End-of-life family caregiving for older parents in China's rural Anhui Province

Canadian Journal on Aging

Volumn 33, Issue 4, 2014, Pages 448-461

  Zuo, Dongmei ^a   Li, Shuzhuo ^a   Mao, Weiyu ^b   Chi, Iris ^b  

^a XI'AN JIAOTONG UNIVERSITY   (China)

^b UNIVERSITY OF SOUTHERN CALIFORNIA   (United States)

Author keywords

aging; birth order; end of life; family caregiving; prior intergenerational support exchange; rural China

Indexed keywords

ADULT; ADULT CHILD; AGED; BIRTH ORDER; CAREGIVER; CHINA; FEMALE; HUMAN; HUMAN RELATION; LONGITUDINAL STUDY; MALE; MIDDLE AGED; PARENT; RURAL POPULATION; SEX DIFFERENCE; SOCIAL SUPPORT; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; THEORETICAL MODEL; VERY ELDERLY;

ADULT; ADULT CHILDREN; AGED; AGED, 80 AND OVER; BIRTH ORDER; CAREGIVERS; CHINA; FEMALE; HUMANS; INTERGENERATIONAL RELATIONS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; MODELS, THEORETICAL; PARENTS; RURAL POPULATION; SEX FACTORS; SOCIAL SUPPORT; TERMINAL CARE;

EID: 84910661345     PISSN: 07149808     EISSN: 17101107     Source Type: Journal    
DOI: 10.1017/S0714980814000373     Document Type: Article

References (70)

