메뉴 건너뛰기




Volumn 30, Issue 4, 2017, Pages 774-781

Out of School and Into Distress: Families of Young Adults with Intellectual and Developmental Disabilities in Transition

Author keywords

distress; parents; school; transition

Indexed keywords

ADOLESCENT; ADULT CHILD; DEVELOPMENTAL DISORDER; FEMALE; FOLLOW UP; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; MENTAL STRESS; PARENT; PSYCHOLOGY; SCHOOL; SOCIAL SUPPORT; YOUNG ADULT;

EID: 84973884427     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/jar.12264     Document Type: Article
Times cited : (25)

References (39)
  • 1
    • 60849098896 scopus 로고    scopus 로고
    • Children with disabilities: social roles and family impacts in the NHIS-D
    • Anderson L., Larson S., Lakin C. & Kwak N. (2002) Children with disabilities: social roles and family impacts in the NHIS-D. DD Data Brief 4, 1–12.
    • (2002) DD Data Brief , vol.4 , pp. 1-12
    • Anderson, L.1    Larson, S.2    Lakin, C.3    Kwak, N.4
  • 3
    • 84875814388 scopus 로고    scopus 로고
    • Urban adolescents with intellectual disability and challenging behaviour: costs and characteristics during transition to adult services
    • Barron D. A., Molosankwe I., Romeo R. & Hassiotis A. (2013) Urban adolescents with intellectual disability and challenging behaviour: costs and characteristics during transition to adult services. Health & Social Care In The Community 21, 283–292.
    • (2013) Health & Social Care In The Community , vol.21 , pp. 283-292
    • Barron, D.A.1    Molosankwe, I.2    Romeo, R.3    Hassiotis, A.4
  • 7
    • 84943360346 scopus 로고    scopus 로고
    • Family quality of life during the transition to adulthood for individuals with intellectual disability and/or autism spectrum disorders
    • Boehm T. L., Carter E. W. & Taylor J. L. (2015) Family quality of life during the transition to adulthood for individuals with intellectual disability and/or autism spectrum disorders. American Journal on Intellectual and Developmental Disabilities 120, 395–411.
    • (2015) American Journal on Intellectual and Developmental Disabilities , vol.120 , pp. 395-411
    • Boehm, T.L.1    Carter, E.W.2    Taylor, J.L.3
  • 8
    • 84992814786 scopus 로고    scopus 로고
    • Examining the relationship between stress and lack of social support in mothers of children with autism
    • Boyd B. A. (2002) Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities 17, 208–215.
    • (2002) Focus on Autism and Other Developmental Disabilities , vol.17 , pp. 208-215
    • Boyd, B.A.1
  • 10
    • 0036884487 scopus 로고    scopus 로고
    • Exploring perspectives on transition of youth with disabilities: voices of young adults, parents, and professionals
    • Cooney B. F. (2002) Exploring perspectives on transition of youth with disabilities: voices of young adults, parents, and professionals. Mental Retardation 40, 425–435.
    • (2002) Mental Retardation , vol.40 , pp. 425-435
    • Cooney, B.F.1
  • 11
    • 69049100279 scopus 로고    scopus 로고
    • Transitions from school for young adults with intellectual disability: parental perspectives on “life as an adjustment
    • Davies M. D. & Beamish W. (2009) Transitions from school for young adults with intellectual disability: parental perspectives on “life as an adjustment”. Journal of Intellectual and Developmental Disability 34, 248–257.
    • (2009) Journal of Intellectual and Developmental Disability , vol.34 , pp. 248-257
    • Davies, M.D.1    Beamish, W.2
  • 13
    • 84877827464 scopus 로고    scopus 로고
    • The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life
    • Dyke P., Bourke J., Llewellyn G. & Leonard H. (2013) The experiences of mothers of young adults with an intellectual disability transitioning from secondary school to adult life. Journal of Intellectual and Developmental Disability 38, 149–162.
    • (2013) Journal of Intellectual and Developmental Disability , vol.38 , pp. 149-162
    • Dyke, P.1    Bourke, J.2    Llewellyn, G.3    Leonard, H.4
  • 14
    • 85020575030 scopus 로고
    • c. E.2)., (accessed on 25 02 2016)
    • Education Act (1990, c. E.2). Available at: http://www.ontario.ca/laws/regulation/900306 (accessed on 25 02 2016)
    • (1990)
  • 15
    • 78650471836 scopus 로고    scopus 로고
