A review of self-management interventions for people with dementia and mild cognitive impairment

Journal of Applied Gerontology

Volumn 35, Issue 11, 2016, Pages 1154-1188

  Quinn, Catherine ^a   Toms, Gill ^a   Anderson, Daniel ^b   Clare, Linda ^a  

^a BANGOR UNIVERSITY   (United Kingdom)

^b Retreat   (United Kingdom)

Author keywords

Alzheimer's disease; group intervention; psychosocial intervention; self care; self efficacy

Indexed keywords

ALZHEIMER DISEASE; BEHAVIOR CHANGE; COGNITIVE DEFECT; DEMENTIA; DEPRESSION; EARLY DIAGNOSIS; EXERCISE; HELPLESSNESS; HUMAN; INTERVENTION STUDY; LIFESTYLE MODIFICATION; MENTAL DETERIORATION; MINI MENTAL STATE EXAMINATION; OUTCOME ASSESSMENT; PATIENT EDUCATION; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; SELF CARE; SELF CONCEPT; SOCIAL ADAPTATION; SOCIAL COGNITIVE THEORY; SOCIAL PSYCHOLOGY; AGED; PROCEDURES;

AGED; COGNITIVE DYSFUNCTION; DEMENTIA; HUMANS; SELF-MANAGEMENT;

EID: 84990213963     PISSN: 07334648     EISSN: 15524523     Source Type: Journal    
DOI: 10.1177/0733464814566852     Document Type: Review

References (79)

