Factors associated with caregiver burden in heart failure family caregivers

Western Journal of Nursing Research

Volumn 30, Issue 8, 2008, Pages 943-959

  Saunders, Mitzi M ^a  

^a UNIVERSITY OF DETROIT MERCY   (United States)

Author keywords

Caregiver burden; Family caregiving; Heart failure; Heart failure caregiving

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; ANALYSIS OF VARIANCE; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; COST OF ILLNESS; CROSS-SECTIONAL STUDY; DEPRESSION; EDUCATION; FAMILY; FEMALE; HEART FAILURE; HOME CARE; HOSPITALIZATION; HUMAN; MALE; MIDDLE AGED; NURSING; NURSING METHODOLOGY RESEARCH; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; REGRESSION ANALYSIS; WORKLOAD;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; ANALYSIS OF VARIANCE; ATTITUDE TO HEALTH; CAREGIVERS; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DEPRESSION; FAMILY; FEMALE; HEART FAILURE; HOME NURSING; HUMANS; MALE; MIDDLE AGED; NURSING METHODOLOGY RESEARCH; QUESTIONNAIRES; REGRESSION ANALYSIS; SEVERITY OF ILLNESS INDEX; WORKLOAD;

EID: 55449091464     PISSN: 01939459     EISSN: 15528456     Source Type: Journal    
DOI: 10.1177/0193945908319990     Document Type: Article

References (45)

