Caregivers' anxiety and self-efficacy in palliative care

European Journal of Cancer Care

Volumn 22, Issue 2, 2013, Pages 188-195

  Mystakidou, K ^a   Parpa, E ^a   Panagiotou, I ^a   Tsilika, E ^a   Galanos, A ^a   Gouliamos, A ^a  

^a UNIVERSITY OF ATHENS   (Greece)

Author keywords

Advanced cancer patients; Anxiety; Caregivers; Self efficacy

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CAREGIVER; FEMALE; HUMAN; MALE; MIDDLE AGED; NEOPLASM; NURSING; PALLIATIVE THERAPY; PSYCHOLOGICAL ASPECT; REGRESSION ANALYSIS; RISK FACTOR; SELF CONCEPT; SEX DIFFERENCE; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; ANXIETY; CAREGIVERS; FEMALE; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; PALLIATIVE CARE; REGRESSION ANALYSIS; RISK FACTORS; SELF EFFICACY; SEX FACTORS;

EID: 84873954505     PISSN: 09615423     EISSN: 13652354     Source Type: Journal    
DOI: 10.1111/ecc.12012     Document Type: Article

References (74)

1. Akechi T., Akizuki N., Okamura M., Shimizu K., Oba A., Ito T., Yoshikawa E., Nakano T., Inagaki M. & Uchitomi Y. (2006) Psychological distress experienced by families of cancer patients, preliminary findings from psychiatric consultation of a cancer center hospital. Japanese Journal of Clinical Oncology 36, 329-332.
2. Andershed B. & Ternestedt B.M. (1998) Involvement of relatives in the care of the dying in different care cultures, involvement in the dark or in the light? Cancer Nursing 21, 106-116.
3. Andrade L., Gorenstein C., Vieira Filho A.H., Tung T.C. & Artes R. (2001) Psychometric properties of the Portuguese version of the State-Trait Anxiety Inventory applied to college students, factor analysis and relation to the Beck Depression Inventory. Brazilian Journal of Medicine and Biology Research 34, 367-374.
4. Ayres L. (2000) Narratives of family caregiving, the process of making meaning. Research in Nursing and Health 23, 424-434.
5. Bandura A. (1997) Self-Efficacy: The Exercise of Control. W. H. Freeman, New York, NY, USA.
6. Bandura A., Blanchard E.B. & Ritter B. (1969) Relative efficacy of desensitization and modelling approaches for including bevavioral, affective, and attitudinal changes. Journal of Personality and Social Psychology 13, 173-199.
7. Bandura A., Reese L. & Adams N.E. (1982) Microanalysis of action and fear arousal as a function of differential levels of perceived self-efficacy. Journal of Personality and Social Psychology 43, 5-21.
8. Bandura A., Taylor C.B., Wiliams S.L., Mefford I.N. & Barchas J.D. (1985) Catecholamine secretion as a function of perceived coping self-efficacy. Journal of Consulting and Clinical Psychology 53, 406-416.
9. Barg F.K., Pasacreta J.V., Nuamah I. & McCorkle R. (1998) A description of a psychoeducational intervention for family caregivers of cancer patients. Journal of Family Nursing 4, 394-413.
10. Batson C.D. (1998) Altruism and prosocial behavior. In: The Handbook of Social Psychology, Vol. 2 (eds Gilbert D.T., Fiske S.T. & Lindzey D.), pp. 282-316. McGraw-Hill, New York, NY, USA.
11. Braden C., Mishel M. & Longman A.J. (1998) Self-help intervention project. Cancer Practice 6, 87-98.
12. Carter P. (2002) Caregivers' descriptions of sleep changes and depressive symptoms. Oncology Nursing Forum 29, 1277-1283.
13. Cassileth B.R., Lusk E.J., Strouse T.B., Miller D.S., Brown L.L. & Cross P.A. (1985) A psychological analysis of cancer patients and their next-of-kin. Cancer 55, 72-76.
14. Cohen C.A., Colantonio A. & Vernich L. (2002) Positive aspects of caregiving, rounding out the caregiver experience. International Journal of Geriatric Psychiatry 17, 184-188.
15. Cohen S. & Hoberman H.M. (1983) Positive events and social supports as buffers of life change stress. Journal of Applied Social Psychology 13, 99-125.
