Urban adolescents with intellectual disability and challenging behaviour: Costs and characteristics during transition to adult services

Health and Social Care in the Community

Volumn 21, Issue 3, 2013, Pages 283-292

  Barron, Diana A ^a   Molosankwe, Iris ^b   Romeo, Renee ^b   Hassiotis, Angela ^a  

^a ROYAL FREE AND UNIVERSITY COLLEGE MEDICAL SCHOOL   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Care packages; Challenging behaviour; Costs; Economics; Intellectual disabilities; Mental health; Transition to adulthood

Indexed keywords

ADOLESCENT; ARTICLE; COST; ECONOMICS; FEMALE; HEALTH SERVICE; HUMAN; INTELLECTUAL IMPAIRMENT; MALE; MENTAL DISEASE; ORGANIZATION AND MANAGEMENT; PRENATAL DEVELOPMENT; SOCIAL WORK; SOCIOECONOMICS; STATISTICAL MODEL; STATISTICS; UNITED KINGDOM; URBAN POPULATION;

ADOLESCENT; COSTS AND COST ANALYSIS; FEMALE; HEALTH SERVICES ADMINISTRATION; HUMANS; INTELLECTUAL DISABILITY; LONDON; MALE; MENTAL DISORDERS; MODELS, ECONOMIC; SOCIAL WORK; SOCIOECONOMIC FACTORS; URBAN POPULATION;

EID: 84875814388     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12015     Document Type: Article

References (41)

