Self-management support needs of patients with chronic illness: Do needs for support differ according to the course of illness?

Patient Education and Counseling

Volumn 93, Issue 3, 2013, Pages 626-632

  Van Houtum, Lieke ^a   Rijken, Mieke ^a   Heijmans, Monique ^a   Groenewegen, Peter ^a,b  

^a NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

^b UTRECHT UNIVERSITY   (Netherlands)

Author keywords

Chronic illness; Course of illness; Patients; Self management; Support need

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; ASTHMA; ATTITUDE TO ILLNESS; CARDIOVASCULAR DISEASE; CHILD; CHRONIC DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DETERIORATION; DIABETES MELLITUS; DISEASE COURSE; DISEASE DURATION; FEMALE; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; PATIENT CARE; PERCEPTION; PRIORITY JOURNAL; QUESTIONNAIRE; SCHOOL CHILD; SELF CARE; SELF CONCEPT; SELF MANAGEMENT SUPPORT NEED; HEALTH CARE QUALITY; HEALTH SERVICE; HEALTH STATUS; MIDDLE AGED; NEEDS ASSESSMENT; NETHERLANDS; ORGANIZATION AND MANAGEMENT; PATIENT; PROCEDURES; PSYCHOLOGY; REGRESSION ANALYSIS; SELF REPORT; SOCIAL SUPPORT; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHRONIC DISEASE; CROSS-SECTIONAL STUDIES; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS; HUMANS; MALE; MIDDLE AGED; NEEDS ASSESSMENT; NETHERLANDS; PATIENTS; QUALITY OF HEALTH CARE; QUESTIONNAIRES; REGRESSION ANALYSIS; SELF CARE; SELF REPORT; SOCIAL SUPPORT; YOUNG ADULT;

EID: 84888320214     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2013.08.021     Document Type: Article

References (37)

