Harnessing person-generated health data to accelerate patient-centered outcomes research: The Crohn's and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners)

Journal of the American Medical Informatics Association

Volumn 23, Issue 3, 2016, Pages 485-490

  Chung, Arlene E ^a   Sandler, Robert S ^a   Long, Millie D ^a   Ahrens, Sean ^b   Burris, Jessica L ^c   Martin, Christopher F ^a   Anton, Kristen ^a,d   Robb, Amber ^a   Caruso, Thomas P ^e   Jaeger, Elizabeth L ^a   Chen, Wenli ^a   Clark, Marshall ^a   Myers, Kelly ^f   Dobes, Angela ^g   Kappelman, Michael D ^a  

^a UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^b Crohnology   (United States)

^c VANDERBILT UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d White River Computing LLC   (United States)

^e UNIVERSITY OF NORTH CAROLINA   (United States)

^f Atomo Health Inc   (United States)

^g Crohn's and Colitis Foundation of America   (United States)

Author keywords

Patient engagement; Patient centered outcomes research; Patient reported outcomes; Person generated health data; PGHD; Wearables

Indexed keywords

ARTICLE; ATTITUDE TO HEALTH; CROHN DISEASE; CROWDSOURCING; HEALTH CARE; HUMAN; OUTCOME ASSESSMENT; OUTCOMES RESEARCH; PATIENT ATTITUDE; PATIENT CARE; PATIENT CODING; SELF REPORT; SOCIAL NETWORK; ULCERATIVE COLITIS; ADULT; AGED; DEVICES; ELECTRONIC DEVICE; FEMALE; HEALTH SURVEY; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INTERNET; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PHYSIOLOGIC MONITORING; PROCEDURES; TELEMEDICINE; UNITED STATES; YOUNG ADULT;

ADULT; AGED; COLITIS, ULCERATIVE; CROHN DISEASE; DATA COLLECTION; FEMALE; HEALTH SURVEYS; HUMANS; INFORMATION DISSEMINATION; INTERNET; MALE; MIDDLE AGED; MONITORING, PHYSIOLOGIC; PATIENT OUTCOME ASSESSMENT; PATIENT PARTICIPATION; SELF REPORT; TELEMEDICINE; UNITED STATES; WEARABLE ELECTRONIC DEVICES; YOUNG ADULT;

EID: 84978969923     PISSN: 10675027     EISSN: 1527974X     Source Type: Journal    
DOI: 10.1093/jamia/ocv191     Document Type: Article

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