1. Abbott D. & Heslop P. (2009) Out of sight, out of mind? Transition for young people with learning difficulties in out-of-area residential special schools and colleges. British Journal of Special Education36, 45-54.
2. Allen D.G., Lowe K., Moore K. & Brophy S. (2007) Predictors, costs and characteristics of out of area placements for people with intellectual disability and challenging behaviour. Journal of Intellectual Disability Research51, 409-416.
3. Andrea Barron D.R. & Hassiotis A. (2008) Good practice in transition services for young people with learning disabilities: a review. Advances in Mental Health and Learning Disabilities2, 18-22.
4. Beecham J. & Knapp M. (2001) Costing psychiatric interventions. In: G. Thornicroft (Ed.) Measuring Health Needs, 2nd edn., pp. 200-224. Gaskell, London.
5. Beyer S., Kaehne A., Grey J., Sheppard K. & Meek A. (2008) What Works? - Transition to Employment for Young People with Learning Disabilities. Shaw Trust, Chippenham, UK.
6. Curtis L. (2007) Unit Costs of Health and Social Care 2007. Personal Social Services Research Unit. The University of Kent, Canterbury.
7. Department for Education (2010) Promoting educational achievement. Available at: http://www.education.gov.uk/childrenandyoungpeople/families/childrenincare/a0065714/promoting-educational-achievement (accessed on 28/12/2012).
8. Department of Children, Schools & Families (2009) Pupil absence in schools in England, including Pupil characteristics: 2007/08. Available at: http://www.dcsf.gov.uk/rsgateway/DB/SFR/s000832/index.shtml (accessed on 28/12/2012).
9. Department of Health (1989) Caring for people: community care in the next decade and beyond. Presented to Parliament by the Secretaries of State for Health, Social Security, Wales and Scotland by Command of Her Majesty November 1989. para. 2.3.
10. Department of Health (2004) National Service Framework for Children, Young People & Maternity Services: Standard 8: Disabled Children & Young People & those with Complex Health Needs. Department of Health, Department of Skills & Education, London.
11. Department of Health (2006) Transition: Getting it Right for Young People, Improving the Transition of Young People with Long Term Conditions from Children's to Adult Health Services. Child Health and Maternity Services Branch, London.
12. Department of Health (2009a) National schedule of reference costs 2008-09. Available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_111591 (accessed on 28/12/2012).
13. Department of Health (2009b) Valuing employment now - real jobs for people with learning disabilities. Available at: http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_101401 (accessed on 28/12/2012).
14. Department of Health (2011) Fourteenth report on the development of services for people with learning disabilities or mental illness in England. Available at: http://services.parliament.uk/hansard/Commons/ByDate/20101014/writtenministerialstatements/part005.html (accessed on 28/12/2012).
15. Einfeld S.L., Ellis L.A. & Emerson E. (2011) Comorbidity of intellectual disability and mental disorder in children and adolescents: a systematic review. Journal of Intellectual & Developmental Disability36 (2), 137-143.
16. Emerson E. (1995) Challenging Behaviour: Analysis and Intervention with People with Learning Difficulties. Cambridge University Press, Cambridge.
17. Emerson E. (2005) Use of the Strengths and Difficulties Questionnaire to assess the mental health needs of children and adolescents with intellectual disabilities. Journal of Intellectual & Developmental Disability30, 14-23.
18. Emerson E. & Hatton C. (2007) Mental health of children and adolescents with intellectual disabilities in Britain. The British Journal of Psychiatry191, 493-499.
19. Emerson E., Kiernan C., Alborz A. et al. (2001) The prevalence of challenging behaviours: a total population study. Research in Developmental Disabilities22, 77-93.
20. Emerson E., Malam S., Davis I., Spencer K. (2005) Adults with Intellectual Difficulties in England 2003/4. National Statistics, NHS Health and Social Care, Information Centre, London.
21. Felce D., Lowe K., Perry J., Baxter H., Jones E., Hallam A. & Beecham J. (1998) Service support for people with severe intellectual disability and the most challenging behaviours in Wales: processes, outcomes and costs. Journal of Intellectual Disability Research42, 639-652.
22. Goodman R. (1997) The Strengths and Difficulties Questionnaire: a research note. Journal of Child Psychology and Psychiatry38, 581-586.
23. Green J., Jacobs B., Beecham J., Dunn G., Kroll L., Tobias C. & Briskman J. (2007) Inpatient treatment in child and adolescent psychiatry - a prospective study of health gain and costs. Journal of Child Psychology and Psychiatry48, 1259-1267.
24. Harris P. (1993) The nature and extent of aggressive behaviour amongst people with learning difficulties (mental handicap) in a single health district. Journal of Intellectual Disability Research37, 221-242.
25. Hassiotis A. & Andrea Barron D. (2007) Mental health, intellectual disabilities and adolescence: a developmental perspective. Advances in Mental Health and Learning Disabilities1, 33-39.
26. Hassiotis A., Parkes C., Jones L., Fitzgerald B. & Romeo R. (2008) Individual characteristics and service expenditure on challenging behaviour for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities21, 438-445.
27. Holden B. & Gitlesen J.P. (2006) A total population study of challenging behaviour in the county of Hedmark, Norway: prevalence and risk markers. Research in Developmental Disabilities27, 456-65.
28. Kiernan C. & Qureshi H. (1993) Challenging behaviour. In: C. Kiernan (Ed.) Research to Practice? Implications of Research on the Challenging Behaviour of People with Intellectual Disabilities, pp. 53-85. British Institute of Intellectual Disabilities, Kidderminster.
29. Knapp M., Comas-Herrera A., Astin J., Beecham J. & Pendaries C. (2005) Intellectual disability, challenging behaviour and cost in care accommodation: what are the links? London: LSE Research Articles Online. Available at: http://eprints.lse.ac.uk/archive/00000336/ (accessed on 28/12/2012).
30. LeMesurier N., Bathia N., Deb S. & Unwin G.L. (2007) Guide to Services for Young People with Learning Difficulties/Disabilities and Mental Health Problems/Challenging Behaviour: Technical Document. University of Birmingham. Available at: http://www.ldtransitionguide.bham.ac.uk/downloads.shtml (accessed 28/12/2012).
31. Lowe K., Allen D., Jones E., Brophy S., Moore K. & James W. (2007) Challenging Behaviours: prevalence and topographies. Journal of Intellectual Disability Research, 51(8), 625-636.
32. McGill P., Papachristoforou E. & Cooper V. (2006) Support for family carers of children and young people with developmental disabilities and challenging behaviour. Child: Care, Health & Development32, 159-165.
33. Nachshen J.S., Martin-Storey A., Campisi L., Stack D., Schwartzman A. & Serbin L. (2009) Health and psychiatric disparities in children with cognitive and developmental delays: implications for health policy in Quebec. Journal of Applied Research in Intellectual Disabilities, 22, 248-255.
34. Prosser H., Moss S., Costello H., Simpson N., Patel P. & Rowe S. (1998) Reliability and validity of the Mini PAS-ADD for assessing psychiatric disorders in adults with intellectual disability. Journal of Intellectual Disability Research42, 264-272.
35. Romeo R. & Molosankwe I. (2010) Economic evidence in intellectual disabilities: a review. Current Opinion in Psychiatry23, 427-431.
36. Romeo R., Knapp M., Morrison J., Melville C., Allan L., Finlayson J. & Cooper S. (2009) Cost estimation of a health screening intervention for persons with learning disabilities in the United Kingdom. Journal of Intellectual Disability Research53, 426-439.
37. Singh P.S., Paul M., Ford T. et al. (2010) Process, outcome and experience of transition from child to adult mental healthcare: multiperspective study. The British Journal of Psychiatry197, 305-312.
38. Strydom A., Romeo R., Perez-Achiaga N., Livingston G., King M., Knapp M. & Hassiotis A. (2010) Service use and cost of mental disorder in older adults with intellectual disability. British Journal of Psychiatry196, 133-138.
39. Totsika V., Toogood S., Hastings R.P. & Lewis S. (2008) Persistence of challenging behaviours in adults with intellectual disability over a period of 11years 2. Journal of Intellectual Disability Research52, 446-457.
40. United Kingdom (2000) Learning and skills act 2000.
41. Wimo A., Winblad B. & Jönsson L. (2010) The worldwide societal costs of dementia: estimates for 2009. Alzheimer's & Dementia6, 98-103.