Caregiver Well-Being: Intersections of Relationship and Gender

Research on Aging

Volumn 37, Issue 6, 2015, Pages 623-645

  Chappell, Neena L ^a   Dujela, Carren ^a   Smith, André ^a  

^a UNIVERSITY OF VICTORIA   (Canada)

Author keywords

burden; caregiving; gender; intersectionality; self esteem; spouse vs. adult child

Indexed keywords

ADULT CHILD; BRITISH COLUMBIA; CAREGIVER; COST OF ILLNESS; EPIDEMIOLOGY; FEMALE; HEALTH STATUS; HUMAN; INTERVIEW; MALE; PSYCHOLOGY; QUALITY OF LIFE; SELF CONCEPT; SPOUSE; STATISTICS AND NUMERICAL DATA;

ADULT CHILDREN; BRITISH COLUMBIA; CAREGIVERS; COST OF ILLNESS; FEMALE; HEALTH STATUS; HUMANS; INTERVIEWS AS TOPIC; MALE; QUALITY OF LIFE; SELF CONCEPT; SPOUSES;

EID: 84936746844     PISSN: 01640275     EISSN: 15527573     Source Type: Journal    
DOI: 10.1177/0164027514549258     Document Type: Article

References (59)

1. J.Acker (2006). Introduction: “The missing feminist revolution” symposium. Social Problems, 53, 444–447. doi:10.1525/sp.2006.53.4.444
2. R.F.AllegriD.SarasolaC.M.SerranoF.E.TaraganoR.L.ArizagaJ.ButmanL.Lon (2006). Neuropsychiatric symptoms as a predictor of caregiver burden in Alzheimer's disease. Neuropsychiatric Disease and Treatment, 2, 105–110.
3. S.AndrenS.Elmstahl (2007). Relationships between income, subjective health and caregiver burden in caregivers of people with dementia in group living care: A cross-sectional community-based study. International Journal of Nursing Studies, 44, 435–446. doi:10.1016/j.ijnurstu.2006.08.016
4. J.Aronson (1992). Women's sense of responsibility for the care of old people: But who else is going to do it?Gender & Society, 6, 8–29.
5. M.Bastawrous (2013). Caregiver burden–A critical discussion. International Journal of Nursing Studies, 50, 431–441. doi:10.1016/j.ijnurstu.2012.10.005
6. M.BédardD.W.MolleyL.SquireS.DuboisJ.A.LeverM.O’Donnell (2001). The Zarit Burden interview: A new short version and screening version. The Gerontologist, 41, 652–657. doi:10.1093/geront/41.5.652
7. T.CalasantiM.E.Bowen (2006). Spousal caregiving and crossing gender boundaries: Maintaining gender identities. Journal of Aging Studies, 20, 253–263. doi:10.1016/j.jaging.2005.08.001
8. L.CamfieldS.M.Skevington (2008). On subjective well-being and quality of life. Journal of Health Psychology, 13, 764–775.
9. M.CarrollL.Campbell (2008). Who now reads Parsons and Bales? Casting a critical eye on the “gendered styles of caregiver” literature. Journal of Aging Studies, 22, 24–31.
10. N.L.ChappellC.DujelaA.Smith (2014). Spouse/child differences in caregiving burden. Canadian Journal on Aging, 33, 462–472.
11. N.L.ChappellM.Hollander (2013). Aging in Canada. Toronto, Canada: Oxford University Press.
12. S.ChengL.C.LamT.Kwok (2013). Neuropsychiatric symptom clusters of Alzheimer disease in Hong Kong Chinese: Correlates with caregiver burden and depression. American Journal of Geriatric Psychiatry, 21, 1029–1037. doi:10.1016/j.jagp.2013.01.041
13. J.L.Conde-SalaJ.Garre-OlmoO.Turró-GarrigaJ.Vilalta-FranchS.Lopez-Pousa (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative design. International Journal of Nursing Studies, 47, 1262–1273. doi:10.1016/j.ijnurstu.2010.03.001
14. K.W.Crenshaw (1994). Mapping the margins: Intersectionality, identity, politics, and violence against women of colour. In M.FinemanR.Mykitiuk (Eds.), The public nature of private violence (pp. 94–118). New York, NY: Routledge.
15. B.Da Roit (2007). Changing intergenerational solidarities within families in a Mediterranean welfare state. Current Sociology, 55, 251–269. doi:10.1177/0011392107073306
16. A.Deaton (2008). Income, health, and well-being around the world: Evidence from the Gallup World Poll. Journal of Economic Perspectives, 22, 53–72. doi:10.1257/jep.22.2.53
17. A.Denis (2008). Intersectional analysis: A contribution of feminism to sociology. International Sociology, 23, 677–694. doi:10.1177/0268580908094468
18. D.GallagherA.Ni MhaolainL.CrosbyD.RyanL.LaceyR.F.CoenB.A.Lawlor (2011). Dependence and caregiver burden in Alzheimer's disease and mild cognitive impairment. American Journal of Alzheimer's Disease and Other Dementias, 26, 110–114. doi:10.1177/1533317510394649
