Factors influencing changes in health related quality of life of caregivers of persons with multiple chronic conditions

Health and Quality of Life Outcomes

Volumn 14, Issue 1, 2016, Pages

  Duggleby, Wendy ^a   Williams, Allison ^b   Ghosh, Sunita ^a   Moquin, Heather ^a   Ploeg, Jenny ^b   Markle Reid, Maureen ^b   Peacock, Shelley ^c  

^a UNIVERSITY OF ALBERTA   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c UNIVERSITY OF SASKATCHEWAN   (Canada)

Author keywords

Caregivers; Gender identity; General self efficacy; Quality of life

Indexed keywords

ADULT; ARTICLE; CANADA; CAREGIVER; CAREGIVER BURDEN; CHRONIC DISEASE; CONCEPTUAL FRAMEWORK; DEMOGRAPHY; ELDERLY CARE; FEMALE; FITNESS; GENDER IDENTITY; HUMAN; MALE; MENTAL HEALTH; OUTCOME ASSESSMENT; QUALITY OF LIFE; SECONDARY ANALYSIS; SELF CONCEPT; AGED; ALBERTA; COMPARATIVE STUDY; COPING BEHAVIOR; FAMILY; MIDDLE AGED; NURSING; ONTARIO; PSYCHOLOGY; SEX DIFFERENCE; SOCIOECONOMICS; TIME FACTOR; VERY ELDERLY;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; ALBERTA; CAREGIVERS; CHRONIC DISEASE; FAMILY; FEMALE; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; ONTARIO; QUALITY OF LIFE; SELF CONCEPT; SELF EFFICACY; SEX FACTORS; SOCIOECONOMIC FACTORS; TIME FACTORS;

EID: 84973333056     PISSN: None     EISSN: 14777525     Source Type: Journal    
DOI: 10.1186/s12955-016-0486-7     Document Type: Article

References (75)