1. Ajzen I., (1991). The theory of planned behaviour. Organizational Behavior and Human Decision Processes, 50, 179-211. doi: 10.16/0749-5978(91)90020-T
2. Ajzen I., (2011). The theory of planned behaviour: Reactions and reflections. Psychology & Health, 26, 1113-1127. doi: 10.1080/08870446.2011.613995
3. Alzheimer's Disease International. (2009). World Alzheimer report 2009. London, England: Author.
4. Alzheimer's Disease International. (2010). World Alzheimer report 2010: The global economic impact of dementia. London, England: Author.
5. Alzheimer's Disease International. (2011). World Alzheimer report 2011: The benefits of early diagnosis and intervention. London, England: Author.
6. Bandura A., (1986). Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, NJ: Prentice Hall.
7. Bandura A., (1997). Self-efficacy: The exercise of control. New York, NY: Freeman.
8. Banks S., Weintraub S., (2008). Self-awareness and self-monitoring of cognitive and behavioral deficits in behavioral variant frontotemporal dementia, primary progressive aphasia and probable Alzheimer's disease. Brain and Cognition, 67 (1), 58-68. doi: 10.1016/j.bandc.2007.11.004
9. Barlow J., Wright C., Sheasby J., Turner A., Hainsworth J., (2002). Self-management approaches for people with chronic conditions: A review. Patient Education & Counseling, 48, 177-187. doi: 10.1016/S0738-3991(02)00032-0
10. Battersby M., Hoffmann S., Cadilhac D., Osborne R., Lalor E., Lindley R., (2009). "Getting your life back on track after stroke": A phase II multi-centered, single-blind, randomized, controlled trial of the Stroke Self-Management Program vs. the Standford Chronic Condition Self-Management Program or standard care in stroke survivors. International Journal of Stroke, 4, 137-144. doi: 10.1111/j.1747-4949.2009.00261.x
11. Bayles K. A., (1982). Language function in senile dementia. Brain & Language, 16, 265-280. doi: 10.1016/0093-934X(82)90086-4
12. Bender M., Constance G., Williams J., Harris B., (2005). Wadebridge memory bank: A psychoeducation group. Journal of Dementia Care, 13 (1), 28-30.
13. Bodenheimer T., Lorig K., Holman H., Grumbach K., (2002). Patient self-management of chronic disease in primary care. The Journal of the American Medical Association, 288, 2469-2475. doi: 10.1001/jama.288.19.2469
14. Brodaty H., Low L.-F., (2004). Making memories: Pilot evaluation of a new program for people with dementia and their caregivers. Australasian Journal on Ageing, 23, 144-146. doi: 10.1111/j.1741-6612.2004.00036.x
15. Bruscoli M., Lovestone S., (2004). Is MCI really just early dementia? A systematic review of conversion studies. International Psychogeriatrics, 16, 129-140. doi: 10.1017/S1041610204000092
16. Buettner L., Fitzsimmons S., (2009). Promoting health in Alzheimer's disease: Evaluation of a 12-week college course for individuals with a new diagnosis. Journal of Gerontological Nursing, 35 (3), 39-49. doi: 10.3928/00989134-20090301-02
17. Burgener S. C., Beattie E., Bossen A. L., Buckwalter K. C., Buettner L., Fick D.,.Fang Y., (2007). Review of scientific evidence addressing prevalence, documented needs, and interdisciplinary research: Persons in early stage Alzheimer's dementia-Including recommendations from the panel of experts (Consensus report). Chicago, IL: Alzheimer's Association.
18. Burgener S. C., Buettner L. L., Beattie E., Rose K. M., (2009). Effectiveness of community-based, nonpharmacological interventions for early-stage dementia: Conclusions and recommendations. Journal of Gerontological Nursing, 35 (3), 50-57. doi: 10.3928/00989134-20090301-03
19. Caddell L. S., Clare L., (2011). Interventions supporting self and identity in people with dementia: A systematic review. Aging & Mental Health, 15, 797-810. doi: 10.1080/13607863.2011.575352
20. Chaplin H., Hazan J., Wilson P., (2012). Self-management for people with long-term neurological conditions. British Journal of Community Nursing, 17, 250-257.
21. Clare L., Bayer A., Burns A., Corbett A., Jones R., Knapp M.,.Whitaker R., (2013). Goal-orientated cognitive rehabilitation in early-stage dementia: Study protocol for a multi-centre single-blind randomized controlled trial (GREAT). Trials, 14, 152. doi: 10.1186/1745-6215-14-152
22. Clare L., Linden D. E., Woods R. T., Whitaker R., Evans S. J., Parkinson C. H.,.Rugg M. D., (2010). Goal-orientated cognitive rehabilitation for people with early-stage Alzheimer disease: A single-blind randomized controlled trial of clinical efficacy. American Journal of Geriatric Psychiatry, 18, 928-939. doi: 10.1097/JPG.0b013e3181d5792a
