Gender and family caregiving at the end-of-life in the context of old age: A systematic review

Palliative Medicine

Volumn 30, Issue 7, 2016, Pages 616-624

  Morgan, Tessa ^a   Ann Williams, Lisa ^a   Trussardi, Gabriella ^a   Gott, Merryn ^a  

^a UNIVERSITY OF AUCKLAND   (New Zealand)

Author keywords

end of life care; family caregiving; gender; informal care; older adults; Palliative care

Indexed keywords

ADULT; AGED; CAREGIVER; CINAHL; EMPIRICISM; EXPECTATION; FAMILY STUDY; FEMALE; FEMINISM; GENDER; HUMAN; MALE; MEDLINE; META ANALYSIS; PALLIATIVE THERAPY; PHYSICAL STRESS; PRACTICE GUIDELINE; PSYCINFO; QUANTITATIVE STUDY; SYSTEMATIC REVIEW; TERMINAL CARE; FAMILY; MIDDLE AGED; PSYCHOLOGY; SEX DIFFERENCE; STATISTICS AND NUMERICAL DATA; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; SEX FACTORS; TERMINAL CARE;

EID: 84976911453     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216315625857     Document Type: Review

References (47)

1. World Health Organisation. Women and health: today's evidence, tomorrow's agenda (report). Geneva: World Health Organisation, 2009.
2. World Health Organisation. Women, ageing and health: a framework for action. A focus on gender (report). Geneva: World Health Organisation, 2007.
3. Ventura A, Burney S, Brooker J, et al. Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers. Palliat Med 2014; 28: 391-402.
4. Read T, Wuest J., Daughters caring for dying parents: a process of relinquishing. Qual Health Res 2007; 17: 932-944.
5. Brody EM., Women in the middle: their parent-care years. New York: Springer, 1990.
6. Parsons K., The male experience of caregiving for a family member with Alzheimer's disease. Qual Health Res 1997; 7: 391-407.
7. Stobert S, Cranswick K., Looking after seniors: who does what for whom? Can Soc Trends 2004; 2-6.
8. Zimmerman MK, Legerski E., The role of governments in health care: implications for women's health and access to care. Women Health Iss 2010; 20: 87-91.
9. Brazil K, Thabane L, Foster G, et al. Gender differences among Canadian spousal caregivers at the end of life. Health Soc Care Comm 2009; 17: 159-166.
10. Aronson J., Women's sense of responsibility for the care of old people: 'but who else is going to do it?'. Gend Soc 1992; 6: 8-29.
11. McNamara B, Rosenwax L., Which carers of family members at the end of life need more support from health services and why? Soc Sci Med 2010; 70: 1035-1041.
12. Exley C, Allen D., A critical examination of home care: end of life care as an illustrative case. Soc Sci Med 2007; 65: 2317-2327.
13. Schmid T, Brandt M, Haberkern K., Gendered support to older parents: do welfare states matter? Eur J Ageing 2012; 9: 39-50.
14. Wachterman MW, Sommers BD., The impact of gender and marital status on end-of-life care: evidence from the National Mortality Follow-Back Survey. J Palliat Med 2006; 9: 343-352.
15. Grande GE, Addington-Hall JM, Todd CJ., Place of death and access to home care services: are certain patient groups at a disadvantage? Soc Sci Med 1998; 47: 565-579.
16. Yee JL, Schulz R., Gender differences in psychiatric morbidity among family caregivers: a review and analysis. Gerontologist 2000; 40: 147-164.
17. Pinquart M, Sörensen S., Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol B Psychol Sci Soc Sci 2006; 61: P33-P45.
18. Bamford S, Walker T., Women and dementia-not forgotten. Maturitas 2012; 73: 121-126.
19. Hammarström A., Why feminism in public health? Scand J Public Healt 1999; 27: 241-244.
20. Schulz R., Research priorities in geriatric palliative care: informal caregiving. J Palliat Med 2013; 16: 1008-1012.
21. Hawker S, Payne S, Kerr C, et al. Appraising the evidence: reviewing disparate data systematically. Qualit Health Res 2002; 12: 1284-1299.
