An examination of how adolescent-caregiver dyad illness representations relate to adolescents' reported diabetes self-management

Child: Care, Health and Development

Volumn 38, Issue 4, 2012, Pages 513-519

  Gaston, A M ^a   Cottrell, D J ^b   Fullen, T ^a  

^a LEEDS TEACHING HOSPITALS NHS TRUST   (United Kingdom)

^b UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Adolescence; Chronic (health) condition; Cross sectional study; Diabetes; Health beliefs; Parent perceptions

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; BLOOD GLUCOSE MONITORING; CAREGIVER; CHILD BEHAVIOR; CROSS-SECTIONAL STUDY; DIABETIC DIET; FEMALE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; MALE; PSYCHOLOGICAL ASPECT; SELF CARE; SELF CONCEPT; UNITED KINGDOM;

ADOLESCENT; ADOLESCENT BEHAVIOR; ADULT; BLOOD GLUCOSE SELF-MONITORING; CAREGIVERS; CROSS-SECTIONAL STUDIES; DIABETES MELLITUS, TYPE 1; DIABETIC DIET; ENGLAND; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; SELF CARE; SELF EFFICACY;

EID: 84861917233     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2011.01269.x     Document Type: Article

References (36)

1. Anderson, B. J. & Coyne, J. C. (1991) Miscarried helping in families of children and adolescents with chronic diseases. In: Advances in Child Health Psychology (eds J. H. Johnson & S. B. Johnson ), pp. 167-177. University of Florida Press, Gainesville, FL, USA.
2. Anderson, B. J., Auslander, W. F., Jung, K. C., Miller, P. & Santiago, J. V. (1990) Assessing family sharing of diabetes responsibilities. Journal of Pediatric Psychology, 15, 477-492.
3. Anderson, B. J., Ho, J., Brackett, J., Finkelstein, D. & Laffel, L. (1997) Parental involvement in diabetes management tasks: relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. Journal of Pediatrics, 130, 257-265.
4. Anderson, B. J., Vangsness, L., Connell, A., Butler, D., Goebel-Fabbri, A. & Laffel, L. M. B. (2002) Family conflict, adherence, and glycaemic control in youth short duration type 1 diabetes. Diabetic Medicine, 19, 635-642.
5. Bradley, C. (2001) Handbook of Psychology and Diabetes. Hardwood Academic, Amsterdam, the Netherlands.
6. Davis, C. L., Delamater, A. M., Shaw, K. H., La Greca, A. M., Eidson, M. S., Perez-Rodriguez, J. E. & Nemery, R. (2001) Parenting styles, regime adherence and glycemic control in 4 to 10 year old children with diabetes. Journal of Social Distress and the Homeless, 5, 11-38.
7. Diabetes Control and Complications Research Group (1994) Diabetes control and complications trail. Diabetes Care, 13, 427-433.
8. Drotor, D. (1997) Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: what have we learned? What do we need to know? Journal of Pediatric Psychology, 13, 262-273.
9. Edgar, K. A. & Skinner, T. C. (2003) Illness representations and coping as predictors of emotional well being in adolescents with type 1 diabetes. Journal of Pediatric Psychology, 28, 485-493.
10. Griva, K., Myers, L. B. & Newman, S. (2000) Illness perceptions and self-efficacy beliefs in adolescents and young people with insulin dependent diabetes mellitus. Psychology & Health, 15, 733-750.
11. Hagger, M. S. & Orbell, S. (2003) A meta-analytic review of the common-sense model of illness representations. Psychology & Health, 18, 142-184.
12. Hanna, K. M. & Guthrie, D. (2001) Parents and Adolescents perceptions of helpful and nonhelpful support for adolescents assumption of management responsibility. Issues in Comprehensive Pediatric Nursing, 24, 209-223.
13. Harris, M. A., Freeman, K. A. & Beers, M. (2009) Family therapy for adolescents with poorly controlled diabetes: initial test of clinical significance. Journal of Pediatric Psychology, 34, 1097-1107.
14. Heijmans, M., De Ridder, D. & Bensing, J. (1999) Dissimilarity in patients' and spouses' representations of chronic illness: exploration of relations to patient adaptation. Psychology & Health, 14, 451-466.
15. Kemp, S., Morley, S. & Anderson, E. (1999) Coping with epilepsy: do illness representations play a role? British Journal of Clinical Psychology, 38, 43-58.
16. Kleinman, A. (1980) Patients and Healers in the Context of Culture. University of California Press, Berkeley, CA, USA.