19. J.E.GalvinJ.E.DudaD.I.KauferC.F.LippaA.TaylorS.H.Zarit (2010). Lewy body dementia: The caregiver experience of clinical care. Parkinsonism & Related Disorders, 16, 388–392. doi:10.1016/j.parkreldis.2010.03.007
20. K.GarloJ.R.O’LearyP.H.Van NessT.R.Fried (2010). Burden in caregivers of older adults with advanced illness. Journal of the American Geriatrics Society, 58, 2315–2322. doi:10.1111/j.1532-5415.2010.03177.x
21. B.GoldsworthyS.Knowles (2008). Caregiving for Parkinson's disease patients: An exploration of a stress-appraisal model for quality of life and burden. Journals of Gerontology, Series B, 63, P372–P376.
22. O.Hankivsky (2012). Women’s health, men’s health, and gender and health: implications of intersectionality. Social Science & Medicine, 74, 712–1720.
23. O.HankivskyA.Christoffersen (2008). Intersectionality and the determinants of health: A Canadian perspective. Critical Public Health, 18, 1–13.
24. T.HansenB.SlagsvoldR.Ingebretsen (2013). The strains and gains of caregiving: An examination of the effects of providing personal care to a parent on a range of indicators of psychological well-being. Social Indicators Research, 114, 323–342. doi:10.1007/s11205-012-0148-z
25. G.S.HongH.Kim (2008). Family caregiver burden by relationship to care recipient with dementia in Korea. Geriatric Nursing, 29, 267–274. doi:10.1016/j.gerinurse.2007.09.004
26. K.HookerM.Manoogian-O’DellD.MonahanL.D.FrazierK.Shifren (2000). Does type of disease matter? Gender differences among Alzheimer's and Parkinson's disease spouse caregivers. Gerontologist, 40, 568–573. doi:0.1093/geront/40.5.568
27. H.KimM.ChangK.RoseS.Kim (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846–855. doi:10.1111/j.1365-2648.2011.05787.x
28. Y.KimF.BakerR.L.Spillers (2007). Cancer caregivers’ quality of life: Effects of gender, relationship, and appraisal. Journal of Pain and Symptom Management, 34, 294–304. doi:10.1016/j.jpainsymman.2006.11.012
29. K.W.KnightE.A.Rosa (2011). The environmental efficiency of well-being: A cross-national analysis. Social Science Research, 40, 931–949.
30. C.Krekula (2007). The intersection of age and gender: Reworking gender theory and social gerontology. Current Sociology, 55, 155–171. doi:10.1177/0011392107073299
31. Y.LeeL.Smith (2012). Qualitative research on Korean American dementia caregivers' perception of caregiving: Heterogeneity between spouse caregivers and child caregivers. Journal of Human Behavior in the Social Environment, 22, 115–129. doi:10.1080/10911359.2012.646840
32. I.LeroiV.HarbishettarM.AndrewsK.McDonaldE.J.ByrneA.Burns (2012). Carer burden in apathy and impulse control disorders in Parkinson's disease. International Journal of Geriatric Psychiatry, 27, 160–166. doi:10.1002/gps.2704
33. B.T.MausbachD.W.CoonT.L.PattersonI.Grant (2008). Engagement in activities is associated with affective arousal in Alzheimer's caregivers: A preliminary examination of the temporal relations between activity and affect. Behavioral Therapy, 39, 366–374. doi:10.1016/j.beth.2007.10.002
34. S.MohamedR.RosenbeckC.G.LyketsosL.S.Schneider (2010). Caregiver burden in Alzheimer disease: Cross-sectional and longitudinal patient correlates. American Journal of Geriatric Psychiatry, 18, 917–927. doi:10.1097/JGP.0b013e3181d5745d
35. C.J.Mruk (2006). Defining self-esteem: An often overlooked issue with crucial implications. In M.H.Kenis (Ed.), Self-esteem issues and answers: A sourcebook of current perspectives (pp. 10–15). New York, NY: Psychology Press, Taylor & Francis Group.
36. A.MykletunE.StordalA.A.Dahl (2001). Hospital anxiety and depression (HAD) scale: Factor structure, item analyses and internal consistency in a large population. British Journal of Psychiatry, 179, 540–544. doi:10.1192/bjp.179.6.540
37. M.Navaie-WaliserP.H.FeldmanD.A.GouldC.LevineA.N.KuerbisK.Donelan (2002). When the caregiver needs care: The plight of vulnerable caregivers. American Journal of Public Health, 92, 409–413. doi:10.2105/AJPH.92.3.409
38. K.OrnsteinJ.E.GauglerD.P.DevanandN.ScarmeasC.ZhuY.Stern (2013). The differential impact of unique behavioral and psychological symptoms for the dementia caregiver: How and why do patients' individual symptom clusters impact caregiver depressive symptoms?American Journal of Geriatric Psychiatry, 21, 1277–1286. doi:10.1016/j.jagp.2013.01.062.