16. Coristine M., Crooks D., Grunfeld E., Stonebridge C. & Christie A. (2003) Caregiving for women with advanced breast cancer. Psycho-Oncology 12, 709-719.
17. Courtens A.M., Stevens P.C.I., Crebolder H.F. & Philipsen H. (1996) Longitudinal study on quality of life and social support in cancer patients. Cancer Nursing 19, 162-169.
18. Covinsky K.E., Goldman L., Cook E.F., Oye R., Desbiens N., Reding D., Fulkerson W., Connors A.F., Jr, Lynn J. & Phillips R.S. (1994) The impact of serious illness on patients' families. Support investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Journal of the American Medical Association 272, 1839-1844.
19. Ekberg J.Y., Griffith N. & Foxall M.J. (1986) Spouse burnout syndrome. Journal of Advanced Nursing 11, 161-165.
20. Emanuel E.J., Fairclough D.L., Slutsman J., Alpert H., Baldwin D. & Emanuel L.L. (1999) Assistance from family members, friends, paid care givers, and volunteers in the care of terminally ill patients. New England Journal of Medicine 341, 956-963.
21. Flaskerud J.H., Carter P.A. & Lee P. (2000) Distressing emotions in female caregivers of people with AIDS, age-related dementias, and advanced-stage cancers. Perspectives in Psychiatric Care 36, 121-130.
22. Gaston-Johansson F., Lachica E.M., Fall-Dickson J.M. & Kennedy M.J. (2004) Psychological distress, fatigue, burden of care, and quality of life in primary caregivers of patients with breast cancer undergoing autologous bone marrow transplantation. Oncology Nursing Forum 31, 1161-1169.
23. Given B., Given C. & Kozachik S. (2001) Family support in advanced cancer. CA: A Cancer Journal of Clinicians 51, 213-231.
24. Given C.W., Stommel M., Given B., Osuch J., Kurtz M.E. & Kurtz J.C. (1993) The influence of cancer patients' symptoms and functional states on patients' depression and family caregivers' reaction and depression. Health Psychology 12, 277-285.
25. Glynou E., Jerusalem M. & Schwarzer R. (1992) Greek Version of the General Self-Efficacy Scale. Available at: http://www.ralfschwarzer.de
26. Grov E.K., Dahl A.A., Moum T. & Fossa S.D. (2005) Anxiety, depression, and quality of life in caregivers of patients with cancer in late palliative phase. Annals of Oncology 16, 1185-1191.
27. Hagedoorn M., Buunk B.P., Kuijer R.G., Wobbes T. & Sanderman R. (2000) Couples dealing with cancer, role and gender differences regarding psychological distress and quality of life. Psycho-Oncology 9, 232-242.
28. Hagedoorn M., Sanderman R., Buunk B.P. & Wobbes T. (2002) Failing in spousal caregiving: the 'identity-relevant stress' hypothesis to explain sex differences in caregiver distress. British Journal of Health Psychology 7, 481-494.
29. Harding R. & Higginson I. (2003) What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliative Medicine 17, 63-74.
30. Harding R., Higginson I. & Donaldson N. (2003) The relationship between patient characteristics and carer psychological status in home palliative cancer care. Supportive Care in Cancer 11, 638-643.
31. Higginson I.J., Wade A. & McCarthy M. (1990) Palliative care, views of patients and their families. British Medical Journal 301, 277-281.
32. Hodgkinson K., Butow P., Hunt G.E., Wyse R., Hobbs K.M. & Wain G. (2007) Life after cancer: couples' and partners' psychological adjustment and supportive care needs. Supportive Care in Cancer 15, 405-415.
33. Hodgson C., Higginson I.J., McDonnell M. & Butters E. (1997) Family anxiety in advanced cancer, a multicentre prospective study in Ireland. British Journal of Cancer 76, 1211-1214.
34. Hudson P., Aranda S. & Kristjanson L. (2004) Information provision for palliative care families, moving toward evidenced-based practice. European Journal of Palliative Care 11, 153-157.