1. Sinha M. Portrait of caregivers. Social and Aboriginal Statistics Division. Ottawa: Statistics Canada; 2012. p. 1-21.
2. Canadian Institutes of Health Information Seniors and the Health Care System: What is the impact of multiple chronic conditions. CIHI 2011. https//www.Secure.cihi.ca/free_publications/air-chronicdisease. Accessed 24 May 2016.
3. Schulz R, Beach S. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA. 1999;282(23):2215-9.
4. Yang X, Hao Y, George SM, Wang L. Factors associated with health-related quality of life among Chinese caregivers of the older adults living in the community: a cross-sectional study. Health Qual Life Outcomes. 2012;10(1):143.
5. Norris SL, High K, Gill TM, Hennessy S, Kutner JS, Reuben DB, Unützer J, Landefeld CS. Health care for older Americans with multiple chronic conditions: a research agenda. J Am Geriatr Soc. 2008;56:149-59.
6. Saunders MM. Factors associated with caregiver burden in heart failure family caregivers. Western J Nurs Res. 2008;30(8):943-59.
7. Schulz R, Martire LM. Family caregiving of persons with dementia: prevalence, health effects and support strategies. Am J Geriatr Psychiatry. 2004;12(3):240-9.
8. Peters M, Jenkinson C, Doll H, Playford ED, Fitzpatrick R. Carer quality of life and experiences of health services: a cross-sectional survey across three neurological conditions. Health Qual Life Outcomes. 2013;11(103):1-8.
9. van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de JB. Risk factors for burn-out in caregivers of stroke patients and possibilities for intervention. Clin Rehabil. 2001;15:669-77.
10. Parekh AK, Goodman RA, Gordon C, Koh HK. Managing multiple chronic conditions: a strategic framework for improving health outcomes and quality of life. Public Health Rep. 2011;126(4):460-71.
11. Arnsberger P, Lynch U, Li F. The effects of caregiving on women's self-assessed health status: an international comparison. Health Care Women Int. 2012;33(10):878-95.
12. Akosile CO, Okoye EC, Nwankwo MJ, Akosile CO, Mbada CE. Quality of life and its correlates in caregivers of stroke survivors from a Nigerian population. Qual Life Res. 2011;20(9):1379-84.
13. Larson J, Franzén-Dahlin Å, Billing E, von Arbin M, Murray V, Wredling R. The impact of gender regarding psychological well-being and general life situation among spouses of stroke patients during the first year after the patients' stroke event: A longitudinal study. Int J Nurs Stud. 2008;45(2):257-65.
14. Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2006;61(1):33-45.
15. Ashley NR, Kleinpeter CH. Gender differences in coping strategies of spousal dementia caregivers. J Hum Behav Soc Environ. 2002;6(2):29-46.
16. Gibbons C, Creese J, Tran M, Brazil K, Chambers L, Weaver B, Bédard M. The psychological and health consequences of caring for a spouse with dementia: A critical comparison of husbands and wives. J Women Aging. 2014;26(1):3-21.
17. Kao HF, McHugh ML. The role of caregiver gender and caregiver burden in nursing home placements for elderly Taiwanese survivors of stroke. Res Nurs Health. 2004;27(2):121-34.
18. Kim H, Chang M, Rose K, Kim S. Predictors of caregiver burden in caregivers of individuals with dementia. J Adv Nurs. 2012;68(4):846-55.
19. Tommis Y, Seddon D, Woods B, Robinson CA, Reeves C, Russell IT. Rural-urban differences in the effects on mental well-being of caring for people with stroke or dementia. Aging Ment Health. 2007;11(6):743-50.
20. Neri AL, Yassuda MS, Fortes-Burgos ACG, Mantovani EP, Arbex FS, de Souza Torres SV, Perracini MR, Guariento ME. Relationships between gender, age, family conditions, physical and mental health, and social isolation of elderly caregivers. Int Psychogeriatr. 2012;24(3):472-83.
21. Wang XR, Robinson KM, Carter-Harris L. Prevalence of chronic illnesses and characteristics of chronically ill informal caregivers of persons with dementia. Age Aging. 2014;43(1):137-41.
22. Lim YM, Son GR, Song JA, Beattie E. Factors affecting burden of family caregivers of community-dwelling ambulatory elders with dementia in Korea. Arch Psychiatr Nurs. 2008;22(4):226-34.
23. Carter JH, Lyons KS, Stewart BJ, Archbold PG, Scobee R. Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson's disease. Mov Disord. 2010;25(6):724-30.
24. Harwood D, Barker W, Ownby RL, Bravo M, Aguero H, Duara R. Predictors of positive and negative appraisal among Cuban American caregivers of Alzheimer's disease patients. Int J Geriatr Psychiatry. 2000;487(July 1998):481-7.
25. McCullagh E, Bridgstocke G, Donaldson N, Kalra L. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36:2181-6.