23. Clark N. M., Becker M. H., Janz N. K., Lorig K., Rakowski W., Anderson L., (1991). Self-management of chronic disease by older adults: A review and questions for research. Journal of Aging and Health, 3 (1), 3-27. doi: 10.1177/089826439100300101
24. Corbin J. M., Strauss A., (1988). Unending work and care: Managing chronic illness at home. San Francisco, CA: Jossey-Bass.
25. Corbin J. M., Strauss A., (1991). A nursing model for illness management based upon the trajectory framework. Scholarly Inquiry for Nursing Practice, 5, 155-174.
26. Coster S., Norman I., (2009). Cochrane reviews of educational and self-management interventions to guide nursing practice: A review. International Journal of Nursing Studies, 46, 508-528. doi: 10.1016/j.ijnurstu.2008.09.009
27. Davies-Abbott I., MacDonald K., (2012). Supporting relationships. The Journal of Dementia Care, 20 (5), 10-11.
28. Department of Health. (2001). The expert patient: A new approach to chronic disease management for the twenty-first century. London, England: Author.
29. De Silva D., (2011). Helping people help themselves: A review of the evidence considering whether it is worthwhile to support self-management. London, England: The Health Foundation. Retrieved from www.health.org.uk/publications/evidence-helping-people-help-themselves/
30. Donovan H. S., Ward S., (2001). A representational approach to patient education. Journal of Nursing Scholarship, 33, 211-216. doi: 10.1111/j.1547-5069.2001.00211.x
31. Expert Patients Programme Community Interest Company. (2007). Self-management of long-term health conditions: A handbook for people with chronic disease. Colorado: Bull Publishing.
32. Fitzsimmons S., Buettner L. L., (2003). Health promotion for the mind, body, and spirit: A college course for older adults with dementia. American Journal of Alzheimer's Disease & Other Dementias, 18, 282-290. doi: 10.1177/1533317-50301800504
33. Folstein M. F., Folstein S. E., McHugh P. R., (1975). "Mini-mental state": A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198. doi: 10.1016/0022-3956(75)90026-6
34. Gaston A. M., Cottrell D. J., Fullen T., (2012). An examination of how adolescent-caregiver dyad illness representations relate to adolescents' reported diabetes self-management. Child: Care, health and development, 38, 513-519. doi: 10.1111/j.1365-2214.2011.01269.x
35. Gates N. J., Sachdev P. S., Singh M. A. F., Valenzuela M., (2011). Cognitive and memory training in adults at risk of dementia: A systematic review. BMC Geriatrics, 11, 55. doi: 10.1186/1471-2318-11-55
36. Gaugler J. E., Gallagher-Winker K., Kehrberg K., Lunde A. M., Marsolek C. M., Ringham K.,.Barclay M., (2011). The memory club: Providing support to persons with early-stage dementia and their care partners. American Journal of Alzheimer's Disease & Other Dementias, 26, 218-226. doi: 10.1177/15333175-11399570
37. Giebel C., Challis D., (2015). Translating cognitive and everyday activity deficits into cognitive interventions in mild dementia and mild cognitive impairment. International Journal of Geriatric Psychiatry, 30 (1), 21-31. doi: 10.1002/gps.4170
38. Holman H. R., Lorig K. R., (1997). Patient education: Essential to good health care for patients with chronic arthritis. Arthritis & Rheumatism, 40, 1371-1373. doi: 10.1002/art.1780400802
39. Huckans M., Hutson L., Twamley E., Jak A., Kaye J., Storzbach D., (2013). Efficacy of cognitive rehabilitation therapies for Mild Cognitive Impairment (MCI) in older adults: Working toward a theoretical model and evidence-based interventions. Neuropsychology Review, 23, 63-80. doi: 10.1007/s11065-013-9230-9
40. Joosten-Weyn Banningh L. W. A., Kessels R. P. C., Rikkert M. G. M. O., Geleijns-Lanting C. E., Kraaimaat F. W., (2008). A cognitive behavioural group therapy for patients diagnosed with mild cognitive impairment and their significant others: Feasibility and preliminary results. Clinical Rehabilitation, 22, 731-740. doi: 10.1177/0269215508090774
41. Joosten-Weyn Banningh L. W. A., Prins J. B., Vernooij-Dassen M. J. F. J., Wijnen H. H., Rikkert M. G. M. O., Kessels R. P. C., (2011). Group therapy for patients with mild cognitive impairment and their significant others: Results form a waiting-list controlled trial. Gerontology, 57, 444-454. doi: 10.1159/000315933