1. Abel, E. K. (1986). Adult daughters and care for the elderly. Feminist Studies, 12, 479-497. doi:10.2307/3177908.
2. Agree, E. M., Biddlecom, A. E., & Valente, T. W. (2005). Intergenerational transfers of resources between older persons and extended kin in Taiwan and the Philippines. Population Studies, 59, 181-195. doi:10.1080/00324720500099454.
3. Antonucci, T. C. (1990). Social supports and social relationships. In R. H. Binstock & L. K. George (Eds.), Handbook of aging and the social sciences (pp. 205-226). New York, NY: Academic Press.
4. Brody, E. M. (1985). Parent care as a normative family stress. Gerontologist, 25 (1), 19-29. doi:10.1093/geront/25.1.19.
5. Campbell, L. D. (2010). Sons who care: Examining the experience and meaning of filial caregiving for married and never-married sons. Canadian Journal on Aging, 29 (1), 73-84. doi:10.1017/S071498080999033X.
6. Caress, A.L., Chalmers, K., & Luker, K. (2009). A narrative review of interventions to support family carers who provide physical care to family members with cancer. International Journal of Nursing Studies, 46 (11), 1516-1527. doi:10.1016/j.ijnurstu.2009.03.008.
7. Chan, C. L. W., & Chow, A. Y. M. (Eds.). (2006). Death, dying and bereavement: A Hong Kong Chinese experience. Hong Kong, China: Hong Kong University Press.
8. Chan, C. L. W., Ho, A. H. Y., Leung, P. P. Y., Chochinov, H. M., Neimeyer, R. A., Pang, S. M. C., & Tse, D. M. W. (2012). The blessings and the curses of filial piety on dignity at the end of life: Lived experience of Hong Kong Chinese adult children caregivers. Journal of Ethnic & Cultural Diversity in Social Work, 21 (4), 277-296. doi:10.1080/153 13204.2012.729177.
9. Chappell, N. L., & Kusch, K. (2007). The gendered nature of filial piety: A study among Chinese Canadians. Journal of Cross-Cultural Gerontology, 22 (1), 29-45. doi:10.1007/ s10823-006-9011-5.
10. Chow, N. W. S. (2001). The practice of filial piety among the Chinese in Hong Kong. In I. Chi, N. L. Chappell, & J. Lubben (Eds.), Elderly Chinese in Pacific Rim countries: Social support and integration (pp. 125-136). Hong Kong, China: Hong Kong University Press.
11. Chudacoff, H. P., & Hareven, T. K. (1979). From the empty nest to family dissolution: Life course transitions into old age. Journal of Family History, 4 (1), 69-83. doi:10.1177/036319907900400105.
12. Cong, Z., & Silverstein, M. (2010). Which sons live with their older parents in rural China?. The role of migration and intergenerational exchanges. Family Science, 1 (1), 63-72. doi:10.1080/19424620903452897.
13. Cong, Z., & Silverstein, M. (2012). Caring for grandchildren and intergenerational support in rural China: A gendered extended family perspective. Ageing and Society, 32 (3), 425-450. doi:10.1017/S0144686X11000420.
14. Coward, R. T., & Dwyer, J. W. (1990). The association of gender, sibling network composition, and patterns of parent care by adult children. Research on Aging, 12 (2), 158-181. doi:10.1177/0164027590122002.
15. Cowgill, D. O. (1974). Aging and modernization: A revision of the theory. In J. F. Gubrium (Ed.), Latelife: Communities and environmental policies (pp. 305-323). Springfield, IL: Thomas.
16. Dannefer, D., & Kelley-Moore, J. A. (2009). Theorizing the life course: New twists in the paths. In V. Bengtson, M. Silverstein, N. Putney, & D. Gans (Eds.), Handbook of theories of aging (2 nd ed.) (pp. 389-411), New York, NY: Springer.
17. Donorfio, L. M., & Sheehan, N. W. (2001). Relationship dynamics between aging mothers and caregiving daughters: Filial expectations and responsibilities. Journal of Adult Development, 8 (1), 39-49. doi:10.1023/A:10264977 21126.
18. Dwyer, J. W., & Coward, R. T. (1991). A multivariate comparison of the involvement of adult sons versus daughters in the care of impaired parents. Journal of Gerontology, 46 (5), S259-S269. doi:10.1093/geronj/46.5.S259.
19. Elder, G. H., Jr. (1994). Time, human agency, and social change: Perspectives on the life course. Social Psychology Quarterly, 57 (1), 4-15. doi:10.2307/2786971.
20. George, L. K. (2002). Research design in end-of-life research: State of science. Gerontologist, 42 (Suppl. 3), 86-98. doi:10.1093/geront/42.suppl-3.86.
21. Goldstein, H. (1987). Multilevel models in educational and social research. New York, NY: Oxford University Press.
22. Gu, D. (2004). The quality of life at the end of life [In Chinese]. In Y. Zeng & Y. Liu (Eds.), Analysis on determinants of healthy longevity in China (pp. 347-360). Beijing, China: Peking University Press.