22. Dixon-Woods M, Agarwal S, Jones D, et al. Synthesising qualitative and quantitative evidence: a review of possible methods. J Health Serv Res Po 2005; 10: 45-53.
23. Braun V, Clarke V., Using thematic analysis in psychology. Qual Res Psychol 2006; 3: 77-101.
24. Chattoo S, Ahmad WI., The moral economy of selfhood and caring: negotiating boundaries of personal care as embodied moral practice. Sociol Health Ill 2008; 30: 550-564.
25. Wenger GC., Childlessness at the end of life: evidence from rural Wales. Ageing Soc 2009; 29: 1243-1259.
26. Campbell LD., Sons who care: examining the experience and meaning of filial caregiving for married and never-married sons. Can J Aging 2010; 29: 73-84.
27. Burns CM, LeBlanc TW, Abernethy A, et al. Young caregivers in the end-of-life setting: a population-based profile of an emerging group. J Palliat Med 2010; 13: 1225-1235.
28. Sugiura K, Ito M, Kutsumi M, et al. Gender differences in spousal caregiving in Japan. J Gerontol B Psychol Sci Soc Sci 2009; 64: 147-156.
29. Calasanti T, King N., Taking 'women's work' 'like a man': husbands' experiences of care work. Gerontologist 2007; 47: 516-527.
30. DiGiacomo M, Lewis J, Nolan MT, et al. Transitioning from caregiving to widowhood. J Pain Symptom Manag 2013; 46: 817-825.
31. Childs G, Goldstein MC, Wangdui P., Externally-resident daughters, social capital, and support for the elderly in Rural Tibet. J Cross Cult Gerontol 2011; 26: 1-22.
32. Zuo D, Li S, Mao W, et al. End-of-life family caregiving for older parents in China's Rural Anhui Province. Can J Aging 2014; 33: 448-461.
33. Chappell NL, Dujela C, Smith A., Caregiver well-being: intersections of relationship and gender. Res Aging 2015; 37: 623-645.
34. Navaie-Waliser M, Spriggs A, Feldman PH., Informal caregiving: differential experiences by gender. Med Care 2002; 40: 1249-1259.
35. Scott G, Whyler N, Grant G., A study of family carers of people with a life-threatening illness 1: the carers' needs analysis. Int J Palliat Nurs 2001; 7: 290-297.
36. Russell R., The work of elderly men caregivers: from public careers to an unseen world. Men Masc 2007; 9: 298-314.
37. Govina O, Vlachou E, Kavga-Paltoglou A, et al. Exploring the factors influencing time and difficulty of tasks provided by family caregivers of patients with advanced cancer in Greece. Health Sci J 2014; 8: 438-451.
38. Mystakidou K, Parpa E, Panagiotou I, et al. Caregivers' anxiety and self-efficacy in palliative care. Eur J Cancer Care 2013; 22: 188-195.
39. Suitor JJ, Pillemer K., Family caregiving and marital satisfaction: findings from a 1-year panel study of women caring for parents with dementia. J Marriage Fam 1994; 56: 681-690.
40. Lavela SL, Ather N., Psychological health in older adult spousal caregivers of older adults. Chronic Illn 2010; 6: 67-80.
41. Fromme EK, Drach LL, Tolle SW, et al. Men as caregivers at the end of life. J Palliat Med 2005; 8: 1167-1175.
42. Calasanti T., Feminist gerontology and old men. J Gerontol B Psychol Sci Soc Sci 2004; 59: S305-S314.
43. Mckie R., Dementia hits women hardest. The Guardian, 2015.
44. World Health Organisation. Palliative care is an essential part of cancer control., http://www.who.int/cancer/palliative/definition/en/ (2009,. accessed 6 January 2015).
45. Calasanti T., A feminist confronts ageism. J Aging Stud 2008; 22: 152-157.
46. Celik H, Lagro-Janssen T, Widdershoven G, et al. Bringing gender sensitivity into healthcare practice: a systematic review. Patient Educ Couns 2011; 84: 143-149.
47. Cohen SR, Keats S, Cherba M, et al. OA8 Caring for the family caregiver: working with volunteers to implement and improve a service to enable family caregivers to maintain their own wellbeing. BMJ Support Palliat Care 2015; 5: A3.