26. Rinaldi P, Spazzafumo L, Mastriforti R, Mattioli P, Marvadi M, Polidori M, Cherubini A, Abate G, Bartorelli L, Bonaiuto S, et al. Predictors of high level of burden and distress in caregivers of demented patients: Results of an Italian multicenter study. Int J Geriatr Psychiatry. 2005;20(2):168-74.
27. Chung MH, Hsu N, Wang YC, Lai KL, Kao S. Exploration into the variance in self-reported health-related quality of life between the chronically-ill elderly and their family caregivers. J Nurs Res. 2007;15(3):175-82.
28. Calasanti T, Bowen ME. Spousal caregiving and crossing gender boundaries: Maintaining gendered identities. J Aging Stud. 2006;20:253-63.
29. Bowers SP. Gender role identity and the caregiving experience of widowed men. Sex Roles. 1999;41(9/10):645-55.
30. Davidson K, Arber S, Ginn J. Gendered meanings of care work within late life marital relationships. Can J Aging. 2000;19(4):536-53.
31. Au A, Lau KM, Sit E, Cheung G, Lai MK, Wong SKA, Fok D. The role of self-efficacy in the Alzheimer's family caregiver stress process: A partial mediator between physical health and depressive symptoms. Clin Gerontol. 2010;33(4):298-315.
32. Duggleby WD, Doell H, Cooper D, Thomas R, Ghosh S. The quality of life of male spouses of women with breast cancer: Hope, self-efficacy, and perceptions of guilt. Cancer Nurs. 2013;37(1):E28-35.
33. Márquez-González M, Losada A, López J, Peñacoba C. Reliability and validity of the Spanish version of the Revised Scale for Caregiving Self-Efficacy. Clin Gerontol. 2009;32(4):347-57.
34. Fortinsky R, Kercher K, Burant C. Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging Ment Health. 2002;6(2):153-60.
35. Gallagher D, Ni Mhaolain A, Crosby L, Ryan D, Lacey L, Coen RF, Walsh C, Coakley D, Walsh JB, Cunningham C, et al. Self-efficacy for managing dementia may protect against burden and depression in Alzheimer's caregivers. Aging Ment Health. 2011;15(6):663-70.
36. Gilliam CM, Steffen AM. The relationship between caregiving self-efficacy and depressive symptoms in dementia family caregivers. Aging Ment Health. 2006;10(2):79-86.
37. Rabinowitz YG, Saenz EC, Thompson LW, Gallagher-Thompson D. Understanding caregiver health behaviors: depressive symptoms mediate caregiver self-efficacy and health behavior patterns. Am J Alzheimers Dis Other Demen. 2011;26(4):310-6.
38. Lopez J, Romero-Moreno R, Marquez-González M, Losada A. Spirituality and self-efficacy in dementia family caregiving: trust in God and in yourself. Int Psychogeriatr. 2012;24(12):1943-52.
39. Garlo K, O'Leary JR, Ness PHV, Fried TR. Burden in caregivers of older adults with advanced illness. J Am Geriatr Soc. 2010;58:2315-22.
40. Moretti R, Torre P, Antonello RM, Cazzato G, Bava A. Depression and Alzheimer's disease: Symptom or comorbidity? Am J Alzheimers Dis Other Demen. 2002;17(6):338-44.
41. Van Puymbroeck M, Hinojosa MS, Rittman MR. Influence of sense of coherence on caregiver burden and depressive symptoms at 12 months poststroke. Top Stroke Rehabil. 2008;15(3):272-82.
42. Parrish M, Adams S. Caregiver comorbidity and the ability to manage stress. J Gerontol Soc Work. 2004;42(1):41-57.
43. Mausbach BT, Roepke SK, Chattillion EA, Harmell AL, Moore R, Romero-Moreno R, Bowie CR, Grant I. Multiple mediators of the relations between caregiving stress and depressive symptoms. Aging Ment Health. 2012;16(1):27-38.
44. Schreiner AS, Morimoto T, Arai Y, Zarit S. Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit Burden Interview. Aging Ment Health. 2006;10(2):107-11.
45. Morimoto T, Schreiner AS, Asano H. Caregiver burden and health-related quality of life among Japanese stroke caregivers. Age Aging. 2003;32:218-23.
46. Riedijk SR, De Vugt ME, Duivenvoorden HJ, Niermeijer MF, Van Swieten JC, Verhey FRJ, Tibben A. Caregiver burden, health-related quality of life and coping in dementia caregivers: A comparison of Frontotemporal dementia and Alzheimer's disease. Dement Geriatr Cogn Disord. 2006;22:405-12.
47. Hughes SL, Giobbie-Hurder A, Weaver FM, Kubal JD, Henderson W. Relationship between caregiver burden and health-related quality of life. Gerontologist. 1999;39(5):534-45.
48. Rees J, O'Boyle C, MacDonagh R. Quality of life: Impact of chronic illness on the partner. J Royal Soc Med. 2001;94:563-6.
49. McPherson CJ, Wilson KG, Chyurlia L, Leclerc C. The caregiving relationship and quality of life among partners of stroke survivors: A cross-sectional study. Health Qual Life Outcomes. 2011;9(29):1-10.
50. Canam C, Acorn S. Quality of life for family caregivers of people with chronic health problems. Rehabil Nurs. 1999;24(5):192-6.
