Self-management groups for people with dementia and their spousal caregivers. A randomized, controlled trial. Baseline findings and feasibility

European Geriatric Medicine

Volumn 4, Issue 6, 2013, Pages 389-393

  Laakkonen, M L ^a,b,d   Savikko, N ^b,d   Holtta E ^b,c,d   Tilvis, R ^d   Strandberg, T ^d,e   Kautiainen, H ^b   Pitkala K ^b,d  

^a Laakso Hospital   (Finland)

^b UNIVERSITY OF HELSINKI   (Finland)

^c Geriatric Clinic   (Finland)

^d HELSINKI UNIVERSITY CENTRAL HOSPITAL   (Finland)

^e UNIVERSITY OF OULU   (Finland)

Author keywords

Alzheimer disease; Dementia; Randomized controlled trial; Rehabilitation; Self management

Indexed keywords

CHOLINESTERASE INHIBITOR; MEMANTINE;

ADULT; AGED; ARTICLE; CAREGIVER; COGNITION; COMMUNITY; CONTROLLED STUDY; DEMENTIA; DISEASE SEVERITY; FEASIBILITY STUDY; FEEDBACK SYSTEM; FEMALE; HUMAN; INTERVENTION STUDY; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PEER GROUP; PRIORITY JOURNAL; PROBLEM SOLVING; PSYCHOSOCIAL CARE; RANDOMIZED CONTROLLED TRIAL; SELF CARE; SELF CONCEPT; SPOUSE;

EID: 84890114317     PISSN: 18787649     EISSN: 18787657     Source Type: Journal    
DOI: 10.1016/j.eurger.2013.09.006     Document Type: Article

References (32)