23. Gu, D., Gu, D., & Zhou, J. (2009). Analysis of the number of days required for full-time care before death and the cost of care in the last month of life among the Chinese elderly. In B. R. Hofmann (Ed.), Health care costs: Causes, effects and control (pp. 51-79). New York, NY: Nova Science.
24. Gu, D., Liu, G., Vlosky, D. A., & Zeng, Y. (2007). Factors associated with place of death among the Chinese oldest old. Journal of Applied Gerontology, 26 (1), 34-57. doi:10.1177/0733464806296057.
25. Gu, D., Liu, Y., Zhang, Y., Ren, H., & Zeng, Y. (2007). Analysis of number of days needing full-time care before dying among the Chinese elderly [In Chinese]. Population and Economics, 6, 51-58.
26. Gu, D., & Vlosky, D. A. (2008). Long-term care needs and related issues in China. In J. B. Garner & T. C. Christiansen (Eds.), Social sciences in health care and medicine (pp. 52-84). New York, NY: Nova Science.
27. Hansson, R. O., Chernovetz, M. E., Jones, W. H., & Stortz, S. (1978). Birth order and responsibility in natural settings. Journal of Social Psychology, 105 (2), 307-308. doi:10.1080/ 00224545.1978.9924132.
28. Hermalin, A. I. (Ed.). (2002). The well-being of the elderly in Asia: A four-country comparative study. Ann Arbor, MI: University of Michigan Press.
29. Horwitz, A. V., Reinhard, S. C., & Howell-White, S. (1996). Caregiving as reciprocal exchange in families with seriously mentally ill members. Journal of Health and Social Behavior, 37 (2), 149-162. doi:10.2307/2137270.
30. Houser, B. B., Berkman, S. L., & Bardsley, P. (1985). Sex and birth order differences in filial behavior. Sex Roles, 13 (11-12), 641-651. doi:10.1007/BF00287300.
31. Hwang, K. K. (1999). Filial piety and loyalty: Two types of social identification in Confucianism. Asian Journal of Social Psychology, 2, 163-183. doi:10.1111/1467-839X.00031.
32. Izumi, S., Nagae, H., Sakurai, C., & Imamura, E. (2012). Defining end-of-life care from perspectives of nursing ethics. Nursing Ethics, 19, 608-618. doi:10.1177/0969733011436205.
33. Karasik, R. J., & Conway-Turner, K. (1995). Role of siblings in adult daughters' anticipation of caregiving. Journal of Adult Development, 2 (1), 257-263. doi:10.1007/BF02251040.
34. Koh, S. K. (2002). Financial reciprocity and elder care: Understanding multiple, interdependent resource transfers [Doctoral dissertation]. Iowa State University, Ames, IA.
35. Kulik, L. (2004). The impact of birth order on intergenerational transmission of attitudes from parents to adolescent sons: The Israeli case. Journal of Youth and Adolescence, 33 (2), 149-157. doi:10.1023/B:JOYO.0000013426.65751.81.
36. Lang, A. M., & Brody, E. M. (1983). Characteristics of middleaged daughters and help to their elderly mothers. Journal of Marriage and Family, 45 (1), 193-202. doi:10.2307/ 351308.
37. Lee, Y.-J., Parish, W. L., & Willis, R. J. (1994). Sons, daughters, and intergenerational support in Taiwan. American Journal of Sociology, 99 (4), 1010-1041. doi:10.1086/ 230370.
38. Li, Q. (2001). Rural-urban migrants and their remittance in China [In Chinese]. Sociology Studies, 4, 64-76.
39. Li, Y., Doring, O., Fang, L., Li, F., & Baoqi, S. (2005). End-oflife care in China: A view from Beijing. In R. H. Black & J. C. Merrick (Eds.), End-of-life decision making: A crossnational study (pp. 33-59). Cambridge, MA: MIT Press.
40. Lin, I. F., Goldman, N., Weinstein, M., Lin, Y. H., Gorrindo, T., & Seeman, T. (2003). Gender differences in adult children's support of their parents in Taiwan. Journal of Marriage and Family, 65 (1), 184-200. doi:10.1111/ j.1741-3737.2003.00184.x.
41. Logan, J. R., Bian, F., & Bian, Y. (1998). Tradition and change in the urban Chinese family: The case of living arrange ments. Social Forces, 76 (3), 851-882. doi:10.1093/ sf/76.3.851.
42. Lopata, H. Z. (1973). Widowhood in an American city. Cambridge, MA: Schenkman.
43. Mao, W., & Chi, I. (2011). Filial piety of children as perceived by aging parents in China. International Journal of Social Welfare, 20 (Suppl. s1), S99-S108. doi:10.1111/j.1468- 2397.2011.00826.x.
44. McNamara, B., & Rosenwax, L. (2010). Which carers of family members at the end of life need more support from health services and why? Social Science & Medicine, 70 (7), 1035-1041. doi:10.1016/j.socscimed.2009.11.029.
45. Rawlins, J. M., & Spencer, M. (2002). Daughters and wives as informal care givers of the chronically ill elderly in Trinidad. Journal of Comparative Family Studies, 33, 125-137.
46. Read, T., & Wuest, J. (2007). Daughters caring for dying parents: A process of relinquishing. Qualitative Health Research, 17 (7), 932-944. doi:10.1177/1049732307306123.
47. Ross, C. E. (1987). The division of labor at home. Social Forces, 65 (3), 816-833. doi:10.1093/sf/65.3.816.