42. Joosten-Weyn Banningh L. W. A., Roelofs S. C. F., Vernooij-Dassen M. J. F. J., Prins J. B., Olde Rikkert M. G. M., Kessels R. P. C., (2011). Long-term effects of group therapy for patients with mild cognitive impairment and their significant others: A 6- to 8-month follow-up study. Dementia, 12 (1), 81-91. doi: 10.1177/1471301211420332
43. Judge K. S., Yarry S. J., Looman W. J., Bass D. M., (2012). Improved strain and psychosocial outcomes for caregivers of individuals with dementia: Findings from project ANSWERS. The Gerontologist, 53, 280-292. doi: 10.1093/geront/gns076
44. Kinsella G. J., Mullaly E., Rand E., Ong B., Burton C., Price S.,.Storey E., (2009). Early intervention for mild cognitive impairment: A randomised controlled trial. Journal of Neurology, Neurosurgery & Psychiatry, 80, 730-736. doi: 10.1136/jnnp.2008.148346
45. Laakkonen M. L., Höltta E. H., Savikko N., Strandberg T. E., Suominen M., Pitkälä K. H., (2012). Psychosocial group intervention to enhance self-management skills of people with dementia and their caregivers: Study protocol for a randomized controlled trial. Trials, 13, 133. doi: 10.1186/1745-6215-13-133
46. Laakkonen M. L., Savikko N., Höltta E. H., Tilvis R., Strandberg T. E., Kautiainen H., Pitkälä K., (2013). Self-management groups for people with dementia and their spousal caregivers. A randomized, controlled trial. Baseline findings and feasibility. European Geriatric Medicine, 4 (6), 389-393. doi: 10.1016/j.eurger.2013.09.006
47. LaBarge E., Trtanj F., (1995). A support group for people in the early stages of dementia of the Alzheimer type. Journal of Applied Gerontology, 14, 289-301. doi: 10.1177/073346489501400304
48. Lau-Walker M., Thompson D. R., (2009). Self-management in long-term health conditions- A complex concept poorly understood and applied? Patient Education & Counseling, 75, 290-292. doi: 10.1016/j.pec.2009.02.001
49. Lee S., (2011). Post-diagnosis support group. The Journal of Dementia Care, 19, 38.
50. Leventhal H., Brisette I., Leventhal E., (2003). The common-sense model of self-regulation of health and illness. In Cameron L. D., Leventhal H., (Eds.), The self-regulation of health and illness behavior (pp. 42-65). London, England: Routledge.
51. Logsdon R. G., McCurry S. M., Teri L., (2007). Time-limited support groups for individuals with early stage dementia and their care partners. Clinical Gerontologist, 30 (2), 5-19. doi: 10.1300/J018v30n02-02
52. Logsdon R. G., Pike K. C., McCurry S. M., Hunter P., Maher J., Snyder L., Teri L., (2010). Early-stage memory loss support groups: Outcomes from a randomized controlled clinical trial. Journal of Gerontology: Psychological Sciences & Social Sciences, 65B, 691-697. doi: 10.1093/geronb/gbq054
53. Lorig K. R., Holman H. R., (2003). Self-management education: History, definition, outcomes, and mechanisms. Annals of Behavioral Medicine, 26 (1), 1-7. doi: 10.1207/S15324796ABM2601.01
54. Lorig K. R., Ritter P., Stewart A. L., Sobel D. S., Brown W. B., Bandura A.,.Holman H. R., (2001). Chronic disease self-management program: 2-year health status and health care utilization outcomes. Medical Care, 39, 1217-1223. doi: 10.97/00005650-200111000-00008
55. Lorig K. R., Sobel D. S., Stewart A. L., Brown B. W., Bandura A., Ritter P.,.Holman H. R., (1999). Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: A randomized trial. Medical Care, 37 (1), 5-14. doi: 10.1097/00005650-199901000-00003
56. Lu Y. Y., Haase J. E., (2011). Content validity and acceptability of the daily enhancement of meaningful activity program intervention for mild cognitive impairment patient-spouse dyads. Journal of Neuroscience Nursing, 43, 312-328. doi: 10.1097/JNN.0b013e318234e9dd
57. Mapelli D., Di Rosa E., Nocita R., Sava D., (2013). Cognitive stimulation in patients with dementia: Randomized controlled trial. Dementia and Geriatric Cognitive Disorders Extra, 3, 263-271. doi: 10.1159/000353457
58. Martin F., Turner A., Wallace L. M., Bradbury N., (2013). Conceptualisation of self-management intervention for people with early stage dementia. European Journal of Ageing, 10, 75-87. doi: 10.1007/s10433-012-0253-5
59. Martin F., Turner A., Wallace L. M., Choudhry K., Bradbury M., (2013). Perceived barriers to self-management for people with dementia in the early stages. Dementia: The International Journal of Social Research and Practice, 12, 481-493. doi: 10.1177/1471301211434677
60. Martin F., Turner A., Wallace L. M., Stanley D., Jesuthasan J., Bradbury N., (2013). Qualitative examination of a self-management intervention for people with early-stage dementia. Dementia: The International Journal of Social Research and Practice. Advance online publication. doi: 10.1177/14713012-13498387
