UNIVERSITY   (United States)

^f UNIVERSITY OF NORTH CAROLINA   (United States)

^g Outcomes Research Institute   (United States)

Author keywords

electronic health records; patient reported outcomes; quality of care

Indexed keywords

ADOPTION; CLINICAL PRACTICE; CLINICAL RESEARCH; CONFERENCE PAPER; ELECTRONIC HEALTH RECORD; ELECTRONIC MEDICAL RECORD SYSTEM; HEALTH CARE QUALITY; HEALTH PROMOTION; HUMAN; PATIENT CARE; PATIENT SATISFACTION; PATIENT-REPORTED OUTCOME; PERSONALIZED MEDICINE; POPULATION RESEARCH; PRACTICE GUIDELINE; PRIORITY JOURNAL; WORKSHOP; HEALTH CARE DELIVERY; OUTCOME ASSESSMENT;

DELIVERY OF HEALTH CARE; ELECTRONIC HEALTH RECORDS; HUMANS; PATIENT OUTCOME ASSESSMENT; PATIENT REPORTED OUTCOME MEASURES;

EID: 84992062673     PISSN: 20426305     EISSN: 20426313     Source Type: Journal    
DOI: 10.2217/cer-2016-0026     Document Type: Conference Paper

References (26)

1. Food and Drug Administration, U.S. Department of Health and Human Services. Guidance for industry. Patient-reported outcome measures: use in medical product development to support labeling claims (2009). www.fda.gov/downloads/Drugs/Guidances
2. Acquadro C, Berzon R, Dubois D et al. Incorporating the patient's perspective into drug development and communication: an ad hoc task force report of the Patient-Reported Outcomes (PRO) Harmonization Group meeting at the Food and Drug Administration, February 16, 2001. Value Health 6(5), 522-531 (2003).
3. Rose M, Bezjak A. Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples. Qual. Life Res. 18(1), 125-136 (2009).
4. Snyder CF, Jensen RE, Segal JB, Wu AW. Patient-reported outcomes (PROs): putting the patient perspective in patientcentered outcomes research. Med. Care 51(8 Suppl. 3), S73-S79 (2013).
5. Wu AW, Kharrazi H, Boulware LE, Snyder CF. Measure once, cut twice - adding patient-reported outcome measures to the electronic health record for comparative effectiveness research. J. Clin. Epidemiol. 66(8 Suppl.), S12-S20 (2013).
6. Jensen RE, Rothrock NE, Dewitt EM et al. The role of technical advances in the adoption and integration of patientreported outcomes in clinical care. Med. Care 53(2), 153-159 (2015).
7. Loonsk J. 6 reasons to plan architecture for interoperability. Healthcare IT News (2014). www.govhealthit.com/news
8. Jensen RE, Snyder CF, Abernethy AP et al. Review of electronic patient-reported outcomes systems used in cancer clinical care. J. Oncol. Prac. 10(4), e215-e222 (2014).
9. Institute of Medicine. Roundtable on evidence-based medicine. The Learning Healthcare System. National Academies Press, Washington, DC, USA, (2007).
10. Williams C, Mostashari F, Mertz K, Hogin E, Atwal P. From the Office of the National Coordinator: the strategy for advancing the exchange of health information. Health Affairs 31(3), 527-536 (2012).
11. Wu AW, Jensen RE, Salzberg C, Snyder CF. Advances in the use of patient reported outcome measures in electronic health records. Including case studies. PCORI National Workshop to Advance the Use of PRO measures in Electronic Health Records. (2013). www.pcori.org/assets/2013/11
12. Glaser BG, Strauss AL. The Discovery of Grounded Theory; Strategies for Qualitative Research. Aldine Pub. Co., Chicago, IL, USA (1967).
13. Eriksson JK, Askling J, Arkema EV. The Swedish Rheumatology Quality Register: optimisation of rheumatic disease assessments using register-enriched data. Clin. Exp. Rheumatol. 32(5 Suppl. 85), S147-S149 (2014).
14. Lovell DJ, Passo MH, Beukelman T et al. Measuring process of arthritis care: a proposed set of quality measures for the process of care in juvenile idiopathic arthritis. Arthritis Care Res. 63(1), 10-16 (2011).
15. Caruso D, Kerrigan C, Mastanduno MP et al. Improving value-based care and outcomes of clinical populations in an electronic health record system environment. The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA (2011).
16. Crane PK, Gibbons LE, Willig JH et al. Measuring depression levels in HIV-infected patients as part of routine clinical care using the nine-item Patient Health Questionnaire (PHQ-9). AIDS Care 22(7), 874-885 (2010).
17. Yu PP. Knowledge bases, clinical decision support systems, and rapid learning in oncology. J. Onc. Prac. 11(2), e206-e211 (2015).
18. Mn Community Measurement. MN Health Scores. www.mnhealthscores.org
19. National Patient Safety Foundation's Lucian Leape Institute. Shining a light: safer health care through transparency, Boston, MA: National Patient Safety Foundation (2015). www.npsf.org/?shiningalight
20. Snyder CF, Blackford AL, Wolff AC et al. Feasibility and value of Patient Viewpoint: a web system for patient-reported outcomes assessment in clinical practice. Psychooncology 22(4), 895-901 (2013).
21. Fleurence RL, Curtis LH, Califf RM, Platt R, Selby JV, Brown JS. Launching PCORNet, a national patient-centered clinical research network. J. Am. Med. Inform. Assoc. 21(4), 578-582 (2014).
22. Snyder CF, Aaronson NK, Choucair AK et al. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual. Life Res. 21(8), 1305-1314 (2012).
23. Eton DT, Beebe TJ, Hagen PT et al. Harmonizing and consolidating the measurement of patient-reported information at health care institutions: a position statement of the Mayo Clinic. Patient Relat. Outcome Meas. 5, 7-15 (2014).
24. Cella D, Hahn EA, Jensen SE, Butt Z, Nowinski CJ, Rothrock N. Methodological issues in the selection, administration and use of patient-reported outcomes in performance measurement in health care settings. National Quality Forum, 2012 Commissioned paper #1 (2012). www.qualityforum.org/Projects/n-r
25. Bevans KB, Moon J, Carle AC et al. Patient reported outcomes as indicators of pediatric health care quality. Acad. Pediatr. 14(5 Suppl.), S90-S96 (2014).
26. NIH. Health Care Systems Research Collaboratory. www.nihcollaboratory.org