1. Griffiths C., Foster G., Ramsay J., Eldridge S., Taylor S. How effective are expert patient (lay led) education programs for chronic disease? Considerable hyperbole has surrounded the UK expert patient programme, and it has received considerable funding- but will its impact meet expectations?. Brit Med J 2007, 334:1254-1256.
2. Clark N. Management of chronic disease by patients. Annu Rev Public Health 2003, 24:289-313.
3. Barlow J., Wright C., Sheasby J., Turner A., Hainsworth J. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 2002, 48:177-187.
4. Newman S., Steed L., Mulligan K. Self-management interventions for chronic illness. Lancet 2004, 364:1523-1537.
5. Rijken M., Jones M., Heijmans M., Dixon A. Supporting self-management. Caring for people with chronic conditions. A health system perspective 2008, 116-142. Open University Press, Berkshire, UK. E. Nolte, M. McKee (Eds.).
6. Warsi A., Wang P., LaValley M., Avorn J., Solomon D. Self-management education programs in chronic disease: a systematic review and methodological critique of the literature. Arch Intern Med 2004, 164:1641-1649.
7. Gardetto N. Self-management in hearth failure: where have we been and where should we go?. J Multidiscip Healthc 2011, 4:39-51.
8. Ursum J., Rijken M., Heijmans M., Cardol M., Schellevis F. Zorg voor chronisch zieken: Organisatie van zorg, zelfmanagement, zelfredzaamheid en participatie 2011, NIVEL, Utrecht.
9. De Ridder D., Schreurs K., Bensing J. Adaptive tasks, coping and quality of life and chronically Ill patients: the cases of Parkinson's disease and chronic fatigue syndrome. J Health Psychol 1998, 3:87-101.
10. Heijmans M., Rijken M., Foets M., De Ridder D., Schreurs K., Bensing J. The stress of being chronically Ill: from disease-specific to task-specific aspects. J Behav Med 2004, 27:255-271.
11. Moos R.H., Schaeffer J.A. The crisis of physical illness: an overview and conceptual approach. Coping with physical Illness, Vol. 2, New perspectives 1984, Plenum Press, New York.
12. Zautra A.J. Investigations of ongoing stressful situations among those with chronic illness. Am J Community Psychol 1996, 24:697-717.
13. Leventhal H., Diefenbach M. Using common sense to understand treatment adherence and affect cognition interactions. Cog Therapy Res 1992, 16:143-163.
14. Leventhal H., Meyer D., Nerenz D. The common sense representation of illness danger. Medical psychology 1980, 7-30. Pergamon, New York, NY. S. Rachman (Ed.).
15. Clark N.M., Becker M.H., Janz N.K., Lorig K., Rakowski W., Anderson L. Self-management of chronic disease by older adults. A review and questions for research. J Aging Health 1991, 3:3-27.
16. Bayliss E., Steiner J., Fernald D., Crane L., Main D. Descriptions of barriers to self-care by persons with comorbid chronic diseases. Ann Fam Med 2003, 1:15-21.
17. Corbin J.M., Strauss A. A nursing model for chronic illness management based upon the trajectory framework. Sch Inq Nurs Pract: Int J 1991, 5:155-174.
18. Burton C.R. Re-thinking stroke rehabilitation: the Corbin and Strauss chronic illness trajectory framework. J Adv Nurs 2000, 32:595-602.
19. Newby N.M. Chronic illness and the family life-cycle. J Adv Nurs 1996, 23:786-791.
20. Scharloo M., Baatenburg de Jong R.J., Langeveld T.P.M., Van Velzen-Verkaik E., Doorn-op den Akker M.M., Kaptein A.A. Quality of life and illness perceptions in patients with recently diagnosed head and neck cancer. Head Neck 2005, 17:1-16.
21. Schipper K., Nierse C., Hené R., Van Zadelhoff E., Van Griendt J., Abma T. Leven met een nierziekte: Ervaringen van nierpatiënten en hun naasten [Living with kidney disease: experiences of kidney patients and their family]. Den Haag: Lemma 2010.
22. Heim E., Valach L., Schaffner L. Coping and psychological adaption: longitudinal effects over time and stages of breast cancer. Psychosom Med 1997, 59:408-418.
23. Fugate Woods N., Yates B.C., Primomo J. Supporting families during chronic illness. J Nurs Scholarsh 1989, 21:46-50.
24. Rijken M., Bensing J. Het nationaal Patiëntenpanel Chronisch Zieken. Een onderzoeksinfrastructuur voor patiëntgericht onderzoek [The national panel of patients with chronic diseases. An infrastructure for patient-centered research] 2000, NIVEL, Utrecht.
25. Rijken M., Groenewegen P. Money does not bring well-being, but it does help! The relationship between financial resources and life satisfaction of chronically ill mediated by social deprivation and loneliness. J Community Appl Soc Psychol 2008, 18:39-53.
26. Hingstman L., Kenens R. Cijfers uit de registratie van huisartsen: peiling 2009 [Figures from the registration of GPs: survey 2009] 2009, NIVEL, Utrecht.
27. Van der Zee K.I., Sanderman R. Het meten van de algemene gezondheidstoestand met de RAND-36. Een handleiding [Measuring general health status with the RAND-36. A guide] 1993, Rijksuniversiteit Groningen, Groningen.
28. Norman G.R., Sloan J.A., Wyrwich K.W. Interpretation of changes in health-related quality of life: the remarkable university of half a standard deviation. Med Care 2003, 41:582-592.
29. Van Houtum L., Rijken P.M., Heijmans M.J.W.M., Groenewegen P.P. Perceptions of self-management tasks and support needs of people with chronic illness: generic or disease-specific? 2012, submitted for publication.
30. Lamberts H., Wood M. ICPD. International classification of primary care 1987, Oxford University Press, Oxford.
31. Shnek Z.M., Foley F.W., LaRocca N.G., Gordon W.A., DeLuca J., Schwartzman H.G., et al. Helplessness, self-efficacy, cognitive distortions, and depression in multiple sclerosis and spinal cord injury. Ann Behav Med 1997, 19:287-294.
32. Rapley P., Fruin D.J. Self-efficacy in chronic illness: the juxtaposition of general and regimen-specific efficacy. Int J Nurs Pract 1999, 5:209-215.
33. Bair M.J., Matthias M.S., Nyland K.A., Huffman M.A., Stubbs D.L., Kroenke K., et al. Barriers and facilitators to chronic pain self-management: a qualitative study of primary care patients with comorbid musculoskeletal pain and depression. Pain Med 2009, 10:1280-1290.
34. Jerant A.F., Von Friederichs-Fitzwater M.M., Moore M. Patients' perceived barriers to active self-management of chronic conditions. Patient Educ Couns 2005, 57:300-307.
35. Petrie K.J., Cameron L.D., Ellis C.J., Buick D., Weinman J. Changing illness perceptions after myocardial infarction: an early intervention randomized controlled trial. Psychosom Med 2002, 64:580-586.
36. Rutter C.L., Rutter B.R. Longitudinal analysis of the illness representation model in patients with irritable bowel syndrome (IBS). J Health Psychol 2007, 2:141-148.
37. Moss-Morris R., Weinman J., Petrie K., Horne R., Cameron L., Buick D. The revised illness perception questionnaire (IPQ-R). Psychol Health 2002, 17:1-16.