35. Hudson P., Aranda S. & Hayman-White K. (2005) A psycho-educational intervention for family caregivers of patients receiving palliative care, a randomized controlled trial. Journal of Pain and Symptom Management 30, 329-341.
36. Iconomou G., Viha A., Kalofonos H.P. & Kardamakis D. (2001) Impact of cancer on primary caregivers of patients receiving radiation therapy. Acta Oncologica 40, 766-771.
37. Ilanit Hasson-Ohayon I., Goldzweig G., Braun M. & Galinsky D. (2010) Women with advanced breast cancer and their spouses: diversity of support and psychological distress. Psycho-Oncology 19, 1195-1204.
38. Keedwell P. & Snaith R.P. (1996) What do anxiety scales measure? Acta Psychiatrica Scandinavica 93, 177-180.
39. Keefe F.J., Ahles T.A., Porter L.S., Sutton L.M., McBride C.M., Pope M.S., McKinstry E.T., Furstenberg C.P., Dalton J. & Baucom D.H. (2003) The self-efficacy of family caregivers for helping cancer patients manage pain at end-of-life. Pain 103, 157-162.
40. Klemm P. & Wheeler E. (2005) Cancer caregivers online hope, emotional roller coaster, and physical/emotional/psychological responses. Computers, Informatics, Nursing 23, 38-45.
41. Kristjanson L., Hudson P. & Oldham L. (2003) Working with families in palliative care. In: Palliative Care Nursing, A Guide to Practice, 2nd edn (eds O'Connor M. & Aranda S.), pp. 271-283. Ausmed, Melbourne, Vic., Australia.
42. Kurtz M.E., Kurtz J.C., Given C.W. & Given B. (1995) Relationship of caregiver reactions and depression to cancer patients' symptoms, functional states and depression, a longitudinal view. Social Science and Medicine 40, 837-846.
43. Lev E., Paul D. & Owen S.V. (1999) Age, self-efficacy, and change in patients' adjustment to cancer. Cancer Practice 7, 170-176.
44. Lev E.L. (1997) Bandura's theory of self-efficacy: applications to oncology. Scholarly Inquiry for Nursing Practice: An International Journal 11, 21-37.
45. Lev E.L. & Owen S.V. (2000) Counseling women with breast cancer using principles developed by Albert Bandura. Perspectives in Psychiatric Care 36, 131-137.
46. Lewis F.M. (1997) Behavioral research to enhance adjustment and quality of life among adults with cancer. Preventive Medicine 26, S19-S29.
47. McCleary R. & Zucker E.L. (1991) Higher trait and state-anxiety in female law students than in male law students. Psychological Reports 68, 1075-1078.
48. Mood D. (1997a) Cancers of the head and neck. In: A Cancer Source Book for Nurses (ed. Varricchio C.), pp. 271-283. American Cancer Society Professional Education Publication, Atlanta, GA, USA.
49. Mood D. (1997b) Contingency contracting, an intervention strategy for moving patients from knowing to doing. Proceedings of the 21st Annual Conference of the Midwest Nursing Research Society. Minneapolis, MN.
50. Mystakidou K., Liossi C., Vlahos L. & Papadimitriou J. (1996) Disclosure of diagnostic information to cancer patients in Greece. Palliative Medicine 10, 195-200.
51. Mystakidou K., Tsilika E., Parpa E., Galanos A. & Vlahos L. (2007) Caregivers of advanced cancer patients. Feelings of hopelessness and depression. Cancer Nursing 30, 412-418.
52. Mystakidou K., Tsilika E., Parpa E., Galanos A. & Vlahos L. (2008) General perceived self-efficacy, validation analysis in Greek cancer patients. Supportive Care in Cancer 16, 1317-1322.
53. Mystakidou K., Tsilika E., Parpa E., Sakkas P. & Vlahos L. (2009) The psychometric properties of the Greek version of the State-Trait Anxiety Inventory in cancer patients receiving palliative care. Psychology and Health 24, 1215-1228. Available at: http://dx.doi.org/10.1080/08870440802340172