    • Transition from special education into postschool services for young adults with intellectual disability: Irish parents' experience
    • Gillan D. & Coughlan B. (2010) Transition from special education into postschool services for young adults with intellectual disability: Irish parents' experience. Journal of Policy and Practice in Intellectual Disabilities 7, 196–203.
    • (2010) Journal of Policy and Practice in Intellectual Disabilities , vol.7 , pp. 196-203
    • Gillan, D.1    Coughlan, B.2
  • 16
    • 84970301689 scopus 로고
    • The second shock: a qualitative study of parents' perspectives and needs during their child's transition from school to adult life
    • Hanley-Maxwell C., Whitney-Thomas J. & Pogoloff S. M. (1995) The second shock: a qualitative study of parents' perspectives and needs during their child's transition from school to adult life. Research and Practice for Persons with Severe Disabilities 20, 3–15.
    • (1995) Research and Practice for Persons with Severe Disabilities , vol.20 , pp. 3-15
    • Hanley-Maxwell, C.1    Whitney-Thomas, J.2    Pogoloff, S.M.3
  • 18
    • 65149104374 scopus 로고    scopus 로고
    • Transition from school to adulthood for youth with autism spectrum disorders: review and recommendations
    • Hendricks D. R. & Wehman P. (2009) Transition from school to adulthood for youth with autism spectrum disorders: review and recommendations. Focus on Autism and Other Developmental Disabilities 24, 77–88.
    • (2009) Focus on Autism and Other Developmental Disabilities , vol.24 , pp. 77-88
    • Hendricks, D.R.1    Wehman, P.2
  • 19
    • 0038675205 scopus 로고    scopus 로고
    • From adolescence to young adulthood: the partnership challenge for learning disability services in England
    • Hudson B. (2003) From adolescence to young adulthood: the partnership challenge for learning disability services in England. Disability and Society 18, 259–276.
    • (2003) Disability and Society , vol.18 , pp. 259-276
    • Hudson, B.1
  • 22
    • 37349099742 scopus 로고    scopus 로고
    • Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being
    • Lounds J., Seltzer M. M., Greenberg J. S. & Shattuck P. T. (2007) Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation 112, 401–417.
    • (2007) American Journal on Mental Retardation , vol.112 , pp. 401-417
    • Lounds, J.1    Seltzer, M.M.2    Greenberg, J.S.3    Shattuck, P.T.4
  • 25
    • 0029993701 scopus 로고    scopus 로고
    • Community care for adults with learning disability and their carers: needs and outcomes from the Leicestershire register
    • McGrother C. W., Hauck A., Bhaumik S., Thorp C. & Taub N. (1996) Community care for adults with learning disability and their carers: needs and outcomes from the Leicestershire register. Journal of Intellectual Disability Research 40, 183–190.
    • (1996) Journal of Intellectual Disability Research , vol.40 , pp. 183-190
    • McGrother, C.W.1    Hauck, A.2    Bhaumik, S.3    Thorp, C.4    Taub, N.5
  • 26
    • 65549084007 scopus 로고    scopus 로고
    • Transition satisfaction and family well being among parents of young adults with severe intellectual disability
    • Neece C. L., Kraemer B. R. & Blacher J. (2009) Transition satisfaction and family well being among parents of young adults with severe intellectual disability. Intellectual and Developmental Disabilities 47, 31–43.
    • (2009) Intellectual and Developmental Disabilities , vol.47 , pp. 31-43
    • Neece, C.L.1    Kraemer, B.R.2    Blacher, J.3
  • 28
    • 9444240307 scopus 로고    scopus 로고
    • Economic implications of caregiving at midlife: comparing parents with and without children who have developmental disabilities
    • Parish S. L., Seltzer M. M., Greenberg J. S. & Floyd F. (2004) Economic implications of caregiving at midlife: comparing parents with and without children who have developmental disabilities. Mental Retardation 42, 413–426.
    • (2004) Mental Retardation , vol.42 , pp. 413-426
    • Parish, S.L.1    Seltzer, M.M.2    Greenberg, J.S.3    Floyd, F.4
  • 29
    • 57849123716 scopus 로고    scopus 로고
    • ‘It's the system working for the system’: carers’ experiences of learning disability services in Ireland