61. Michie S., Abraham C., (2004). Interventions to change health behaviours: Evidence-based or evidence-inspired? Psychology & Health, 19 (1), 29-49. doi: 10.1080/0887044031000141199
62. Moniz-Cook E., Vernooij-Dassen M., Woods B., Orrell M., & Interdem Network. (2011). Psychosocial interventions in dementia care research: The INTERDEM manifesto. Aging & Mental Health, 15, 283-290. doi: 10.1080/13607863.2010.543665
63. Moro V., Condoleo M. T., Sala F., Pernigo S., Moretto G., Gambina G., (2012). Cognitive stimulation in a-MCI: An experimental study. American Journal of Alzheimer's Disease & Other Dementias, 27, 121-130. doi: 10.1177/1533317512441386
64. Mountain G. A., Craig C. L., (2012). What should be in a self-management programme for people with early dementia? Aging & Mental Health, 16, 576-583. doi: 10.1080/13607863.2011.651430
65. Mulligan H., Arps G., Bancroft N., Mountfort R., Polkinghorne A., (2011). "Living Well with Parkinson's": Evaluation of a programme to promote self-management. Journal of Nursing and Healthcare of Chronic Illness, 3, 222-233. doi: 10.1111/j.1752-9824.2011.01082.x
66. Mulligan K., Steed L., Newman S., (2009). Different types and components of self-management interventions. In Newman S., Steed L., Mulligan K., (Eds.), Chronic physical illness: Self-management and behavioural interventions (pp. 64-77). Glasgow, UK: Open University Press.
67. Roberts J. S., Silverio E., (2009). Evaluation of an education and support program for early-stage Alzheimer's disease. Journal of Applied Gerontology, 28, 419-435. doi: 10.1177/0733464809333883
68. Serlachius A., Sutton S., (2009). Self-management and behaviour change: Theoretical models. In Newman S., Steed L., Mulligan K., (Eds.), Chronic physical illness: Self-management and behavioural interventions (pp. 47-63). Glasgow, UK: Open University Press.
69. Shevil E., Finlayson M., (2009). Process evaluation of a self-management cognitive program for persons with multiple sclerosis. Patient Education & Counseling, 76, 77-83. doi: 10.1016/j.pec.2008.11.007
70. Shub D., Bass D. M., Morgan R. O., Judge K. S., Snow A. L., Wilson N. L.,.Kunik M. E., (2011). Irritability and social isolation in dementia patients with and without depression. Journal of Geriatric Psychiatry and Neurology, 24, 229-234. doi: 10.1177/0891988711427039
71. Sims D., McCrum T., (2012). Measuring the benefits. The Journal of Dementia Care, 20 (4), 20-22.
72. Snyder L., Jenkins C., Joosten L., (2007). Effectiveness of support groups for people with mild to moderate Alzheimer's disease: An evaluative survey. American Journal of Alzheimer's Disease & Other Dementias, 22, 14-19. doi: 10.1177/1533317506295857
73. Toms G. R., Quinn C., Anderson D. E., Clare L., (2014). Help yourself: Perspectives on self-management from people with dementia and their caregivers. Qualitative Health Research, 25 (1), 87-98. doi: 10.1177/1049732314549604
74. Troyer A. K., Murphy K. J., Anderson N. D., Moscovitch M., Craik F. I. M., (2008). Changing everyday memory behaviour in amnestic mild cognitive impairment: A randomised controlled trial. Neuropsychological Rehabilitation: An International Journal, 18 (1), 65-88. doi: 10.1080/09602010701409684
75. van Houtum L., Rijken M., Heijmans M., Groenewegen P., (2013). Self-management support needs of patients with chronic illness: Do needs for support differ according to the course of illness? Patient Education & Counseling, 93, 626-632. doi: 10.1016/j.pec.2013.08.021
76. Vernooij-Dassen M., Leatherman S., Rikkert M. O., (2011). Quality of care in frail older people: The fragile balance between receiving and giving. British Medical Journal, 25, 342: d403. doi: 10.1136/bmj.d403.
77. Warsi A., Wang P. S., LaValley M. P., Avorn J., Solomon D. H., (2004). Self-management education programs in chronic disease: A systematic review and methodological critique of the literature. Archives of Internal Medicine, 164, 1641-1649. doi: 10.1001/archinte.164.15.1641
78. Werner P., Goldstein D., Buchbinder E., (2010). Subjective experience of family stigma as reported by children of Alzheimer's disease patients. Qualitative Health Research, 20, 159-169. doi: 10.1177/1049732309358330
79. Zarit S. H., Femia E. E., Watson J., Rice-Oeschger L., Kakos B., (2004). Memory club: A group intervention for people with early-stage dementia and their care partners. The Gerontologist, 44, 262-269. doi: 10.1093/geront/44.2.262