54. Mystakidou K., Tsilika E., Parpa E., Gogou P., Theodorakis P. & Vlahos L. (2010) Self-efficacy beliefs and levels of anxiety in advanced cancer patients. European Journal of Cancer Care 19, 205-211.
55. Nakazato K. & Shimonaka Y. (1989) The Japanese State-Trait Anxiety Inventory, age and sex differences. Perceptual and Motor Skills 69, 611-617.
56. Nijboer C., Triemstra M., Tempelaar R., Sanderman R. & Van den Bos G. (1999) Measuring both negative and positive reactions to giving care to cancer patients, psychometric qualities of the caregiver reaction assessment. Social Science and Medicine 48, 1259-1269.
57. Northouse L.L., Mood D., Templin T., Mellon S. & George T. (2000) Couples' patterns adjustment to colon cancer. Social Science and Medicine 50, 271-284.
58. Northouse L.L., Katapodi M.C., Song L., Zhang L. & Mood D.W. (2010) Interventions with family caregivers of cancer patients. Meta-analysis of randomized trials. CA: A Cancer Journal of Clinicians 60, 317-339.
59. Oei T.P., Evans L. & Crook G.M. (1990) Utility and validity of the STAI with anxiety disorder patients. British Journal of Clinical Psychology 29, 429-432.
60. Payne S., Smith P. & Dean S. (1999) Identifying the concerns of informal carers in palliative care. Palliative Medicine 13, 37-44.
61. Pearce M.P., Singer J.L. & Prigerson H.G. (2006) Religious coping among caregivers of terminally ill cancer patients. Main effects and psychosocial mediators. Journal of Health Psychology 11, 743-759.
62. Porter L.S., Keefe F.J., Garst J., McBride C.M. & Baucom D. (2008) Self-efficacy for managing pain, symptoms, and function in patients with lung cancer and their informal caregivers, associations with symptoms and distress. Pain 137, 306-315.
63. Reverby S.M. (1987) Ordered to Care, the Dilemma of American Nursing. Cambridge University Press, Cambridge, UK.
64. Schulz R. & Beach S.R. (1999) Caregiving as a risk for mortality, the Caregiving Health Effects Study. Journal of the American Medical Association 282, 2215-2219.
65. Schwarzer R. & Jerusalem M. (1995) Generalized self-efficacy scale. In: Measures in Health Psychology, A User's Portfolio. Causal and Control Beliefs (eds Weinman J., Wright S. & Johnston M.), pp. 35-37. NFERNelson, Windsor, UK.
66. Spielberger C. (1983) State-Trait Anxiety Inventory Manual. Mind Garden, Redwood City, CA, USA.
67. Spielberger C.D., Gorsuch R.L. & Lushene R.E. (1970) Manual for the State-Trait Anxiety Inventory. Consulting Psychologists Press, Palo Alto, CA, USA.
68. Stajduhar K.I. & Davies B. (1998) Death at home, challenges for families and directions for the future. Journal of Palliative Care 14, 8-14.
69. Tanaka-Matsumi J. & Kameoka V.A. (1986) Reliabilities and concurrent validities of popular self-report measures of depression, anxiety, and social desirability. Journal of Consulting and Clinical Psychology 54, 328-333.
70. Thomas C., Morris S.M. & Harman J.C. (2002) Companions through cancer, the care given by informal carers in cancer contexts. Social Science and Medicine 54, 529-544.
71. Toseland R.W., Blanchard C.G. & McCallion P. (1995) A problem solving intervention for caregivers of cancer patients. Social Science and Medicine 40, 517-528.
72. Turner R.J. & Noh S. (1982) Class and psychological vulnerability among women, the significance of social support and personal control. Journal of Health and Social Behavior 24, 2-15.
73. Vess J.D., Jr, Moreland J.R., Schwebel A.I. & Kraut E. (1989) Psychosocial needs of cancer patients, learning from patients and their spouses. Journal of Psychosocial Oncology 6, 31-51.
74. World Health Organization (2002) National Cancer Control Programmes, Policies and Managerial Guidelines, 2nd edn. World Health Organization, Geneva, Switzerland.