48. Salmon, C. (2003). Birth order and relationships: Family, friends, and sexual partners. Human Nature, 14 (1), 73-88. doi:10.1007/s12110-003-1017-x.
49. Shi, Y., & Wang, G. (Eds.). (2010). Status of family caregiving at the end of life in Chinese cities and implications on policies [In Chinese]. Shanghai, China: Shanghai Technology and Education Press.
50. Silverstein, M., Cong, Z., & Li, S. (2007). Grandparents who care for their grandchildren in rural China: Benefactors and beneficiaries. In I. G. Cook & J. L. Powell (Eds.), New perspectives on China and aging (pp. 49-71). New York, NY: Nova Science.
51. Silverstein, M., Conroy, S. J., Wang, H., Giarrusso, R., & Bengtson, V. L. (2002). Reciprocity in parent-child relations over the adult life course. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57 (1), S3-S13. doi:10.1093/geronb/57.1.S3.
52. Smith, D. S. (1979). Life course, norms, and the family system of older Americans in 1900. Journal of Family History, 4 (3), 285-298. doi:10.1177/036319907900400303.
53. Smith, T. E. (1984). Sex and sibling structure: Interaction effects upon the accuracy of adolescent perceptions of parental orientations. Journal of Marriage and Family, 46 (4), 901-907. doi:10.2307/352538.
54. Song, L., & Li, S. (2008). Sons and daughters: Effects of out-migration on division of intergenerational support in rural China [In Chinese]. Journal of Xi'an Jiaotong University, 28 (3), 10-21.
55. Spitze, G., & Logan, J. (1990). Sons, daughters and intergenerational social support. Journal of Marriage and the Family, 52 (2), 420-430. doi:10.2307/353036.
56. Spitze, G., & Logan, J. R. (1991). Sibling structure and intergenerational relations. Journal of Marriage and Family, 53 (4), 871-884. doi:10.2307/352994.
57. Stoller, E. P., & Earl, L. L. (1983). Help with activities of everyday life: Sources of support for the noninstitutionalized elderly. Gerontologist, 23 (1), 64-70. doi:10.1093/ geront/23.1.64.
58. Stajduhar, K., Funk, L., Toye, C., Grande, G. E., Aoun, S., & Todd, C. J. (2010). Home-based family caregiving at the end of life: A comprehensive review of published quantitative research (1998-2008). Palliative Medicine, 24 (6), 573-593. doi:10.1177/0269216310371412.
59. Wachwithan, P. (2000). Examining intergenerational resource transfers: The relevance of individual and family characteristics and reciprocity concepts [Doctoral dissertation]. University of Minnesota, Minneapolis, MN.
60. Wang, D. (2004). Ritualistic coresidence and the weakening of filial practice in rural China. In C. Ikels (Ed.), Filial piety: Practice and discourse in contemporary East Asia (pp. 16-33). Stanford, CA: Stanford University Press.
61. Wang, X. S., Di, L. J., Reyes-Gibby, C. C., Guo, H., Liu, S. J., & Cleeland, C. S. (2004). End-of-life care in urban areas of China: A survey of 60 oncology clinicians. Journal of Pain and Symptom Management, 27 (2), 125-132. doi:10.1016/ j.jpainsymman.2003.06.002.
62. Yang, B. (2008). Mencius translation and annotation [In Chinese]. Beijing, China: Zhonghua Book Company.
63. Zhan, H. J. (2004a). A study on the nursing of Chinese eldestold before their death [In Chinese]. Chinese Journal of Population Science, (Suppl.), 121-123.
64. Zhan, H. J. (2004b). Through gendered lens: Explaining Chinese caregivers' task performance and care reward. Journal of Women & Aging, 16 (1-2), 123-142. doi:10.1300/ J074v16n01-09.
65. Zhan, H. J., & Montgomery, R. J. V. (2003). Gender and elder care in China: The influence of filial piety and structural constraints. Gender & Society, 17 (2), 209-229. doi:10.1177/0891243202250734.
66. Zhang, H. (2007). China's new rural daughters coming of age: Downsizing the family and firing up cashearning power in the new economy. Signs, 32 (3), 671-698. doi:10.1086/510923.
67. Zhang, W., & Li, S. (2005). Gender differences in activity of daily living of the elderly in rural china: Evidence from Chaohu. Journal of Women & Aging, 17 (3), 73-89. doi:10.1300/J074v17n03-06.
68. Zhou, L. (2010). Intergenerational transfers in rural China: Do children's gender and birth order matter? [Doctoral dissertation]. University of Southern California, Los Angeles, CA.
69. Zimmer, Z., & Korinek, K. (2010). Shifting coresidence near the end of life: Comparing decedents and survivors of a follow-up study in China. Demography, 47 (3), 537-554. doi:10.1353/dem.0.0116.
70. Zuo, D., Wu, Z., & Li, S. (2011). Age and intergenerational exchange among older parents in rural China. International Journal of Social Welfare, 20 (Suppl. S1), S30-S46. doi:10.1111/j.1468-2397.2011.00817.x.