    • Power A. (2009) ‘It's the system working for the system’: carers’ experiences of learning disability services in Ireland. Health & Social Care In The Community 17, 92–98.
    • (2009) Health & Social Care In The Community , vol.17 , pp. 92-98
    • Power, A.1
  • 30
    • 37249000856 scopus 로고    scopus 로고
    • Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood
    • Rapanaro C., Bartu A. & Lee A. H. (2008) Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. Journal of Applied Research in Intellectual Disabilities 21, 34–47.
    • (2008) Journal of Applied Research in Intellectual Disabilities , vol.21 , pp. 34-47
    • Rapanaro, C.1    Bartu, A.2    Lee, A.H.3
  • 31
    • 84864850874 scopus 로고    scopus 로고
    • Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability
    • Rehm R. S., Fuentes-Afflick E., Fisher L. T. & Chesla C. A. (2012) Parent and youth priorities during the transition to adulthood for youth with special health care needs and developmental disability. ANS. Advances in Nursing Science 35, E57.
    • (2012) ANS. Advances in Nursing Science , vol.35
    • Rehm, R.S.1    Fuentes-Afflick, E.2    Fisher, L.T.3    Chesla, C.A.4
  • 32
    • 84885147184 scopus 로고    scopus 로고
    • Parental advocacy styles for special education students during the transition to adulthood
    • Rehm R. S., Fisher L. T., Fuentes-Afflick E. & Chesla C. A. (2013) Parental advocacy styles for special education students during the transition to adulthood. Qualitative Health Research 23, 1377–1387.
    • (2013) Qualitative Health Research , vol.23 , pp. 1377-1387
    • Rehm, R.S.1    Fisher, L.T.2    Fuentes-Afflick, E.3    Chesla, C.A.4
  • 34
    • 77954469971 scopus 로고    scopus 로고
    • Statistics Canada, 2011 Census of Population. Ottawa, Ontario. February 4. Availabl at, (accessed on 10 March 2015)
    • Statistics Canada. 2011. Population, urban and rural, by province and territory (Ontario) (table). Census. Statistics Canada, 2011 Census of Population. Ottawa, Ontario. February 4. Availabl at: http://www.statcan.gc.ca/tables-tableaux/sum-som/l01/cst01/demo62g-eng.htm (accessed on 10 March 2015).
    • (2011) Population, urban and rural, by province and territory (Ontario) (table). Census
  • 35
    • 84924798226 scopus 로고    scopus 로고
    • Parent mental health as a mediator of contextual effects on parents with intellectual disabilities and their children
    • Wade C., Llewellyn G. & Matthews J. (2015) Parent mental health as a mediator of contextual effects on parents with intellectual disabilities and their children. Clinical Psychologist 19, 28–38.
    • (2015) Clinical Psychologist , vol.19 , pp. 28-38
    • Wade, C.1    Llewellyn, G.2    Matthews, J.3
  • 36
    • 79960126343 scopus 로고    scopus 로고
    • The brief family distress scale: a measure of crisis in caregivers of individuals with autism spectrum disorders
    • Weiss J. A. & Lunsky Y. (2011) The brief family distress scale: a measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies 20, 521–528.
    • (2011) Journal of Child and Family Studies , vol.20 , pp. 521-528
    • Weiss, J.A.1    Lunsky, Y.2
  • 37
    • 67650998416 scopus 로고    scopus 로고
    • Housing and community living
    • In, 4th edn, (ed., P. Wehman, Brookes, Baltimore
    • West M. D. & Fuller W. E. (2006) Housing and community living. In: Life Beyond the Classroom, 4th edn (ed. P. Wehman), pp. 369–385. Brookes, Baltimore.
    • (2006) Life Beyond the Classroom , pp. 369-385
    • West, M.D.1    Fuller, W.E.2
  • 38
    • 4544349518 scopus 로고    scopus 로고
    • Social and professional support for parents of adolescents with severe intellectual disabilities
    • White N. & Hastings R. P. (2004) Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 17, 181–190.
    • (2004) Journal of Applied Research in Intellectual Disabilities , vol.17 , pp. 181-190
    • White, N.1    Hastings, R.P.2
  • 39
    • 60849087372 scopus 로고    scopus 로고
    • Transition from school for youths with a disability: issues and challenges
    • Winn S. & Hay I. (2009) Transition from school for youths with a disability: issues and challenges. Disability and Society 24, 103–115.
    • (2009) Disability and Society , vol.24 , pp. 103-115
    • Winn, S.1    Hay, I.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.