51. Vickrey BG, Hays RD, Maines ML, Vassar SD, Fitten J, Strickland T. Development and preliminary evaluation of a quality of life measure targeted at dementia caregivers. Health Qual Life Outcomes. 2009;7(56):1-12.
52. Duggleby WD, Swindle J, Peacock S, Ghosh S. A mixed methods study of hope, transitions, and quality of life in family caregivers of persons with Alzheimer's disease. BMC Geriatr. 2011;11(88):1471-2318.
53. Roach AR, Averill AJ, Segerstrom SC, Kasarskis EJ. The dynamics of qualify of life in ALS patients and caregivers. Ann Behav Med. 2009;37(2):197-206.
54. Woo J, Lo R, Cheng JOY, Wong F, Mak B. Quality of end-of-life care for non-cancer patients in a non-acute hospital. J Clin Nurs. 2011;20(13-14):1834-41.
55. McConaghy R, Calabiano ML. Caring for a person with dementia: Exploring relationships between perceived burden, depression, coping and well-being. Nurs Health Sci. 2005;7:81-91.
56. Ghosh S, Yong W, Williams A, Duggleby WD, Ploeg J, Markle-Reid M, Peacock S. The association between caregiver burden and age, gender, residence, education and social intrusion in caregivers of older adults with multiple chronic conditions. Can J Aging submitted March. 2016;11.
57. Vilagut G, Forero CG, Pinto-Meza A, Haro JM, de Graf R, Bruffaerts R, Kovess V, de Girolamo G, Matschinger H, Ferrer M, et al. The mental component of the short-form 12 health survey (SF-12) as a measure of depressive disorders in the general population: Results with three alternative scoring methods. Value Health. 2013;16(4):564-73.
58. Scuffman PA, Synnott R, Turkstra E, Hegney D. Present and past carers' health: Some considerations. Int J Nurs Pract. 2010;16(6):609-15.
59. Cheak-Zamora N, Wyrwich K, McBride T. Reliability and Validy of the SF12v2 in the medical expenditure panel survey. Qual Life Res. 2009;18(6):727-35.
60. Ware J, Kosiniski M, Keller S. SF-12. How to score the SF-12 Physical and mental heatlh summary scale. 3rd ed. Lincoln RI: Quality Metric Incorporated; 1998.
61. Luszcaynska A, Gutierrez-Dona B, Schwarzer R. Generalized self-efficacy in various domains of human functioning: evidence from five countries. Int J Psychol. 2005;40(2):80-9.
62. Leganger A, Kraft P, Roysamb E. Perceived self-efficacy in health behaviour research: conceptualisation, measurement and correlates. Psychol Health. 2000;15(1):51-69.
63. Hérbert R, Bravo G, Préville M. Reliability, validity, and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Can J Aging. 2000;19:494-507.
64. Bédard M, Molloy DW, Squire L, Dubois S, Lever JA, O'Donnell M. The Zarit Burden Interview: A new short version and screening version. Gerontologist. 2001;41(5):652-7.
65. Vafaei A, Alvarado B, Tomás C, Muro C, Martinez B, Zunzunegui MV. The validity of the 12-item Bem Sex Role Inventory in older Spanish population: An examination of the androgyny model. Arch Gerontol Geriatr. 2014;59(2):257-63. doi: 10.1016/j.archger.2014.05.012.
66. Ohm SC, Auster C. J.: Masculinity and femininity in contemporary American society: A re-evaluation using the Bem sex-role inventory. Sex Roles. 2000;43(7/8):499-28.
67. Cohen J. Statistical power analysis for the behavioral sciences. New York: Academic; 1977.
68. Neder JA, Wedderburn R. Generalized linear models. J Res Stat Soc Ser A (General). 1972;135(3):370-84.
69. Hopman WM, Towheed T, Anastassiades T, Tenehourse A, Poliquin S, Berger C, Joseph L, Brown JP, Murray TM, Adachi JD, et al. Canadian normative data for the SF-36 health survey. CMAJ. 2000;8(163):265-71.
70. Pinquart M, Sorensen S. Correlates of physical health of informal caregivers: a meta-anaylsis. J Gerontol. 2007;62B(2):126-P137.
71. Romero-Moreno R, Losada A, Mausbach BT, Márquez-González M, Patterson TL, López J. Analysis of the moderating effect of self-efficacy domains in different points of the dementia caregiving process. Aging Ment Health. 2011;15(2):221-31.
72. Romero-Moreno R, Márquez-González M, Mausbach BT, Losada A. Variables modulating depression in dementia caregivers: a longitudinal study. Int Psychogeriatr. 2012;24(8):1316-24.
73. Graves K. Social cognitive theory and cancer patients' quality of life: A meta-analysis of psychosocial intervention components. Health Psych. 2003;22(2):210-9.
74. Duggleby WD, Williams A, Cooper D, Holtslander L, Ghosh S, Hallstrom L, Thomas R. Evaluation of the Living with Hope Program for rural women caregivers of persons with advanced cancer. BMC Palliat Care. 2013;12(1):36.
75. Lim J-W, Zebrack B. Caring for family members with chronic physical illness: A critical review of caregiver literature. Health Qual Life Outcomes. 2004;2(50):1-9.