1. J. Barlow, C. Wright, J. Sheasby, A. Turner, and J. Hainsworth Self-management approaches for people with chronic conditions: a review Patient Educ Couns 48 2 2002 177 187
2. S. Newman, L. Steed, and K. Mulligan Self-management interventions for chronic illness Lancet 364 2004 1523 1537
3. T. Bodenheimer, K. Lorig, H. Holman, and K. Grunbach Patient self-management of chronic disease in primary care JAMA 288 19 2002 2469 2475
4. M.J. Graff, M.J. Vernooij-Dassen, M. Thijssen, J. Dekker, W.H. Hoefnagels, and M.G. Rikkert Community based occupational therapy for patients with dementia and their caregivers: a randomized controlled trial BMJ 333 2006 1196
5. U. Eloniemi-Sulkava, M. Saarenheimo, H. Kautiainen, M.L. Laakkonen, M. Pietilä, and N. Savikko Effectiveness of supportive model for dementia families. A randomized, controlled trial J Am Geriatr Soc 57 2009 2200 2208
6. G.A. Mountain Self-management for people with early dementia. An exploration of concept and supporting evidence Dementia 5 2006 429 447
7. M. Saarenheimo, U. Eloniemi-Sulkava, and K. Pitkälä Enhancing empowerment and self-management in elderly families with dementia S. Bährer-Kohler, E. Krebs-Roubicek, Self-management of a chronic disease Alzheimer 2009 Springer Verlag Heidelberg 132 139
8. E. Moniz-Cook, M. Vernooij-Dassen, B. Woods, and M. Orrell Psychosocial interventions in dementia care research: the INTERDEM manifesto Aging Ment Health 15 3 2011 283 290 10.1080/13607863.2010.543665
9. M. Vernooij-Dassen, S. Leatherman, and M.O. Rikkert Quality of care in frail older people: the fragile balance between receiving and giving BMJ 342 2011 d403 10.1136/bmj.d403
10. A. Selwood, K. Johnston, C. Katona, C. Lyketsos, and G. Livingston Systematic review of the effect of psychological interventions on family caregivers of people with dementia J Affect Disord 101 2007 75 89
11. S.H. Zarit, E.E. Femia, J. Watson, L. Rice-Oeschger, and B. Kakos Memory Club: a group intervention for people with early-stage dementia and their care partners Gerontologist 44 2 2004 262 269
12. R.G. Logsdon, K.C. Pike, S.M. McCurry, P. Hunter, J. Maher, and L. Snyder Early-stage memory loss support groups: outcomes from a randomized controlled clinical trial J Gerontol B Psychol Sci Soc Sci 65 6 2010 691 697 10.1093/geronb/gbq054
13. L.Y. Chien, H. Chu, J.L. Guo, Y.M. Liao, L.I. Chang, and C.H. Chen Caregiver support groups in patients with dementia: a meta-analysis Int J Geriatr Psychiatry 26 10 2011 1089 1098 10.1002/gps.2660
14. M.L. Laakkonen, E.H. Hölttä, N. Savikko, T.E. Strandberg, M. Suominen, and K.H. Pitkälä Psychosocial group intervention to enhance self-management skills of people with dementia and their caregivers: study protocol for a randomized controlled trial Trials 13 2012 133 10.1186/1745-6215-13-133
15. Working group appointed by the Finnish Medical Society Duodecim, Societas Gerontologica Fennica, the Finnish Neurological Society, the Finnish Psychogeriatric Association, the Finnish Association for General Practice Memory disorders (online): current care summary 2010 Finnish Medical Society Duodecim Helsinki [http://www.kaypahoito.fi/web/english/summaries/naytaartikkeli/tunnus/ ccs00081]
16. M.E. Charlson, P. Pompei, K.L. Ales, and C.R. MacKenzie A new method of classifying prognostic comorbidity in longitudinal studies: development and validation J Chronic Dis 40 1987 373 383
17. C.P. Hughes, L. Berg, W.L. Danziger, L.A. Coben, and R.L. Martin A new clinical scale for the staging of dementia Br J Psychiatry 140 1982 566 572
18. M.F. Folstein, S.E. Folstein, and P.R. McHugh "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician J Psychiatr Res 12 1975 189 198
19. J.C. Morris, A. Heyman, R.C. Mohs, J.P. Hughes, G. van Belle, and G. Fillenbaum The Consortium to Establish a Registry for Alzheimer's Disease (CERAD). Part I. Clinical and neuropsychological assessment of Alzheimer's disease Neurol 39 1989 1159 1165
20. T. Sunderland, J.L. Hill, A.M. Mellow, B.A. Lawlor, J. Gundersheimer, and P.A. Newhouse Clock drawing in Alzheimer's disease. A novel measure of dementia severity J Am Geriatr Soc 37 1989 725 729
21. S. Katz, T.D. Downs, H.R. Cash, and R.C. Grotz Progress in the development of the index of ADL Gerontologist 10 1970 20 30
22. M. Lawton, and E. Brody Assessment of older people: self-maintaining and instrumental activities of daily living Gerontologist 9 1969 179 186
23. Y. Guigoz, S. Lauque, and B.J. Vellas Identifying the elderly risk for malnutrition. The Mini Nutrition Assessment Clin Geriatr Med 18 2002 737 757
24. G.S. Alexopoulos, R.C. Abrams, R.C. Young, and C. Shamoian Cornell scale for depression in dementia Biol Psychiatry 23 1988 271 284
25. P.E. Routasalo, R.S. Tilvis, H. Kautiainen, and K.H. Pitkälä Effects of psychosocial group rehabilitation on social functioning, loneliness and well-being of lonely, older people: randomized controlled trial J Adv Nursing 65 2008 297 305
26. L.S. Radloff The CES-D scale: a self-report depression scale for research in the general population Appl Psychol Meas 1 1977 385 401
27. M.J.F.J. Vernooij-Dassen, A.J.A. Felling, and J.M.G. Persoon Predictors of sense of competence in primary caregivers of demented persons Soc Sci Med 43 1996 41 49
28. K.H. Pitkälä, M.M. Raivio, M.L. Laakkonen, R.S. Tilvis, H. Kautiainen, and T.E. Strandberg Exercise rehabilitation on home-dwelling patients with Alzheimer disease - a randomized, controlled trial. Baseline findings and feasibility Eur Geriatr Med 2 6 2011 338 343
29. G.A. Mountain, and C.L. Craig What should be in a self-management programme for people with early dementia? Aging Ment Health 16 2012 576 583
30. K.H. Pitkälä, P. Routasalo, H. Kautiainen, and R.S. Tilvis Effects of psychosocial group rehabilitation of health, use of health care services, and mortality of older persons suffering from loneliness: a randomized controlled trial J Gerontol A Biol Sci Med Sci 64 7 2009 792 800
31. K. Pitkälä, L. Blomqvist, P. Routasalo, M. Saarenheimo, E. Karvinen, and U. Oikarinen Leading groups of older people: a description and evaluation of the education of professionals Educ Gerontol 30 2004 821 833
32. E.J. Meeuwsen, R.J. Melis, G.C. Van Der Aa, G.A. Golüke-Willemse, B.J. De Leest, and F.H. Van Raak Effectiveness of dementia follow-up care by memory clinics or general practitioners: randomised controlled trial BMJ 344 2012 e3086 10.1136/bmj.e3086