39. U.OrthR.W.RobinsK.H.TrzesniewskiJ.MaesM.Schmitt (2009). Low self-esteem is a risk factor for depressive symptoms from young adulthood to old age. Journal of Abnormal Psychology, 118, 472–478. doi:10.1037/a0015922
40. L.I.PearlinJ.T.MullanS.J.SempleM.M.Skaff (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
41. M.PinquartS.Sörensen (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250–267. doi:10.1037/0882-7974.18.2.250
42. M.PinquartS.Sorensen (2004). Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging and Mental Health, 8, 438–449.
43. M.PinquartS.Sörensen (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26, 1–14. doi:10.1037/a0021863
44. M.RaschickB.Ingersoll-Dayton (2004). The costs and rewards of caregiving among aging spouses and adult children. Family Relations, 53, 317–325. doi:10.1111/j.0022-2445.2004.0008.x
45. J.RobinsonR.FortinskyA.KleppingerN.ShugrueM.Porter (2009). A broader view of family caregiving: Effects of caregiving and caregiver conditions on depressive symptoms, health, work and social isolation. Journals of Gerontology Series B: Psychological Sciences, 64B, 788–798.
46. R.RosdinomM.Z.ZarinaM.MarhaniW.Suzaily (2013). Behavioral and psychological symptoms of dementia, cognitive impairment and caregiver burden in patients with dementia. Preventive Medicine, 57, S67–S69. doi:10.1016/j.ypmed.2012.12.025
47. K.A.RyanA.WeldonN.M.HubyC.PersadA.K.BhaumikJ.L.HeidebrinkB.Giordani (2010). Caregiver support service needs for patients with mild cognitive impairment and Alzheimer's disease. Alzheimer Disease & Associated Disorders, 24, 171–176. doi:10.1097/WAD.0b013e3181aba90d
48. A.SarvimakiB.Stenbock-Hult (2000). Quality of life in old age described as a sense of well-being, meaning and value. Journal of Advanced Nursing, 32, 1025–1033.
49. B.SchoenmakersF.BuntinxJ.Delepeleire (2009). Can pharmacological treatment of behavioural disturbances in elderly patients with dementia lower the burden of their family caregiver?Family Practice, 26, 279–286. doi:10.1093/fampra/cmp024
50. A.SmithK.KobayashiN.L.ChappellD.Hoxey (2011). The controversial promises of cholinesterase inhibitors for Alzheimer’s disease and related dementias: A qualitative study of caregivers’ experiences. Journal of Aging Studies, 25, 397–406.
51. J.F.SowisloU.Orth (2013). Does low self-esteem predict depression and anxiety? A meta-analysis of longitudinal studies. Psychological Bulletin, 139, 213–240. doi:10.I037/a0028931
52. F.SunM.M.HilgemanD.W.DurkinR.S.AllenL.D.Burgio (2009). Perceived income inadequacy as a predictor of psychological distress in Alzheimer's caregivers. Psychology and Aging, 24, 177. doi:10.1037/a0014760
53. The Morris Rosenberg Foundation. (2003). Rosenberg self-esteem scale. Retrieved January 22, 2003, http://www.socy.umd.edu/quick-links/rosenberg-self-esteem-scale
54. P.H.VetterS.KraussO.SteinerP.KroppW.D.MollerH.W.MoisesO.Koller (1999). Vascular dementia versus dementia of Alzheimer's type: Do they have differential effects on caregivers' burden?Journals of Gerontology, Series B, 54, S93–S98. doi:10.1093/geronb/54B.2.593
55. C.Williams (2011). Marriage and mental health: When a spouse has Alzheimer's disease. Archives of Psychiatric Nursing, 25, 220–222. doi:10.1016/j.apnu.2011.02.003
56. C.A.YeagerL.A.HyerB.HobbsA.C.Coyne (2010). Alzheimer's disease and vascular dementia: The complex relationship between diagnosis and caregiver burden. Issues in Mental Health Nursing, 31, 376–384. doi:10.3109/01612840903434589
57. S.H.ZaritK.KimE.E.FerniaD.M.AlmeidaJ.SavlaP.C.M.Molenaar (2011). Effects of adult day care on daily stress of caregivers: A within person approach. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 66B, 538–546. doi:10.1093/geronb/gbr030
58. L.ZawadzkiK.MondonN.PeruC.HommetT.ConstansP.GaillardV.Camus (2011). Attitudes towards Alzheimer's disease as a risk factor for caregiver burden. International Psychogeriatrics, 23, 1451–1461. doi:10.1017/S1041610211000640
59. C.ZucchellaM.BartoloC.PasottiL.ChiapellaE.Sinforiani (2012). Caregiver burden and coping in early-stage Alzheimer disease. Alzheimer Disease & Associated Disorders, 26, 55–60. doi:10.1097/WAD.0b013e31821aa6de