1. Alfred, H., Gott, M., & Gariballa, S. (2005). Advanced heart failure: impact on older patients and informal carers. Journal of Advanced Nursing, 49 (2). 116-124.
2. American Heart Association. (2006). Heart and stroke statistics-2006 update. Dallas, TX: Author.
3. Andresen, E.M., Malmgren, J.A., Carter, W.B., & Patrick, D.L. (1994). Screening for depression in well older adults: Evaluation of a short form of the CES-D. American Journal of Preventative Medicine, 10, 77-84.
4. Artinian, N.T. (2003). The psychosocial aspects of heart failure: depression and anxiety can exacerbate the already devastating effects of the disease. American Journal of Nursing, 103 (12). 32-42.
5. Artinian, N.T., Artinian, C.G., & Saunders, M.M. (2004). Identifying and treating depression in patients with heart failure. Journal of Cardiovascular Nursing, 19 (6S). S47 - S56.
6. Bakas, T., Pressler, S.J., Johnson, E.A., Nauser, J.A., & Shaneyfelt, T. (2006). Family caregiving in heart failure. Nursing Research, 55 (3). 180-188.
7. Barry, M.B., Fortinsky, R.H., Kearney, L., Kleppinger, A., & Hager, D. (2006). Heart failure caregivers: an assessment of burden and concern. Journal of Cardiac Failure, 12 (6). S5.
8. Bosworth, H.B., Steinhauser, K.E., Orr, M., Lindquist, J.H., Grambow, S.C., & Oddone, E.Z. (2004). Congestive heart failure patients' perceptions of quality of life: the integration of physical and psychosocial factors. Aging and Mental Health, 8 (1). 83-91.
9. Braunstein, J.B., Anderson, G.F., & Gerstenblith, G. (2003). Noncardiac co-morbidity increases preventable hospitalizations and mortality among Medicare beneficiaries with chronic heart failure. Journal of the American College of Cardiology, 42 (7). 1226-1233.
10. Brostrom, A., Stromberg, A., Dahlstrom, U., & Fridlund, B. (2003). Congestive heart failure, spouses' support and the couple's sleep situation: a critical incident technique analysis. Journal of Clinical Nursing, 12 (2). 223-233.
11. Bull, M.J., Hansen, H.E., & Gross, C.R. (2000). Differences in family caregiver outcomes by their level of involvement in discharge planning. Applied Nursing Research, 13 (2). 76-82.
12. Clark, P.C., & Dunbar, S.B. (2003). Family partnership intervention: A guide for a family approach to care of patients with heart failure. AACN Clinical Issues Advanced Practice in Acute Critical Care, 14 (4). 467-476.
13. Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2 nd ed.). Hillsdale, NJ: Erlbaum.
14. D'Alto, M., Pacileo, G., & Calabro, R. (2003). Nonpharmacologic care of heart failure: Patient, family and hospital organization. American Journal of Cardiology, 91, 51F - 54F.
15. Deeken, J.F., Taylor, K.L., Mangan, P. Yabroff, K.R., & Ingham, J.M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26 (4). 922-953.
16. Dracup, K., Evangelista, L.S., Doering, L., Tullman, D., Moser, D.K., & Hamilton, M. (2004). Emotional well-being in spouses of patients with advanced heart failure. Heart & Lung: The Journal of Acute and Critical Care, 33 (6). 354-361.
17. Dunbar, D.B., Clark, P.C., Deaton, C., Smith, A.L., De, A.K., & O'Brien, M.C. (2005). Family education and support interventions in heart failure: a pilot study. Nursing Research, 54 (3). 158-166.
18. Fried, T., Bradley, E.H., O'Leary, J.R., & Byers, A.L. (2005). Un-met desire for caregiver-patient communication and increased caregiver burden. Journal by the American Geriatrics Society, 53, 59-65.
19. George, L.K., & Gwyther, L.P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253-259.
20. Given, B., Wyatt, G., Given, C., Sherwood, P., Gift, A., DeVoss, D., et al. (2004). Burden and depression among caregivers of patients with cancer at the end of life. Oncology Nursing Forum, 31 (6). 1105-1115.
21. Given, C.W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment for caregivers of persons with chronic physical and mental impairments. Research in Nursing and Health, 15, 271-283.
22. Harkness, K.I., & Tranmer, J.E. (2007). Measurement of the caregiving experience in caregivers of persons living with heart failure: a review of current instruments. Journal of Cardiac Failure, 13 (7). 577-587.
23. Hooley, P.J., Butler, G., & Howlett, G.J. (2005). The relationship of quality of life, depression, and caregiver burden in outpersons with congestive heart failure. Congestive Heart Failure, 11, 303-310.
24. Hunt, C.K. (2003). Concepts in caregiver research. Journal of Nursing Scholarship, 35 (1). 27-32.
25. Jaarsma, T., Stromberg, A., De Geest, S., Fridlund, B., Heikkila, J., Martensson, J., et al. (2006). Heart failure management programmes in Europe. European Journal of Cardiovascular Nursing, 5, 197-205.
26. Kalra, L., Evans, A., Perez, I., Melbourn, A., Patel, A., Knapp, M., et al. (2004). Training carers of stroke patients: Randomised controlled trial. British Medical Journal, 328, 1-5.
27. Karmilovich, S.E. (1994). Burden and stress associated with spousal caregiving for individuals with heart failure. Progress in Cardiovascular Nursing, 9 (1). 33-38.
28. Kutzleb, J., & Reiner, D. (2006). The impact of nurse-directed patient education on quality of life and functional capacity in people with heart failure. Journal of the Academy of Nurse Practitioners, 18, 116-123.
29. Luttik, M.L., Jaarsma, T., Veeger, N., Tijssen, J., Sanderman, R., & van Veldhuisen, D. (2007). Caregiver burden in partners of heart failure patients: Limited influence of disease severity. European Journal of Heart Failure, 9 (6-7). 695-701.
30. Martensson, J., Dracup, K., & Fridlund, B. (2001). Decisive situations influencing spouses' support of patients with heart failure: A critical incident technique analysis. Heart and Lung, 30 (5). 341-350.
31. Molloy, G.J., Johnston, D.W., & Witham, M.D. (2005). Family caregiving and congestive heart failure: review and analysis. The European Journal of Heart Failure, 7, 592-603.
32. Murray, S.A., Kendall, M., Boyd, K., Worth, A., & Benton, T.F. (2004). Exploring the spiritual needs of people dying of lung cancer and heart failure: A prospective qualitative interview study of patients and their carers. Palliative Medicine, 18, 39-45.
33. National Alliance for Caregiving and AARP. (2004). Caregiving in the U.S.: Findings from a national survey. Bethesda, MD: Author.
34. Nunnally, J.C. (1967). Psychometric theory. New York: McGraw-Hill.
35. Pattenden, J.F., Roberts, H., & Lewin, R.J.P. (2007). Living with heart failure: Patient and caregiver perspectives. European Journal of Cardiovascular Nursing, 6 (4). 273-279.
36. Polit, D.F., Beck, C.T., & Hungler, B.P. (2001). Essentials of nursing research method, appraisal, and utilization (5 th ed.). Philadelphia: Lippincott Williams & Wilkins.
37. Radloff, L.S. (1977). The CES-D Scale: A self-report depression scale for research in general population. Applied Psychological Measurement, 1, 385-401.
38. Saunders, M.M. (2003). Family caregivers need support with heart failure patients. Holistic Nursing Practice, 17 (3). 136-142.
39. Schulz, R., & Beach, S.R. (1999). Caregiving as a risk factor for mortality. Journal of the American Medical Association, 282 (23). 2215-2219.
40. Schwarz, K.A., & Elman, C.S. (2003). Identification of factors predictive of hospital readmissions for patients with heart failure. Heart and Lung, 32 (2). 88-99.
41. Scott, L.D. (2000). Caregiving and care receiving among a technologically dependent heart failure population. Advances in Nursing Science, 23 (2). 82-97.
42. Stewart, S., Vandenbroek, A.J., Pearson, S., & Horowitz, J.D. (1999). Prolonged beneficial effects of a home-based intervention on unplanned readmissions and mortality among patients with congestive heart failure. Archives of Internal Medicine, 159, 257-261.
43. U.S. Department of Health and Human Services. (2000). Health people 2010: Conference editions volume I and II. Washington, DC: Author.
44. Vitaliano, P.P., Zhang, J., & Scanlan, J.M. (2003). Is caregiving hazardous to one's physical health ? Psychological Bulletin, 129, 946-972.
45. Watson, D., & Pennebaker, J.W. (1989). Health complaints, stress, and distress: Exploring the central role of negative affectivity. Psychological Review, 96 (2). 234-254.