Review of electronic patient-reported outcomes systems used in cancer clinical care

Journal of Oncology Practice

Volumn 10, Issue 4, 2013, Pages e215-e222

  Jensen, Roxanne E ^a   Snyder, Claire F ^a   Abernethy, Amy P ^a   Basch, Ethan ^a   Potosky, Arnold L ^a   Roberts, Aaron C ^a   Loeffler, Deena R ^a   Reeve, Bryce B ^a  

^a GEORGETOWN UNIVERSITY   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

BREAST CANCER; CANCER CHEMOTHERAPY; CANCER RADIOTHERAPY; CANCER SURGERY; CANCER THERAPY; CLINICAL PRACTICE; DIGESTIVE SYSTEM CANCER; ELECTRONIC MEDICAL RECORD; FEMALE; FEMALE GENITAL TRACT CANCER; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATICS; PALLIATIVE THERAPY; PATIENT CARE; PATIENT MONITORING; PROSTATE CANCER; REVIEW; INFORMATION PROCESSING; NEOPLASMS; OUTCOME ASSESSMENT;

DATA COLLECTION; ELECTRONIC HEALTH RECORDS; HUMANS; NEOPLASMS; PATIENT OUTCOME ASSESSMENT;

EID: 84914160213     PISSN: 15547477     EISSN: 1935469X     Source Type: Journal    
DOI: 10.1200/JOP.2013.001067     Document Type: Review

References (29)

1. Hsiao CJ, Hing E, Socey TC, et al: Electronic health record systems and intent to apply for meaningful use incentives among office-based physician practices: United States, 2001-2011. NCHS Data Brief 79:1-8, 2011
2. Zickuhr K, Smith A: Digital differences. Pew Internet & American Life Project, 2012. http://pewinternet.org/Reports/2012/Digital-differences/Overview/Digital-differences.aspx
3. Clauser SB, Wagner EH, Aiello Bowles EJ, et al: Improving modern cancer care through information technology. Am J Prev Med 40:S198-S207, 2011 (suppl 2)
4. Basch E, Jia X, Heller G, et al: Adverse symptom event reporting by patients vs clinicians: Relationships with clinical outcomes. J Natl Cancer Inst 101:1624-1632, 2009
5. Hilarius DL, Kloeg PH, Gundy CM, et al: Use of health-related quality-of-life assessments in daily clinical oncology nursing practice: A community hospital-based intervention study. Cancer 113:628-637, 2008
6. McLachlan SA, Allenby A, Matthews J, et al: Randomized trial of coordinated psychosocial interventions based on patient self-assessments versus standard care to improve the psychosocial functioning of patients with cancer. J Clin Oncol 19:4117-125, 2001
7. Miller JJ, Frost MH, Rummans TA, et al: Role of a medical social worker in improving quality of life for patients with advanced cancer with a structured multidisciplinary intervention. J Psychosoc Oncol 25:105-119, 2007
8. Velikova G, Keding A, Harley C, et al: Patients report improvements in continuity of care when quality of life assessments are used routinely in oncology practice: Secondary outcomes of a randomised controlled trial. Eur J Cancer 46:2381-2388, 2010
9. Velikova G, Booth L, Smith AB, et al: Measuring quality of life in routine oncology practice improves communication and patient well-being: A randomized controlled trial. J Clin Oncol 22:714-724, 2004
10. Abernethy AP, Herndon JE 2nd, Wheeler JL, et al: Feasibility and acceptability to patients of a longitudinal system for evaluating cancer-related symptoms and quality of life: Pilot study of an e/Tablet data-collection system in academic oncology. J Pain Symptom Manage 37:1027-1038, 2009
11. Snyder CF, Jensen R, Courtin SO, et al: PatientViewpoint: A website for patient-reported outcomes assessment. Qual Life Res 18:793-800, 2009
12. Bliven BD, Kaufman SE, Spertus JA: Electronic collection of health-related quality of life data: Validity, time benefits, and patient preference. Qual Life Res 10:15-22, 2001
13. Kongsved SM, Basnov M, Holm-Christensen K, et al: Response rate and completeness of questionnaires: A randomized study of Internet versus paper-and-pencil versions. J Med Internet Res 9:e25, 2007
14. Allenby A, Matthews J, Beresford J, et al: The application of computer touchscreen technology in screening for psychosocial distress in an ambulatory oncology setting. Eur J Cancer Care (Engl) 11:245-253, 2002
15. Hesse BW, Suls JM: Informatics-enabled behavioral medicine in oncology. Cancer J 17:222-230, 2011
16. Laugsand EA, Sprangers MA, Bjordal K, et al: Health care providers underestimate symptom intensities of cancer patients: A multicenter European study. Health Qual Life Outcomes 8:104, 2010
17. Pearcy R, Waldron D, O'Boyle C, et al: Proxy assessment of quality of life in patients with prostate cancer: How accurate are partners and urologists? J R Soc Med 101:133-138, 2008
18. Wilson KA, Dowling AJ, Abdolell M, et al: Perception of quality of life by patients, partners and treating physicians. Qual Life Res 9:1041-1052, 2000
19. Rose M, Bezjak A: Logistics of collecting patient-reported outcomes (PROs) in clinical practice: An overview and practical examples. Qual Life Res 18:125-136, 2009
20. McCall K, Keen J, Farrer K, et al: Perceptions of the use of a remote monitoring system in patients receiving palliative care at home. Int J Palliat Nurs 14:426-431, 2008
21. Hermansen-Kobulnicky CJ: Symptom-monitoring behaviors of rural cancer patients and survivors. Support Care Cancer 17:617-626, 2009
22. Coons SJ, Gwaltney CJ, Hays RD, et al: Recommendations on evidence needed to support measurement equivalence between electronic and paper-based patient-reported outcome (PRO) measures: ISPOR ePRO Good Research Practices Task Force report. Value Health 12:419-429, 2009
23. Basch E, Abernethy AP: Supporting clinical practice decisions with real-time patient-reported outcomes. J Clin Oncol 29:954-956, 2011
24. Ye J, Rust G, Fry-Johnson Y, et al: E-mail in patient-provider communication: A systematic review. Patient Educ Couns 80:266-273, 2010
25. Vickers AJ, Sjoberg D, Basch E, et al: How do you know if you are any good?A surgeon performance feedback system for the outcomes of radical prostatectomy. Eur Urol 61:284-289, 2012
26. Abernethy AP, Ahmad A, Zafar SY, et al: Electronic patient-reported data capture as a foundation of rapid learning cancer care. Med Care 48:S32-S38, 2010 (suppl 6)
27. Luckett T, Butow PN, King MT: Improving patient outcomes through the routine use of patient-reported data in cancer clinics: Future directions. Psychooncology 18:1129-1138, 2009
28. Halyard MY, Frost MH, Dueck A, et al: Is the use of QOL data really any different than other medical testing? Curr Probl Cancer 30:261-271, 2006
29. Johansen MA, Henriksen E, Horsch A, et al: Electronic symptom reporting between patient and provider for improved health care service quality: A systematic review of randomized controlled trials. Part 1: State of the art. J Med Internet Res 14:e118, 2012