17. La Greca, A. M., Follansbee, D. & Sykler, J. S. (1990) Developmental and behavioural aspects of diabetes management in youngsters. Children's Health Care, 19, 132-139.
18. Law, G. U. (2002) Dissimilarity in adolescents and maternal representations of type 1 diabetes: exploration of relations to adolescents well-being. Child: Care, Health and Development, 28, 369-378.
19. Leventhal, H. & Cameron, L. D. (1987) Behavioural theories and the problem of compliance. Patient Education and Counseling, 10, 117-138.
20. Leventhal, H., Meyer, D. & Nerenz, D. (1980) The common sense representation of illness danger. In: Contributions to Medical Psychology, Vol. 2 (ed. S. Rachman ), pp. 7-30. Pergamon Press, New York, NY, USA.
21. Lewin, A. B., Geffken, G. R., Williams, L. B., Duke, D. C., Storch, E. A. & Silverstein, J. H. (2010) Development of the Diabetes Family Adherence Measure (D-FAM). Children's Health Care, 39, 15-33.
22. Mellin, A., Neumark-Sztainer, D. & Patterson, J. M. (2004) Parenting adolescent girls with type 1 diabetes: parents' perspectives. Journal of Pediatric Psychology, 29, 221-230.
23. Meyer, D., Leventhal, H. & Gutmann, M. (1985) Common sense models of illness. The example of hypertension. Health Psychology, 4, 115-135.
24. Miller-Johnson, S., Emery, R. E., Marvin, R. S., Clarke, W., Lovigner, R. & Martin, M. (1994) Parent-child relationships and the management of insulin dependent diabetes mellitus. Journal of Consulting and Clinical Psychology, 62, 603-610.
25. Morris, A. D., Boyle, D. I. R., McMahon, A. D., Greene, S. A., MacDonald, T. M. & Newton, R. W. (1997) Adherence to insulin treatment, glycemic control and ketoacidosis in insulin dependent diabetes mellitus. Lancet, 350, 1505-1510.
26. Nouwen, A., Urquhart Law, G., Hussain, S., McGovern, S. & Napier, H. (2009) Comparison of the role of self-efficacy and illness representations in relation to dietary self-care and diabetes distress in adolescents with type 1 diabetes. Psychology & Health, 24, 1071-1084.
27. Olsen, B., Berg, C. & Wiebe, W. B. (2008) Dissimilarity in mother and adolescent illness representations of type 1 diabetes and negative emotional adjustment. Psychology & Health, 23, 113-129.
28. Skinner, T. C. & Hampson, S. E. (1998) Social support and personal models of diabetes in relation to self-care and well-being in adolescents with type 1 diabetes mellitus. Journal of Adolescence, 21, 703-715.
29. Skinner, T. C. & Hampson, S. E. (2001) Personal Models of Diabetes in relation to self-care, well-being and glycaemic control: a prospective study in adolescence. Diabetes Care, 24, 828-833.
30. Skinner, T. C., John, M. & Hampson, S. E. (2000) Social support and personal models of diabetes as predictors of self-care and well-being: a longitudinal study of adolescents with diabetes. Journal of Pediatric Psychology, 25, 257-267.
31. Skinner, T. C., Hampson, S. E. & Fife-Schaw, C. (2002) Personality, personal model beliefs and self-care in adolescents and young adults with type 1 diabetes. Health Psychology, 21, 61-70.
32. Skinner, T. C., Howells, L., Greene, S., Edgar, K., McEvilly, A. & Johansson, A. (2003) Development, reliability and validity of the diabetes illness representation questionnaire: four studies with adolescents. Diabetic Medicine, 20, 283-289.
33. Toobert, D. J. & Glasgow, R. E. (1994) Assessing diabetes self-management: the summary of diabetes self-care activities questionnaire. In: Handbook of Psychology and Diabetes (ed. C. Bradley ), pp. 351-379. Hardwood, Amsterdam, the Netherlands.
34. Toobert, D. J., Hampson, S. E. & Glasgow, R. E. (2000) The summary of diabetes self-care activities measure. Diabetes Care, 23, 943-950.
35. Weinger, K., O'Donnell, K. A. & Ritholz, M. D. (2001) Adolescent views of diabetes-related parent conflict and support: a focus group analysis. Journal of Adolescent Health, 29, 330-336.
36. Weinman, J., Petrie, K. J., Moss-Morris, R. & Horne, R. (1996) The illness perception questionnaire: a new method for assessing cognitive representations of illness. Psychology & Health, 11, 431-445.